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(Message started by: bean on Dec 13th, 2003, 9:54pm)

Title: Chronics or anyone interested in stopping clusters
Post by bean on Dec 13th, 2003, 9:54pm

on 12/13/03 at 12:04:55, 12gagueblast wrote:
Bean,  dont know your situation but: when i was younger mid to late teens (i am almost 35 now) i would get one or so CHs a year mabey.  they didnt take a cluster pattern untill my early 20's.  i know know that the headachs i had when i was yonger were CHs they were exactly the same but not grouped up, and not quite as intense k6 or so.  dont know if that helps you and hope you dont get any more but thats my story and i'm stickin to it :).



OK now, I know its getting old, but the above quote is just to preempt naysayers.

Now, chronic clusterheads, this is a message to you. I have quit eating the following foods, and my headaches have been drastically reduced.

********************
*And the effects build up over time. I used to eat and drink all the following(except alcohol and coffee, never been big on those) and would go about my daily routine and when clusters came, they came. Only when I quit eating and drinking them could I tell a sensitivity.
**********************
Now the list. It is pretty complete TO ME.

1. Soy sauce--(miso, tamari, shoyu, fish sauce, etc.)

2. MSG-- monosodium glutamate--the only other name I have seen it listed under is L-glutamic acid one time on a pizza.

3.tobacco- this even includes smokey rooms and bars, clubs, etc.

4.chocolate-  

5.coffee-

6.soda pop with caffiene and/or brown coloring, just to be safe- only orange soda and sprite and the like- YUM!

7.alcohol-

8.tea-

9. sharp cheddar cheese, gorgonzola, bleu, etc. --the gorg and bleu can be eaten every once in a while, and parmigon is just to prevalent and not even the real stuff to worry about.

10.stress--!

and pickles and saurkraut, just to be as complete as possible

All I ask, suggest, whatever; is for you to quit eating and drinking these for as long as you can. I'd say 3-4 months, or longer if you can. If you don't see ANY improvement, feel free to go back and chow down. I really think you might, though. I'm only asking the chronics because episodals might not want to quit in between the cycles, eg. months and months for the lucky ones.

chocolate might be the hardest for sheer taste, as well as coffee, and MSG might be the hardest for sheer prevalence, this stuff is EVERYWHERE, but it has been one of the most worthwhile things I have ever done. From sheer madness every headache, to VERY manageable (so far, cross fingers).

I want to yell it from the rooftops, I SWEAR TO GOD THIS REALLY WORKS!

Just try it, what do you have to lose?









Title: Re: Chronics or anyone interested in stopping clus
Post by brain_cramps on Dec 13th, 2003, 10:03pm
Geeze Bean --- ya never give up, do ya?

What about episodics?

Are you saying that every 18 months, like clockwork, I changed my diet shortly before the cycle started?

Every 18 months for over 20 yrs?    Hmmmmmmmmm

Title: Re: Chronics or anyone interested in stopping clus
Post by bean on Dec 13th, 2003, 10:14pm

on 12/13/03 at 22:03:17, brain_cramps wrote:
Geeze Bean --- ya never give up, do ya?

What about episodics?

Are you saying that every 18 months, like clockwork, I changed my diet shortly before the cycle started?

Every 18 months for over 20 yrs?    Hmmmmmmmmm


No, Im saying episodics might not have the inclination or patience to quit eating whats on the list when theres no telling when the rewards will show, eg. their next cycle or two..., since there can be MANY months between cycles.

Title: Re: Chronics or anyone interested in stopping clus
Post by CC on Dec 13th, 2003, 10:20pm
Damn, u might as well ask me to cut my penis off too! :-[

Title: Re: Chronics or anyone interested in stopping clus
Post by forgetfulnot on Dec 13th, 2003, 10:22pm
This is a quote from the worlds leading authority on cluster headache cut from a large publication by Dr. Goadsby.


Quote:
General measures and patient education

Patients should be advised to abstain from alcohol during the cluster bout. Otherwise, dietary factors seem to have little importance in CH. Anecdotal evidence suggest that patients should be cautioned against prolonged exposure to volatile substances, such as solvents and oil-based paints. They should be instructed to avoid afternoon naps because sleeping can precipitate attacks in some patients.


Bring us some science, your claims have no merit.

