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        New Message Board Archives >> 2003 Posts >> getting fed up with this
        
(Message started by: zanychef on Aug 17^th, 2003, 5:16am)

Title: getting fed up with this
Post by zanychef on Aug 17^th, 2003, 5:16am

hi guys n gals ;D
i'm a bit fed up of constant cycles now for 8 yrs an been looking in me diaries (i keep one just for the devil)and realized that since 1995 i haven't had a week PF an it just makes me wonder how much more i can take (lots i suppose)hell it ain't killed me yet!!!
constant shadows are just driving me a bit nuts at the moment
has been great finding a site like this and ouch uk too
keep up the good work people
just feeling a bit down at the mo :'(
ian

Title: Re: getting fed up with this
Post by ClusterChuck on Aug 17^th, 2003, 5:27am

Ian, boy can I sympathize with you! I have only been cronic about 6 years, and I have had a couple breaks for a month or so. You have not even had that!

My heart breaks for you! I know it can get tough, but hang in there!

I had a (shall I say) very heated "discussion" with the beast for the past hour or so. He threw a 9 at me. He doesn't like to listen, but I finally beat him back.

I am sure you know exactly what I am talking about! You have kicked his ass before, and you can do it again, and again, and again, and again, forever. You are strong enough to have made it this far, you can continue!

I am new to this site, but people like you have really helped me to continue the good fight. We can't let that bastard beat us! You and the rest of us WILL emerge victorious one of these days.

You can do it. I, and the rest of here, know you can. We are all pulling for you, just as you have pulled for others in the past!

Thank you for your inspiration to me, and I know you can continue on.

Hang on!

Chuck

Title: Re: getting fed up with this
Post by firebrix on Aug 17^th, 2003, 5:29am

Good to meet you zanychef!
Greetings from New Zealand!
Sorry to hear you're a bit down, and that 6 years of battling has left you battle-weary.
You know you're tough. You know you can do it, and that it there will be painfree days when you know real peace - hopefully not too far away.

You've found the right place - here you are with others who know what you experience and are ready to help.
Day at a time, and minute at a time when necessary.
Hoping you are PF soon
firebrix

Title: Re: getting fed up with this
Post by firebrix on Aug 17^th, 2003, 5:31am

And all the very best to you ClusterChuck.
Sorry to hear you've had another bad night.
Let us know how you get on with the doctor - keep us posted.
Wishing you both a little pf peace and sleep
firebrix

Title: Re: getting fed up with this
Post by judyw on Aug 17^th, 2003, 6:26am

Morning Zanychef...Have you noticed how many have already read your thread in about an hour...Wonder how many know exactly how you feel this morning???Tiresome is an understatement, but knowing we are not alone sure has made it easier to bear...always the chance of finding something for relief...I appreciate more every free moment and hold on to those when the pain is strong...Continue to reach out and know that there are others who understand...Wishing for painfree moments at your house...PPP

Title: Re: getting fed up with this
Post by cathy on Aug 17^th, 2003, 6:56am

Morning Ian, sorry your having a tough time, but happy to meet you....wishing you PF times from the US although normally it'd be from across the pond...!! ;D

Cathy

Title: Re: getting fed up with this
Post by zanychef on Aug 17^th, 2003, 7:06am

thanx all for your support hoping for a pf time soon or i is relly gonna go nuts >:(

Title: Re: getting fed up with this
Post by ClusterChuck on Aug 17^th, 2003, 7:08am

You mean more nuts than what you and the rest of us already are? Is that possible?

Chuck

Title: Re: getting fed up with this
Post by zanychef on Aug 17^th, 2003, 7:25am

Hi Zany, :D
I am Zany's Girlfriend of the past six months. My names Alison and i have only seen how bad Zany gets in the past 2 weeks. I think he hides alot from me because he knows i worry and that i have alot of health problems myself. I think he left this messeage for me to see because i know he is really down at the moment. I think that he feels that i will get frightened of seeing how bad he gets and will leave him. I don't think he believes that i love him so much and that i am not going anywhere. Maybe thats hes feeling down as made him feel like this. I wish i could do more for him and i'm trying to understand about the cluster headaches through reading things on this site. I am so glad he found it because i think it will do him good to reach out to others who also get cluster headaches. I think they can help more then what i can.
So darling this is what i got to say.......
I love you very very much and i am here for when you need me to be. I am not going anywhere and i want to be with you forever. I hope you believe this and i know we will be just fine. ;)
I hope everyone you didn't mind me posting this and i will sign up as a supporter. I just Wanted Zany to see how i feel about him and i'm not going to run anywhere. We are going to face this together with me by your side. ;D
Alison xxxxxxxxxxxxxxxxxxxxxx

Title: Re: getting fed up with this
Post by daveengland on Aug 17^th, 2003, 9:02am

zany,

don't let this beast get you down,a problem shared is a problem halved,its sounds like you have a wonderful partner there for you.if there is anything i can do or say please feel free to call

vodafone-07733277445 dave

take care now,looking forward to october

dave

Title: Re: getting fed up with this
Post by zanychef on Aug 19^th, 2003, 12:39pm

thanks for all the vibes alison i love you loads an loads just wish you didn't have to see me like that :-*

Title: Re: getting fed up with this
Post by vig on Aug 19^th, 2003, 1:24pm

Zany, Ride it out, plus you have a great supporter too.

Title: Re: getting fed up with this
Post by zanychef on Aug 19^th, 2003, 1:29pm

thanks vig all the people i have come into contact with have been great but my alison has gotta be the best ;D
managed 6hrs sleep straight last night :o something of a record this year ;D

Title: Re: getting fed up with this
Post by Cooked Brain on Aug 19^th, 2003, 3:39pm

wish you more of those peaceful nights ian

hang in there, you know you have 2!

Title: Re: getting fed up with this
Post by jonny on Aug 19^th, 2003, 3:48pm

Dude,

Im living proof that one can live with chronic CH for 28 years, one does what one has to to get by.

BTW, if your girl sticks with you that is the true test of love.

Good luck to you my friend.

......................................jonny

Title: Re: getting fed up with this
Post by Patrick_A on Aug 20^th, 2003, 5:39am

Man, I always feel humbled by the "Chronics". Everytime i start feeling sorry for myself, I think of ya'll and what ya'll endure! You guys are some strong Mf'ers.
Truly too, There is so much help out there now. It seems the worst problem is finances and Insurance difficulties! The verapamil and Prednisone cocktail i am taking at the moment isnt really a walk in the park, but as i was telling my wife a moment ago. A constant dull headache is 10x's better than a 9Kip 3 times a day. At least i can sleep!
I wish us all PFDAN, Patrick

Title: Re: getting fed up with this
Post by zanychef on Aug 20^th, 2003, 6:38am

Hi Zany me darling ,
Sorry but think i am still logged in with your account ???. I think i am having one of my moments lol but will register with the site. By the way i am Alison Zany's partner. I am really glad Zany found this site because it has helped him alot. I sneaked on here while he popped out and i know he will read this later.
So Zany now you got some brill support on here and you know i am around for ever so you got the fight in you not to let it win but to keep it in the background. ::)
Together will will fight it xxxxxxxxxx :-*