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        New Message Board Archives >> 2003 Posts >> Wow and Thanks from Not Crazy After All
        
(Message started by: Donna_D. on Sep 27^th, 2003, 11:41pm)

Title: Wow and Thanks from Not Crazy After All
Post by Donna_D. on Sep 27^th, 2003, 11:41pm

WOW!! I am overwhelmed and touched by the wonderful, supportive and caring responses I received to my first post. My husband was amazed that I received so many replies, so quickly.

It took me until tonight to realize why this particular group is so strong. It all boils down to...

It takes one to know one.

It is impossible to explain the pain to someone who does not suffer from CH.

Thank you to all of you. Just knowing that there is someone (a lot of someones!!) out there who understand really helps.

For those of you who read my first post here is a bit of good news.

Mother-in-law has redeemed herself. My husband just started a new job and if I go to the doctor now it will be considered a pre-existing condition and not covered on the new policy. From everything I have read so far this is not a cheap illness, so I am having to make due for the next 60 days. Courtesy of some "creative aquisitioning" (SH-H-H-H-H!! Don't tell please) Prednesone (which I have taken before with no ill effects) and O2 are on the way!! Sometimes you gotta do what you gotta do.

Any home remedies or suggestions to help me get through will be greatly appreciated.

Thank you all!

Donna D.

Title: Re: Wow and Thanks from Not Crazy After All
Post by BarbaraD on Sep 27^th, 2003, 11:54pm

Ok Donna,

Here goes my "home remedies" Ya got the O2 that's good... Now...

When the first signs of the HA start --- Take 3 Extra STrength Excedrin and a cup of Black Coffee with the O2 (at least 8 ltrs for about 15 min with the mask NOT the nose thingy). BUT don't use the Excedrin too often - they can cause rebounds.... This works for me - sometimes.

Lots of water - check out Margie's Water Cure - it works - sometimes.

Physical exercise works for a lot of people (frankly banging my head is about all the exercise I can handle). Some do push ups or walk for miles during an attack.

One more question -- Does your husband happen to be a Vet? If so... that may help with the medical treatment and meds... it's a thought.

Go to the Left and READ READ READ - there are about as many treatments as there are posters here. Nothing works for everyone, but there is something that will help - at least part of the time. You just have to find the right thing.

Let us know how it's going and you know we're here for you and your hubby. Glad mother-in=law straightened up. That helps some.

Hugs BD

Title: Re: Wow and Thanks from Not Crazy After All
Post by TxBasslady on Sep 28^th, 2003, 1:06am

:)
Hi Donna,
This is a pretty amazing site, I have to agree. I too felt all alone, till I came here and posted. It was like a miracle to me. The support, love and compassion is unlike anything I have ever experienced. Always someone here to help...no matter what the problem.

Good luck on the Prednisone...I just finished a Prednisone taper, and have been pf for 18 days. Not gonna let my guard down tho...I know the beast is still out there.

Ice paks worked great for me...had to have one for my eye and back of my neck. I also quit lying down in the bed. That seemed to trigger the ha's for me. I slept propped up on the sofa for several days. I have noticed that there are others here that have a problem lying flat also. Just an idea....not everything works the same for all of us.

Best wishes to ya for lotz of pfdan's......

Jean

Title: Re: Wow and Thanks from Not Crazy After All
Post by stevegeebe on Sep 28^th, 2003, 7:30am

No sweat Donna.

Trying to describe this type of pain to others is next to impossible. Some of the descriptions by the "medically afflicted" doesn't even get close enough.

Coffee and hot showers were my first remedies and continue to help me. O2 will help.

Good kuck with all that you have in front of you and kick some ass.

Steve G

Title: Re: Wow and Thanks from Not Crazy After All
Post by Cerberus on Sep 28^th, 2003, 10:39am

Donna,

glad to hear you and your hubby are making some progress, also glad to hear the Mother-in -law has attempted to change her ways......hehe.

Home remedies: O2 (obviously), lights out computer dimmed, hot or cold paks to the eye and neck (whichever suits you)..........and really really LOUD heavy metal (the more gothic the better, helps distract me) and strong black coffee or water x3 have helped too.

Psssst.......don't worry many of here have done um......Questionable things to ourselves and other meds, just try n keep it low key. :-X

Title: Re: Wow and Thanks from Not Crazy After All
Post by Spanner on Sep 28^th, 2003, 10:43am

If my memory serves me right I think Wendy has a good home remedy! ;D

Good to meet you both.

Wes

Title: Re: Wow and Thanks from Not Crazy After All
Post by don on Sep 28^th, 2003, 10:49am

Quote:

It is impossible to explain the pain to someone who does not suffer from CH.

I've always found a demo works well. Insert a hot screwdiver in their left eye and a corkscrew in their ear. Proceed to hit them on the side of the head with a ball peen hammer while pushing the srewdiver and turning the cork screw. Due this for 20 minutes while playing a Guns and Roses album at full volume.

Give them a copy of the Kip Scale and tell them they have just experianced a 5.

Title: Re: Wow and Thanks from Not Crazy After All
Post by Turts on Sep 29^th, 2003, 6:52am

Ill have to try Dons theory on the boss tomorrow.

I have had Chs since Easter and taken one day off(today)and can hear convo tomorrow already, "we all get has blah blah fuckin blah"

Anyway back on track, I 2 have found the water treatment and coffee/music helps distract you if nothing else

Title: Re: Wow and Thanks from Not Crazy After All
Post by goaway on Sep 29^th, 2003, 6:08pm

on 09/28/03 at 10:49:12, don wrote:

I cannot improve on perfection. Well said Don!