Lee >:(

Title: Re: Chronics or anyone interested in stopping clus
Post by Jayne on Dec 13th, 2003, 10:26pm
Me not having any coffee in the morning would cause me STRESS!!!!

Title: Re: Chronics or anyone interested in stopping clus
Post by CC on Dec 13th, 2003, 10:30pm
would also like to know how you came up with this list of yours, did you one day just say to yourself, TODAY, i'm going to stop eating soy sauce, then the next say, maybe i'll try not eating blue cheese. the poof, no more headaches!!  I'm very curious as to how you came up with all these foods!! Please do tell

Title: Re: Chronics or anyone interested in stopping clus
Post by bean on Dec 13th, 2003, 10:42pm

on 12/13/03 at 22:22:52, forgetfulnot wrote:
This is a quote from the worlds leading authority on cluster headache cut from a large publication by Dr. Goadsby.


Bring us some science, your claims have no merit.

Lee >:(


I bring myself telling you it worked for me, and I asked you to try it for yourself. Just so you know, I dont have a phd behind my name, or a laboratory, or an assistant named Igor. Try it FOR YOURSELF, or dont. Why wait for someone else to do everything for you?

Title: Re: Chronics or anyone interested in stopping clus
Post by Elaine on Dec 13th, 2003, 10:48pm
Hi Bean,
I know you believe in what you are saying. If I stopped all those things I would feel better all the way around I agree with that.
I was Chronic for over 20 years, I am now eposidic I have not stopped any of my bad habits. such as smoking and drinking coke and coffee.
I aIn't telling you what I use to think caused my clusters, but after serveral years of not doing it I found out I was missg out and the pain was still there.
Any way I am glad you found what works for you and you have the will power to stop all those things.
I just think I would be mersiable if I stopped all that.


Title: Re: Chronics or anyone interested in stopping clus
Post by bean on Dec 13th, 2003, 10:53pm

on 12/13/03 at 22:30:45, CC wrote:
would also like to know how you came up with this list of yours, did you one day just say to yourself, TODAY, i'm going to stop eating soy sauce, then the next say, maybe i'll try not eating blue cheese. the poof, no more headaches!!  I'm very curious as to how you came up with all these foods!! Please do tell


its kind of twofold, first, I think my mom told me some doctor we went to said  to avoid certain foods. and then mabye another doc said to avoid others. that might have been the start.

What did it for me, though, is sometimes after eating a HEAP of certain foods, as is my want; and I mean a HEAP, like a hersheys kiss the size of a softball I got for christmas one time, a headache would follow shortly, I cant remember if it was that night, the next, or what, but I would actually FEEL like that food. Hard to explain. For the hersheys just imagine a person in a hersheys kiss costume rolling in pain. Same for pizza, which had msg in it, tobacco, etc. Im just sensitive by nature. chemical sensitivity, etc.
Plus, analytically, the foods listed are very similar. All aged and/or fermented, with tannins. *** I cant think anymore, mabye tomorrow I'll remember more. Good noght.

Title: Re: Chronics or anyone interested in stopping clus
Post by brain_cramps on Dec 13th, 2003, 11:03pm

on 12/13/03 at 22:53:07, bean wrote:
its kind of twofold, first, I think my mom told me some doctor we went to said  to avoid certain foods. and then mabye another doc said to avoid others. that might have been the start...


on 12/13/03 at 22:53:07, bean wrote:
...*** I cant think anymore, mabye tomorrow I'll remember more. Good noght.

Hmmmmmmmm... not really sure what to say...




on 12/13/03 at 22:53:07, bean wrote:
...but I would actually FEEL like that food. Hard to explain. For the hersheys just imagine a person in a hersheys kiss costume rolling in pain...

I tried to imagine that and I'm rolling around on the floor, but I sure as hell am not in pain.    
[smiley=crackup.gif]

Title: Re: Chronics or anyone interested in stopping clus
Post by Charlie on Dec 13th, 2003, 11:30pm
Dietary solutions for CH haven't a good track record here. We've had some real characters, especially on the old board, some of who were more than insistent that we were morons for not signing on to some bizarre lifestyle or food avoidance regimens. I'm not saying your ideas are like that but it's why you're finding this skepticism.

We're a tough sell.

Good luck though.

