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(Message started by: catlind on Aug 19th, 2003, 7:34am)

Title: What meds
Post by catlind on Aug 19th, 2003, 7:34am
is everyone taking?  It's been awhile since we've had a run down on who takes what meds and what meds work for folks.

I use imitrex injections, maxalt, O2 and Aleve LOL.  Imitrex is the nectar of the gods, O2 is a close 2nd, Maxalt works half the time, and Aleve helps my stomach rot away LOL.

No preventatives here, none of them liked me very much :(

Cat

Title: Re: What meds
Post by ksmiggy on Aug 19th, 2003, 7:38am
Hi Catlind,
     I use immigran injection, and  500paracetamol/30codiene tabs taken at first sightings, same as you , preventatives and me didn't see eye to eye, slept on most of them. :D

Title: Re: What meds
Post by Ann on Aug 19th, 2003, 8:06am
Meds...wish I weren't takig any!   :D

I take 3x120 mgs of verapamil regular release daily  2x300 mgs of lithium daily...both of these as preventatives and it seems to be working...haven't been hit since June 24th!  (fingers are crossed cause I'm entering the danger zone!)

When in cycle:
imitrex injections and amerge.  I take the amerge every night before bed to make sure I get a good night's sleep.  That's what works for me!

hugs
Ann

Title: Re: What meds
Post by Elaine on Aug 19th, 2003, 8:09am
Imitrex is all I take now.

Title: Re: What meds
Post by badfly on Aug 19th, 2003, 8:14am
Imitrex !!

Title: Re: What meds
Post by Mark C on Aug 19th, 2003, 8:15am
At he moment NONE for CH.....Imitrex Injection when needed.

Title: Re: What meds
Post by Melissa on Aug 19th, 2003, 8:37am
when in cycle-

Depakote 250mg Extended Release
Imitrex injections or nasal sprays
Aleve (for inbetween attacks, or else I feel like I have hangovers)

edited to add: At the beginning of my cycle, I do a predisone taper.

Title: Re: What meds
Post by Hirvimaki on Aug 19th, 2003, 9:03am
I take oxygen and, reluctantly, Imitrex.  I had one success with Prednisone to break the cycle of CH, but as it had side-effects, I am reluctant to take it again.

Title: Re: What meds
Post by Jewel on Aug 19th, 2003, 9:05am
Imitrex pills and Verapamil.

Title: Re: What meds
Post by Leesa on Aug 19th, 2003, 9:10am
Dave is taking 250mg of Depakote 2x a day, O2 at the first sign, and of course Imitrex. Only one hit since he started the Depakote. *on bended knees "thank you god"* With only a hint of a migraine to boot! Life is good.  :D So far! *knocking on wood*

Title: Re: What meds
Post by Karla on Aug 19th, 2003, 9:47am
I take a very small amount of methadone daily and imitrix for breakthrough pain.  

Title: Re: What meds
Post by JDH on Aug 19th, 2003, 10:02am
When I'm in cycle I use o2, imitrex injections and Verapamil.
Going to try 'shroom therapy in the very near future.

Jim

Title: Re: What meds
Post by andy on Aug 19th, 2003, 10:21am
Episodic, in remission now. Im currently med-free, except for Celebrex for my back. Ive got Prednisone for the next cycle and a few imitrex injections for the bad ones. I keep my 02 with me everywhere I go, even out of cycle. I dont take preventives because i think they will cause rebounds.           ..............andy

Title: Re: What meds
Post by Cooked Brain on Aug 19th, 2003, 11:52am

verapamil 3 x 120 slow release, relpax eletriptan 20 mg for attacks that break through the shield of verap. First three weeks got deseril (ergotamine) worked well but was very heavy with side effects. Tried Imigrane nasal spray hated the taste and the dripping in my throat. Didn't find that to work better or faster than relpax.

PFDAN

painful murazza

Title: Re: What meds
Post by Svenn on Aug 19th, 2003, 12:48pm
Hi there  
 
This is my coctail    
   
Verapamil Retard 120mgX5-7/daily during cycle 3 weeks after last hit tapering down with 1 verap every 3/4 days until you are on 1 a day.1 a day for another 2 weeks you can decide to quit the verap or take 1 a day.Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree  
Prednisolone in high doze for 10 days 80mg  
then over a 3 weeks periode step down like 70-60-50-40-30-20-10-5mg every 3/4 day  
This work fine for me    
 
The very best from Svenn  

Title: Re: What meds
Post by Roxy on Aug 19th, 2003, 1:54pm
I haven't posted anything about my head lately, mainly because I've been scared to jinx myself.  For the last two weeks, I've only had two hits and just a few shadows.  Major miracle going on here....it's amazing.  The few shadows I've had have been knocked out by 02 within five minutes.  So....for those wanting to know my meds....... ;D

shrooms
verapamil (180 twice a day)
Imitrex as needed (that amount is way down.... :-*)
02 as needed


Title: Re: What meds
Post by jonny on Aug 19th, 2003, 2:08pm
Lithium, verapamil, 02 and Zomig.

hopefully ill be able to stop taking this crap cause Thursday will be seven weeks PF....YEE-HAAAAAA!!!

