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Title: First Time Poster Post by Dr.Hufffurrrerrr on Nov 21st, 2003, 11:11am Just began a new battle with the Beast and thought I would seek some new ideas on the web for combat. Found CH, read many posts, and man is it good to know I'm not alone in this. I'm M44, episodic, last occurrence was 12/01 (normally it's once yr). Mine started 12/87, daily, 2-4 hrs, for 3-4 weeks, then it's over. Have used Imitrex (not especially effective), now trying Frovatriptan and have been very encouraged. I've knocked out 2 of 2 early stage (level 2) in the last 24hrs since filling this script. So my fingers are crossed. Anyway, it's good to know the next time I'm in a fetal positon at 4 in the morn., and agonizing; there are people out there that can relate, be positive therapy, and eventually defeat the beast! Look forward to sharing experiences. Craig in Oklahoma |
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Title: Re: First Time Poster Post by TxBasslady on Nov 21st, 2003, 11:26am :) Hi Craig, Welcome to the board. Lots of great information here and more friends than you can deal with!!!!! I am currently pf, due to a Prednisone taper. However, I also take the Frova. It does cut the time of my pain from 1-1 1/2 hours down to about 13 minutes. You will find that alot of meds do not work for everyone. The Frova is one of them. However, it worked for me! Keep posting and let us know how things are going. There is usually someone here round the clock. We look forward to getting to know you. Sending you lotz of pf vibes from Texas 8) Jean |
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Title: Re: First Time Poster Post by Dr.Hufffurrrerrr on Nov 21st, 2003, 11:33am Thanks Jean! It's nice of you to reply. The Frova has been great for me, but as you know what works today, may not work tomorrow. That is the part I dread the most...Keep in touch. |
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Title: Re: First Time Poster Post by TxBasslady on Nov 21st, 2003, 11:57am Craig, So very true.....guess that's why we have to take it one day at a time, and try not to think about what might not work "tomorrow" LOL. You will notice (by reading the other posts) that for some, it takes a combo of meds to do the trick. I have not had to do that (yet). I went on a Prednisone taper 73 days ago, and have been pf ever since. But, for some, as soon as they stop the taper.....the CH returns. Guess I have been lucky (so far). 8) This site IS pretty amazing! More info can be found here, then in the dr's office!!! :o We're here for ya, sweetie. As long as you stay with us, you will NEVER be alone! Jean |
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Title: Re: First Time Poster Post by ClusterChuck on Nov 21st, 2003, 12:08pm Welcome aboard, Craig. Sorry you had to come here, but glad you found us! Remember what Jean says. There is usually some here 24/7, so if after your 4am dance, you need to vent, go ahead! Someone should be here for you. Many of us are dancing at the same time. Welcome aboard! Chuck |
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Title: Re: First Time Poster Post by hootchdom on Nov 21st, 2003, 12:15pm Welcome Craig, Like everyone else, sorry you had to find us under these conditions. You will find someone here 24/7. I always do and they will be here to listen. Don't be afraid to use and abuse us. We have short memories. Been in cycle for 4 months now searching for that one pain free day. Sending one your way also. Hootchdom |
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Title: Re: First Time Poster Post by thomas on Nov 21st, 2003, 12:18pm Hey!!!! Welcome home. :) |
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Title: Re: First Time Poster Post by aprilbee on Nov 21st, 2003, 12:34pm Hey Craig! Welcome, I live in Oklahoma City! You have found the right spot for understanding, friendship and love...here's wishing pain free days and nights to ya! |
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Title: Re: First Time Poster Post by stevegeebe on Nov 21st, 2003, 12:53pm Welcome Home Dr. Huff. Steve G |
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Title: Re: First Time Poster Post by Dr.Hufffurrrerrr on Nov 21st, 2003, 3:25pm Thanks to all the previous well wishers! I just returned from a Civic club luncheon, stopped at WalMart to pick up a couple of things and I got caught...My basket 1/2 full and the big ugly settiing in. I abandoned the basket (no perishables) bought a vending machine drink & rushed to the car to midcate. Too late. Just got back to my office and saw the nice messages. Feel better already!! |
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Title: Re: First Time Poster Post by ZAIRA on Nov 21st, 2003, 4:25pm Glad you have found this place..... You have found people who understand, most of us were "full of desperation" :( until we found OUCH and it is been a life saver for most, me too. ;;D Welcome home!! All the best, Zaira |
