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        New Message Board Archives >> 2003 Posts >> It's 3am Are We having Fun Yet????
        
(Message started by: BarbaraD on Oct 2^nd, 2003, 3:07am)

Title: It's 3am Are We having Fun Yet????
Post by BarbaraD on Oct 2^nd, 2003, 3:07am

Well, here it is 3 a.m. and I'm up dancing again. Mr. Beast decided I'd had enough sleep so we'd just get up early this morning.

Now I'm a fashion statement and a half. Sitting here with my little O2 mask and my headband (of course I have my Mickey Mouse Magnets stuck in everywhere) and just typing away trying to think of anything except my head. Gotta sack of frozen peas on the back of my neck and I'm looking "Fine" this morning. Geezzz! That coffee pot is SLOW this mornng!!!!!

Oh well, hope all ya'll are still in your beds with visions of sugarplumbs and all that stuff PF and hope ya'll stay that way. ;D

I'm gonna go rush the coffee pot up and bang my head for a while....

Hugs BD

Title: Re: It's 3am Are We having Fun Yet????
Post by Dave_Emond on Oct 2^nd, 2003, 5:10am

Hi Barb,
Been sitting here since 10:00 last night, too much pain, can't sleep. Even went in and made football picks for Elaine. Played some "spider solitaire" and "Free Cell".
Checked all Business Board posts: Have comments on Bylaws along your same lines, but should wait until my head is clearer to comment.
Hoping I can just pass out pretty soon, but will probably wait until Annette gets up now so she can keep an eye on me.
Hope you're still not dancing,
Dave

Title: Re: It's 3am Are We having Fun Yet????
Post by OneEyeBlind on Oct 2^nd, 2003, 5:22am

I wish the two of you pain free time !!!!!!!!

Title: Re: It's 3am Are We having Fun Yet????
Post by Dave_Emond on Oct 2^nd, 2003, 5:32am

Thanks!
Not looking to good right now, may be a longer day today, but then again, maybe I'll pass out so hard I'll sleep for more than 2 hours for once in a long time.
BTW: thanks for the E-mail you sent, I got so many I haven't been able to reply to them all yet.
right now just punching keys to keep my head going, will probably wish I hadn't once I get to sleep and come back and see what I may have written ;)
Dave

Title: Re: It's 3am Are We having Fun Yet????
Post by BarbaraD on Oct 2^nd, 2003, 5:37am

Dave hate to see you having such a ruff time. Hope they find out something for sure soon. The not knowing is really the pitts.

Wishing you PF times ahead....

Lots of hugs your way....

BD

Title: Re: It's 3am Are We having Fun Yet????
Post by Dave_Emond on Oct 2^nd, 2003, 5:50am

Thanks Barb,
Yeah, I'm pretty much at a point where I don't even care what it is, just want a name for it, then go from there.
It took almost 3 years to be diagnosed with CH, couldn't explain what I was going through to anyone. Once a neuro told me, I went home and looked it up. Found this new site CH.com and read the surveys and info and it blew me away! The descriptions were so on target I couldn't understand why it took so long for anyone to diagnose it earlier.
Don't want that same run around again, so I'll see anyone, even the %&%$ that doesn't think Clusters are real. Maybe I can get through to him, but I'd bet his ego will not let him even consider it. Will try though.
Dave

Title: Re: It's 3am Are We having Fun Yet????
Post by TxBasslady on Oct 2^nd, 2003, 7:52am

;)
Hi Barbara

Sure hope you got some sleep. Looks like you and Dave were both havin a rough mornin !! ???

