Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2003 Posts >> E-MAIL TARGET: Ted Koppel, Nightline. Let's do it.
        
(Message started by: SommelierCH on Oct 5^th, 2003, 6:06am)

Title: E-MAIL TARGET: Ted Koppel, Nightline. Let's do it.
Post by SommelierCH on Oct 5^th, 2003, 6:06am

http://a.abcnews.com/media/OnAir/images/showlogo_nightline_115.gif

From their contact page, this one is VERY easy, just Name and email address, so that they can send a confirmation:

"E-mail Nightline(We're Listening) Questions or comments about a Nightline broadcast? Ideas for issues or stories you’d like us to explore? Reactions to a recent program or e-mail? Tell us about them.

Have you heard a rumor or question that you want Nightline to Fact Check on-air? Send us an e-mail to nightline@abcnews.com and mark "Fact Check" in the subject line or put your question in the form below.
Please note: We may publish your message in our Letters to the Editor feature. If you do NOT want us to post it, please say so."

http://abcnews.go.com/sections/nightline/Nightline/Nightline_email_form.html

I am baffled by the lack of response on this Message Board from people who shared their thoughts with me about the direction this E-mail Target Campaign should go. I listened, made the suggested changes, and it still seems like there is some kind of internal blockage that I just cannot fathom. I’m not going to go away, you all know that by now, so can’t we all join hands for awhile? Just once a week?

We are only planting seeds. We are not harvesting a full blown National Prime Time Special, we are only planting seeds. But we will plant these seeds every fucking week, every fucking year. These are magical seeds. They are free. Why wouldn’t you plant one or two?

David J.

P.S. Those who participate, check back in and let us know. It helps to encourage others and even a one word response keeps this thread alive. Newbies and Lurkers this is a good time for you to chime in.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by SommelierCH on Oct 5^th, 2003, 6:26am

I saved this, in Word. Don't know who it was, or when, but it seemed apropos.

Courage……and craziness
OK my friends….I’m going to go out on the proverbial limb here but I HAVE JUST ABOUT FUCKING HAD IT with:
1- Insurance companies who have no compassion for people in REAL, VERIFIABLE, OBVIOUS, ______fill in the blank with your favorite adjective________PAIN
2- Doctors, who in their arrogance, cannot listen to the people in the trenches, the people who, like Donna and nancyc and Margi (and all the rest of the sufferers and supporters of people who have a reason to BE in an ER), SEES, HEARS, even SMELLS the fear and agony of people who come to the ER as a second to last resort to stepping off the subway platform in front of the “A” train
3- The drug dealers who put their bleeding PROFIT line above any reasonable hope of finding a cure for clusters and AIDS and diabetes and cancer and all of the other horrible diseases that afflict us all
4- And, not least of all, you whining, pathetic, CLUSTERHEADS, who let the afore-mentioned push you around. YOU are the ones that most PISS ME OFF! I just read cranpain’s post and I wish I had said that. I could probably come up with some more of the same…..but that’s just what it would be: MORE OF THE LAME SAME GAME ABOUT PAIN……we’ve heard it….we’ve FUCKING FELT IT…to each his/her own corner of personal Hell…I cannot define your pain, feel it, change it, make it better, kiss your boo-boo, nor can YOU…..Mr/Mrs/Dr/lawyer/veteran/manager/burgerflipper/mother/ lover/father/brother/weenie/cat-hater/yadder-fader…….know how I deal with MY beast….thank God for that…..

BUT IF WE ALL DON’T GET ON OUR FEET…WE WILL SURELY SUFFER ON OUR KNEES….

There’s a few of you who are doin’ what needs to be done…..Elaine and her chat and her new store…Ueli and his research….Pinky and Flash and the shroomery…Don & Den & Ted & Lee & Bob & Mast & kim & Pappy & Liz & Jackie & Jack & jonny & Ave & Drk & Charlie & on & on & on…..they’re all here damn near every hour of every day and they all contribute SOMETHING….even if I don’t agree or even have a clue what the hell they’re bitchin & pissin & moanin ABOUT.