Just dreaming of not having to take those meds (That ive taking everyday for 13 years) is enough to give me a har....never mind ;D

........................................jonny

Title: Re: What meds
Post by vig on Aug 19th, 2003, 2:32pm
Imitrex is all.


Title: Re: What meds
Post by eyes_afire on Aug 19th, 2003, 5:42pm
I used to use shrooms only.  They provided some success.

Now I'm using:
Verapamil SR 360 mg as preventative.
Oxygen as abortive.
Imitrex tablets as a 'short-acting preventative' and/or a painfully slow abortive.

--- Steve

Title: Re: What meds
Post by suzy617 on Aug 19th, 2003, 6:42pm
This cycle trying depakote ER and imitrex injections.
Roxy, great to hear your doing better!

Suzy

Title: Re: What meds
Post by Lori on Aug 19th, 2003, 10:21pm
Last cycle I took verapamil SR 120mg x 3 daily and
Topomax 100mg daily

For breakthroughs I used Zomig tabs..don't remember the dose. 2.5mg maybe. It's been 1 1/2 yrs since my cycle.

Worked wonderful...

Title: Re: What meds
Post by Mr.Happy on Aug 19th, 2003, 10:44pm
Meds of success:

Standard release Verapamil every 8 hours, religiously.
O2 any time the minute hand moved.
Trex nasal when the O2 needed help.
Totally Justifiable Complete Paranoia filled in the spare moments, along with mass quantities of SLEEP DEPRIVATION.

Worked for me,
RJ

Title: Re: What meds
Post by Charlie on Aug 19th, 2003, 10:49pm
Way back when pills were made by hand, I took Inderal. After several days, it would do a fairly good job. Nothing else was around that worked at the time.

Charlie

Title: Re: What meds
Post by Danish on Aug 20th, 2003, 1:34am
O2 - it works within 5 - 15 minutes... aborts 14 out of 15 attacks.  :)

Title: Re: What meds
Post by stuey on Aug 20th, 2003, 9:46am
I take 960 mg Verapamil Sr daily and was taking 100 mg of Elavil.  I am currently tapering the elavil and today is my second day taking 50 mg of it.  I want to get off the Elavil completely.  I take imitrex injections, like others I think the nasal spray is nasty if it drips back into your mouth, relpax also.  Have never tried oxygen.  Have used Amerge but not often.  That's about it.  The triptans help stop the pain, nothing else, no narcotic ever has.  Stuey

Title: Re: What meds
Post by dette on Aug 20th, 2003, 10:12am
What are shrooms??? And what is this O2 stuff?? Do you have oxygen tanks at home???  I am seeing my doc today and trying to find new ideas.  I am in the MIDDLE of a 5 week cycle and going crazy!! Need some relief and looking for ideas!!

Title: Re: What meds
Post by Cooked Brain on Aug 20th, 2003, 10:20am

Hi dette,

print out some important stuff like the medical info for your doc to read. Don't let him brush you off with something you don't need. The better informed you are the more they will listen to you!

best of luck and let us know how it went

pfdan

Title: Re: What meds
Post by cazman on Aug 20th, 2003, 8:22pm
replax but with out insurance and at $173 for nine pills i only use them when i have to , but to be honest at first i complained how much they cost but the reality of it is they are a god send  anything is better than going thru hell over and over again. im now looking into what ive read here , the shrooms thing sounds like a good idear but finding that here might prove hard 02 it my next try im see my doc next week.

Title: Re: What meds
Post by UnsolvedEquation on Aug 20th, 2003, 9:04pm
Verapamil 80 mg/ 4 X a day and oh yeah .... IMITREX  :)

Title: Re: What meds
Post by tommyD on Aug 21st, 2003, 5:54am
dette -

"Shrooms" are psilocybin mushrooms. They are illegal. They also work really well. Thery make you hallucinate if you take enough. They also work really well. They are not for everyone. But they work really well. LSD does too, but it also is illegal, makes you hallucinate and is contraindicated for those will mental illness.

Check the medications board for recent discussions, and go to www.clusterbusters.com for more information.

I used shrooms and water to avoid attacks in my last cycle.  A small dose (enough to get me as high as two beers would) followed by another a week later. Did that every two months or so as needed for eight months. Did I mention they work really well?

And lots of water, as in Water X3 (see button on left), minimum 3/4 gallon a day and chug a full quart of cold water at first sign of attack. And Reed's Extra Ginger Brew (really strong ginger ale), for the shadows.  The ginger only works for me, far as I know, and I'm not sure how well, but the Reed's is pretty tasty (find it in health food stores).

-tommyD

p.s.  Just realized, not one of my "meds" comes from a pharmaceutical comapny.  :)



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