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        New Message Board Archives >> 2003 Posts >> Why are we so cynical and pessimistic?
        
(Message started by: Patrick_A on Dec 17^th, 2003, 11:27pm)

Title: Why are we so cynical and pessimistic?
Post by Patrick_A on Dec 17^th, 2003, 11:27pm

Everytime someone new comes on the board and mentions a product or an amazing cure that has helped them, Why are we so quick to blast them?
I know some people have tried to sell quick fixes, and to them, I have nothing to say! But not everyone is trying to sell us something. Some people actually care. I think we should give people a chance to speak their piece, and if it sounds like bullshit, or if they are trying to sell us some garbage, Then we unload on them!

Just my 2 cents, Patrick

Title: Re: Why are we so cynical and pessimistic?
Post by BlueMeanie on Dec 17^th, 2003, 11:35pm

You are right. For me, I think it is just because of the fact I've tried everything out there. (approved medical) and nothing works. I guess I have it in the head that nothing is ever gonna work.

Title: Re: Why are we so cynical and pessimistic?
Post by Linda_Howell on Dec 17^th, 2003, 11:37pm

If you are referring to "snake-oil salesmen" beware started by Ree then I can only tell you one thing.

It's because we have seen this over and over and over again and we(all of us combined) know when we're being scammed.

If however you are NOT talking about that post, then I ask you to explain and I will be more than happy to apologize to you.

in a really bad mood here. Luinda

Title: Re: Why are we so cynical and pessimistic?
Post by Patrick_A on Dec 17^th, 2003, 11:45pm

on 12/17/03 at 23:37:40, Linda_Howell wrote:

You dont have any reason to have to apologize to me. I stated this as in "We". Just like BlueMeanie said, I also am a sceptical bastard. It took me 28 years to find something that worked for me.
But at the same time, I also realize not everyone in this world is out to Fuck me. I'll give anybody the benefit of the doubt until they start asking me for money!
And yes, I was referring to my lovely Ree's post. She knows i wouldnt flame her!

Patrick :)

Title: Re: Why are we so cynical and pessimistic?
Post by Linda_Howell on Dec 17^th, 2003, 11:53pm

so if you're referring to Ree's post....What is the questiuon all about? I trust Ree, and obviously you do also.

?

Linda

Title: Re: Why are we so cynical and pessimistic?
Post by eyes_afire on Dec 18^th, 2003, 12:13am

Human behavior clash with technology. No doubt there are some salespeople who come here. There are probably also some unsuspecting people with decent intentions. This is the reason why there are instructions on the website before posting. Some people are just oblivious to netiquette, I know I was at first. Because there are salespeople and because there are people unfamiliar with netiquette, how can we tell them apart? I got no answers. One thing for sure, there is no known cure for CH. Many of us are tired and cynical because most people can't possibly understand this situation we find ourselves in. Can I really take 2 aspirin and lay down? Human behavior clash with technology.

--- Steve

Title: Re: Why are we so cynical and pessimistic?
Post by Linda_Howell on Dec 18^th, 2003, 12:18am

words of wisdom Steve.

and this coming from a bug-man too. lmao

LindaH

Title: Re: Why are we so cynical and pessimistic?
Post by Patrick_A on Dec 18^th, 2003, 12:19am

on 12/18/03 at 00:13:23, eyes_afire wrote:

I agree with you, But sooner or later someone is going to come up with the absolute cure. Surely we arent going to cuss them out and send them packing because we are so cynical.
I definitly believe in keeping my eyes and ears open at all times, I never know what I might learn.
It was just a thought that i wanted to share with ya.

Patrick

Title: Re: Why are we so cynical and pessimistic?
Post by pubgirl on Dec 18^th, 2003, 2:20am

I looked at the website for the product this person is associated with first before I made my comments

Compound this with WHERE the item was posted i.e. a mother in agony for her child, not on the medications or general board

Compound this with WHAT was said, that the person does not have CH but "this product works for anyone"
Sorry haven't worked out how to do the quotation thingy so it is pasted below:

"Your son is in my prayers. First, let me say, pleeeeease take this seriously. 2ndly would like to give you a little information on a product called Reliv. It's a nutritional product that has changed my life...actually, it has given me back my life. I did not suffer with CH, but did suffer with Chronic Fatigue issues and fibroid tumors (to name just a couple). I have been able to help so many children with all kinds of issues, get well. It's been extremely rewarding...but it's not me...it's this product and company that manufacture amazing, simple products that work for everyone. Please, if you would like to know more about this, email me and I would be happy to be in contact with you.
Bless you and your son! "

THEN I got angry.

