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Title: What makes your ch worse during an attack? Post by nancyc on Oct 15th, 2003, 1:21pm I know alot of folks have no problem with lights but they aggrevate me when i am getting hit. I have dim lights in my bathroom since that is the first place i run to. Noise bothers me because i like to be alone I can not stand for anyone to touch me or move around me when I am getting hit. Crying makes my chs worse. Having someone ask me what can I do to make it better? I just want them to get the hell away from me and leave me alone. I think alot of the things that make my chs worse during an attack are because I am so used to isolating during an attack... ;Dnancyc |
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Title: Re: What makes your ch worse during an attack? Post by Patrick_A on Oct 15th, 2003, 1:33pm I can relate to the isolation subject, but only because i've been alone for so long. Noise or having to answer questions probably annoys me the worst. I truly don't think anything actually makes it worse. Like most, i isolate myself and i pace, squeeze, pull my hair, pound my temple....bla, bla, bla. Patrick |
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Title: Re: What makes your ch worse during an attack? Post by Karla on Oct 15th, 2003, 1:35pm First I want to say that I could have written Nancy's post. That aside the only other thing I can think of that makes my ch worse is heat and barometric changes in the weather. |
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Title: Re: What makes your ch worse during an attack? Post by thomas on Oct 15th, 2003, 1:38pm Any people around - they make too much noise. I find that listening to Fleetwood Mac helps - I don't know why. Light or any noise. I like to have a fan blowing on me when I am having a ch. |
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Title: Re: What makes your ch worse during an attack? Post by wayner57 on Oct 15th, 2003, 1:39pm when I get an attack, I also like to be alone, so I seek places where no one will see me or bother me. I also like to feel cool, and I know if I am in a hot enviroment it makes me feel worse. |
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Title: Re: What makes your ch worse during an attack? Post by stuey on Oct 15th, 2003, 2:11pm Each thing you said. Light I can't take, noise i cannot hear and do not under any circumstance try touching me. Stuey |
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Title: Re: What makes your ch worse during an attack? Post by Drk^Angel on Oct 15th, 2003, 2:14pm Flourescent lighting, sunlight, heat, and stupid people (unfortunately, I can't avoid 3 of the 4 while at werk.) PFDAN....................................... Drk^Angel |
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Title: Re: What makes your ch worse during an attack? Post by brain_cramps on Oct 15th, 2003, 2:34pm While a number of people here say that they enjoy a smoke after a CH, that cranks it right back up for me. (been a long time since i've done that). Just to be on the safe side, I won't have another smoke until the next morning. Pretty tough sometimes. grant |
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Title: Re: What makes your ch worse during an attack? Post by Bob_Johnson on Oct 15th, 2003, 2:59pm Light, sound, movement!! Fortunately, most of my attacks come in the early evening and so creating darkness in the house is relatively easy. Best thing I can do: sit in neutral posture; relax all muscles as much as possible; and try to get into a meditative mind place, i.e., drift into a much absence of active thought as possible. |
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Title: Re: What makes your ch worse during an attack? Post by ShariRae on Oct 15th, 2003, 3:08pm For me.. the biggest thing that makes it worse is heat..it seems 10x worse when I am sweating from the headache & it is hot..... Shari |
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Title: Re: What makes your ch worse during an attack? Post by Surf on Oct 15th, 2003, 3:18pm I am finding that most of us have simularities of what makes the ch worse. I attempt to avoid all the things that act as triggers, this kind of puts a damper on the quality of life, since if those that are triggers are also envolved in the "making it worse" then thats what I need to avoid. If you can find me while having an attack I would be pacing,praying,in a quite place, low odors attempting to block the world out. Maybe that is why we build a cage around ourself. Their seems to be alot of unknown reasons that things"make it worse" or act as "triggers" . I am so glad that we have affiliates that are attempting to do research in the area of cluster headaches, we need to find a cure and work together in order to do this.Speaking of work , we all got alot to do...Surf |