Charlie

Title: Re: Chronics or anyone interested in stopping clus
Post by Prense on Dec 13th, 2003, 11:50pm
Post it once, and you are sharing info.

Keep posting the same shit over and over again just gets annoying.  Every time I see a thread started by you...the thought comes to mind "oh shit, not again..."

Whether this works or not...it's getting old.

If I recall correctly, you are not even seeing a doc or had CH diagnosed...  I could be mistaken someone else, but still.

Chris

Title: Re: Chronics or anyone interested in stopping clus
Post by brain_cramps on Dec 13th, 2003, 11:53pm

on 12/13/03 at 23:50:35, Prense wrote:
If I recall correctly, you are not even seeing a doc or had CH diagnosed...  I could be mistaken someone else, but still.

and he gets 2 short cycles per year (one headache each)  ever since he quit crack!   oops almost forgot - and he imagines himself dressed up as food    ::)

Title: Re: Chronics or anyone interested in stopping clus
Post by Prense on Dec 13th, 2003, 11:55pm

on 12/13/03 at 23:53:50, brain_cramps wrote:
and he gets 2 short cycles per year (one headache each)  ever since he quit crack!   oops almost forgot - and he imagines himself dressed up as food    ::)


OMG Grant!...you f*&cking kill me!   ;;D

Title: Re: Chronics or anyone interested in stopping clus
Post by Little Deb on Dec 13th, 2003, 11:57pm
You know I saw a lady once in the grocery store.  She brought her own basket to the store because she did not want the food she bought to touch a shopping cart.  Each item she bought, she took right from the shelf and placed them straight in a clean plastic bag. When she got to the checkout, she handed each item from the basket, carefully to the cashier, and then after it was scanned, the cashier handed it back to her.  At no time did the food come into contact with the conveyor belt or counter.

This unusual elimination of contaminates from her food,
certainly must have contributed to her decrease in cluster headaches.  Maybe we all should try it for a few months.

What'dya say guys??

really reachin'.........little deb

Title: Re: Chronics or anyone interested in stopping clus
Post by CathiP on Dec 14th, 2003, 12:04am
Lil Deb.....good thinking...BTW- I think I have seen that lady on 20/20....funny, she wasn't being interviewed for a MEDICAL ailment.....it was a MENTAL one.......silly me...

But, now I'm thinkin......as a non-sufferer.....IF I get into drinking Pepsi, and eating all aged cheese.....AND I eat enuf chocolate....will I then become a CH'er???

How does Havarti stack up, Bean?

Goin shopping, and I'd still much rather be a non-sufferer.....

Heaven help me!

Cathi

Title: Re: Chronics or anyone interested in stopping clus
Post by jonny on Dec 14th, 2003, 12:22am
[quote author=CC link=board=general;num=1071372618;start=0#3 date=12/13/03 at 22:20:29]Damn, u might as well ask me to cut my penis off too! :-[/quote]

LMMFAO ;;D

Too fucking funny!!!!

..............................jonny

Title: Re: Chronics or anyone interested in stopping clus
Post by don on Dec 14th, 2003, 12:57am

Quote:
I cant think anymore,


You got that fucking right.

Title: Re: Chronics or anyone interested in stopping clus
Post by taraann on Dec 14th, 2003, 1:02am

on 12/13/03 at 22:26:28, Jayne wrote:
Me not having any coffee in the morning would cause me STRESS!!!!


Here, Here!  (said with coffee cup raised in the air!)

Title: Re: Chronics or anyone interested in stopping clus
Post by Leesa on Dec 14th, 2003, 1:35am
Dave with out his coffee would cause ME stress and HELL NO, got nuff that as it is!
Leesa, who aint buyin what your sellin  ;;D

Title: Re: Chronics or anyone interested in stopping clus
Post by eyes_afire on Dec 14th, 2003, 1:59am
For some reason that I can't yet figure out (LOL) I already avoid most of those things.  I don't eat soy sauce, I'm usually successful in avoiding MSG (at least as successful as you), I don't smoke, I don't eat chocolate, I haven't drank coffee, tea, or alcohol in ages, I don't eat those cheeses, I haven't eaten pickles in a long time, and I absolutely don't eat saurkraut.  Hmmm... colored sodas... today I had a cola for the first time in at least a week.  Stress?  Nah, I'm about to bore myself to death over here, I could use a bit of excitement.

