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Title: Dr. Phil: I talked to him tonight and invited him Post by SommelierCH on Jul 26th, 2003, 11:50am This couldn’t have gone any better (considering I broke my own rules of restaurant etiquette). As Dr. Phil and his lovely wife, were leaving the restaurant with their guests, I accosted them with the subject of Cluster Headaches (Dr. Phil knows me, his wife didn’t). Get this, as I asked Dr. Phil if he was familiar with Cluster Headaches, he said: (as best as I can remember) “When I was in practice, my specialty was the brain and neurological pathways. I treated many Cluster Headache sufferers.” I told him that I was a Clusterhead and gave him our web site URL so he could see how we have to fight on every level for recognition. Dr. Phil said “Perhaps we should do a show on Cluster Headaches, they are more common than most people know”. Believe me, the man you see on TV, is the man you see in person. You will not find a more gracious celebrity in this town (yes, Dr. Phil, you are a celebrity—get over it! You caused more of a stir in the restaurant tonight, than Janet Jackson who came in later). I beg, on bended knees, for the family to rally around this opportunity. Perhaps we could all, send a one paragraph synopsis of our own personal CH hell; to Dr. Phil’s email site. Registration required. http://www.drphil.com/email/email_phil_show.jhtml We can at least keep bumping this up to the top, with our stories here. David J. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 26th, 2003, 12:01pm Do you think it would be useful to send him the write up from the convention Sommelier? We have alot of stuff about to get going once things get sorted out, just tell us what you think the best approach to him would be to get him the info. I can also send him the Doc and Lori's contact info and they can tell him from a clinical perspective what they witnessed with us at the convention. Cat Once again, thank you so much David! YOu done great! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Darleen on Jul 26th, 2003, 1:18pm Cat and David, That's sounds great Cat.. I think if he sees that we are obviously very serious about this, he might actually think about doing a show on clusters. WOw that would be great. David, I'm in the process of sending him a message right now. D :) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Mr.Happy on Jul 26th, 2003, 2:26pm Dave, ACES AGAIN!!! First ya tickled Montel.......now Dr. Phil. Sooner or later, one of those tickles will turn into a laugh.........and OUCH is IN. Beauty. Keep it up, man, keep it up! (D'ya mind passing along the name of your restaurant? Next time I'm out your way, I'd love to stop in for a hot dog and a bottle of your finest vintage Boone's Farm........) Advocacy and awareness - Next Stop! Too right, Mate...... RJ |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 26th, 2003, 3:07pm Okay, I've sent off an email to the good Dr. Bigal and Lori to see if they can help us out on this one. Lets hope they are receptive to taking on the medical side of this for a show and see if we can't make this happen! Cat |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Charlie on Jul 26th, 2003, 3:29pm That's kinda nice David. OK Den. You and the wifey are from Texas. Your turn. :o Charlie 8) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Linda_Howell on Jul 26th, 2003, 8:07pm Good job David. I'm sending him an e-mail right now. Even if he did a show on different types of rare afflictions that would be a "good thing" There are several of us here in California who would love the opportunity to be on his show. 9-er-fan and I could represent the other side of the coin since only men get these. I could be in L,A. in 8 hours.........lol Linda |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by jonny on Jul 26th, 2003, 8:51pm Im sorry but in my opinion. Dr Phil is a self centered, egotistical son of a bitch that dont care about anyone but his pocket. But thats just me right? ...................................jonny Anyone want to buy his mugs or place mats? with his face on them.......Whats next? |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ree on Jul 26th, 2003, 10:07pm Now now jonny we need as much publicity as he does... I say bring it on... If he needs to see an attack I have one handsome man suffering a text book case of eposodic cluster here... Ree16angel@aol.com this could be a break we have been looking for. love to you David J................ Ree |
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Title: i'll tell anybody Post by rumplestiltskin on Jul 26th, 2003, 10:16pm I e-mailed him my old "pain is all" post as soon as I opened David's post. http://www.clusterheadaches.com/wwwboard/messages/37579.html I support and encourage everyone to at least click on that e-mail link and fire off "something" Cluster related to this Phil guy. David may have primed a pump that could bring life saving info to some Clusterhead who hasn't found us. Ya never know. Quote:
So are you Jonny....now eat shit and die. Love den |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Charlie on Jul 26th, 2003, 10:31pm Hate to say this but don't pick on Jonny about this. There is some truth in what he posts... Charlie |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ree on Jul 26th, 2003, 11:09pm and i love both of you guys ooooooo and you too charlie... love ree |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 27th, 2003, 12:50am I for one appreciate all of David's efforts! I think it's in poor taste for us to bash someone that he has invited here to try to help further our cause. (I'm sure I'll get blasted for sayin that :-/). I'm sure David is the only person on this site who has met Dr. Phil and can attest to what kind of person he is (at least at some level). Why is Dr. Phil a "son of a bitch"? Because he was catapulted into stardom by Oprah Winfrey? I'm not a fan of Oprah's but I do enjoy Dr. Phil's show. He really lays it on the line with the people he is trying to help. He's a straight shooter, a family man, and he