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        New Message Board Archives >> 2003 Posts >> Does anyone else ...
        
(Message started by: Unsolved on Oct 20^th, 2003, 11:19am)

Title: Does anyone else ...
Post by Unsolved on Oct 20^th, 2003, 11:19am

have sleep apnea and treat it with a breathing machine ?

Title: Re: Does anyone else ...
Post by thomas on Oct 20^th, 2003, 11:23am

I haven't been checked for sleep apnea yet. Sorry.

Title: Re: Does anyone else ...
Post by Opus on Oct 20^th, 2003, 11:39am

Yes, I do, but don't expect it to make your CH better, I had my first cycle of 10's after being on the Cpap for 3 months.

Opus/Paul

Title: Re: Does anyone else ...
Post by Mikey on Oct 20^th, 2003, 12:03pm

Yeah, i use a Cpap too and have to use 2 lpm of O2 hooked up with it, because i'm on O2 all the time but some people use O2 at night with the machine ordered by the Doc because their O2 SAT is too low.
Do you use O2 with your CPAP at night Unsolved? For that matter, does anyone else have too? I have a O2 concentrator that goes up to 5 lpm, and i also use the bottles when i have a CH, or leave the house.

Just like Opus said, don't expect it to help the Chs. As a matter of fact, if you are having Hypoxemia (low O2 SAT) it causes the O2 to not have the effect that it should on the CHs, because you are already deprived of O2 and Hypoxemia actually makes the Chs worse.

Unsolved, besides from not getting the sleep that you should because of the CHs, are you extraordinarily sleepy during the day? If so, have your O2 SAT checked with a take home meter that allows you to record your O2 SAT for 24 Hrs, and then the Doc can see if you need O2 therapy.

Hope this helped you some. Good luck.....
Damn, i hate wearing that fucking mask.. >:(...Don't ya'll??

Mikey,

Title: Re: Does anyone else ...
Post by Unsolved on Oct 20^th, 2003, 3:49pm

No, I don't use O² with my Cpap. Kinna strange though now that you mention it. During the day my levels are fine...when I sleep the levels plummit. Doc says I stop breathing some which drops the levels. The levels are lower when I sleep on my back. Anyhows, I got a Cpap just the other day and i'm supposed to use it every night. It has a digital card in it (like satellite dish recievers) which records lots of info on it. I have to take the card back in 2 weeks.

Title: Re: Does anyone else ...
Post by Opus on Oct 20^th, 2003, 5:35pm

Mikey,
T here is an alternative to the mask, I use a device that just goes into the nostrils, the mask was destroying my nose as there is nothing but skin over bone there, and that head piece was very painful. I can't remember what this device is called but I can find it if you would like to know.

Also no O2, just a cold humidifier is on my Cpap. It only gives me 50% relief from my symptoms but I am a lot better than before I got it.

Opus/Paul

Title: Re: Does anyone else ...
Post by echo on Oct 21^st, 2003, 4:21pm

Yes, I have it (or had it) in a bad way. Stopped breathing 60 to 80 times an hour, at times up to 2 mins at a time. Had the CPAP with a humidifier but w/o O2. Pressure was set at 13 psi (15 is max). Had problems with any one mask if used for several nights. Ended up cycling between 4 different masks to keep my nose and head from getting sore. The need to use these 4 masks made corrective surgery possible. I've had the surgery and no longer need the CPAP, and I no longer have Apnea, hell I no longer have alot of stuff in the nose and throat area.

Title: Re: Does anyone else ...
Post by Mikey on Oct 21^st, 2003, 7:40pm

Thanks Opus, i'll ask the Doc about the type of thing that you are describing, and maybe i'll use mine more often than i do.

Mikey, ;;D

Title: Re: Does anyone else ...
Post by Mikey on Oct 21^st, 2003, 7:43pm

Good Unsolved, maybe then they can get an idea of your O2 sat all night long, and make a decision on whether or not you would need O2 therapy with your CPAP.

Mikey, ;;D

Title: Re: Does anyone else ...
Post by Mikey on Oct 21^st, 2003, 7:54pm

Echo, that's really good that you don't need yours anymore, that would be so wounderful for me, but i don't have any obstructions, mine comes from my brain signals. Yes i do stop breathing serveral times an hour(don't remember how many), and that just adds to my Hypoxemia, and sometimes i'm almost impossible to wake up from someone trying to wake me up. Been to the ER several times for that reason. When your body is so low on O2, you almost will go comatose.

Hope for free breathing and PFDAN to everyone!!!!!!!!!

Mikey,

Title: Re: Does anyone else ...
Post by Opus on Oct 22^nd, 2003, 1:40pm

Mikey,
The type of "mask" I use is called " ADAM CPAP circuit". It is not really a mask but more like a canula and the hose goes on top of your head. I can use it even if I have a sore nose from a cold. It will have to be fitted. Most drs only prescribe the mask. I got mine by going to my GP and he called for a refit, with no specified type.

Opus/Paul