So, by avoiding cola (which contains the beloved caffeine... a vasoconstrictor) my CH will be gone?  How can the effects of that cola be so specific as to wake me up at exactly 4:30am and target a particular nerve around my eye, but no other nerves in my body?   [smiley=huh.gif]

--- Steve

Title: Re: Chronics or anyone interested in stopping clus
Post by brain_cramps on Dec 14th, 2003, 2:42am

on 12/14/03 at 01:59:33, eyes_afire wrote:
...How can the effects of that cola be so specific as to wake me up at exactly 4:30am and target a particular nerve around my eye, but no other nerves in my body?

Have you tried dressing up as chocolate?

Title: Re: Chronics or anyone interested in stopping clus
Post by Mac on Dec 14th, 2003, 7:29am

Quote:
Im just sensitive by nature. chemical sensitivity, etc.

nuff said.Go away

Title: Re: Chronics or anyone interested in stopping clus
Post by Kirk on Dec 14th, 2003, 7:33am
Bean:
Until you can come up with solid empirical evidence arrived at with atleast a passing glance at logic, get your silly ass out of here.
Try the basket weaving website or something.
Currently you are just a waste of space and time around here. Frankly you have made my life worse by the agravation of all the drivel you pour forth. Leave, its Sunday and you're a weight my soul doesn't need.

Sorry folks but the dumb m*th*rf**k*r is oopressing my aura.
I shall now go comtemplate my mantra and restore serenity.


TTFN [smiley=mellow.gif]

Title: Re: Chronics or anyone interested in stopping clus
Post by Mac on Dec 14th, 2003, 7:45am
Kirk we should all be flattered. We may have our first clustergroupie::).

Title: Re: Chronics or anyone interested in stopping clus
Post by don on Dec 14th, 2003, 9:35am
FAR from the first Mac.

Title: Re: Chronics or anyone interested in stopping clus
Post by Woobie on Dec 14th, 2003, 9:47am

on 12/14/03 at 07:33:31, Kirk wrote:
Sorry folks but the dumb m*th*rf**k*r is oopressing my aura.
I shall now go comtemplate my mantra and restore serenity.
TTFN [smiley=mellow.gif]




LMAO!!!   You guys are killin me!

Title: Re: Chronics or anyone interested in stopping clus
Post by Kirk on Dec 14th, 2003, 10:14am
Don't think so Mac, Groupers preferr rock structers and kelp beds. If he was a grouper here he would be for all intents and purposes kelpless.
Wait there might be some merit in that.

TTFN

Title: Re: Chronics or anyone interested in stopping clus
Post by jadedgazer on Dec 14th, 2003, 10:30am
You have to be kidding me. Let's see...I am just going to hit the high points here...

I am allergic to chocolate, so that one I avoid. I know ladies it is a curse. Cucumbers too, so pickles are out. Sauerkraut is just nasty. Coffee and cigs, well just try to take them away from me. I did quit both for five months and saw no difference. So I started back. Avoid stress, hmmm...you try raising three teenage boys and avoid stress. If you can figure out how to do that, you let me know what the secret is, ok? MSGs and alcohol, don't do those either.

SO it sounds like your list might not be the answer, if it was I would be getting at least some kind of freaking relief, now wouldn't I? But I don't, not without my O2 and my meds. By the way I am chronic and can be cranky.

Get a grip man and give it a rest as you are causing us STRESS!

Title: Re: Chronics or anyone interested in stopping clus
Post by Opus on Dec 14th, 2003, 10:59am
Bean,
  Your list shows a great way to eliminate Migraines, which i get too, but will do nothing but make Clusters worse, except for alcohol for some.

My Migraine triggers are.
1. bright sunlight
2. cold
3. MSG
4. Nitrates
5. Smoking too much
6. drinking too much coffee
5. Kerosene

My migraine abortive are.
1. relaxation
2. laying flat and sleeping
3. over the counter pain meds

My CH triggers (things that cause a CH at the wrong time)
1. heat
2. relaxation
3. sleep ( especially lying flat )

My CH Abortives
1. Imitrex
2. Cold
3. smoking
4. coffee ( other caffeine sources don't work )
5. stress

As you can see the triggers for migraines are some of the same abortives for CH and vise versa. Living with CH and Migraines is a constant balance. Imitrex has no effect on my migraines and can trigger a bad migraine for me. I sometimes can start a migraine during a CH with the abortives for CH because for me imitrex does not work alone. My last 10 CH was triggered by watching my favorite TV show while my wife slept, this was too relaxing because I did not have the stress of watching the program while listening to my wife.