doesn't take any BS from anyone. He doesn't come across as egotistical to me at all. I can be in L.A. in 4 hours (3.45 if I REALLY speed) ;D. David, I'm so glad that you posted with this update. I was getting ready to start a thread this weekend entitled "has anyone heard from Sommelier?". Thank you for continually going to bat with the celebs. Can you post the name of the restaurant that you work at just so I can use it as a point of reference in my email to Dr. Phil (you know, like "I writing because.....heard about your website from David, the Sommelier at so & so website....blah blah blah" Ok, bring it on! Virginia |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Linda_Howell on Jul 27th, 2003, 1:16am ego my ass. who cares about ego when we might have someone here who can help us get the word out about the pain I witnessed this week-end. Linda, who can be there in an hour if I fly......so there !Virginia. LOL Linda Howell |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Kirk on Jul 27th, 2003, 1:34am This Oregon hick does'nt care if Dr. Phil is a Left handed, three toed, cross eyed, Ethiopian son of a bitch, if he gets the word out effectively. Congrats man thanks for the good work. TTFN |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ree on Jul 27th, 2003, 8:56am Ya!!!!!!!!! Linda I feel the same way...love ya Ree (guys just dont like shrinks much afraid he will be on to them I guess lol...) |
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Title: Re: i'll tell anybody Post by jonny on Jul 27th, 2003, 10:44am on 07/26/03 at 22:16:14, rumplestiltskin wrote:
I knew I could count on you rubberstiltskin, you are my only true friend here and I love you for that. Now if you all will excuse me I have to eat and then, well, die ;D ..........................jonny |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 27th, 2003, 10:48am No Jonny dont do it! Dont DIE! We know this Doc out in California that can help you. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 27th, 2003, 10:53am on 07/27/03 at 01:16:34, Linda_Howell wrote:
OK, if I fly it's 50 minutes! Take that! ;D....(I can name that tune in 2 notes...) ;D Virginia |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Mr.Happy on Jul 27th, 2003, 11:45am Quote:
I got my response......did you get yours? Each and every person that contributes to CH.com/OUCH must take a few minutes and drop a note to the address listed by David. Doesn't matter one whit how any of us feel about Dr. Phil, Oprah, or anyone else that can increase our exposure. I'd dance with Satan himself if it'd help us gain the much needed exposure we're seeking with the medical community and population at large. Easy E-Mailing, RJ |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Melissa on Jul 27th, 2003, 12:17pm Here's the one I sent: Dear Dr. Phil, I have a 4 week old son, and am a cluster headache sufferer. I wanted to write you, to see if you could help my fellow sufferers, and myself, of this disease. I'm not sure where to begin, but let's just say it is a daily struggle just to stay sane and not give up the gift I have been given. Cluster Headaches have taken over my life, and that of the people who love me. For 4-6 weeks every other year, I, and my family, become a slave to a condition that is relentless and unforgiving. I write you with tears in my eyes, at how this condition has taken away precious time from not only my newborn son, but my 8yr old daughter and my husband as well. In addition, there is the frustration of improper medication, not enough of the right medication, unknowledgable physicians, and tight-wad insurance companies that plague myself, and others like me, everyday. Please check out these website addresses: http://www.clusterheadaches.org and http://www.clusterheadaches.com I am asking you to please help us get the word out about our disease, so we can get some proper research started and correct treatment given. Thank You, Melissa K. Filtz Vice President of O.U.C.H. (Organization for Understanding Cluster Headaches) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by KingOfPain on Jul 27th, 2003, 1:14pm Sent mine. What's your excuse? KingOfPain |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by SommelierCH on Jul 27th, 2003, 3:53pm In this town, never assume that the person and the marketing are the same thing. Dr. Phil is inherently prone to rub some people the wrong way. I think that he would be disappointed if he didn’t get under someone’s skin. If he does check in on this thread, he will see that we kind of work in the same way that he does, we make each other confront and question our own realities. We value honesty, an honest opinion is an honest opinion, there is no right or wrong. We have before us, a Doctor who really knows about and has treated Clusters, and happens to have a national TV show. It doesn’t get much better than this. The Cluster Booklet idea was for this very thing, handing someone with clout, our human drama, in our own words. And if we had a video tape………… Would any one be willing to videotape a Cluster Attack (I won’t be in cycle for another 15 months, and I’m not a headbanger)? With that tape, we would be a shoe-in for a spot on any show. We could digitally hide your face if you wanted. If the general public saw the pain that we go through (I’ve never seen a Cluster Attack), they will be appalled that we are being denied available relief. Then we will get change. We will embarrass them into change. Cat: Great ideas. Any legwork that you can supply to the show, should be appreciated. I don’t know how you should send it, but the show’s email registration system, weeds out all but the serious emails, so they will surely receive it that way. Mr. Happy, 9erfan and all the Clusterheads in the world, I’m matriculating at Crustacean in Beverly Hills, come and see me. Now RJ, since I am a professional Sommelier, and knowing your proclivity to Boones Farm, if you dew drop inn, I will turn you on to the most awesome wine you have ever had. White Zinfandel. I don’t charge by the hour. I actually got to cover several points with Dr. Phil in the short time we talked. I mentioned that we are misdiagnosed, prescribed the wrong meds, denied insurance benefits, and sometimes commit suicide. He was well aware of that situation. As he shook my hand to leave he said “I’m sorry for your suffering”. I was so touched, but I managed to come up with a classic Clusterhead response “I am one of the lucky ones, I only get them for 10 weeks every two years, some of my friends are chronic.” Both the Dr. and his wife visibly flinched. Way to go everybody!! Keep the emails flowing. http://www.drphil.com/email/email_phil_show.jhtml David J. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Roxy on Jul 27th, 2003, 4:06pm Mine went off earlier today..... :) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by jonny on Jul 27th, 2003, 4:27pm on 07/27/03 at 00:50:47, 9erfan wrote:
Bwwwaaaaaahhh....someone take this chicks tv away fast, shes going to hurt herself.....LMMFAO (Wat to funny!!!!) .......................................jonny |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 27th, 2003, 4:37pm on 07/27/03 at 16:27:25, jonny wrote:
Whatever! I use to think you were cool, but I don't appreciate being made fun of. Think what you want Jonny, I don't give a shit. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 27th, 2003, 4:56pm Here is my letter: Dr. Phil, A friend and member of OUCH (Organization for Understanding Cluster Headaches), David J., who is a professional Sommelier at the Crustacean restaurant in Beverly Hills approached you about the plight of cluster headache sufferers. Many of our members are military personnel. One story sticks out in my mind. A young gentleman from Australia who is a mine sweeper. His job requires that he go into combat zones, before and after combat to sweep the areas for land mines. Imagine attempting to do this job, requiring great caution and careful movements, when you are suddenly struck with a pain in your eye and temple that is so severe you cannot remain still. A pain that is more severe than natural childbirth. A white hot ice pick searing through your temple and eye, and know that if you move, if you step wrong, you will be blown to bits, and yet you are unable to remain still. Imagine living with a pain so severe that suicide is a viable option each and everytime you are under attack, some 1 to 8 times each day, every day, for weeks, months or years at a time. And then you discover that the medication you require to allow you to live a life of some normalcy is denied because your insurance won't cover that amount, or that particular medication. Dr Marcelo Bigal, and Lori Choyce, RN, from the New England Center for Headache have recently begun working with OUCH to assist us. Sadly, there are many horror stories of misdiagnosis, unneeded surgeries, and unneeded dental work. Your show could provide unparalleled opportunities to educate people about this disorder. I look forward to discussing this further with you. Sincerly Cathy Lind |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by jonny on Jul 27th, 2003, 5:00pm Last time I checked nobody gave a shit about me so nothings changed. V, Im not making fun of you, im sorry if I hurt your feelings. ..............................jonny |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by forgetfulnot on Jul 27th, 2003, 5:15pm First of all, I am not being critical, however after being in marketing most of my life I have to wonder about the time slot and audience this show is directed towards. How many Doctors or other heath care professionals sit around and watch this show in the middle of the afternoon? I would guess that stay at home moms and unemployed pipe salesmen would most likely be the target audience of this show, no? I doubt the producers of this show will allow such an off topic discussion on this show, these folks prefer dysfunctional teenagers and other behavioral topics, much more interesting Lee, unemployed pipe salesman. ;D |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 27th, 2003, 5:15pm I'll have to think long and hard about this, but a video of me getting hit, and Ayden my 3 year old crawling up beside me to help mommy with her 'hegache' by squeezing the O2 bag for me would surely be a heart wrencher. I know it does that to me everytime he 'helps' me. Cat |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Linda_Howell on Jul 27th, 2003, 5:30pm I already offered to do just that david. I just don't have a video camera. Offer still stands. I'll rent one if I have to. LindaH |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 27th, 2003, 6:04pm on 07/27/03 at 17:15:47, forgetfulnot wrote:
Hey Lee, here in the Bay Area not only is the show shown in the middle of the day but it is also broadcast at 8pm every night. I do agree with you about the topic not fitting into his normal type of show which is about 99.9% of the time focused on relationships. But occasionally he does cover other topics so you never know...it can't hurt to try. To all who have EVER even thought about suicide to escape your clusters, it's worth mentioning that in the email to Dr. Phil. I know it is an extremely serious topic and I don't want to exploit it...but it may be the only way to get the attention of one of these shows. If they can come to some kind of realization that it is THAT bad, it may strike a nerve in someone and they will think it's a worthwhile topic for the show. I know that when I am telling people about clusters it doesn't really sink in until I tell them "many people consider suicide"..and then that truely shocks them into concern. Jonny, I accept your apology. Thanks ;). V. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by SommelierCH on Jul 27th, 2003, 6:29pm Here is my first letter. I also have sent some significant threads. Hi Dr., I am the Sommelier at Crustacean Restaurant, I want to thank you for taking the time, with your lovely wife, to talk with me about Cluster Headaches on Friday night. I shared this with my fellow Clusterheads on our web site. By just being receptive, you have given hope to hundreds of people. I have had Cluster Headaches since 1986 (episodic, 10 weeks, every 2 years). 