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Title: slowly getting my old life back... Post by Cooked Brain on Sep 6th, 2003, 9:24am Hi there everyone, thought i would share this for those who are in the place I was myself not too long ago. At the start of this summer I was down and out, got stuck in such a bad cycle I thought I was losing it. Thanks to the site and the wonderful people on the board I knew there was treatment, but was so afraid it would not work for me. After a very bad "good morning" cluster had some good luck at the dr's and neuro's office. I have been CH free for almost a full month now! Slowly I am getting back my old "normal" life I had almost forgotten I ever had... The first weeks were kind of a trial, couldn't believe I was actually keeping the beast under control. Gradually I started to believe I REALLY was and restarted some activities I thought I would never be able to do again. I am back in school again! And as for the biggest test: for the first time in three years I went breakdancing again this week and guess what? NO freaking HA!!! Got a bit soar in the musscles after such a long time though ;D That was the point I figured it CAN get better, it's just a matter of finding the right med in the right dose... so for everyone having a harsh time right now: all the information and support are right here, and there are ways to get ignorant dr's to listen... just keep reading and writing (asking) everything you want to know, HANG IN THERE folks, it CAN get better! wish you all PFDAN... |
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Title: Re: slowly getting my old life back... Post by Carl_D on Sep 6th, 2003, 5:32pm This is good stuff, and encouraging. Most folks who know me will tell you, back when I became chronic in '98 I lost everything, and at one point even lived in my car. My whole life went down the tubes cuz of CH. I am still chronic, but got better. JUst got my life back, back to doing what I love (music), and things are good. The beast is roaring hell at me lately, as I think he is jealous, like I am his bitch or something. I don't care if I am getting hit left and right (like the last 24 hours), when I am not hit, I am pluggin away. Started working today, and got hit shortly after leaving a post here. Bout a kip 4 for 40 minutes. Pissed me of, but not about to stop me. Yes, I went so insane I looped right back around to sane; but I am living again. Never give up, NEVER SURRENDER!!!!! Carl D |
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Title: Re: slowly getting my old life back... Post by ksmiggy on Sep 6th, 2003, 7:26pm good news, hope it holds out for you, encouraging too, not sure about the breakdancing though, cant be good for the head lol |
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Title: Re: slowly getting my old life back... Post by OneEyeBlind on Sep 6th, 2003, 8:43pm Smiles to you both. I love to hear the beast is not winning the war !!!!!!!!!! |
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Title: Re: slowly getting my old life back... Post by paul_b on Sep 6th, 2003, 9:27pm Life without pain is a blessing. Enjoy. |
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Title: Re: slowly getting my old life back... Post by Headacheboy on Sep 6th, 2003, 10:37pm I understand to a T. Was a chronie for 3 years and after my surgery I found there is life again. Keep on living!! Headacheboy |
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Title: Re: slowly getting my old life back... Post by tsayswhy on Sep 6th, 2003, 11:11pm :)it was nice to come in and read this post hope you have pf 4ever you deserve it. |
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Title: Re: slowly getting my old life back... Post by Cooked Brain on Sep 7th, 2003, 7:12am thanks for the smiles friends :) everyone here deserves to be PF. my heart goes out to the newbies that are new on the board and to those that still haven't found this place. hang in there you all, it WILL get better! |
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Title: Re: slowly getting my old life back... Post by hopefull on Sep 8th, 2003, 12:55pm Heres to being full of hope!! I do get sooo tired though ... |
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Title: Re: slowly getting my old life back... Post by Cooked Brain on Sep 8th, 2003, 2:49pm from the CH, the meds or from hoping hopefull? |
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Title: Re: slowly getting my old life back... Post by suzy617 on Sep 8th, 2003, 4:24pm Glad to hear your enjoying some pf time. Hope it continues forever for you. Suzy |
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Title: Re: slowly getting my old life back... Post by jonny on Sep 8th, 2003, 6:36pm ROCK ON DUDE!!! ENJOY for all of us. ..................................................jonny ;D |
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