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Title: Never felt so alone........... Post by Ree on Jul 25th, 2003, 8:00am I know we are spoiled by the abundant remission time that Dave has but... I have never felt so alone here (at home)... Our family and friends don't have a clue and they have been there with us for 15 years since his diagnosis.You would think they could remember how horrible this is... Does anyone have a link to a printout that I can give to people... I am so sick of saying "no it isnt stress" "no we are not dwelling on this condition" "no you dont get these headaches too" etc etc.......... people suck and we usually just stick it out alone......like some sort of plague or leprosy. I know this information is here. It has been a long while since I had to look it up when I first arrived on this site... I miss you all.........if I hit the lottery you are all moving in with us..........love ya lots and lots and missing you more Ree |
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Title: Re: Never felt so alone........... Post by Peppermint on Jul 25th, 2003, 8:05am Ree check your email. I sent you what I think you're looking for. I'm sorry you are feeling this way. :( Hugs to you and Dave. Love, Pepper |
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Title: Re: Never felt so alone........... Post by echo on Jul 25th, 2003, 8:09am Sorry you are feeling down today. Wish there was something tangable I could do for you at this moment. on 07/25/03 at 08:00:57, Ree wrote:
At least with me you'll not need to worry about body hair plugging your shower drains. ;) |
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Title: Re: Never felt so alone........... Post by catlind on Jul 25th, 2003, 8:12am Ree sweetie, this isn't fair :( Don't talk about being spoiled by Dave's remission time, what matters now is that he is hurting again, and all the remission time in the world doesn't make the hurting any easier. I know you are hurting for him too, and hurting yourself with your head. If I could stand beside you in person, and hold you close, and squeeze Dave's hand, and help him with O2, and help him with ice, you know I would be there in a heart beat. I can't be beside you in person right now, but I'm beside you in spirit and heart. Let the vibes flow in hun, we are all there holding your hand. Does Dave have O2 yet? Let me know ASAP ok. Luv ya lots Cat |
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Title: Re: Never felt so alone........... Post by NotH20 on Jul 25th, 2003, 8:28am :'( My heart goes out to you Ree.....just know that even though you can't count on your local friends and/or family - we are all here for you and Dave. Sure hope that remission time finds him soon again.... Keep that faith - and let us know if we can help in any way.... Mia |
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Title: Re: Never felt so alone........... Post by cootie on Jul 25th, 2003, 8:42am Ya know we are STILL tryin ta explain that stit ta friends and family.....unless they have had one they can "only imagine".......takes a pretty good imagination ta guess what a suffer goes tho with CH.....and a supporter.....untill they have seen it......or felt it....some may never understand or know to get the concept. Hang in there Ree.......hopein he has a short cycle and you can carry on as normal....but......I know how ya feel and I know what ya mean BIG TIME. If ya need anything leme know !! Super fast cycle vibes goin out to you and Dave. Pam that has a very vivid imagination :) |
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Title: Re: Never felt so alone........... Post by Mastifflvr28 on Jul 25th, 2003, 8:50am awwww Ree, Yer killin me here. Sending you and Dave some HUGE BIGASS vibes. Wish I could be there with ya, Mast |
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Title: Re: Never felt so alone........... Post by don on Jul 25th, 2003, 8:53am I'm with you and Dave spiritually AND I can be there physically. You guys need some support gimme a ring and I'm on the road. |
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Title: Re: Never felt so alone........... Post by BillyJ. on Jul 25th, 2003, 9:01am Big hugs to you BOTH Ree,words can not express the feelings :'( I hurt to see my friends, such good people, hurting.The vibes are coming your way,and they do work! Stay stong! PF2All, Billy oh and Dave,you shoulda had a V8! ;) |
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Title: Re: Never felt so alone........... Post by Edna on Jul 25th, 2003, 9:10am Ree, thanks for letting us know. Feel the tugs at your heart while you're reading huh? well, yeah that's us sending your our big ass vibes across the ways. And, umm........take don up on his offer, he's there yet?? Wishing both you and Dave the added strength of friends in numbers. tight hugs, EDNA |
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Title: Re: Never felt so alone........... Post by Roxy on Jul 25th, 2003, 9:15am Ree, I'm so sorry ya'll are having a bad time right now. I just wish the damn cycle wouldn't have come back. I wish we could be there to help you. Is Dave using 02 yet? It worked so good for him up in NY. If you need any help getting it or using it.....call me, please. Here is the link to Simon's letter: http://www.ouch-uk.org/ch/note_colleagues_print.html You know we are all thinking of both of you, and we are with you in spirit. Vibes coming from everyone, we love ya both dearly. Just do what you can, and if you need to vent.....go for it! Love, Tracey |
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Title: Re: Never felt so alone........... Post by BruceD on Jul 25th, 2003, 9:55am Ree, Sorry that you're feeling that way and that Dave's getting hit so bad. My prayers go out to both of you. If you need anything please let me know. I probably can't do much but I do have that extra mask if you guys need it. Later Bruce |
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Title: Re: Never felt so alone........... Post by Live4Fun on Jul 25th, 2003, 10:10am Sending prayers, thoughts and vibes up the east coast to you and Dave. Hang in there you two! Remember, together you are strong. Love and PF vibes, Bryan |
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Title: Re: Never felt so alone........... Post by Svenn on Jul 25th, 2003, 10:13am Sending prayers, thoughts and vibes Svenn |
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Title: Re: Never felt so alone........... Post by ZAIRA on Jul 25th, 2003, 10:17am :'( I'm sorry Ree... Good vibes are on the way for you and Dave... Be strong... :'( :( Zaira |
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Title: Re: Never felt so alone........... Post by Woobie on Jul 25th, 2003, 10:30am Ree - dammmit, I'm so sorry :'( --- both for you and Dave. Dont know what to say - so, Vibes to you both!! :-* :-* Tina :-* |
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Title: Re: Never felt so alone........... Post by vig on Jul 25th, 2003, 10:34am Hang in there and don't forget you have each other. -p |
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Title: Re: Never felt so alone........... Post by Charlie on Jul 25th, 2003, 10:47am Sorry Ree but Roxy has the link for you. It's the best we have. It should be a requirement to print out for friends, etc. Keep your chin up and come rant with us. Charlie |
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Title: Re: Never felt so alone........... Post by suzy617 on Jul 25th, 2003, 11:28am Sorry you guys are going thru this. >:( We all know most dont really understand what we go thru. I told a few people about the convention and they just look kinda wierd at me like.... a convention for headaches??....... ??? Hope Dave kicks the beasts ass quickly. Take care the both of you, Suzy |
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Title: Re: Never felt so alone........... Post by minnie on Jul 25th, 2003, 2:07pm Ree, Sorry Daves getting hit I'm sending huge pf vibes to both of you.I know you are going through a different pain knowing he's getting hit.We are going through the same thing here .I wish there was a way I could absorb some of Billy's pain but all I can do is wait and be there if he needs me.I know you would do the same for Dave, just hang in there and come here to vent when you need to . If you want my e-mail address and don't have just pm me . Minnie p.s hope Daves mom is o.k. let us know. |
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Title: Re: Never felt so alone........... Post by Linda_Howell on Jul 25th, 2003, 4:48pm Oh Ree, I'm so damn sorry. Get him the 02 asap.. He was so very sympathetic to my pain in New York and now I can't be there to give him any. I hate this. I just hate this. Linda |
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Title: Re: Never felt so alone........... Post by eyes_afire on Jul 25th, 2003, 5:44pm Ree, I know what you mean... many people just have no clue what we go through. They just don't understand. It is a lonely road. But we are here for you both, and we understand. --- Steve |
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