I don't see this as cynical and pessimistic, just protective because there ARE people here who are desperate and in terrible pain and/or naive and could spend money they can't afford on a dubious nutritional supplement that will do no good for CH.
Offering prayers for a child is wonderful, adding in a product plug is NOT.

Just my [smiley=twocents.gif]
Wendy

Title: Re: Why are we so cynical and pessimistic?
Post by pubgirl on Dec 18^th, 2003, 2:51am

Also, just to give you some idea how much this person understands about CH, here is what they messaged to me:

"I can't believe you would react this way. I'm not "peddling" anything. You all would be so willing to pump yourself with meds, but not something healthy? and for your information, I WAS the person in pain a while ago. So keep your crap to yourself"

Wendy

Title: Re: Why are we so cynical and pessimistic?
Post by Mark C on Dec 18^th, 2003, 3:24am

AH yes...a jaded bunch we are...and in pain TOO! No wonder we are a little pessimistic....I am. Been dicked around for so long not much impresses me anymore. The last thing to make a difference in my life was found on this MB....and it really worked, at least for the last five weeks! HU-RAH!!.

From the Reliv (http://www.reliv.com/us/index.html) homepage....

P&P (http://www.reliv.com/docs/Policies/PoliciesProceduresUS.pdf) to be exact...
"I will make no diagnostic or prescriptive claims for any Relìv products. Nor will I represent my
personal experiences with Relìv products as indicative of the experience that others may expect."

and then...

Product Claims:
You acknowledge that Relìv products are not represented as drugs and that you are not
authorized to make any diagnosis of any medical condition, make drug-type claims for, or
prescribe Relìv products to treat or cure any disease or condition. Distributors may not use
words such as: cures, heals, therapy, therapeutic, promotes healing, or any other medical claims
for specific ailments. Distributors are prohibited from saying or implying that Relìv products
are FDA-approved. When selling products, you also acknowledge that you are not authorized
to use, quote from or summarize (in any written or graphic form) any materials or to make any
product claim or representation not authorized in writing by Relìv. Distributors may make
claims about the Company’s products that have been approved by the Company and provided
in sales and training materials.

on 12/17/03 at 14:31:50, Relivforlife wrote:

2ndly would like to give you a little information on a product called Reliv. It's a nutritional product that has changed my life...actually, it has given me back my life. I did not suffer with CH, but did suffer with Chronic Fatigue issues and fibroid tumors (to name just a couple). I have been able to help so many children with all kinds of issues, get well.

They have a message board (http://www.relivonline.org/esuite/control/main) too but one must be a Reliv distributor to access it...I wonder why?

Creeps me out.....seems kinda low to me.

Thanks Ueli,
http://www.drfeller.com/Mark/mark.gif

Title: Re: Why are we so cynical and pessimistic?
Post by Charlie on Dec 18^th, 2003, 4:35am

Cranks waste time, and money that a clusterhead needs for something that has some provable track record or from someone with at least a toehold in reality. This is why we can be so cynical. We've seen a lot of nonsense, especially on the old board.

If I may be forgiven: My technique has a couple things going for it. It costs nothing and I make no claims that it will work for everyone. It also does no harm and it won't get in the way of medications and other ideas. I do believe that more of us need to work on it a bit more. Probably the best is that Ueli hasn't told me to go to hell.......well at least for this thing anyway :D

Sorry. I get carried away.

Cynical old bastard--Charlie

Title: Re: Why are we so cynical and pessimistic?
Post by BarbaraD on Dec 18^th, 2003, 5:02am

Gosh, we've had people here looking for drugs and some trying to sell drugs and we pretty well know who to cull. We hurt and there will be those who will try to take advantage of us, but I think we all have enough sense to know a scam when we see one.

Sometimes something works for someone and they think it will work for EVERYONE. Those of us who've been around for a while, know this isn't the case, but we need to be careful NOT to discourage the "real" ones who are trying to help. The snake oil salesmen should be strung up at dawn.

I take a bunch of vitamins (supplements) every day just to keep up my energy, but it's NOT a cure for CH - it just helps me get through the day, so maybe the vitamins would help in this sense.

