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Title: I could kiss my neuro... Post by Melissa on Jul 29th, 2003, 4:45pm Well geez, where do I start? I had been taking Frova since last week, and ended up suffering the worst weekend of my life. Not only was I having clusters on the right side of my head, but I ended up with a migraine on the left...all weekend long. Major bummer. :( Yesterday was alright, was able to be mostly PF during the day, then got hit at 7:30 last night. After pounding my head into the carpet, I don't remember crawling into bed, because the next thing I knew, it was 11p.m. and the baby was crying. So, I fed him, then fell back to sleep, woke up what seemed every 15min. At 4a.m. this morning, woke again to feed him, and ended up with ANOTHER migraine. Nothing like throwing up and feeding your kid at the same time. It finally went away at 11a.m., and I was able to pull myself together to take a shower and relax a bit before going to my neuro appt. at 2:20p.m. After I got there, I told her that the Frova was giving me migraines, (I haven't had migraines for 11 years!), and the Depakote she put me on, was making my brain feel like it was slowly bubbling and frying and making me dizzy. The only good thing about it, was that the frequency of my attacks were less, but not the intensity. Soooo, she put me on 250mg instead of the 500mg and wrote me scripts for 3 boxes of imitrex injections and 12 nasal sprays with 5 refills each!! OMG, I almost started to cry. BUT, the real test was to see what my insurance was going to cover...or not cover. So, went to the pharmacy, and it turns out, my ins. does not have a cap on how many I can have per month, I just need to make a co-payment each time I come to get the refills. Which is $64 for the 3 boxes of injections and $54 for the 12 nasals. I am looking at my meds in front of me, and thanking God that I will be taken care of, and also praying that my fellow Clusterheads will have the same good fortune as me. I love you guys :-* Phew! Mel, who isn't used to being so long winded! |
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Title: Re: I could kiss my neuro... Post by jonny on Jul 29th, 2003, 4:57pm ROCK-N-ROLL....Mel, good for you sweetie ;D .......................................jonny |
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Title: Re: I could kiss my neuro... Post by Svenn on Jul 29th, 2003, 5:05pm Glad the doc and the system seems to work for you this time Lucky me then everything is free here-Meds-docs neuroes. Got 1 year supply here beside me with trex and all the oxy i can use Guess im living in the right part of the globe Svenn ;D :D ;D :D ;D :D :) ;) :) ;) :) ;) |
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Title: Re: I could kiss my neuro... Post by BILL_L on Jul 29th, 2003, 5:18pm Happy you caught a break Mel. Bill |
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Title: Re: I could kiss my neuro... Post by catlind on Jul 29th, 2003, 5:30pm That's awesome news Mel! I know just how you feel, when the doc approved the trex for me and then set me up with 35 vials I was sure I'd died and gone to heaven. It's wonderful to be taken care of. And I will do everything I can to help our fellow CH'ers that are not as fortunate :) Great news indeed Mel. Cat |
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Title: Re: I could kiss my neuro... Post by ShariRae on Jul 29th, 2003, 5:34pm Thats great news mel...congrats :) Heres hopin you are on your way to feeling better in no time... Huggs Shari |
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Title: Re: I could kiss my neuro... Post by Melissa on Jul 29th, 2003, 6:43pm Jonny babe, thank you :-* Svenn, you most definately are living in the right area! I'm happy that you have all the meds you need, good for you! ;D Bill, TY for coming out of lurk mode to post to me, you don't know how much that means! :-* Cat, I am so thrilled that you got all those vials hon, you deserve all of it! ;D ShariRae, Hugs to you too, and thanks! :D PS-here's a pic of my Romeo ;) http://community.webshots.com/photo/24863104/83445085AFsEEU |
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Title: Re: I could kiss my neuro... Post by Ree on Jul 29th, 2003, 10:20pm good for you Mel I wish i lived closer to help you with that baby and get you some rest... That really has to sick~~~Frova sucks... and if you take it then you cant take anything else... I had a problem with Frova too and I get Migraine so I cant imagine trying to abort a CH attack with it... it did nothing for me and took forever to even get in my system...........take care of you mel... oh and ps are you nursing>??? make sure your meds are ok for Eli that adorable pumpkin..........love ya Ree |
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Title: Re: I could kiss my neuro... Post by Charlie on Jul 29th, 2003, 10:57pm Good for you Mel. You too Svenn. See Mel? Wisconsin is full of Scandinavians and like Svenn, they treat you right. Still working on the MSN thing Svenn >:( Charlie |
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Title: Re: I could kiss my neuro... Post by Melissa on Jul 31st, 2003, 7:28am Ree, yes, Frova sucks :P and no, I'm not nursing. Eli is a sweetie ain't he? He already has a nickname of "Peanut Butter", lol :D Charlie, you'd be shocked as to how many Scandies are here, lotsa blondes walkin around :o. I happen to be part one of them (not blond tho) 8) and thanks! :-* |
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