Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2003 Posts >> Rome Report Preview
        
(Message started by: don on Sep 17^th, 2003, 2:31pm)

Title: Rome Report Preview
Post by don on Sep 17^th, 2003, 2:31pm

OUCH has recently achieved credibility from the world's most eminant researchers and neuros. The reception OUCH recieved was beyond my wildest expectations.

I was prepared to have to corner the US Docs to make our presence known. Not neccesary, the Docs, both US and otherwise, sort ME out in the crowd both at the meeting and on the sidewalk in front of the hotel.

The first to introduce herself was Dr. Buzzi from Italy who had practiced for some years at Harvard Medical School. Whats so special about Dr. Buzzi? She discovered Imitrex/Imigran. She made an effort to meet the OUCH officers.

Dr. Sheftell, founder of the New England Headache Clinic, sought me out after the meeting and excitedly stated "we got to go to your convention in New York this year".

Taking photos at the meeting seemed inappropriate, until an Italian neurologist requested a picture of all the OUCH officers with Doctor Nappi anfd Goadsby.

All in all OUCH was recieved in a very dignified, professional and warm manner.

Quote from Doctor P.J. Goadsby during his summary presentation...................................................

The Cluster Club (Neuros and scientists) has made history by having the patient group (OUCH) here with us today".

Damn near fell off my chair. He thinks they THEY made history? I cant begin to tell you, but I will in the report, what it meant for OUCH.

A Doctoral candidate from the University of Pennsylvania will be doing the first ever thesis on the sociology of headache sufferers. She has asked to use OUCH US as a resource for her paper.

Title: Re: Rome Report Preview
Post by SFChris on Sep 17^th, 2003, 3:24pm

Excellent Don! What an amazing opportunity.

Chris

Title: Re: Rome Report Preview
Post by BobG on Sep 17^th, 2003, 3:32pm

Wow! Way to go don and OUCH :D

Quote:

The Cluster Club (Neuros and scientists) has made history by having the patient group (OUCH) here with us today".

Folks this is history in the making. Print it!

From a small group of people in a garage to world wide recognition in just 3 years. Unbelievable!

OUCH is a small organization now but just wait. The Cancer Society and Jerry Lewis' Telethon were small at one time also.

Thanks don and everyone connected with OUCH that made this happen.

Title: Re: Rome Report Preview
Post by Mr.Happy on Sep 17^th, 2003, 4:34pm

on 09/17/03 at 14:31:50, don wrote:

A Doctoral candidate from the University of Pennsylvania will be doing the first ever thesis on the sociology of headache sufferers. She has asked to use OUCH US as a resource for her paper.

I don't understand this. A year ago, danged few Docs would even acknowlege OUCH/CHer's. All of a sudden, they're growing wild and falling out of the trees.

Better times ahead........
RJ

Title: Re: Rome Report Preview
Post by jonny on Sep 17^th, 2003, 4:42pm

on 09/17/03 at 15:32:43, BobG wrote:

Jerry Lewis' Telethon were small at one time also.

So was jerry's head ;D

Even I have to give you props, Don...Big ups to ya Bro and big ups to OUCH for getting your recliner fartting ass there.

I bet anything electric that you brought with you didnt work.....LMMFAO ;D

...................................jonny

Title: Re: Rome Report Preview
Post by Charlie on Sep 17^th, 2003, 5:21pm

What can I say?

Coolness Don. Coolness.

Gonna give Don a pass for ahwile. No iffy posts today.

I'll keep it in Word for awhile :D

Charlie

Title: Re: Rome Report Preview
Post by Ann on Sep 17^th, 2003, 7:23pm

Too cool Don! Way to go to OUCH and Don!!

hugs
Ann

Title: Re: Rome Report Preview
Post by JDH on Sep 17^th, 2003, 9:30pm

awesome Don,
I can't believe how far it's come since I was diagnosed in '85 and the neuro tells me "we just don't know much about these headaches." arrrrrgh!
Wow, this is HUGE!

Jim

Title: Re: Rome Report Preview
Post by Elaine on Sep 17^th, 2003, 10:29pm

:) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :) :)

Title: Re: Rome Report Preview
Post by Riccardo on Sep 18^th, 2003, 12:54am

Hey there.
The story can be reassumed with the Elaine motto (Ciao My Lady..... not too much on the board, but I keep you, and all you in my heart!)

We are, each of us, angels with one wing and we can only fly by embracing one another.

Neurologists have discovered that they (right wing) cannot fly without us patients (left wing) and each one is necessary to "take off" with studies.

Ciao to all you

Title: Re: Rome Report Preview
Post by Mastifflvr28 on Sep 18^th, 2003, 1:17am

Totally awsome!!

And howdy serial kisser!!

Mast

Title: Re: Rome Report Preview
Post by brain_cramps on Sep 18^th, 2003, 4:51am

on 09/17/03 at 21:30:10, JDH wrote:

awesome Don,
I can't believe how far it's come since I was diagnosed in '85 and the neuro tells me "we just don't know much about these headaches." arrrrrgh!
Wow, this is HUGE!

Couldn't have put it better myself. Great work Don (and everyone involved in OUCH worldwide).

Let's not stop here!

grant 8)

Title: Re: Rome Report Preview
Post by 2late on Sep 18^th, 2003, 6:34am

this is great new's.......FUCKENEH Don! ..............Jack

Title: Re: Rome Report Preview
Post by Roxy on Sep 18^th, 2003, 5:59pm

Sorry Don....been offline while headed for the hurricane, and I missed this thread. Sounds like a lot of good was done by you and everyone else over there. They always say progress is slow, but lately it seems to be shining on the horizen for us.

Kudos for you...... :-* Thank you for representing us so well.

Title: Re: Rome Report Preview
Post by suzy617 on Sep 18^th, 2003, 6:06pm

Very cool Don!

Suzy