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        New Message Board Archives >> 2003 Posts >> Please Read!
        
(Message started by: Elaine on Sep 25^th, 2003, 4:05am)

Title: Please Read!
Post by Elaine on Sep 25^th, 2003, 4:05am

Linda H, Jonny, DJ and I mailed out your tickets today. ClusterChuck your gift basket is on the way.
Thanks for the help!

The raffel runs till Dec. 1st Please have your ticket stubs back NO LATER than that!

There will be more auctions up soon so keep a eye on that bord Please!There are still more tickets so Please if its only one ticket buy one support O.U.C.H.

Don posted what the money would be used for, From what I have read on the O.U.C.H. board, their are going to be some good things going on in O.U.C.H. that will help the org.

I know a lot of you have your questions and some bad feeling about O.U.C.H. O.U.C.H. is going to make it. It is not goig to die. We got over a 1000 members. We have only a handful of people working. They are working on some real good things. Don't give up on O.U.C.H. cause it is going to be our answer to all the questions posted here, we got to have faith in it and the people working.
It is really hard to do things if people pull againt the org.

If your a member support it. If your not, please read the O.U.C.H. ! There is a members board over there post.

I have had some pain free time. I am back on the front lines again getting beat up. I see a lot getting beat up with clusters day in and day out 24/7! I enjoyed my pain free time just like all of you do when you get hit. I want a answer WHY do I have them? I want a cure! Give me something that will take this pain away for ever. DEATH just is not the answer I will except. Weather I agree with things in O.U.C.H. or not I am going to stay and work. Its the only way I see to get the help we need.

I have met just about everyone one of the officers and BOD! They are good people, and they are doing the best they can with what they have to work with.

Sometimes we judge people by their post cause that is all you see. Well that is wrong in many ways. Some people are at work when they answer a post, or they have 1500 emails they are having to answer along with phone calls. They want to reply to you and they see a need. They quickly throw out a answer and in doing so, it might of sounded like a demand or come out as being rude. I know for a fact it wasn't mean that way. I also know that people are working on this and dealing with clusters, family problems and other health issues. A lot of you think we are sitting in front of our computers 24/7 ! I wish I had that kind of time. I am sure they do to. We are not we are involved in Life's ups and downs and our time is limited to. The bottom line is they care and they are doing something and trying. They really are.

Our money is good right now in O.U.C.H. but from the plans thats being put forth. Money will be needed. The O.U.C.H. store is open and has some good thing. The raffel and auctions are going on. To get things done we have to set aside personal differences and work together. O.U.C.H is HOPE! Its all I have to feel like someday I will be pain free and my children and childrens children!

You all have a good day. I hope its a a pain free one.
I am headed out this morning. Got to got to moms and the post office. Its been one of those nights from hell for me. I am ready for day time !

Take care!

Title: Re: Please Read!
Post by suzy617 on Sep 25^th, 2003, 4:09am

Dear Elaine,
Sorry that your getting hit again, that really sucks. :(
Wishing you pf time again real soon.
Hugs to you,
Suzy

Title: Re: Please Read!
Post by Elaine on Sep 25^th, 2003, 4:13am

Thank you Suzy, damn your fast I refreshed and your post was there. I miss ya!
Hugs
E

Title: Re: Please Read!
Post by BobG on Sep 25^th, 2003, 4:17am

Good morning Elaine,
I see there’s a new picture of you up by your name. You look different…… :)

But I don’t know why.
Did you change your hair? shave off your mustache? 8)

Just goofin’ ya. ;)

Thanks for the message and the work you do for us all.

Title: Re: Please Read!
Post by Dave_Emond on Sep 25^th, 2003, 4:44am

Thanks Elaine,
We on the OUCH BoD & the Officers try to leave all our personel issues aside in our business forum. I'm glad you brought this up. It is a busy task, and we work hard to find the best solutions to advance OUCH and most importantly the needs of CH sufferers.
We encourage members to visit and post in the members forums about concerns, issues, questions or anything that we can do to help. We follow those messages and listen and act as quickly as we can.
OUCH will be strong, as young as we are, we are making great strides forward.
Thanks for the support and the encouragement for people to come see what we are doing and we will listen to all input.
Dave Emond

Title: Re: Please Read!
Post by BarbaraD on Sep 25^th, 2003, 5:55am

Hey Elaine,
Sorry you're getting hit - me too (like old times - I'd liked it better when we were PF - how 'bout you?)