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Title: Re: What makes your ch worse during an attack? Post by gmlevenhagen on Oct 15th, 2003, 3:31pm Everything!!!!!! Gena ex O2 |
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Title: Re: What makes your ch worse during an attack? Post by Blake on Oct 15th, 2003, 3:36pm Ice sends me into a full Kip10. Light and noise don't work either. I try to be still so a lot of movement around me isn't good. Cool temperatures are a plus. Most of you like to be alone. I like Jackie right beside me. Her voice keeps me calm and I like her to touch me but not on the head or neck. I feel stronger when she is with me. There is one guy at work that I don't mind having around but I don't want him to touch me ;D Blake |
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Title: Re: What makes your ch worse during an attack? Post by echo on Oct 15th, 2003, 3:46pm on 10/15/03 at 13:35:51, Karla wrote:
What Karla said |
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Title: Re: What makes your ch worse during an attack? Post by Charlie on Oct 15th, 2003, 4:00pm Nothing increases the pain but stuff can make them harder to deal with. I'm very close to Nancy on this. I want dark, dead silence, a cool place, don't touch me, don't talk or ask me anything. Go away or I will kill you. Charlie |
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Title: StinRe: What makes your ch worse during an attack? Post by Tim_w on Oct 15th, 2003, 5:21pm Stinking perfume will send me to the top real quick! :-/ TimW Happy pappy |
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Title: Re: What makes your ch worse during an attack? Post by Prense on Oct 15th, 2003, 5:42pm Smoking and/or being hot during an attack... Light doesn't bother me, sound doesn't bother me. People do not even aggrivate an attack although isolation is preferred... The problem is...often I REALLY crave a cig while getting hit mid range on the Kip. After I light one up, the attack increases, and I realize that I am a dumbass. Oh well... |
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Title: Re: What makes your ch worse during an attack? Post by oringkid on Oct 15th, 2003, 5:54pm Wow, you guys are strange! LOL! Just kidding. I am textbook CH. Noise, no problem. Light, no problem. Being around others, no problem. Only thing that makes my CH worse, i.e. the pain gets worse is: 1) smoking a cigarette once it is underway (but I do this because I have found that it "hurries" the CH along to its peak and therefore is gone more quickly) 2) smoking "other stuff" same as number one 3) getting onion fumes during high kip shadows (say a kip 4 or 5) But this does not "help it along" like smoking in fact I found it heightens AND prolongs the attack!! I feel a bit stressed when people ask questions when I am in so much pain that I cannot physically answer them, but, it doesn't make the pain worse. I really feel that there is a lot more grey here than black and white. Seems to me that many here have a lot more migranous symptoms mixed in with the CH symptoms than many here would like to admit. In fact, if we were to be EXTREMELY RIGID in our criteria, there would be VERY few here that could claim true CH. Just something to ruminate on... Sherry |
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Title: Re: What makes your ch worse during an attack? Post by jonny on Oct 15th, 2003, 6:09pm Nothing. What makes it bearable is bright light and loud metal. ..............................jonny |
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Title: Re: What makes your ch worse during an attack? Post by tsayswhy on Oct 15th, 2003, 6:14pm light doen't seem to do anything! being lone sometime i want to be sometimes i want hubby around!! QUIET NO NOISE PLEASE no heat i get so hot when i am having one so i like ice and after its almost over yes i do..i do---light up a smoke it hurts more when i cry so i try not too ::) |
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Title: Re: What makes your ch worse during an attack? Post by kim on Oct 15th, 2003, 6:59pm ch attacks are for me like being "temporarily" allergic to everyone and everything. I despise being seen or observed while dancing my hellish jig. Noise and people do aggravate when the bell tolls. for me "optimum" cluster situation i can be in for a cluster attack is 1. by myself 2. near the bathroom/tub/shower 3. a coffee pot full of hot strong coffee WORST SCENARIO: 1. Being at work in a corporate environment with happy smiley people and ringing telephones ............. :o (i really hate those times)...... 2. Being with friends in a bar with loud music and everyone is having a ball..........(kill me NOW ::)) 3. Driving in traffic :o :o :o |