Many here have tried eliminating many things from their diet, some even had their teeth removed to get rid of the pain with no lasting results.

I do have one question, how do you function without caffeine  when you only get 3 hours of sleep a night?

Opus/Paul

Title: Re: Chronics or anyone interested in stopping clus
Post by don on Dec 14th, 2003, 11:08am
www.CLUSTERHEADACHES.com

Title: Re: Chronics or anyone interested in stopping clus
Post by Little Deb on Dec 14th, 2003, 11:19am
I hate cigarettes with a passion.
I don't eat aged cheese, soy sauce or saurkraut.
I avoid MSG as much as I can for no real reason.
Don't often eat pickles.

I eat as much chocolate as I can!
Love Tequila!
And drink alot of Coke. (notice I didn't say snort)

I am episodic. Every 2 years.  Diet doesn't matter.  When in cycle, like everyone else, I avoid things that I think might be triggers.

So I really think that food isn't the BIG answer.

I think the REAL answer is NOT ENOUGH SEX!!!!!!!!!!

Those chronics are REALLY lacking!  And us episodics are NEEDIN' MORE!!!

Yes, fellow clusterheads, we need more of the BIG "O"! ;;D

No, wait.....if that were the case, there would be a hell of alot more CH'ers, and I am pretty sure the "BEAN" ain't gettin' nun!

So, maybe, we are gettin' TOO MUCH SEX!!!!

The chronics are oversexed maniacs!  And us episodics should try to avoid sex as much as possible!  All you chronics, you need to cut it down to twice a week, and wean yourself off completely!

For the love of our heads people, I urge you to TRY!

This is the answer!  Believe me.  NO MORE SEX!!

Please send $59.99 to the address below, and I will send you your very own instructional booklet "How to avoid CH causing sex".  Please allow 6-8 weeks for delivery.  Also indicate if you are male or female, and I will include a free gift! A vice grip for you men, (also indicate S, M, L, or OMG), and for the ladies, your gift will be a clitoral piercing kit with sterling ring included.  Once you use this kit, NO ONE will ever be able to bring you to orgasm EVER AGAIN!

Yes folks, you can rid yourself of clusters forever.

Proceeds from the sale of this booklet will benefit the "Kick the Bean" fund.  


address:

NO MORE CLUSTERS
69 Nosex Circle
Ucum City, North Closeyourgina
02469-6969


(no refunds on open items with spooge spots)

Title: Re: Chronics or anyone interested in stopping clus
Post by brain_cramps on Dec 14th, 2003, 11:24am
LMMFAO!!!!!!     Waaaaaaaaaaay to funny, Deb!

Title: Re: Chronics or anyone interested in stopping clus
Post by don on Dec 14th, 2003, 11:28am

Quote:
This is the answer!  Believe me.  NO MORE SEX!!


I will continue to sufferer just to keep this board alive.

You can thank me later when you have decided to do the same.   8)

Title: Re: Chronics or anyone interested in stopping clus
Post by 12gagueblast on Dec 14th, 2003, 12:01pm
Everyone sorry to have to say this again Mg.  Bean you might have a little something here check out the post i made a month or so ago on Magnesium and do your own research on Mg deficiency.  The foods you mentioned are very salty, this would compound a Md Diff, and large amounts of Calcium can cause the same problems.  i have had 2 CHs since taking Mg and that is when i stopped taking it.  i know we are all different but this has worked for me and i have no financial interest in this.  i wish it would work for everyone but know it probbably wont.  just wanted to put my 2 cents in.  i feel great and hope the rest of you can find relief also i am writing a note to my Neuro and when i have it done i will post it here with all the details but many of them are on the posts i did earlier.  whoever said that the timeing of the CHs precludes any food alergy vitimin mineral defficiency.  that is a good point and i dont completely understand it either.  could be a build up or  could be something cyclical in the environment that exaserbates a difficency.  vitimin D is made in our bodies when we are exposed to sunlight for example.  i am not saying vitimin D has anything to do with this but it is just an example of an environmental factor that effects levels of stuff in our bodies.   PFDAN  