Guess what I'm trying to say is that we need to take a deep breath before we slash someone - make sure they're not just being enthusiastic.

But I wouldn't recommend the banana peels around the head - didn't work at all for me.

Hugs BD

Title: Re: Why are we so cynical and pessimistic?
Post by pubgirl on Dec 18^th, 2003, 5:07am

Don

Just thought you ought to know you are getting slammed by Relivforlife on the Technical board

Wendy

Title: Re: Why are we so cynical and pessimistic?
Post by Mark C on Dec 18^th, 2003, 5:19am

on 12/17/03 at 22:57:36, Relivforlife wrote:

Hi DJ,
I am new to this board and was sharing some things that have helped me by way of a nutritional product that is doing great things for people. I have rec'd a horrible email from a Donald Young who has a dirt mouth. Here's his email bgull2@earthlink.net. I don't think you would allow this. If you want a copy of the email sent to me, I will gladly send it to you.
I might not have had cluster headaches, but I was in just as much pain as the others, just different issues. I was just trying to help, but I guess I was wrong.
Sorry

DJ.....hurry....Don is.....cussing at a snake oil salesman!

Too Good

[smiley=eek.gif]

ROTFLMYBO!!

Title: Re: Why are we so cynical and pessimistic?
Post by KenB on Dec 18^th, 2003, 5:24am

I'm cynical but also highly optimistic (almost to a fault!). Is that an oxymoron? [smiley=huh.gif]

Title: Re: Why are we so cynical and pessimistic?
Post by pubgirl on Dec 18^th, 2003, 5:58am

Patrick

I think the cynicism was well applied in this case.
This below was in the guest book and now apparently "Toni" reckons Reliv is great for cancer as well as CH.!!!!!!!

--------------------------------------------------------------------
Came across this website by accident today...although I don't believe in accidents. I wanted to share something with you'all. The company is called Reliv and the products have changed my life! I am now a distributor for these amazing products because of the life changing results I have had...and have been able to share with others. I suffered with Fibroid Tumors, Chronic Fatigue, blood sugar issues, very very low blood pressure (all of my life), heel spurs, digestion issues, acid reflux, just to name a few. (phew) Within 6 months on these products I had my life back and now 3 years laters I feel awesome. Better than when I was younger. I know many, many people who have been helped with headache issues. Migraines, cluster headaches, menopause issues as well as major disease such as Scleroderma (runs in my family), cancer, lupus, MS, Parkinson's etc. I have met them and spoken with them at conferences, phone calls, and a few I have helped personally with Reliv. It has been amazing! A simple miracle!! These products are in powder form that you put in liquid and drink 2x per day. It works because of the absorption rate (98.9%). Vitamin/mineral pills are 15%, if you're lucky. If you want to know more about it...I would love to share them with you. This is now my life's mission, besides family and my faith. Everyone have a blessed holiday.
Toni <lifemaderich@comcast.net>
Doylestown, PA USA
Wednesday, December 17, 2003 at 13:47:20 (EST)

Title: Re: Why are we so cynical and pessimistic?
Post by stevegeebe on Dec 18^th, 2003, 6:41am

It's got nothing to do with what thay are pitching.

Clusterheads simlpy can't stand plaid.

Steve G

Title: Re: Why are we so cynical and pessimistic?
Post by pubgirl on Dec 18^th, 2003, 7:12am

Errrr, what? [smiley=huh.gif]

Title: Re: Why are we so cynical and pessimistic?
Post by Elaine on Dec 18^th, 2003, 8:48am

I think you have a good point Patrick. If I came on board right now I would be yelling chronics try chemo it worked for me. If you guys did not know me you would all swear I was out of my mind. Thats the only thing I can think of that has caused me to become eposidic! I even asked the doctor in N.Y. he said becuase of the steroids it is possiable.

You never know and I would hate to think we ran someone off with the answer.

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 18^th, 2003, 9:15am

on 12/18/03 at 00:19:31, Patrick_A wrote:

Some of us are cynical but I prefer to call myself a realist [or is it fatalistic?]. There is no CURE. How many times have we had to explain that to someone? Cheese and Rice! [say cheese and rice out loud to understand what I am saying]
EVERY time I hit my cycle my dad, God luv him, tells me to go to the doc. WTF, over?
"You're like a neutered dog Bundy, you just don't get it!"
The tone of the message from the snake oil salesman is always the same: "It will CURE your ills and other ills too!" A little common sense goes a long way. If it's too good to be true, then it's not true.
TomM

Title: Re: Why are we so cynical and pessimistic?
Post by don on Dec 18^th, 2003, 9:16am

Quote:

who has a dirt mouth.