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Title: Re: What makes your ch worse during an attack? Post by Chia on Oct 15th, 2003, 7:04pm Oh My God Nancy....you described Charlie to a Tee!!!!!! When he gets hit I live in darkness and silence and if I don't go check on him every once in a while he thinks I don't care but then If I ask any questions he hardly knows I am there....*sigh*.....I could only hope that there will be a solution some day.....Chia :-/ |
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Title: Re: What makes your ch worse during an attack? Post by nancyc on Oct 15th, 2003, 7:10pm Sherry, have a really hard time thinking what i feel is migarines..even though i know they are hell ..not trying to make their pain seem less than mine..After all, we are cousins....but these are the things i deal with when hit with chs...have had them for over 28 years..wish i did not.....are they personal? are they symptomatic? who the hell knows..all i know is leave me the fuck alone when i am getting hit...i want to be alone.....i hate life when i am in pain...i thrive when i am NOT.... :D |
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Title: Re: What makes your ch worse during an attack? Post by oringkid on Oct 15th, 2003, 7:14pm oh, Nancy, don't get me wrong, I'm not saying they are migraines at all... just saying that there is more of a lap-over of symptoms than some would like to admit. IE the Noise, light, etc type thing. We WANT them to be completely different, but there ARE symptoms for many that are similar or the same. Sherry |
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Title: Re: What makes your ch worse during an attack? Post by nancyc on Oct 15th, 2003, 7:17pm Oh, sis..i do know that...very well...i guess i am so damn tired of hearing..well, you have a headache..maybe a migraine...from people that know nothing about chs and could care less about them...i am thin skinned..what can i say? ??? no offense meant..i am not in a good mood tonite. LOL ;Dnancyc |
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Title: Re: What makes your ch worse during an attack? Post by andy on Oct 15th, 2003, 7:21pm on 10/15/03 at 17:54:41, oringkid wrote:
......andy |
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Title: Re: What makes your ch worse during an attack? Post by oringkid on Oct 15th, 2003, 7:22pm Hey, don't worry, I'm in a cynical mood tonite. And I know what you mean completely. Sherry |
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Title: Re: What makes your ch worse during an attack? Post by kim on Oct 15th, 2003, 7:28pm all cynicism aside, .........ANDY? :D........that "text book" version is about the teeeniest tienest paragraph ever to be read :D personally? WTF (What being Who) is the REAL textbook CH? Please. Stand up will ya, so we can all sit the fuck down and breathe a deep sigh of ...................? :) PFDAN |
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Title: Re: What makes your ch worse during an attack? Post by oringkid on Oct 15th, 2003, 7:34pm Well Andy, the "textbook" case has changed ALOT over the years... I bet some of the oldtimers could tell you though... My only problem with being a TRUE textbook case was that I am FEMALE and the original textbook cases were male. Course ya know, the Biggest sign of NOT having CH is if you are defensive about having it!! LOL! Just kidding! Sherry (who is not usually such an a$$hole) |
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Title: Re: What makes your ch worse during an attack? Post by kim on Oct 15th, 2003, 7:42pm sheeeesh. and she don't even like sports ;D Oh. and the textbook is still thin - very thin. text book chiks need mo page. |
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Title: Re: What makes your ch worse during an attack? Post by oringkid on Oct 15th, 2003, 7:56pm ;D Kim you sooooo funny! yep, I needs mo page! I also needs a cig, an fo somebody to send me a rabbit with pearls in the mail.... LOL!! Smokin' da butts and needin mo' page Sherry |
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Title: Re: What makes your ch worse during an attack? Post by andy on Oct 15th, 2003, 8:08pm Hell, i cant even read, them textbooks need pictures .......andy |
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Title: Re: What makes your ch worse during an attack? Post by nancyc on Oct 15th, 2003, 8:39pm Sherry, i have tried all nite to quote your quotes....i am not good at this..i am hopeless , my friend,at being a computer genius.....anyway, first of all, you dont have to have been an oldtimer to feel what we feel...second of all, i am a FEMALE...fuck the surveys saying otherwise...you know i love you sis...but had to say this..i hate surveys... ; ;Dnancyc |