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Title: Re: First Time Poster Post by Jackie on Nov 21st, 2003, 5:08pm Hi Dr. Huff.... Welcome to the family..sorry you are having a rough go of it right now. Things will get better for you....this bunch will see to it.... ;;D You mentioned some abortive meds that you're on. Are you taking any preventive medication? I was also wondering if you have tried 02 therapy....works great for many clusterheads around here with none of the nasty side effects. Again welcome to the family and please keep us posted on how you're doing. Hugs, Jacks 8) ,wife of a chronic |
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Title: Re: First Time Poster Post by Big_Dan on Nov 21st, 2003, 5:30pm Another one of them dang Okies.... ;;D Welcome to the board, Bro.... glad your finding weapons to put a whoopin' on the bastard.... ... Stick around, and we can stomp a mudhole in his ass as a Family Event... ;;D -Big Dan |
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Title: Re: First Time Poster Post by Dr.Hufffurrrerrr on Nov 21st, 2003, 5:34pm Hi and Thanks Jackie. No I am not taking any preventative med's. I didn't know there was such a thing. The only prevental was "Sea Mist" that I thought would be the answer...that was back in '98 ha ha. As for the o2 therapy, yesterday was the first I knew of such. I was telling my wife about how informing this site was & o2 was a popular fix. Well we got a good laugh out of it when she said. "Oh well that will be nice, you can go out in the garage and smoke your cigar, then come in and take oxygen" I thought I was gonna fall out. Thats as far as I've been with the O2...I'm still LMAO! Thanks for your note and interest..talk to you more soon. |
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Title: Re: First Time Poster Post by BobG on Nov 21st, 2003, 5:52pm Hey Dr. Craig.............smoke the cigar after the O2. Otherwise your own breath will stink up the mask. But, whether you do it first or last, DO NOT smoke and huff O2 and the same time. Good luck to ya. |
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Title: Re: First Time Poster Post by Little Deb on Nov 21st, 2003, 6:14pm Just wanted to say WELCOME!!! Little Deb North Carolina |
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Title: Re: First Time Poster Post by Charlie on Nov 21st, 2003, 10:01pm Welcome to our little world and I hope you stick around. As you may know, there a lot of good ideas here and people who know exactly what this horror can do. Here is something to look at. It helped me most of the time: http://www.netsync.net/users/charlies/\ Charlie |
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Title: Re: First Time Poster Post by BlueMeanie on Nov 22nd, 2003, 11:50am Hi Craig. I'm a newbie on this board also. I needed an emergency supply of IMITREX last week. The doc wasn't in so I talked to a substitute. She said since I'm almost done with my cycle (11 weeks 2 days) :D :) that it's too late to start a Prednisone taper. Hang in there and I'll send some good vibes your way!! |
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Title: Re: First Time Poster Post by KingOfPain on Nov 22nd, 2003, 12:22pm on 11/21/03 at 17:30:17, Big_Dan wrote:
Hey! I resemble that remark! ;;D http://www.funnyjunk.com/pages/hick_wiggling_toes_md_wht.gif LOL! Dr. H, Welcome. Happy you found this site. There is so much information & super compassionate, caring people here. You came to the right place. I look forward to getting to know you. Glad you "surfed" in. http://www.askandyaboutclothes.com/images/Ergo%20websurf.gif Thank you for posting. Pain Free times to you. KingOfPain |
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Title: Re: First Time Poster Post by BarbaraD on Nov 22nd, 2003, 2:41pm Craig, Welcome to Clusterville. the people here are a friendly bunch and very supportive. My suggestion (to the ones already given you) is to go to the left and click on the medical info and see what's available out there, copy it and take it to your doc to keep him "informed". Dr. Jerry's WATER TREATMENT works for a lot of us, O2 helps more (most of us swear by it), Imitrex is the "drug" of choice (I can't take it either, so I use Cafagot), and.... oh heck, just pull up a chair, get comfortable and start READING.... We have years of archives, you haven't even started on yet.... Hope you "hit" on the right treatment for you and that you're pain free in no time flat. Stay around... there's more that need support (too many more).. Grab an oar and start rowing. Take support when you need it - give it when you can... That's kinda the way it works around here. Hugs BD |
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