My day is ruined. Probably be so disconcerted I'll wash my whites with my colors.

Elaine:

Quote:

If you guys did not know me you would all swear I was out of my mind.

And if you do know her then you are convinced.

Title: Re: Why are we so cynical and pessimistic?
Post by Paigelle on Dec 18^th, 2003, 9:18am

I am extremely cynical because most everything I have tried doesn't work. I think we just hit the point where we lose a bit of hope. I have tried every supplement I can think of, vitamins, painkillers, and I just get so tired of people hyping snake oil that I could scream. It is sad to be that way though.

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 18^th, 2003, 9:29am

I look @ CHs as a part of my life. Some people have allergies, others have arthritus etc. Me, I'm a cluster head with arthritus...and a few other things, too! ;)

Title: Re: Why are we so cynical and pessimistic?
Post by Paigelle on Dec 18^th, 2003, 9:31am

on 12/18/03 at 09:29:35, TomM wrote:

I look @ CHs as a part of my life. Some people have allergies, others have arthritus etc. Me, I'm a cluster head with arthritus...and a few other things, too! ;)

I'm a clusterhead with migraines! I was also told that I can be a smart ass and that I am sarcastic. Hmmmm, I would never be those things.

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 18^th, 2003, 9:35am

Like I told my 3rd grade nun when she said to me "Tommy Meyer, don't be such a smart ass!" To which I replied "Better a smart ass than a dumb ass like Chris Pollack." WHAP!!! That was the sound of her hand meeting my head.

Title: Re: Why are we so cynical and pessimistic?
Post by Paigelle on Dec 18^th, 2003, 9:42am

Tom, we must truly be related to each other. [smiley=laugh.gif]

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 18^th, 2003, 10:37am

Paige--no one has ever admitted, in a public forum, to being related to me.

I feel like Steve Martin in The Jerk: "I'm some body! The new phone book is here!"

Thanks for making my day. :D

Title: Re: Why are we so cynical and pessimistic?
Post by Paigelle on Dec 18^th, 2003, 10:52am

Well Tom, someone had to admit it sooner or later. I am just very brave! Glad I made you smile today.

Title: Re: Why are we so cynical and pessimistic?
Post by Prense on Dec 18^th, 2003, 11:45am

There is a difference between representing a company that you are peddling "miracle cure" products for, and a CHer who has tried something that seems to work. If a cure is found for CH...we will be the first to know about it! I have no sympathy for this guy. Email him again Don! ;;D

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 18^th, 2003, 1:03pm

Don is a bad, bad man...and I like that.

Title: Re: Why are we so cynical and pessimistic?
Post by chronic_chic on Dec 18^th, 2003, 1:21pm

Prense,
I totally agree with you...If they're out to make some kind of profit, well then....one might guess why they are so overenthusiastic! This also can relate to meds like what happened with neurontin being pushed for off-label uses, which BillyJ so kindly pointed out to me! This morning a doc told me that neurontin has been proven to treat nothing...they just give it to people when they don't know what to give them! Haha...I laughed.

My favorite is when people say, "Oh but have you tried motrin?" Gee, no I don't think I have. I wanted to try all the BIG drugs and hospitalizations before I went to my cabinet and grabbed the bottle of ibuprofin off the shelf! What are they? Nuts?! DUH

~Lizzie :)
(and I am going to the orthodontist this afternoon just to rule out TMJ and just to shut up everyone who keeps telling me that orthodontic mouth guards cured their headaches!)

Title: Re: Why are we so cynical and pessimistic?
Post by Paigelle on Dec 18^th, 2003, 1:31pm

If a mouthguard cured headaches, then I wouldn't have any problems. Been wearing a guard for years, doesn't freakin' help. Tell those people to kiss my butt.

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 18^th, 2003, 1:34pm

on 12/18/03 at 13:31:15, Paigelle wrote:

If a mouthguard cured headaches, then I wouldn't have any problems. Been wearing a guard for years, doesn't freakin' help. Tell those people to kiss my butt.

What she said...exactly.
All my mouth guard does is prevent me from grinding my teeth to little tiny nubs. But what do I know?

