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Title: Hmmmmmmmmmmmmmm...... Post by aprilbee on Nov 7th, 2003, 9:31am May I vent a little please???? I have noticed that some members stay away from the board when they are out of cycle, instead of sticking around to support... I don't know why, but that just really bothers me. I think its only right to offer support when you can, especially when you're strong enough to give it!! I realize that forgetting about CH is one of the best things to do when out of cycle, you just want to forget you have it, but hey guess what, you still do and so do tons of other people who are suffering while you are not and need your support, help, love compassion, yada yada yada.... I ask that if you are not in cycle, please stick around and help, be a suporter, there are people here who NEVER have CH's and they are here every day... it just makes no sense to me....[smiley=confused.gif] Ok, I'm off my soap box now...thank you... |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by J.ten_Dam on Nov 7th, 2003, 9:37am I agree with you and I am a bit of a culprit :-[ as wel. I used to doo quite a bit of supportin myself even when I was not doing so wel. Which as cronic I seldom do. I had mentiond that I would be taking a break. I will do my best :) |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by thomas on Nov 7th, 2003, 9:38am That's why I'm still here this time. ::) |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by JDH on Nov 7th, 2003, 9:45am been here since 10/02 been pf since 2/03 I ain't going anywhere. Jim |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by vig on Nov 7th, 2003, 9:57am I think people have to do both. It's good to be here and help support, but sometimes you need to just go and live and forget that you were ever here.... paradoxical. |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by drnoe on Nov 7th, 2003, 10:03am Yes, s'an issue. I did feel funny posting when my cycle was aborted using verapamil (for the first time). S'an adjustment to have a cycle after 7 years PF and finding this site at the same time. This cycle rocked my world and left a big hole where a month had been. Y'know, seemed like one loooooong night of pain and relief repeated til they blurred together. I didn't post but I've kept reading. Yes indeed, I don't wanna think bout em at all when I don't have em and I'm not sure dwelling on CH and it's fractal facets is ,um,healthy.Information is good but that's abundant on the Meds board. But I do want to support this site and everybody here and so if there's something to say that hasn't already been said by 15 other repliers then I do. S'weird though. peace Dan |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by BarbaraD on Nov 7th, 2003, 10:32am Know what you mean ... a lot of CHeads only come here when they're in cycle and then leave when they're PF. It may not seem fair, but maybe they just want to forget CH when they're not hurting. The good news is -- there has never been a time since this MB went up that SOMEONE wasn't there for support when one of us needed it. Hugs BD |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Boots on Nov 7th, 2003, 12:47pm Now that I found this MB I would'nt leave for free trex... been pf since 8/15/03 |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Edna on Nov 7th, 2003, 12:59pm Understand how you feel aprilbee. Also think BarbD hits the nail on the head. "The good news is -- there has never been a time since this MB went up that SOMEONE wasn't there for support when one of us needed it." Hopefully that will always be the case. Glad those of us that ARE here remain. Hoping that even those that can't stick around full time still think of us while they're gone!! pf wishes, EDNA |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Roxy on Nov 7th, 2003, 1:28pm As usual.....I guess I'm not quite normal..... ::) I tend to just lurk when I'm hurting. When I'm feeling better, I post more. [smiley=bash.gif] |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Hirvimaki on Nov 7th, 2003, 1:57pm I'm the same way. I "lurk" when I am having an attack. But I am always around if someone - anyone - needs support. Hirvimaki |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by echo on Nov 7th, 2003, 2:07pm I try to stick around before during and after the seasonal dance. This year it seems like the SOB forgot about the seasonal breaks. Not in here as much lately due to "Big Brother". |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by 9erfan on Nov 7th, 2003, 2:20pm When I'm really hurting, I don't post very much at all. Just can't. Don't want to look at the screen, can't form the thoughts, can't stand the clicking of the keys, etc. When I'm feeling better I feel I can participate more. But that's just me. Don't post as much with my new job. |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by taraann on Nov 7th, 2003, 2:20pm I think it depends on a person and how they handle their own life and emotions about their CH. SOme ppl NEED to forget about CH when they are PF (I'm assuming) and others like to be there to help others when they are be it PF or not and it doesn't bother them to have that reminder of pain past and pain future. I for one am not going anywhere when the sun starts shining again and I'm PF. But I don't resent the one's that need to forget till the next go 'round with the beast. |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Mr.Happy on Nov 7th, 2003, 2:22pm Can you imagine 3 - 4,000 CHer's all spouting off in here daily? We'd have to recruit Evelyn Wood. It'd be almost as hard as keeping up with the OUCH board this past month or so........... Blessed be the Lurkers, RJ |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by jonny on Nov 7th, 2003, 2:53pm on 11/07/03 at 12:59:47, Edna wrote:
Edna, Edna, Edna....you know that as long as im breathing ill be here everyday, hell!!, ive been here EVERYDAY since 10/05/99...so dont you worry sweetie ;;D....LOL ........................................jonny |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by goaway on Nov 7th, 2003, 3:24pm You raise a point I have wondered about. For me, the majority of my posts have followed my last cycle which ended approximately 4 months ago. Even though I have tried like the dickens (more Southspeak) to rid myself of the cameradarie to be found on this board, I just can't help myself. OH MAMA, AM I ADDICTED!!! to all of you and your friendship. I love having you guys around. Oh, one more thing,.... if I can help one of you out from time to time, then that's just GREAT too!!! Best wishes from Mike from Mike from Mike from Mike from Mike from Mike from Mike from Mike from Mike (See? I just keep coming back for more :D :D :D) |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Edna on Nov 7th, 2003, 4:07pm Oh yeah Mike, you got it bad mister!!! And jonny!!!!!!!!!!! that is a comforting thought to me ole pal. Miss seeing you around so much, although I've had to be a little scarce myself. HELL, I can't even remember the last time I got to chat with CHARLIE!!!!!!! Oh geez, something's got to give in this busy life of mine so that I can continue to hassle a few ppl here...LOL pf wishes, EDNA |
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Title: Re: Hmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm...... Post by ZAIRA on Nov 7th, 2003, 4:15pm Hiya April, I agree with you! If we are here it is for helping us, we don’t have to be selfish, but think also to other people. Sometimes the pain becomes a good “teacher” and takes out the best of us. A simple “Hello, how are you?” can change yr. day! Maybe these people didn’t understand it... ;;D Quote:
My opinion.... it is the wrongest thing to forget CH, because when it comes again you could be not prepared. To live in the best way PF... this is important. But always be conscious that the “tomorrow” could be catastrophic. We are clusterhead! >:( Ciao, Zaira :-* |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by aprilbee on Nov 7th, 2003, 5:01pm Teraann, I never said I resented anyone, I was asking that those who are out of cycle stick around and support...I am not a mean person, this was just something on my mind. I'm sorry if I came off as resentful or mean, it was not meant that way... ;) |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by jonny on Nov 7th, 2003, 5:07pm Ill say it YOU SUCK!!!! If you suck on the support tittie and then fucking screw when your PF.....FUCK OFF!!!!! ...............................jonny |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by taraann on Nov 7th, 2003, 5:29pm on 11/07/03 at 17:01:25, aprilbee wrote:
Oh april I didnt mean it that way at all!!!! I never thought you were mean or resentful...I was just speaking in general...ya know what i mean? |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Charlie on Nov 7th, 2003, 5:52pm I'm officially lost. ??? Nevertheless, I like this place. It's a nice respite after a tough day of HBO, rewinding my English sitcom tapes, and working on my Ionian stamp collections. After a full day like this, coming here lets me unwind with other brain damaged types :o That reminds me; thanks Edna. I'll find you one of these days 8) Thanks kids. Charlie |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by brain_cramps on Nov 7th, 2003, 6:14pm Before a year ago, I would show up while in cycle... mostly lurking, occasionally posting. For the last year, I've tried to show up whenever possible. Lack of an internet connection and "uncomfortable living arrangements" couldn't keep me away for more than a few days at a time during the summer. Now that I'm studying at home, I'm basically online 24x7 (except for 4 hrs sleep some nights LOL) and, if anything, spend too much time here. Like it or not... I'm here to stay. grant ;;D |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by catlind on Nov 7th, 2003, 6:28pm Wish I could say I was lurking cause I was pain free. Sadly, Imitrex and I are very good buddies these days. Such is the lot in life I have :) Sooner or later they will go away...hopefully sooner. Cat |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Mark C on Nov 7th, 2003, 7:28pm This has become much more than just a place to share CH...I share friendships. When I was sick from the surgery I missed you all......when I feel better I post more. I really don't want to whine when I am in cycle. I do want to share when I am NOT. PF rules. They could cure CH tomorrow and I ain't going nowhere. Old-Timer-Mark |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by stevegeebe on Nov 7th, 2003, 9:48pm No shit Mark. Steve G |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by TxBasslady on Nov 8th, 2003, 12:52am ................59 days pf.........I love you guys [smiley=hug.gif] I ain't leavin!!!!!!!!!! Jean |
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Title: psssssssssssssst Post by rumplestiltskin on Nov 8th, 2003, 1:50am black squiggles onna screen that comfort build egos fill needs charge emotions pssssssssst....you can only control the keyboard....not the screen. Walk in the Sunshine den |
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Title: Re: Hmmmmmmmmmmmmmm...... Post by Tim_w on Nov 8th, 2003, 9:44pm I'll have to go with Tracey on this one ! The better I fill the more I post. Timw Happy Pappy |
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