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        New Message Board Archives >> 2003 Posts >> ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY HAVIN
        
(Message started by: zanychef on Aug 13^th, 2003, 6:01am)

Title: ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY HAVIN
Post by zanychef on Aug 13^th, 2003, 6:01am

Any clusterheads in the uk/london area fancy meeting up?? i live in dartford an can make time whenever just thought it might be interesting to see how many are interested ;D ;D :o

Title: Re: ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY H
Post by Hooter on Aug 13^th, 2003, 6:54am

Hello Zanychef!

I think your request would be more likely to get replies if you post on OUCH UK. There are Brits (Cathy and being two) on CH.com but more are American, Canadian, or other European.

There is a section on OUCH UK too which will tell you who lives near you in England (there are quite a few in the London area I think) I used to live in London and now avoid it if I can.

Good luck getting together with other clusterheads.

Wendy the Brit

Title: Re: ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY H
Post by psbrooks on Aug 13^th, 2003, 10:10am

where/what is ouch uk?

(A pessimist thinks the glass is half empty, an optimist half full. But a realist can see that it's both, and appreciate which one is relevant.) :)

Title: Re: ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY H
Post by jon69 on Aug 13^th, 2003, 10:15am

Zanychef, I live in Dartford too!! Would be interested in meeting if you want.

Title: Re: ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY H
Post by Hooter on Aug 13^th, 2003, 12:07pm

Sorry guys.

Its www.clusterheadaches.org.uk.

OUCH stands for the Organisation for the Understanding of Cluster Headaches. It is the UK clusterheadache support group/charity/expert patient group.
There are over 500 members in the UK and there is a message board section of the site like this one (only much more polite ;D) and also a great deal of crucial information about diagnosis and treatment in the UK. There are sufferers there who are about as knowledgeable as it gets (more so than a lot of doctors) and the patron of the OUCH charity is Professor Peter Goadsby , who is known as one of the world experts on the condition.

There is a where do we live section so you can find people in your area.

Hope this helps.

Wendy the Brit

Title: Re: ANY CLUSTERHEADS IN THE UK/LONDON AREA FANCY H
Post by daveengland on Aug 16^th, 2003, 7:31am

hi zanychef,jon69,

i'm from ipswich,suffolk

couldn't make the uk conference in birmingham
due to work commitments,still haven't met any
other clusterheads.LOVE TO MEET YA!!!

have been in touch with OUCH uk,very helpful and knowledgeable,but,yes, in the way that we brits can
only be, do seem a bit more reserved.

but this site kicks!!

my e-mail is mrdavejwilliams@hotmail.com

please feel free to contact me with a view
to getting together

wishing you PFDAN's

dave