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Title: I am just reading and shaking my head at all this! Post by Elaine on Aug 21st, 2003, 9:48pm I don't know a lot but I been thinking ! I was at the convention at the bar b Q and me and DJ were standing there together and I looked at DJ, I though you here he is and here I am and I wonder why he and I are still here on earth. We both should be dead. I don't know why I am here, but I know why DJ is here. Here stands this great man with scars on his head from brain surgery. DJ built this site so WE would be able to share our pain with each other. So WE would no longer be alone. DJ let us play , cry , fuss , fight and when things get out of hand he steps in, not a thing he likes to do. We keep pushing him to do it. DJ has another site, the other site people have lost love ones that has what DJ had. I am sorry I can't spell it. I use to think DJ was here because what he did for US. I asked DJ why he thought he was still here, his answer was so he could build the other site. Not a cut to us, because the other site is about LIFE and DEATH! I know that the people on that site really do need it. You know what guys I really do NEED ch.com and I really do need support and the friends here. I know with all my heart there are others here that do to. Every time we turn this board into a fighting match and make fun of people who have left that love this place. I wonder how unhappy we make DJ! I am fairly sure he is not happy about all that is happening here. When you spit on someone here no matter who it is some of that spit hits DJ. DJ did not build this site or any site to see anyone get hurt. I hear people say DJ loves the F word, he does as long as the F word means ! Fucking right on, don't let that cluster win, fight it. I don't think he likes it used the way it has been here. I feel like I know DJ well enough to say these things. Everyone think what is happening here. Please don't let hate destroy something that can be so good. Respect this man and think before you post. DJ did NOT build t his place for people to get hurt. He built this so WE would not be alone in our pain. The man gave us something very special, now lets show him that we love his gift and we are going to take care of it. Respect DJ ! He deserves it! . |
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Title: Re: I am just reading and shaking my head at all t Post by judyw on Aug 21st, 2003, 10:09pm Well said, Elaine...bottom line here is that DJ has given us all a place to share, learn, and vent our pain with CH...if anyone here is unhappy with what is found here, let them try moyamoya.com and try walking in their shoes...the childrens stories break your heart...so, maybe we could offer less to the negatives and more to the positives on this site and allow DJ more time to work with his other gift to humanity...A very Special man is our DJ...and, uh, you're not half bad yourself, Lady.... ::) ;D |
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Title: Re: I am just reading and shaking my head at all t Post by forgetfulnot on Aug 21st, 2003, 10:41pm WOW, how true, the both of ya. Thkns for reminding everyone. The real Lee forgetfulnot |
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Title: Re: I am just reading and shaking my head at all t Post by cootie on Aug 21st, 2003, 11:01pm DJ built this place for people that hurt...rite now everyone seems to be hurting one way or the other. Lets all jus hurt tagether....sum more sum less. Pam that gets migraines (yup....I said a bad word....pain is pain)....where do you hurt taday guys...head or heart. Pam that thinks Elaine is soooooooooooo sweet !!!! DJ is very handsome !!! ;) |
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Title: Re: I am just reading and shaking my head at all t Post by Callico_Kid on Aug 22nd, 2003, 1:08am Well said Elaine and Judy! I don't know what is going on here as I have had tobe away for the last couple of weeks. I come back just to find out that some of the people who have made the last year and a half of my life somewhat understandable and bearable have been offended and left. I don't know what the provocation was for the offense, and IT DOESN'T MATTER! Whatever it was is wrong. If you don't like that contact me and I will be happy to deal with Ladies, I hope for no one else's sake but mine that you will return. Jerry |
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Title: Re: I am just reading and shaking my head at all t Post by BobG on Aug 22nd, 2003, 3:51am Elaine ;D |
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Title: Re: I am just reading and shaking my head at all t Post by ksmiggy on Aug 22nd, 2003, 5:58am Haven't got into the politics, spitting or making fun ( too new i guess), but would like to thank DJ for organising this site, have been chronic CH for about 8 yrs, have been constantly under attack for last 6 months, (since last pf day), this site has provided me with much needed relief, information and support, for that i thank you all, long may it continue. sorry, bit off the topic, but wanted to say anyway ;D |