But DAMMIT…..this OUCH deal has got to be PROACTIVE and get the word out somehow to the doctors and insurance companies and the drug dealers and us who suffer. I haven’t done diddly about it either…I am just as bad (or as good) as any in HERE or out THERE who has yet to find this small, discordant haven.

The thing that chaps the most me is when I hear/read of somebody who has a SHOT at making a difference, of TELLING that arrogant/ignorant neurologist that there are alternative treatments and drugs……of FAILING to put out the caring hand to some poor kid who thinks his brain is exploding…….of flat-out DEMANDING that drug companies be held accountable for ridiculous prices.

Don’t even bother telling me I’m just pissin’ in the wind….I know…I know….but if I can spread just a little bit of the word and know I’m not alone…..well, hell…we all may just find the courage to keep the light turning and the craziness to shout it out…..Thanks for the opportunity to make a difference……Thanks to all of you.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by OneEyeBlind on Oct 5^th, 2003, 8:32am

Did it again. I am a firm believer in those that stand up for themselves may fall, but have pride. Those that just complain ... keep on complaining.

Keep up the good work. I appreciate the links, and how easy you make this for us. I just wish everyone else thought they could make a difference by responding.

Come on guys !!!!!!!!!!!!!!!! We are in charge of our illness. If we don't take the time to try and doing SOMETHING about it ...... who the hell do you think will ???????

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Roxy on Oct 5^th, 2003, 9:34am

Got my response back:

Dear Tracey,

Thank you for sharing your thoughts about the need for investigation into clusterheadaches. The Nightline staff values comments from our viewers, and we can assure you that each message is read and that feedback--both positive and negative--as well as story ideas and suggestions, are greatly appreciated. Viewer thoughts are very helpful as we reflect upon past programs and produce future broadcasts as well.

Thanks again for your thoughts, and we hope you continue to watch Nightline.

Sincerely,
ABC News Nightline

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by OneEyeBlind on Oct 5^th, 2003, 9:44am

I got basically the same response !!!! At least we know they are tracking the responses !!!!!! Come on guys ...... let's get a move on !!!!!!!! This includes supporters ........ you can write a letter too !

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Miss_Deleny on Oct 5^th, 2003, 9:47am

My letter/e-mail was sent! 1 for the supporters! ;)

~April~

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Edna on Oct 5^th, 2003, 10:02am

such little effort it takes, thanks David

done deed here, who else?

pf wishes can't happen if we don't help,
EDNA

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Jackie on Oct 5^th, 2003, 10:28am

OK.....DONE!!!

Come on folks.....get to writin'.....

Jacks 8)

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Mastifflvr28 on Oct 5^th, 2003, 10:35am

Done,
thanks David for making that so easy.
Mast

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by brain_cramps on Oct 5^th, 2003, 10:49am

done !!!!! It doesn't get much easier than that.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by angry_bear on Oct 5^th, 2003, 11:47am

I'm only a supporter, but I let Ted know they should follow up on this. I hope many more e-mail Nightline. No excuse not to. It's so easy even I (computer illerate) was able to do it.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by jonny on Oct 5^th, 2003, 12:01pm

Done!

................................jonny

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by UnsolvedEquation on Oct 5^th, 2003, 12:07pm

Just wanted to say that I send e-mails to every 'target' you put on the board (even if I didn't reply and say so).
Keep up the good work and I'll try to do my part too.
I hope everyone else is putting up there story too.
I even offer to the 'targets' to give them full access to my medical records and 'my story'. You never know, maybe one of them will take me up on the offer and I'll be put on TV to tell the world about clusters & this site.
~ Unsolved ~

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Mr.Happy on Oct 5^th, 2003, 1:32pm

on 10/05/03 at 12:07:38, UnsolvedEquation wrote:

Just wanted to say that I send e-mails to every 'target' you put on the board (even if I didn't reply and say so).