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Title: Re: What makes your ch worse during an attack? Post by Marc on Oct 16th, 2003, 9:54pm Nancy, My answer to your question of "what makes it worse" is: Giving up and falling into the darkness of "Why me" Like everyone else, I have whole list of what helps me. I tend to take Jonny's approach and fight the bastard full blast - balls out and head on. A weak mental attitude going into the fight simply makes it worse. But what do I know, I'm just a newbie......... Marc |
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Title: Re: What makes your ch worse during an attack? Post by ozzman on Oct 17th, 2003, 8:29am on 10/15/03 at 18:59:11, kim wrote:
Agree 100% all 3 of the above. But I can add one more hellish scenario... 4. Middle of the night kip 10, both kids sick, wailing at the top of their lungs (been there a couple of times) Light in general does not bother me, but I prefer a cool room, I prefer all cold in general. If the room is lit it seems to me like the light will "heat" my face even more, yet I don't mind being outdoors while getting hit. Noise, if is my own noise I have no problem (loud heavy metal to drown the *noise* of the pain) If it is people laughing, phones ringing, kids crying, etc I really can't stand it. But then again, while not in cycle I'm the same way some days... Ozzy |
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Title: Re: What makes your ch worse during an attack? Post by brain_cramps on Oct 17th, 2003, 9:02am Only time the light ever bothered me was while lying in the ER with BRIGHT lights that seemed like they are a foot in front of my face. And why can't they understand that while getting hit, most of us don't want to lay down. ER Nurse: "If you get out of bed one more time, I'm going to send you home." MY REPLY: "If you tell me that one more time, you're gonna need this bed more than me!" grant (who doesn't do ER anymore) >:( |
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Title: Re: What makes your ch worse during an attack? Post by Big_Dan on Oct 17th, 2003, 9:12am My eyes are sensitive to light CH or not, so during a hit, it’s just one more thing to piss me off…. Smoking during an attack sharpens the pain somewhat… but I have to have one anyway, simply for the “comfort”…. My dad calling me every couple hours to check on me…. God bless him for worrying about me, but damnit... I'll call YOU… -Big Dan |
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Title: Re: What makes your ch worse during an attack? Post by litlgriz on Oct 17th, 2003, 9:56am after the summer we had here in colorado,,,,,,,in my town we were over 100 plus for the month of july n after,,,,,,,,,,,n believe me the heat is a big one,,,,,,,,,once it started coolin down,,,,,,,,,they were less severe,,,,,,,,,,,n finally going away this fall,,,,,,, |
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Title: Re: What makes your ch worse during an attack? Post by cavina on Oct 17th, 2003, 10:01am Definetly noise and light make things worsen very quickly. Having someone walking around doesn't help at all, the sound of those steps is unbearable. I have had to tell my wife to leave me alone: please don't ask me questions at all, don't make me talk. Poor of her, I believe that she is not understanding completely what CH are all about, but she suffers seeing me that bad, even more than myself. |
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Title: Re: What makes your ch worse during an attack? Post by Cerberus on Oct 17th, 2003, 11:01am Noise doesn't seem to bother me unless its really high pitched, but, Light is a killer in almost any form, found myself cursing the blinking VCR clock at 3 and 4 am quite a few times. As the others have stated pretty much anyone being within earshot or reach is aggravating too....... Ramon |
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Title: Re: What makes your ch worse during an attack? Post by Kenzie60 on Oct 17th, 2003, 11:32am Light also bother me. Heat kills me, I try to sit in front of an AC with it on full blast or I will sit in the car with the AC on and the raido on with my face right up to the AC vents so that the air is blowing in my face. It actually works. I also cannot stand anyone around while I am getting hit and my husband and kids understand that. When I am getting hit they leave me alone, they don't even look at me. Roseanne |
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