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        New Message Board Archives >> 2003 Posts >> anti-phosphid lipid syndrome(Hughes syndrome)
        
(Message started by: Reese on Oct 12^th, 2003, 7:03am)

Title: anti-phosphid lipid syndrome(Hughes syndrome)
Post by Reese on Oct 12^th, 2003, 7:03am

I will be going to neuro tomorrow to have a blood test taken for this possible blood disorder.It is also called sticky blood and has been linked to headaches.My mother has it but does not get cluster headaches,she just has ms symptoms and is on blood thinners.I guess this is some new disease which not too much is known about it.I doubt it has to do with my cluster headaches if I have it but just want to know since its hereditary and the males in my family die early (34and 49) from heart attacks and stroke.

Title: Re: anti-phosphid lipid syndrome(Hughes syndrome)
Post by floridian on Oct 12^th, 2003, 11:06am

Keep us posted, Reese - I hope your test comes back negative. Clusterheads do have some phospholipd / cell membrane problems, but it doesn't seem to be a phospholipd antibody problem.

Quote:

Cephalalgia. 1991 May;11(2):101-2.

Anticardiolipin antibodies in cluster headache. Hering R, Couturier EG, Asherson RA, Steiner TJ. Princess Margaret Migraine Clinic, Charing Cross Hospital, London.

Antiphospholipid antibodies have occasionally been observed in migraine patients, but a recent study of a large series suggested the association was with other concurrent conditions, not specifically with migraine. We wondered about an association with other vascular headaches and measured anticardiolipin antibody levels in 20 cluster headache patients during the cluster period (three during an acute attack). Platelet counts were normal and VDRL negative in all patients. No elevated anticardiolipin antibody levels were found. There appears to be no important association between the presence of anticardiolipin antibodies and cluster headache, and we argue that there is no further rationale for seeking one.

Title: Re: anti-phosphid lipid syndrome(Hughes syndrome)
Post by Ree on Oct 12^th, 2003, 1:15pm

MY friends husband has a blood disorder like that called Polycythemia... He also gets clusters... Never had clusters in his life til he got this disorder... Does your face look red all the time... its a symptom of that disorder. Don't be frightened when they send you to an Oncology doc. I have Dysfibrogenemia (clotting disorder) and when they sent me to the Oncologist I thought my days were numbered... keep us posted... If this helps my friends hubby takes Verapamil now and it seems to keep the attacks down... good luck Ree

Title: Re: anti-phosphid lipid syndrome(Hughes syndrome)
Post by Reese on Oct 12^th, 2003, 3:10pm

thanks and I will let you know so check back tomorrow eve.