Sure hope that's the case for everyone. Folks are always asking "What can I do to help.....?" Doesn't get any easier than this. As long as we keep throwing lines in the water, we'll have a chance of something biting our baited hook.

I fish and I vote, (http://www.savefish.com/)
RJ

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by andy on Oct 5^th, 2003, 1:41pm

Done did this week ........andy

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Prense on Oct 5^th, 2003, 1:46pm

Done!

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by OneEyeBlind on Oct 6^th, 2003, 7:21am

Tossing my line out to see if I catch a big bass.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Melissa on Oct 6^th, 2003, 8:25am

done :)

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by juvy on Oct 6^th, 2003, 8:52am

Okay threw my line in, now i'll wait for a response.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by ozzman on Oct 6^th, 2003, 9:18am

Done

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by TxBasslady on Oct 6^th, 2003, 10:38am

;)
Done...............thank you, David J. 8)

Jean

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by gmlevenhagen on Oct 6^th, 2003, 10:59am

done, done and done! ;D

Gena

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by pigeon on Oct 6^th, 2003, 4:07pm

I'm in.

JoeP

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by stevegeebe on Oct 6^th, 2003, 6:02pm

Done.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by DJ on Oct 7^th, 2003, 2:29am

Mine's in too! Keep 'em coming David!

You ROCK dude!

8)

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by BarbaraD on Oct 7^th, 2003, 4:18am

Done - I just forget to tell ya so. BD

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by aprilbee on Oct 7^th, 2003, 7:36am

a couple of days late, but DONE!

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Jackie on Oct 7^th, 2003, 4:06pm

I got mail from Ted...................well, kinda..... ;D

Jacks 8)

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by LasVegas on Oct 9^th, 2003, 5:57pm

"Done", I wrote...
Few medical doctors are familiar with a headache disorder called Cluster Headaches. A website, clusterheadaches.com, has been organized and supported by 4060 sufferers worldwide. We all have the same problems; the excruciating pain and lack of help because few are educated on this disorder. Any suggestions to receive media coverage?

Gregg in Las Vegas, NV
GHWIESER@AOL.COM

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by mikezz on Oct 9^th, 2003, 6:13pm

Ok I sent mine.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by River_Rat on Oct 9^th, 2003, 6:26pm

DONE-----Easy as that

LEE

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Charlie on Oct 9^th, 2003, 10:18pm

Me too.

MOC

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by BobG on Oct 9^th, 2003, 10:40pm

Mine was done a few days ago.

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Melissa on Oct 10^th, 2003, 9:33am

I recieved a response today:

Dear Melissa,

Thank you for your story idea submission. Because we receive many ideas everyday, it is difficult to respond to everyone individually. We will, however, forward your submission on to our producers for a possible Nightline broadcast.

Thanks again for your thoughts, and continuing interest in Nightline.

Sincerely,
ABC News Nightline

Find out the subject of each night's broadcast by signing up for the Nightline daily e-mail on our webpage, http://www.abcnews.go.com/Sections/Nightline/.

-----Original Message-----
From: mfiltz@highstream.net [mailto:mfiltz@highstream.net]
Posted At: Monday, October 06, 2003 9:47 AM
Posted To: Cluster headaches
Conversation: NIGHTLINE via ABCNEWS.com
Subject: NIGHTLINE via ABCNEWS.com

from = mfiltz@highstream.net
name = Melissa Filtz
question = I would like to see a health segment on Cluster Headaches. I suffer from this condition, and would like to know what is being done as far as research and treatment. There are never any TV programs on that discuss this rare affliction.

_pragma = no-cache
subj = NIGHTLINE via ABCNEWS.com

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Kirk on Oct 10^th, 2003, 2:11pm

Done! Yeah I'm slow this week.
Ever notice that you never see Ted Koppel and Howdy Doody in the same room together?
Coincidence?
Just wondering.

TTFN

Kirk

Title: Re: E-MAIL TARGET: Ted Koppel, Nightline. Let's do
Post by Lori on Oct 10^th, 2003, 7:02pm

Mine is done too..yes i am slow. Sorry