Title: Re: Chronics or anyone interested in stopping clus
Post by chronic_chic on Dec 14th, 2003, 12:12pm
first i would like to say to everyone...OMG you guys make me laugh so much and always RIGHT when i need it!!! :)  Thanks!!!

bean,
i read your post on achenet before i read your post here...immediately when i read that, i thought...MIGRAINE.  i have had migraines since i was 8 years old.  food triggers are known to be a large component for many migraine sufferers, but not all.  however, food is not known to be a trigger for ch.  personally for me, i know that red wine and grape juice cause me to get very bad migraines, but i'm on an MAOI and that causes me to have to cut out all foods and meds containing tyramine, and it hasn't done a damn thing for my headaches!!!  that includes all cheese, beer (especially tap beer or nondomestic bottled and canned beers - they contain the most tyramine), aged meats like salami, pepperoni and sausage, red wines, etc.
I also can't have any cold meds, antidepressants, stimulants (such as ADD meds), or any other meds that interact with MAOIs (watch the commercials...this medication cannot be taken with an MAOI...dang...is there anything we CAN take??)
So none of it has improved my headaches.  Just goes to show it doesn't work for everyone.
I'm glad it worked for you, and I still think that your posts sound more like migraine than ch.  See a headache specialist!
~Lizzie  :)

Title: Re: Chronics or anyone interested in stopping clus
Post by Karla on Dec 14th, 2003, 6:30pm
I did try it years ago when first diagnosed.  It didn't do anything for me at all!  That is my story Im sticken to it.

Title: Re: Chronics or anyone interested in stopping clus
Post by Linda_Howell on Dec 14th, 2003, 6:58pm

Little Deb.........You made me fall off my chair  with that one !!!!!!!  And all this time I thought my chronic-ness was caused by the sins of my past life.   I am so glad you made it all clear.  

 Now as to  what to do with this information?????


LindaH

Title: Re: Chronics or anyone interested in stopping clus
Post by 12gagueblast on Dec 14th, 2003, 8:41pm
karla did you mean you tried Mg.  if so what kind and how much???  i was just wondering.  i have CH and this has worked better for me than anything else.  know i will get berated for saying that but it has helped me.  i know it wont help everyone may not help anyone but it helped me. i know i hate to have people ask me if im just alergic to stuff also cuz im not.  just wondering if you were speaking to me or bean.

Title: Re: Chronics or anyone interested in stopping clus
Post by Unsolved on Dec 14th, 2003, 8:56pm
I hate to break it to ya guys...but (IMHO), CH is not caused by the foods we eat or the vitamans were missin. Let me tell you gently > It's caused by our brains being Fucked Up !!!  :-X

Unsolved

Title: Re: Chronics or anyone interested in stopping clus
Post by 12gagueblast on Dec 14th, 2003, 9:12pm
you wont hurt my feelings.  i was just looking to help myself.  did some research and tried Mg it worked for me.  i have no interest whatsoever if anyone else here tries this or not.  i felt i had a moral obligation to share this information with you all.  even tho i knew it would be poo pooed by most of you.  that is fine and i dont mind the poo poo.  without causeing an uproar the drugs we take alter our bodies yes?  so do the vitimins and minerals we take yes?  all i know is this helped me if it helps someone else figure this out fine if not fine.  i am well now and happy about that.

Title: Re: Chronics or anyone interested in stopping clus
Post by don on Dec 14th, 2003, 9:27pm
poo poo?

Title: Re: Chronics or anyone interested in stopping clus
Post by fubar on Dec 14th, 2003, 9:50pm
OMG Deb, I'm laughing my ass off, but probably not for the same reason as most of you.

When I am in cycle, and while I was chronic for almost 3 years (THANK GOD THAT'S OVER> THANK YOU GOD!) the big 'O' was a sure fire way to get an attack rolling, usually going from Kip0 (actually, Kip-minus 10 if you think about it) to Kip8-10 in an instant.

So, you may be on to something.   ;;D

-Fu

Title: Re: Chronics or anyone interested in stopping clus
Post by Opus on Dec 14th, 2003, 10:02pm
Deb,
 I use the got married and had 1 kid to reduce down to 3 times a year. Your method sounds painful, oh wait mine is painful too.