5 doctors during my last cycle, diagnosed me with Cluster Headaches (the last one a neuro). My insurance company STILL classifies me as a Migraine sufferer, and restricts my medication because of that! I was allowed 6 tabs of Zomig ZMT 5mg. per month. I need one every night. A package of 3 pills cost me $92.00 out of my pocket. I am not rich, and that hurt. We just don’t seem to exist! One overall goal is to get Cluster Headaches declared a disease, that is the best way for us to get protection for jobs, insurance benefits and medical recognition. The biggest hurdle seems to be getting any kind of recognition about our “Syndrome”. Nobody knows how many of us Clusterheads exists, but most estimates say that we number about the same as MS sufferers. You could single handedly help us to achieve our goal. It is a crime that we have to suffer such pain, because something as cheap and effective as 100% oxygen falls through the cracks in the insurance company’s tables. Thank you for your time, and for any help you can give us, David Jones Please don’t get hung up on Dr. Phil’s time slot or his target audience, a taped copy of the show or a video CD can be used to distribute to “our target audience”. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 27th, 2003, 6:43pm Thanks for pointing that out David. Lori was very clear at the convention that it doesn't matter who we get, as long as we get someone who is big and start to get the word out. The target audience isn't so important as the networks seeing the show. From that one show a multitude of other opportunities could follow. We have to start somewhere and this is a hell of a somewhere to start. V's approach to her local newsstation is another great stride forward. As things start going after the convention info is processed by the board, many others will be asked to do this kind of thing. Keep in mind the end goal, showing the impact on quality of life for CH sufferers. That is where the importance is...once that data is out there the pharm co's will have to start taking us more seriously. If employers learn that the cost of a sufferer losing time from work is detrimental, they will encourage insurance companies to cover that affliction or they will go elsewhere. Etc. etc. It all has to start somewhere :) Thank you again for doing this David! Cat |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by jonny on Jul 27th, 2003, 6:52pm David, I will kneel down and kiss Doc phils feet if he does anything. My guess is its just a pipe dream. ....................................jonny Opps....forgot to add......Dr Phil wants your money |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by FrankF on Jul 27th, 2003, 9:29pm on 07/27/03 at 18:43:36, catlind wrote:
Sounds good but can we draw the line at the Jerry Springer show? |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 27th, 2003, 9:59pm And his girlfriend Rikki Lake |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Charlie on Jul 27th, 2003, 11:02pm I agree with the idea. Go after him. Every little bit helps. Love bomb the guy. You never know. Charlie |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ted on Jul 27th, 2003, 11:26pm I'm impressed. Thanks Dave. First Montel and now Dr. Phil? I'm excited as hell. I can't wait to get the Oprah promises next and then maybe the Letterman temptation? Do keep telling us how many people you know and how many are actually interested in us. Why, cluster headaches will be a brandname in no time at all. Ted"Probably not allowed too many more posts" |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by KingOfPain on Jul 28th, 2003, 2:24am Well, got my reply too. Same as Randy's. _____________________________________________ Dear Steve, Thank you for your e-mail. Your message is important to us, and we will certainly read it. However, due to the volume of e-mail messages we receive every day, we cannot guarantee that you'll receive a personal response. Feel free to check out our Frequently Asked Questions for additional information. http://www.drphil.com/show/show_faq.jhtml Thanks again for writing to us, and for your interest in the show! Sincerely, The Dr. Phil Staff www.DrPhil.com _____________________________________________ At least I did my part. I ask the rest of you (that haven't already) to please at least drop some kind of note to the show. Strength in numbers kinda thing. Thank you. KingOfPain |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by ozzman on Jul 28th, 2003, 7:37am I don' t necessarily like Dr. Phil' s show and I agree about the target audience. But if he is willing to help I won' t turn down his help. I' m skeptical as well but one email doesn' t take long. I sent it and will wait and see. Ozzy |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by godsjoy on Jul 28th, 2003, 7:40am I sent mine...twice I think.....Praying something happens....and I get an extension of my meds for the rest of my cycle..... Blessings, Karen |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ree on Jul 28th, 2003, 7:46am HI I also send dr phil a lenghthy email... Hope they read them I have already recieved a reply that they got it... I can understand how you feel jonny. When I arrived here I emailed Oprah. I thought for sure she would respond and she didnt... a few months later someone else posted that they had written Oprah but we never heard a word... Recently someone emailed Montel... nothing........it IS a pipe dream but I am a firm believer in BELIEVING AND THERE IS STRENGTH IN NUMBERS... if we swarm his mail box with emails and I mean 4000 something members here then maybe.......... also David J said he was a Dr of Neurology so...........who knows??? Love ya Dude but if we dont try then what??? ree |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by hdbngr on Jul 28th, 2003, 8:38am Just a thought... Do you guys think attaching a picture of yourselves to each email might help? It might help Dr. Phil's marketing gurus place a face with the suffering and they might be more inclined to see us as "real" people with jobs, families, dreams. Vanasa |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by SommelierCH on Jul 28th, 2003, 9:16am We all need constructive criticism and Ted makes a good point. Quote:
It may sound egotistical or self-serving for me to mention the celebrities I know, especially for those of you who are in different parts of the country (or the world). But, believe me, it’s just part of my job. I work in downtown Beverly Hills (for 13 years). I know them and they trust my wine knowledge. It’s no big deal, they are just “people”. If you want to know about my “after hours” partying with Frank Sinatra…..I guess that will have to wait. If anyone is willing to video tape a ClusterAttack, DO IT!!!! I can’t tell you how much this would mean to our cause. The World needs to see this. We can hide your face, if you want. If anyone has a great Message Board thread saved somewhere, would you please email it to me? Most of the ones I saved are unreadable (saved wrong?). Quote:
I give a shit about you. You are why I am here. You are what I remember from my “lurking/I have nothing to contribute” cycle of 2000. When I finally posted 11/02 you were there to greet me (and how). You have kept the playing field level, and called me on the two times I embellished. Yes, you are a mean son of a bitch, and you have the propensity to piss people off, unmercifully. But your simple and succinct apology to 9er (for ribbing her, even though you meant no harm), shows again the stand-up guy you are. I love you. I love this family, my family, David J. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by CathiP on Jul 28th, 2003, 9:36am Guys- David is not intentionally name-dropping here. He truly does meet many in his position. he treats them well, helps them with their needs, and it is only right and fitting that, if these people fit into the scheme of things, that David ask them for help. You're right, David did approach Montel Williams as well. I don't really know how far that went,this was when the booklet was to be published with CH'ers BEST quotes, threads, statements....which never materialized, sadly, thru no fault of David's. If there were to be another e-mailing frenzy, Montel's schedule might have an opening......be forewarned, however, these shows book out about a year. Send your stories, send your pics.....Linda, I have a videocamera, and would be glad to bring that in Oct. Thank you, David, once again......so many, doing so much to make people aware of CH- it will bring this affliction to the forefront. Cathi |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 28th, 2003, 9:40am I would like to caution everyone on one thing. Lori Choyce pointed out to me that Dr. Phil's show is psych related, and if this goes forward, we will be exposing our personal sides, issues, emotions, and entire lives to the public. This isn't an easy thing to do. Just keep that in mind. It's hard enough to talk amongst ourselves about suicide, it won't be easy to do on a stage in front of millions of viewers. Cat David you have mail. :) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by aprilbee on Jul 28th, 2003, 9:46am I have put in my 2 cents to Dr. Phil. If this works it will be great to be able to give this disease a voice and a face. I have no problem exposing my emotions to the world if it means that more people will be educated... :) Of course I'm in Oklahoma and it would take a lot of frequent flyer miles to make it to LA. Keep emailing, hopefully we can get these emails noticed! PFDAN!! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 28th, 2003, 10:19am *bump* |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 28th, 2003, 12:10pm Quote:
Then he better not invite me. The show will turn into a 23 part mini series. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 28th, 2003, 12:18pm LOL Don. But that is part of what we want to get out to the public. The complete and total devastating impact this affliction has on our lives. Cat |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by KingOfPain on Jul 28th, 2003, 12:22pm on 07/28/03 at 09:40:18, catlind wrote:
Actually Cat, this is exactly what the world needs to see & hear. Our loss of quality of life, the mind screw the beast gives, etc,..... Of course, this is just my opinion. Thanks for the disclaimer. KingOfPain |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 28th, 2003, 12:50pm I agree with KOP. If we focus in our emails, not just about the pain itself, but about how it completely takes over our lives and affects our families, our jobs, our financial situations, etc., then I think we have a better chance of getting noticed by a show like this. V. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by AlienSpaceBabe on Jul 28th, 2003, 1:34pm Email done and sent.... 2,000 characters just isn't enough to give him the big picture... took 2 emails LOL |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by NotH20 on Jul 28th, 2003, 2:14pm Ditto Lizzie - I had to reduce mine down too. How do you pick which parts to delete when it's all so damn important ??? Hope this works....crossing fingers. Thanks David for your efforts, Mia |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 28th, 2003, 6:36pm Sorry but I feel the need to "bump" again. ;D |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Linda_Howell on Jul 28th, 2003, 7:08pm Where-as I don't watch a lot of T.V. I do watch his show. I love his no-nonsense approach. One thing I've noticed is a re-curring theme of overweight people and the reasons they over-eat. (phych related) Shit. then why NOT a story line of how these headaches affect our lives? I don't see where this would be in contradiction to his shows theme. Linda |
