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(Message started by: STABBINGPAIN on Aug 17th, 2003, 6:09pm)

Title: Re-Bound Headaches
Post by STABBINGPAIN on Aug 17th, 2003, 6:09pm
I'm curious  if anyone  out there gets lots of rebound headaches?.  I know I do and  I think sometimes they're  worse .  I'm willing to try something else. I'm allergic to all the triptan drugs. Ive tried the nasal sprays . I havent found anything to work or at least to buffer all this freakin pain. The doc keeps giving me stuff  that makes me feel high but doesnt help the head at all. actually ,after I come down off them I get the MOTHER OF ALL MOTHER'S brain pounders and I'm so sick to my stomache. I  find it hard to take care of my 8 month old. If I dont take something I feel like I'm gonna die.  Does anyone out there get the same thing or similar effects from thier meds?   I like to hear from ya please...

Title: Re: Re-Bound Headaches
Post by Lori on Aug 17th, 2003, 6:20pm
Hello Stabbingpain...I haven't welcomed you yet as you look to be new here...so welcome and sorry you must be here. I personally don't get re-bounds because the triptans worked for me but I was wondering if you are on or have tried any preventative medications. If not, go to the OUCH site (button on left) and go to Cluster Help then medications. That will give you a rundown on what's avail. I'm sure you will get some others who can answer the re-bound question for you.

Title: Re: Re-Bound Headaches
Post by cootie on Aug 17th, 2003, 6:29pm
Hello STABBINGPAIN...not sure I welcome'd ya yet......ain't been around much the past week or weekend. So.....hi and hope ya git some answers..I'm sure ya will and have heard alot about how alot of meds cause rebounds from hell. Pam that is a blues fest groupie

Title: Re: Re-Bound Headaches
Post by murazzio on Aug 17th, 2003, 8:12pm

Hello StabbingPain,

yes I sometimes get rebounds after a medium attack and the rebound is always worse than the starting one. relpax helps to make it less painful, but doesn't work for all attacks. I read you don't like all the heavy meds, try going to an iris-doctor? he can give you some natural stuff that might help. Hope you'll do better soon, best of luck to you...

painfull murazza

Title: Re: Re-Bound Headaches
Post by JDH on Aug 17th, 2003, 8:33pm

on 08/17/03 at 18:09:52, STABBINGPAIN wrote:
 I'm willing to try something else. I'm allergic to all the triptan drugs. Ive tried the nasal sprays . I havent found anything to work or at least to buffer all this freakin pain. The doc keeps giving me stuff  that makes me feel high but doesnt help the head at all. actually ,after I come down off them I get the MOTHER OF ALL MOTHER'S brain pounders and I'm so sick to my stomache....  I like to hear from ya please...


If you haven't tried oxygen therapy yet then drop what you're doing and go to this link http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
Read all there is and then go talk to your doc about it.
A whole lot of people here, including myself,  have gotten relief with o2. It's clean (no rebounds), ,safe and fairly cheap. Look into it...go now!
pfdan's

Jim

Title: Re: Re-Bound Headaches
Post by Patrick_A on Aug 17th, 2003, 10:14pm
Try Verapamil, Prednisone and lots of Ex-lax!


Patrick

Title: Re: Re-Bound Headaches
Post by ksmiggy on Aug 18th, 2003, 6:48pm
hi stabbingpain,
 I had the same prob, all the drugs made me unable to function, plus the re-bounds, in the end i stopped it, downside is lots of painkillers instead, are you chronic or episodic?

Title: Re: Re-Bound Headaches
Post by jonny on Aug 18th, 2003, 6:51pm
many people will tell you this doesnt happen, but every time I take a shot of Imitrex I get three times the HA's after.

...................................jonny

Title: Re: Re-Bound Headaches
Post by STABBINGPAIN on Aug 18th, 2003, 6:58pm

on 08/18/03 at 18:48:45, ksmiggy wrote:
hi stabbingpain,
 I had the same prob, all the drugs made me unable to function, plus the re-bounds, in the end i stopped it, downside is lots of painkillers instead, are you chronic or episodic?



i'm chronic. never ending

Title: Re: Re-Bound Headaches
Post by jonny on Aug 18th, 2003, 7:08pm
Painkillers do shit for CH

.............................jonny

Title: Re: Re-Bound Headaches
Post by STABBINGPAIN on Aug 18th, 2003, 7:09pm

on 08/18/03 at 18:58:21, STABBINGPAIN wrote:
i'm chronic. never ending

at the moment my head is starting to bang pretty good and i know it wont be long till im sick to my stomache . I think most of the re-bounds are caused bc i take so many pills and lord knows I probably have liver damage from popping motrin  800 like candy and  brain damage from headaches.TNT>explosions. :o ???.. the food diary doesnt help .it tells me i hurt all the time . oh my! I need brain relief NOW!  