Looks like I'll have to split up these vibes and send some thru the piney woods and some to Colorado. ;D

Take care.....I want to come see you next week. ;)

Jean

Title: Re: It's 3am Are We having Fun Yet????
Post by Dave_Emond on Oct 2^nd, 2003, 8:08am

Still here ...
Long, long, long night ....
But there's a good side, Annette is still sleeping. All the stress over the last month has been quite a bit for her.
This is probably the most sleep she's gotten in a long time. If that dog keeps barking and wakes her up, I may have to ... oh yeah ... like I could catch him!
I hope she sleeps even later, normally she would be up by now, and slowly make her way out to see if I'm alright. I may wake to pain, but she wakes to fear. I hate how this effects the ones we love more than how it effects me.
She is so strong though, I couldn't make it without her. Supporters are such special people, I consider all of them to be pure Angels!
Here's to all supporters from one blessed Clusterhead!
Dave

Title: Re: It's 3am Are We having Fun Yet????
Post by catlind on Oct 2^nd, 2003, 12:13pm

Dave, your sentiments are so very true. I have always held a great deal of respect for supporters. I know how horrible it would be to see someone I love in this kind of pain. I just never was able to fully understand it until the convention.

There were several of us family members, having a good time, and suddenly one of us would disappear. As a sufferer, we know the pain, and then suddenly to be plunged into the depths of supporter...to watch those we love as family and friends suffer, and know there is not a damn thing we can do.

I now consider my own supporter, and every other supporter here to be real heroes. Many times I have seen these people put aside their own fears, frustrations, exhaustion and pain to stand at our sides and hold our hands while we endure.

Their strength is amazing to me.

Those of us that have supporters should remember to thank our supporters and let them know how much they mean to us.

Hmmm, if we can have a CH sufferers day/week/month, we should have a supporters day/week/month as well :)

Where would we be without them?

Cat

Title: Re: It's 3am Are We having Fun Yet????
Post by Elaine on Oct 2^nd, 2003, 12:18pm

DITTO CAT!

Title: Re: It's 3am Are We having Fun Yet????
Post by firebrix on Oct 2^nd, 2003, 2:56pm

Hey guys and gals
Its really nice to read something positive about supporters! Thank you. I feel a little more empowered and useful again now. Some of us need a little positive feedback from time to time.

I feel so sad that you two, Dave and Barbara have had such a horrid night. We know those nights too. I wish you peace, rest and happier days ahead. I'd make that coffee for you Barbara, but its a long way and it'd get cold on the way! Love to you both and your supporters.
firebrix

Title: Re: It's 3am Are We having Fun Yet????
Post by vig on Oct 2^nd, 2003, 3:01pm

supporters... Where would we be without them?

lost at sea.

:^(.

Title: Re: It's 3am Are We having Fun Yet????
Post by cootie on Oct 2^nd, 2003, 3:55pm

Hope you two are doin alright by now and 'got sum rest' ? Sorry ya gotta go thru this crap. Me....I'm a supporter and feel I am on the outside lookin in when Brad is in cycle....nothin is the same for quite a while and I feel like I am just a follower since everythin we end up doin is based around what is gonna happen to him. Buncha shit you guys go thru...I dunno how ya do it !!! Pam that's ready ta jump in fronta a movein vehicle with jus a 'normal' ha (well mine aren't actually normal but you know what I mean)

Title: Re: It's 3am Are We having Fun Yet????
Post by BarbaraD on Oct 2^nd, 2003, 5:20pm

Thank goodness for cafergot. Had to take hubby to the doc early this morning and then in for a brain scan -- the good news is -- they found a brain. (Come on - gotta laugh - makes the day go a little better).

Then I got to work (yeah I still had to come to work) and had a surprise. Got my skinny little monitor today. It's so neat (what do they call them - flat screen's?) Now I can see so much better - so something good did happen today. I'm still at about a 3-4, but better than at 3 this morning. Just not talking to people much and for some reason everyone is staying out of my way.

Now I gotta go home and fix hubby dinner and then take some more cafegot and maybe it'll ease up enough that I can catch a couple of hours sleep before I get to start over again. Hope I don't see you guys at 3 in the morning. Maybe 5?

Hugs BD