Agree with what you said about OUCH.

In case some of you "newbies" don't know Elaine and I were two of the "original" five in the garage in Rochester NY where OUCH was "thought up" and great dreams were planned. WE were the ones taking the notes in between HAs.

The one BIG goal we all had in mind when trying to form OUCH was FIND A CAUSE AND A CURE FOR CH! Sometimes we forget our "long term" goal when we start getting caught up in the petty squabbles of the day to day politics of the organization. We've got to work together to find that cause so we can find the cure. We must NEVER lose sight of that goal.

See ya in Fl Elaine. Get Better....

HUgs BD

Title: Re: Please Read!
Post by Mastifflvr28 on Sep 25^th, 2003, 8:04am

Had to bring the cheerleader out for this one!!

http://www.maplefallswebdesign.com/misc/pompom.gif

YEA Elaine,
Excellent post, and thanks for clarifying a few things.

PF vibes going to ya sweety,

SUPPORT OUCH,
Mast

Title: Re: Please Read!
Post by Tom K on Sep 25^th, 2003, 10:51am

Have a question. I have been trying to sign up on the OUCH site for the past 2 days and it keeps saying, "Sorry, this action cannot be performed from here." Where is here and how can I perform the action of signing up? Thanks!

Title: Re: Please Read!
Post by Melissa on Sep 25^th, 2003, 10:59am

on 09/25/03 at 10:51:43, Tom K wrote:

Tom, does it happen after you click on the "Submit" button after entering your info, or can't you access the sign up page at all?

Title: Re: Please Read!
Post by cootie on Sep 25^th, 2003, 11:11am

Thanks for the info Elaine....so sorry ta hear yer gettin hit now.....what a bummer ta hear that !!!! I got my tickets in the mail so will get that money out to ya shortly......thanks alot !!! Pam that is gonna go git busy and hope nothin breaks, falls on my head, trips me or pisses me off ;) ;) :-/

Title: Re: Please Read!
Post by Elaine on Sep 25^th, 2003, 11:27am

Bob G that picture was taken at the last convention! I guess I do look different my face is fat and I got my own hair no wig :-)! It could be the wringles also LOL! I get more everyday.

Dave I know your having a hard time and I am sending vibes and prayers your way.

Barbara its nice to see ya back on the board. O.U.C.H. was not thought up in that garage. It was thought up here on ch.com! We just put it into motion!
That trip was the fist time I had ever met another cluster suffer. I never dreamed that this many people had clusters, I thought I was alone and being alone you never see HOPE! I am not a O.U.C.H. BOD and I am not a Officer. I don't do any voteing on issues ect. I have not done any work for O.U.C.H. in the last year. Not because I did not believe in O.U.C.H. but because I was not able to with all that was going on in my life. Please don't give me any credit for the wonderful things going on with O.U.CH.
I agreeded to do the fundraiser because I know what ever we do we are going to need the money and I want to do my share to help any way I can. In my personal life I have some free time to do this.
The thanks goes to the BOD and the Officers that have kept O.U.C.H. going the last four years. The members that no matter what have stuck in there with them ! I don't fear going to the ER or the Doctor now. I take O.U.C.H. with me when I go. The Doctors do listen. O.U.C.H. has helped me. At the last convention I saw someting I never saw before. I saw a doctor and looked in his eyes durning a attack and he understood completely what I was going through. That to me meant something. He did not speak to me. He placed his hand on my shoulder as I left the room. I knew he knew. That was the first I relised that O.U.C.H. is working.

To all former officers, BOD and each person that has given there time talents and money ! Its not for nothing!!! Its for a better life for us all, clusterheads and supporters!

I am very Thankful to each and everyone of you.

So look buy a blasted Raffel ticket or cup or something LOL!

Title: Re: Please Read!
Post by Tom K on Sep 25^th, 2003, 1:20pm

Yes, after entering the info and clicking "Submit".

Title: Re: Please Read!
Post by Melissa on Sep 25^th, 2003, 2:03pm

Tom, you need to email BobP (bob@pahlow.net) and let him know of your problem so he can fix it.

Good Luck!
:)mel

Title: Re: Please Read!
Post by Tom K on Sep 25^th, 2003, 10:05pm

Thanks, Melissa! I will email as soon as this cycles mellows out a bit.

Title: Re: Please Read!
Post by kissmyglass on Oct 1^st, 2003, 4:39pm

bump