Title: Re: Re-Bound Headaches
Post by Mr.Happy on Aug 18th, 2003, 7:10pm

on 08/18/03 at 18:51:51, jonny wrote:
many people will tell you this doesnt happen, but every time I take a shot of Imitrex I get three times the HA's after.
...................................jonny

Damn, Jon.......you must have Meegraines! Doc Marcello sed Clusty's can Triptan away all day.......it's only `Grainers that rebound. If ya can't trust a neuro, who can you trust.....
You been holding out on us, Man.  I knew it. I just knew it.

No...really, I knew it......
RJ

Title: Re: Re-Bound Headaches
Post by STABBINGPAIN on Aug 18th, 2003, 7:21pm
[quote author=STABBINGPAIN link=board=general;num=1061165392;start=0#10 date=08/18/03 at 19:09:13]
 at the moment im taking all these pills(NOT ALL AT ONCE) depends on the pain...
1. motrin 800
2. percocet
3.hydrocodone/apap
4.ultrams
5.butalbital
6.naproxen
7.pre-natal vits
8.lipitor- high cholesterol
9.migrainal nose spray
10.benedril
11 caffine treatments to see if they help.nothing but gitters with this and makes them worse and intensifies the pain in the head so far

Title: Re: Re-Bound Headaches
Post by jonny on Aug 18th, 2003, 7:25pm
Seems like Macello talks out his ass I guess.

Does he have these HA's?

Does Goadsby?

I FUCKING DO!!!!!!!!

..............................jonny

Title: Re: Re-Bound Headaches
Post by Mark C on Aug 19th, 2003, 8:09am
http://www.clusterheadaches.org/resources/non_script_treat.htm


My experience is that OTC and narcotics do very litte to help my CH, and I suffer the undesireable side effects you describe. Allergic to triptans? I am sorry. O2 O2 O2........

PFDAN's
Mark

Title: Re: Re-Bound Headaches
Post by Cadrew on Aug 19th, 2003, 9:36am
Hello I am new to this site but have been getting my regular visits from the cluster fairy for 17 yrs now.  I have a problem with rebound headaches too and the only relief I get is using the oxygen and taking the hottest showers my head can stand.  I put the water on pulsating and keep turning the water hotter and hotter on the back of my head.  I figure sooner or later the brain is going to send the message to pain center to diliate the blood vessels to cool itself down.  I only get very limited supplies of imitrex due to insurance so each one is like gold and I usually go through the above process first just to make sure it isnt a rebound or a weak cluster so I am not wasting the imitrex.  I hope it works for you.

Title: Re: Re-Bound Headaches
Post by STABBINGPAIN on Aug 19th, 2003, 10:59am
JUST A THOUGHT ....
I WENT TO THE DENTIST YESTERDAY AND ASKED IF IT'S POSSIBLE IT GET ANY KIND HEADACHE.. HE SAID YES. IF YOU HAVENT SEEN A DENTIST IN A WHILE AND LET YOUR TEETH GO AND HAVE LOTS OF DECAY AND BACTERIAL BUILD UP IT SPREADS . IT COULD INFECT THE NERVES IN OUR MOUTH AND SPREAD INTO OUR SYSTEM AND CAN EFFECT US. I THOUGHT ABOUT IT FOR A MOMENT AND WONDER HOW MANY PEOPLE WITH CH... HAVE DENTAL INSURANCE AND DO REGULAR CHECK UPS? COULD THIS BE A PERCENTAGE OF US GETTING THROBBING PAIN IN THE HEAD? I'M NOT SURE BUT IT SOUNDS GOOD. LET ME KNOW WHAT YOU THINK...

Title: Re: Re-Bound Headaches
Post by Patrick_A on Aug 19th, 2003, 11:28am
Ruh Roh, Jonny gonna be on ur ass for using them Caps again. LMAO!!!


Patrick

Title: Re: Re-Bound Headaches
Post by STABBINGPAIN on Aug 19th, 2003, 11:30am
Ruh Roh, Jonny gonna be on ur ass for using them Caps again. LMAO!!!


Patrick




Sorry it an ole' habit like the headaches! thanks for the warning..

Title: Re: Re-Bound Headaches
Post by Patrick_A on Aug 19th, 2003, 11:31am
Oh yea, in reply to your statement about the Dentist!
I eliminated that variable 15 years ago. Except for Jonny, I might have the 2nd prettiest teefs here!

Lmao, Patrick  ;D

Title: Re: Re-Bound Headaches
Post by STABBINGPAIN on Aug 19th, 2003, 11:34am
ur funny!  :-X   maybe plastic does the trick ::)



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