Title: Re: Why are we so cynical and pessimistic?
Post by gmlevenhagen on Dec 18^th, 2003, 2:22pm

on 12/18/03 at 13:21:19, chronic_chic wrote:

(and I am going to the orthodontist this afternoon just to rule out TMJ and just to shut up everyone who keeps telling me that orthodontic mouth guards cured their headaches!)

I did that, got teeth pulled, braces the whole nine yards. I still have headaches, but very nice looking teeth. Oh ya! I am out 5,000 bones also!!!

Gena

Title: Re: Why are we so cynical and pessimistic?
Post by chronic_chic on Dec 18^th, 2003, 2:26pm

LOL Gena,

Yeah ya see I'm already missing 2 teeth on the bottom jaw that never grew in as baby teeth or permanent teeth. Already had retainers and braces from when I was 6 through right now I still have the stupid bottom retainer glued in behind front 4 teeth (should be front 6, but that's where I'm missing 2!). I've been thru all the dental stuff...and I, too, have some nice teeth...for a nice $$!

I do not want to spend thousands of dollars more (even if it IS my parents' money) on fixing what is not broken! I do not have any longer bad teeth or messed up jaws...but I'll go so that an official professional can say that. ;)

~Lizzie :)

Title: Re: Why are we so cynical and pessimistic?
Post by BstnEagles on Dec 18^th, 2003, 4:56pm

I think people are just tired of the pain.

Title: Re: Why are we so cynical and pessimistic?
Post by jonny on Dec 18^th, 2003, 5:35pm

Anyone, and I mean ANYONE shows up here trying to sell something that will ease our pain I will hammer from the first post I see!!!

No one SELLS treatment here, NO ONE!!!

..............................jonny

Title: Re: Why are we so cynical and pessimistic?
Post by thomas on Dec 18^th, 2003, 5:46pm

on 12/18/03 at 17:35:55, jonny wrote:

No one SELLS treatment here, NO ONE!!!

You got that right bro. If you have ch and find something that works, you do like the rest of us, post it on the meds board free of charge.

Title: Re: Why are we so cynical and pessimistic?
Post by don on Dec 18^th, 2003, 9:55pm

Lets start another CH poll.

How many sufferers are a smartass ?

How many sufferers are sarcastic?

How many sufferers are annoyed by relentless CH polls?

Title: a dark and stormy night
Post by rumplestiltskin on Dec 19^th, 2003, 12:22am

Chronic_chic said:

Quote:

I wanted to try all the BIG drugs and hospitalizations before I went to my cabinet and grabbed the bottle of ibuprofin off the shelf!

Now THAT is funny.

The rest of this thread serves no purpose and will never make the message board a kinda gentler place...Clusterheads are uncouth louts....the satanic influences here are too deeply engrained....nothing will change...all is lost.

My left eye gently weeps
den

Title: Re: Why are we so cynical and pessimistic?
Post by KingOfPain on Dec 19^th, 2003, 3:37am

on 12/18/03 at 21:55:26, don wrote:

Lets start another CH poll.

How many sufferers are a smartass ?

How many sufferers are sarcastic?

How many sufferers are annoyed by relentless CH polls?

Am I.............

Cynical?.........................check.

Pessimistic?...................check.

Unemployed?................check.

Uninsured?...................check.

A Smartass?..................check.

Sarcastic?......................check.

A CH sufferer?...............check.

In pain?.........................check.

Suffering from a "condition"
with no known cause or cure?
......................................check.

Think that covers it.

KingOfPain

Title: Re: Why are we so cynical and pessimistic?
Post by Paigelle on Dec 19^th, 2003, 8:03am

on 12/18/03 at 21:55:26, don wrote:

Lets start another CH poll.

How many sufferers are a smartass ?

How many sufferers are sarcastic?

How many sufferers are annoyed by relentless CH polls?

Yes to all of the above.

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 19^th, 2003, 12:49pm

Check, mate. ;)

TomM

Title: Re: Why are we so cynical and pessimistic?
Post by don on Dec 19^th, 2003, 12:57pm

Quote:

Why are we so cynical and pessimistic?

Because we suck.

Title: Re: Why are we so cynical and pessimistic?
Post by TomM on Dec 19^th, 2003, 1:09pm

Michael Jackson may suck....
You may suck but I doubt it.
Pee Wee...nope...he's a crank yanker.
Me, nope. Don't suck.