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Title: its dark in here Post by rumplestiltskin on Jul 28th, 2003, 7:35pm My wife an I....have kilt people with dull axes and have 3 testicles. We have Clusterhadaches. We use leeches to suck the pain from our faces. We then feed them to our pitbull Jonny who en gits bad hadaches, hides under the trailer and an jump out an bites everthang. The preacherman blesses our dogshit so the evil headache demons don't seep back into our well water. We will go on a Dr. Phil show or thet Pet Sichologist show for $50....each. Watch were ya walk, georgia and den |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by cootie on Jul 28th, 2003, 10:07pm What about kid nappin a talk show host....that'd get national attention.....use a box cutter as a weapon. OK....I admit it......this is jus a BUMP post. ;D Pam that eats shit and farts ;D PS: This is what we sent to Dr. Phil'ski (I decided to keep it short.....sumtimes less is good) Hello....How bout a show on Cluster headaches......people may be amazed what liveing in hell is all about.....thanks for your time.......a clusterhead that lives in hell every 3 years........Brad |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by SommelierCH on Jul 28th, 2003, 11:39pm You kids are killing me. I agree that the 2,000 character limit is hard to work with (you know how I ramble). I compose my letter in Word, do a character count, break it up into 2,000 character sections, cut and paste into the little box and send them back to back. I want you to know that I won’t give up on this. I send an email each day. Here’s my last one. Quote:
What the hell, the squeaky wheel gets the oil, David J. P.S. This old bio of me, back when I worked at Chasen’s, explains the celebrity thing pretty well. It’s been my job, for quite awhile. Cigars and wine, yum. (scroll down). http://www.partyfun.com/wines/ |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ted on Jul 29th, 2003, 1:04am You're a good man, Dave. You took my knock at you, saw where it came from and explained why I was off-base (and in such a manner where you probably wouldn't have even said something as negative as 'off-base') instead of knocking back. My apologies for my assumptions and innapropriate post. I'm still not going to watch Doctor Phil but you've gained my respect. And if there is any baser insult than that, I do not know! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by SommelierCH on Jul 29th, 2003, 6:52am Ted, Thank you. That’s the nicest thing anyone has said to me in years. I am trying to grow, and this shows that it’s worth it. It also shows me that you are a stand-up guy. Lachiem brother, David J |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by cootie on Jul 29th, 2003, 9:49am Da coots thinks Dave and Ted 'r cool......interestin senses of humor.......different.......and me likes different. Cool how you caught each others 'drift' . PF wishes to you both Pam-aka-coots :) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by svelletta on Jul 29th, 2003, 10:58am DONE.......I have sent Dr. Phil an e-mail from the spouse of a CH sufferer. I truly believe thousands, possilby more, could be helped if the issue were discussed on national T.V. Medical professionals, insurance companies, the general public, etc...MUST be made aware. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Bob P on Jul 29th, 2003, 11:07am I won't be sending any e-mail to Dr. Phil. My opinion is that he is a showboating loudmouth who has made his name by insulting and belittling people on his show. I can think of much better venues for OUCH to get publicity in. I say stick to the serious medical and scientific programs and stay away from the entertainment shows, which is what Dr. Intimidation's show is all about. Don's trip to Rome is the right venue. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 29th, 2003, 11:12am In light of recent discussions with our speakers from the convention as well as other board members, I have to agree with Bob. While national publicity is important, we have to be careful of the venue we choose. The Montel show may be a better avenue to take. Better than that will be the discovery network. Unfortunately, we have to consider the end result and the image the show is going to pick up from us. It's likely that some of the spats and pictures from the board and the convention could be used in an entirely wrong light. We are going to have be very cautious here. Cat |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Donna on Jul 29th, 2003, 11:32am Dave and Ted........you make me proud to be in your family. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 29th, 2003, 11:39am Short of gaining a public sympathy vote (a short lived one) I really dont understand what the advantage of going on one of these shows is? We need to access the medical community, the insurers, the med producers, not the general viewing audience who is going to switch to the local news at 11 and forget about the entertainment show that preceeded it. As a CH sufferer I have no inclination to entertain anyone with my sufferring. I much prefer to put my energies into accessing the people that can help us, not just feel sorry for us. If the expectation is that Dr Phil, Montel or whoever is going to champion our cause I suspect that it is an unreal expectation. They are going to move on to the next show, next dramatic issue, next ratings extravaganza. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Brian_Y on Jul 29th, 2003, 11:46am Quote:
In what way? I fail to see what bearing that could have on the price of eggs in China. Will it affect Insurance companies and how they pay? Most likely not (but the ensuing classifications very well may), but how could what one does on their own time (i.e. "Downtime" at the convention) have anything to do with the clinical nature of CHs? IF that is what you are trying to convey with the publicity, that is... I'd think they'd see the rest of what you describe as a waste of their attention. Quote:
I agree 1000%. Serious issues deserve seriousness. Would the intelligentsia we need for continued and integral research be willing to stake their own reputations on something a Dr. Phil endorses? I dunno. Maybe I am being elitist....Anyone else's thoughts? |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by catlind on Jul 29th, 2003, 1:56pm Brian, while we as sufferers can see that the downtime and time to get together with other sufferers is not an all the time occasion, imagine what the photos of the needles could be misconstrued as? Secondly, what we most definitely don't want, is this to be associated as a psychiatric condition. While we all know the impact it has on our lives, our intentions are to educate and advocate. As a matter of fact, the 'intelligentsia' does not support Dr. Phil's format and will not appear on the show should it ever go that far. Cat |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Brian_Y on Jul 29th, 2003, 2:02pm I agree with you. I was not thinking about the needles thing when I wrote that....I was thinking more of the sitting around drinking, enjoying one another's company thing. So for that, I apologize... But you are right. And that was my point about the intelligentsia. They see Dr. Phil as being too simplistic. I think it should go beyond that. Bottom line: You and I are in agreement. Tally ho... |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Major_Headcase on Jul 29th, 2003, 3:33pm After reading all the above "pros & cons" to writing to Dr. Phil, I decided to go ahead and send in my 2 cents worth to him (likely his staff of email screeners). Changing something like "social awareness" takes a long time and a couple of million baby-steps. No, one hour of Dr. Phil's time is unlikely to change all the insurance regs and research goals of the AMA overnight. But we get nowhere just sitting on our butts, right? My most realistic hope would simply be if most viewers gained a better idea of what CH means. If a viewer watches the show and says to him/herself, "Huh, that guy Bill at work said he gets clusterheadaches. I thought he was just full of BS, but I guess they really are as bad as he said." Most of all I believe in Serendipity! David's impromptu (and "Lucky") discussion with Dr. Phil may be just the thing to get the ball rolling. Who knows, 5 years from now maybe some undiagnosed gazillionaire with a bad CH is up at 3:00am watching Dr. Phil reruns and decides to donate $100 million to research. I know you're all familiar with the saying, and I paraphase here, "Poop Happens" ... it can be good poop as well as bad poop. I encourage all here to send Dr. Phil an email, think of it as a wish/message in a bottle. It may never be read but at least you took a few baby steps in the right direction. -John ;) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 29th, 2003, 7:31pm Quote:
First we are not sitting on our butts. I direct you to the OUCH discussion board Quote:
Secondly, this good be a very large step in the wrong direction and waste of energies that could be put into more positive and predictable outcomes. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Brian_Y on Jul 29th, 2003, 7:49pm Quote:
AMEN!!!!!!! Dr. Phil is a pinhead and we discredit ourselves by having him acknowledge you!! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 29th, 2003, 7:55pm Nows the time Brian...... Tell us how you REALLY feel about Dr. Phil LOL |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Hooter on Jul 29th, 2003, 7:57pm Don't know whether a 'foreign' perspective would be at all helpful. We don't have Dr Phil over here yet as far as I know but most of the others you mention (Ricki, Montel, Jerry, etc) are regarded with derision by most of the population. This may apply everywhere else it is syndicated. It is not fair but when commentators (including some serious documentaries) here are expressing the view that ill and mentally ill people are being exploited and paraded like a freak show for entertainment these shows are the ones cited as examples. It gives a very misleading view of what Americans are like to the rest of the world and reinforces bad stereotypes, and it worries me that CH sufferers will be 'tainted' by it somehow. Hooter |
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Title: it's just a TV show Post by rumplestiltskin on Jul 29th, 2003, 9:26pm to all those who are seriously concerned about the negative impact that Dr. Phil might have on OUCH, CH.com, and all clusterheads in existence.... Good Grief den |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by cootie on Jul 29th, 2003, 9:56pm Since I work at home I got the TV on practically 24/7......background noise I guess and it entertains my dog kennel. But I must admit that most of the talk shows 'in my opinion' make a mockery out of there guests most of the time. So yeah....jus be careful !Gawd....after that close up pic den posted I almost forgot what I was gonna say............yeeks !! Nite Johnboy....nite Maryann Pam ;) |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Charlie on Jul 29th, 2003, 10:09pm I've seen the guy a few times. He's entertaining but how many of us remember anything about a show? Can't hurt though. Everyone's right Charlie |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 29th, 2003, 10:39pm Den and Georgia I am LMMFAO. She just finish the Gerry Springer Show? ON TO LETTERMAN! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by 9erfan on Jul 29th, 2003, 10:57pm I know everyone's probably sick of my opinion by now but I just wanted to say Dr. Phil & Montel can't be put in the same category as Jerry Springer (dirtbag) and Ricki Lake. I know a lot of you will disagree but Montel & Dr. Phil are actually trying to help people. Jerry & Ricki are just exploiting losers that sleep with their own relatives. Springer's show especially is just disgusting to me. But of course, it's JMHO. Virginia |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Ted on Jul 29th, 2003, 11:17pm on 07/29/03 at 19:57:07, Hooter wrote:
I don't know about anyone else but I'm personally upset that those uranium-finding-pond-suckers think our bastions of reality should be viewed with derision. Yes they sit there and argue for open sex with their own sisters on the shows. Yes they wish for interviews with people who hump their own dog's legs. But that is the price of freedom. Let's all salute the blown-off leg of a dead Iraqi and remember 9-11 was filled with with Saudis (read Iraqis). |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by SommelierCH on Jul 30th, 2003, 3:59am I agree that this effort to “just get the word out”, through a daytime television show is really not necessary. Especially since Ted Koppel’s four hour, two night, back to back, prime time, in-depth special report on Cluster Headaches will be airing on ABC next month. I thought that the one fucking goal all of us had, what we were all working towards was to “just get the word out”. Are you seriously thinking that our pamphlets (please don’t get me wrong on this, I have always been big on pamphlets, witness my Booklet fiasco) will get the word out, like a national television show, with a Dr. as host who not only knows about Cluster Headaches, he has treated many Clusterheads and says “It’s more common than people know”. Shame on you selfish people. There are people out there, with this perfect pain, and no one can tell them what they have or what they can do about it. These are the people in “our target audience”, not the Doctors. They are our brothers and sisters. OUR BROTHERS AND SISTERS. Don’t you realize that someone watching the show will say, “I know someone who has those exact same symptoms”, and will write down “www.clusterheadaches.com”, and before you know it another Clusterhead finds their family, sanity and relief from the perfect pain. How dare any of you let your personal egocentric feelings about a television show host, pull down this team effort, to reach out to our brothers and sisters. Anybody else who feels compelled to BRAG that they aren’t going to take the time to send a simple email to Dr. Phil, asking him to help us “just get the word out”, because of general principles, please start your own negative thread. This thread is for rowers. David J. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Hooter on Jul 30th, 2003, 5:16am Sorry David (and Ted for that matter) I really didn't mean to denigrate your efforts, I just think if you do manage to get CH on a TV show (which would be bloody marvellous) there's a good chance it goes all over the world to more people than you can ever imagine (including Doctors), who gain from this programme a view of a country, and it's people. and in this case CH and its sufferers. How you and we are portrayed is crucial. Some of these programmes do no favours for your International reputation and image and in some countries I bet that the daytime chat is almost all they get. Here we hopefully get a completely rounded view, we know you are all gay interior designers, vice cops, work in ER departments or funeral parlours and share apartments with your Friends ;D As I said, I don't know Dr Phil, but the beating each other up, incest, sex with midget strippers kind of programme would worry me. Sorry again if I offended. We would probably kill to get CH on a daytime chat programme over here. We even have a very amateur and thinner imitation of Oprah called Trisha (total crap) Hooter |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 30th, 2003, 6:18am Youv.e got a fucking geo the size of Nebraska and Quote:
A fuckin nerve to go with it. Every that disagrees with you should be shamed! Quote:
This thread is for anyone who wishes to post here. When did you become webmaste ? Get a fuckin grip! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Brian_Y on Jul 30th, 2003, 7:24am Quote:
Don, At the risk of sounding like some starry-eyed groupie, may I tell you something? When I was a child, Ken Stabler was my hero. Then as I grew older, Allen Ginsberg, Faulkner, et al. You have unseated them all. sigh. My hero!!!! You rule. Death to mediocrity!!!! |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 30th, 2003, 7:33am Wanna come to my dressing room and get drunk big boy. LMMFAO Never cared much for Ginsberg, to much rant not enough substance. Neal Cassady on the other hand. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Bob P on Jul 30th, 2003, 8:42am Quote:
You're gonna have to row a lot longer and faster to catch up with me curley! I still say having CH exploited on a daytime trash show will do more harm than good. Send your e-mails to Discovery Health instead. Stick a mess of pamphlets in the rack at your doctor's office. Call your local TV news program and entice them to do a segment on CH in their Health & Medicine segment (after my appearance I immediately received calls from 2 clusterheads in my area). Or you could even go to the OUCH Business Board and offer to be part of the Advocacy Team that has been proposed by Don. Added later: I don't mean to put down your efforts Som. I really do appreciate the fact that you are trying to do something. That's a lot more than we get from a great deal of visitors to the sites. I just don't happen to agree with this something. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by Major_Headcase on Jul 30th, 2003, 9:44am on 07/29/03 at 19:31:16, don wrote:
Don, 1) My apologies, I spoke/wrote without thinking far enough and certainly meant no disrespect for your fine efforts. I was obliviously (sic) speaking for my own AOL (ass of lead). Sorry. :-[ 2) You could be right! Some risk is involved ... but imho Dr. Phil is "usually" a step or two above the lurid sensationalism of Springer/Lake/etc. My gut feeling was that sending an email to him was the right thing to do; but as I said, you might be right and, as always, I could be wrong. -John |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by don on Jul 30th, 2003, 8:48pm Quote:
Accepted. Quote:
The efforts are not solely mine. They are not of the many either. Quote:
OUCH has earned a place MANY steps above above lurid sensationalism. Again I draw your attention to the "Cluster Club Agenda" now posted o in the members forum on the OUCH site. |
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Title: Re: Dr. Phil: I talked to him tonight and invited Post by cootie on Jul 30th, 2003, 9:06pm pamphlets.....like the ones I get stuck in my door when jehoval witness come a knockin.....I've ducted them for 20 yrs......they won't leave me alone !! I must look like a good prospect Pam ;) |
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