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Title: Re: I am just reading and shaking my head at all t Post by Charlie on Aug 22nd, 2003, 6:33am Since no one has explained to me whatever this is, I truly have zero idea what's going on. Pretty odd sounding shit to me. No fucken idea Charlie |
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Title: Re: I am just reading and shaking my head at all t Post by badfly on Aug 22nd, 2003, 6:49am Yeah, what Charlie said ! Cluless in clusterville ??? ??? |
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Title: Re: I am just reading and shaking my head at all t Post by taraann on Aug 22nd, 2003, 7:46am I agree about this site being a blessing of sorts for me. It just is so helpful to come hear and either support others or be supported when I need it ...and the wealth of information is just invaluable. I just would be unbeleivable sad if this site closed down over binkering or whatever happened....I am so sorry to see ppl go because they were hurt and that just saddens me. I really hope we can all just turn all of this around...... Kinda clean slate it , start from square one....and hopefully the ppl that left will see things HAVE changed and do come back. |
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Title: Re: I am just reading and shaking my head at all t Post by BruceD on Aug 22nd, 2003, 8:07am Hey Charlie, ya' got room for one more in the boat? (the clueless boat, that is ???) I thought I knew what was going on here but then missed a couple of days and now it seems like I've been gone a year. Later BruceD |
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Title: Re: I am just reading and shaking my head at all t Post by don on Aug 22nd, 2003, 8:13am Simple Charlie, A few good supporters got slammed, they have been insulted and hurt, and are leaving the MB. I dont blame them. |
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Title: Re: I am just reading and shaking my head at all t Post by toothpick on Aug 22nd, 2003, 10:14am I need a ticket on the clueless boat as well.I do'nt know who's offending who I do know this site is the best thing that has happened to me. I have suffered CH for 34yrs and because of the small community I live in I never even new anyone with CH. Until I read the opening page to this site I was begining to think I was alone. I cryed like a frigging baby some from pain some for joy to know I was'nt alone. We all need to cut each other slack there isn't a one of us being 100% normal with all the stress and all the drugs its bound to happen that the keyboard goes into gear before the clouded brain. So for the sake of DJ and anyone else that makes this lifesaver called CH.com possible lets cut the crap and cut some slack. And remember without CH supporters some of us would have bought a ticket for the final journey a long time ago. Forgive and Forget. Russ aka toothpick. |
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Title: Re: I am just reading and shaking my head at all t Post by don on Aug 22nd, 2003, 10:22am The thread containing the offending posts has been removed. |
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Title: Re: I am just reading and shaking my head at all t Post by 9erfan on Aug 22nd, 2003, 10:33am I'm in the clueless boat too! Elaine, eloquent as ever. I couldn't have said it better myself. The whole situation makes me sad. :-[ |
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Title: Re: I am just reading and shaking my head at all t Post by toothpick on Aug 22nd, 2003, 11:36am Anyone need a good reason to cut the BS and get on with what this site is all about should read post CLUSTER CHUCK RUSS |
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Title: Re: I am just reading and shaking my head at all t Post by Charlie on Aug 22nd, 2003, 2:27pm A Quote:
To the newcomers: Not to worry. This kind of silliness is part of our bizarre family. If I have it right, you missed nothing. It was pretty silly then and it's beyond stupid now. Dumbth. We're doing okay kids......believe it or not. Charlie |
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Title: Re: I am just reading and shaking my head at all t Post by juvy on Aug 22nd, 2003, 4:07pm All right, I don't know what the hell went on while I was gone but everyone needs to quit bickering and pick up on oar. If you have time to slam a supporter evidently you're not rowing hard enough. Don't make me come beat you with the oar you dropped. I've been through hell this year but the board has been here for me to rant and I've been offered more than a few shoulders to cry on. I'd hate to think someone else is closing the door on a chance to connect with people who really know what they're going through just because some Jackass on the board has to start braying in their face. If you're not part of the solution, you're part of the problem. ~juvy |
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Title: Re: I am just reading and shaking my head at all t Post by Slammy on Aug 22nd, 2003, 5:03pm on 08/22/03 at 16:07:22, juvy wrote:
Then reality set in................ ::) Sometimes....... this place just sucks the life out of me! ;) it's getting harder to turn the page! but..... I have found that by going of meds..... the pain is more pure and concise..... sometimes easier to handle than the med-up, confused pain......but that's just me! :D Slammy 8) |
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Title: Re: I am just reading and shaking my head at all t Post by juvy on Aug 22nd, 2003, 5:06pm slammy.... HUH? ~juvy |
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Title: Re: I am just reading and shaking my head at all t Post by STABBINGPAIN on Aug 22nd, 2003, 5:42pm All my friends hear me A loving friend on bended knee. Give the privilege of friendships to bear Being a friend to love and share. Help me with my family and friends to be A devine example for all to see. To bring forth a loving smile To all our friendships lets go the extra mile. We bare our souls and even cry if need be Please let us all be pain (cluster) free. I know I dont know many people here but we all came together for a purpose and a reason . This is our are gift and our dedicated time we spend together each day to get to know people. Aw! heck I just love everybody!!!! ;D ;D ;D :-* |
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Title: Re: I am just reading and shaking my head at all t Post by taraann on Aug 22nd, 2003, 8:35pm Aww that is just the sweetest poem ever! Thank you :) |
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Title: Re: I am just reading and shaking my head at all t Post by STABBINGPAIN on Aug 22nd, 2003, 8:56pm Your Welcome... Now I need to write it down so i wont forget it.. ;D |
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Title: Re: I am just reading and shaking my head at all t Post by catlind on Aug 23rd, 2003, 10:15pm :'( |
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Title: Re: I am just reading and shaking my head at all t Post by kim on Aug 23rd, 2003, 10:36pm ..........alilgreenrosetta......... ??? |
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Title: Re: I am just reading and shaking my head at all t Post by Turts on Aug 23rd, 2003, 11:27pm Back to Elaines original post, I would like to thank a great man, in DJ, that put in the effort and energy to create a home where a a unique group of people get communicate together and share experiences and pain, known only to them and their supporters. I have not been as a long, or for that matter, as regular a member of the 'family' as many others have been. But as quoted by toothpick Quote:
This is ultimately why we have all found a home here,to find support and refuge from the beast that we know. Like many others I do not know the rift that has been created here,I just pray that it can be resolved quickly and painlessly so we can carry on sending each other PFDAN's and keep gathering together to laugh in the face of the demon. |
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Title: Re: I am just reading and shaking my head at all t Post by stevegeebe on Aug 24th, 2003, 6:33pm Elaine, I've not met DJ but hope to soon. To think of the events that lead to the start of this site and the type of person who started it is extraordinary. His temperment provides him just the right touch on the rudder of this boat and I wonder sometimes if its not part of Someone's plan. Seems like it to me. Steve G |
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Title: Re: I am just reading and shaking my head at all t Post by Donna on Aug 25th, 2003, 7:58am I have no clue either and that's probably a good thing. If I was insulted I won't be leaving. Love, Clueless in Florida |
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Title: Re: I am just reading and shaking my head at all t Post by jminmilwaukee on Aug 25th, 2003, 8:56am I know I should bite my tounge but........GROW UP PEOPLE! >:( Are we all 8 years old here? Little mary hurt my feelings......WAAAHHHHH. WTF? "Well golly gee wally, why are people picking on me?" "Gee beave.....i guess some people are just not very nice" If you can't handle the fire, change the fricken channel. People are people and that will never change. jmin |
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Title: Re: I am just reading and shaking my head at all t Post by brain_cramps on Aug 25th, 2003, 9:49am but..... I have found that by going of meds..... the pain is more pure and concise..... sometimes easier to handle than the med-up, confused pain......but that's just me! :D[/quote] Slammy: I agree. The pain is more pure and sometimes more concise (for me). Until around 5 years ago, my cycles were usually 6 to 8 weeks long. Since being med-free, my cycles have gradually got shorter and shorter. My last cycle was about 2 1/2 weeks long. I'll take the short cycles with more intense pain instead of the longer cycles (still shorter than most of yours) with the meds. Warning: Med-free isn't the route for everyone . grant 8) (luckily short cycles and longs breaks between) |
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Title: Re: I am just reading and shaking my head at all t Post by brain_cramps on Aug 25th, 2003, 9:51am on 08/23/03 at 22:36:29, kim wrote:
LMAO Kim |
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