Opus/Pau;

Title: Re: Chronics or anyone interested in stopping clus
Post by jimbo on Dec 14th, 2003, 10:43pm
Hey, How about those Packers!!!!!!!!!!! [smiley=laugh.gif]

Seeya,

Agedcheesehead Jimbo


Title: Re: Chronics or anyone interested in stopping clus
Post by Karla on Dec 14th, 2003, 11:09pm
I was talking to bean.  How about those Packers!  Karla who bleeds green and gold.

Title: Re: Chronics or anyone interested in stopping clus
Post by Mikey on Dec 15th, 2003, 1:27am
OOOOOO Shit Deb, that was just too damn much!!!!!! [smiley=crackup.gif]

Go back to where you came from bean!!!!!!!! [smiley=finger.gif]

Mikey,  ;;D

Title: Re: Chronics or anyone interested in stopping clus
Post by Pinkfloyd on Dec 15th, 2003, 1:35am

on 12/14/03 at 21:12:52, 12gagueblast wrote:
you wont hurt my feelings.  i was just looking to help myself.  did some research and tried Mg it worked for me. <snip>  
all i know is this helped me if it helps someone else figure this out fine if not fine.  i am well now and happy about that.


12ga,
You aren't the first and won't be the last cluster sufferer to get relief with Magnesium. It'd been shown to work for both clusters and migraines. [for some clusters and migraines] Not only increasing your daily intake but some have gone to magnesium infusion to break cycles and intractable migraines.

I assume you've seen the studies that back this up. But, to show why it may work for some and not others....

"Patients who responded and had no return of their headaches or associated symptoms within 24 hours of IV MgSO4 infusion were those with the lowest baseline levels of ionized Mg++, and patients with cluster headaches had the lowest basal ionized Mg++ levels of all. Nonresponders had significantly elevated total Mg
levels compared to responders."

If you hadn't seen this, search out "Mauskop" or write to me.

PF
Sorry if this is a repeat of prior inform. posted


Title: ooowah!
Post by rumplestiltskin on Dec 15th, 2003, 11:12am
yea ...lil Deb!

and only 1 damn smiley

i loved it.

den

Title: Re: Chronics or anyone interested in stopping clus
Post by Tiannia on Dec 15th, 2003, 12:10pm

on 12/13/03 at 23:53:50, brain_cramps wrote:
and he gets 2 short cycles per year (one headache each)  ever since he quit crack!   oops almost forgot - and he imagines himself dressed up as food    ::)


If I thought they would stop I''d dress up as food, but all I think it would do is make the beast laugh at me while I am wanting to die.

Title: Re: Chronics or anyone interested in stopping clus
Post by gmlevenhagen on Dec 15th, 2003, 1:03pm
Diet :P

THis is one of the first things I went through in my 12 years, before I Know I had CH. Every thing you mentioned and much, much more was on my list :

IT DID NOT WORK

Title: Re: Chronics or anyone interested in stopping clus
Post by thomas on Dec 15th, 2003, 2:59pm
It's just like everything else, what works for some, may/will not work for others.  

Title: Re: Chronics or anyone interested in stopping clus
Post by cathy on Dec 15th, 2003, 3:58pm
Little Deb thanks for the laughs omg too funny!!  ;;D

cathy

Title: Re: Chronics or anyone interested in stopping clus
Post by hdbngr on Dec 15th, 2003, 4:47pm
Bean:

This is a diet they are selling at many headache treatment centers. I call it the wild goose chase diet, cause pretty soon, you start finding triggers everywhere.

The list I was given in 1999 for CH said to exclude:

Caffeine, alcohol, cigarettes, preserved meats, aged cheeses, MSG (which was really hard, because on labels it is also called "natural seasoning" and can mean anything) grape juice, beans/legumes, onions, and yeast products. (basically, every food known to man)

I followed this, religiously, for six months, and was down to Triscuits, strawberry slimfast, and wonton soup (hold the MSG) as acceptible foods.  

A good friend and fellow chronic sufferer asked me one day, "So, you have given all these things up, are you having fewer headaches?" I wasn't having fewer headaches, and you can drive yourself crazy trying to figure out what you ate/drank to trigger an attack when you finally realize the attacks are going to come, no matter what.

Something is wrong, physiologically, that diet is not going to improve.



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