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        New Message Board Archives >> 2003 Posts >> Anyone having insurance/med troubles
        
(Message started by: catlind on Jul 22^nd, 2003, 6:52am)

Title: Anyone having insurance/med troubles
Post by catlind on Jul 22^nd, 2003, 6:52am

please email me and let me know. Lori Choyce, one of our speakers works with an attorney to get people the medications they need. She emailed me this morning and asked me to tell everyone about this.

She noticed that there were far too many people at the convention that were not getting the right meds or the right amount of meds.

So if you are in that situation please email me ASAP and I will get you hooked up with her and she will get you on the path to getting the right medications and having them covered.

catlind@twcny.rr.com or kadiya68@yahoo.com

Cat

Title: Re: Anyone having insurance/med troubles
Post by Mark C on Jul 22^nd, 2003, 11:33am

B U M P

Title: Re: Anyone having insurance/med troubles
Post by Brian_Y on Jul 22^nd, 2003, 7:29pm

If all the raindrops were lemon drops and gumdrops
O what a rain that would be!!

Standin' outside with my mouth open wide
Ah ah ah ah ah ah ah ah ah ah

Ooooooooo

If all the raindrops were lemon drops and gumdrops
O what a rain that would be!!!

(to the top, Alice!!!)

Title: Re: Anyone having insurance/med troubles
Post by Tim_w on Jul 22^nd, 2003, 8:10pm

Cat
As you know Iam having trouble with blue cross
Nuro says 72 pills for 3 months Blue Cross says36
Blue Cross playing Doctor
What can I do? ???
Tim_w

Title: Re: Anyone having insurance/med troubles
Post by catlind on Jul 23^rd, 2003, 1:32pm

Bump

DJ, can I get this sticky'd?

Cat

Title: Re: Anyone having insurance/med troubles
Post by eyes_afire on Jul 23^rd, 2003, 5:54pm

2 questions for ya Cat.

1. Is this a standing offer? I'm not quite ready yet to bow to the imitrex injections but when all hell breaks loose things are liable to get ugly.

2. Can she really help me? I'm not in a good situation as far as imitrex injections. They are specifically prohibited from my signed insurance contract. It's not like I'm limited. It's more like imitrex injections are prohibited... for everyone. The problem is not really with my insurance company, it's with my greedy employer... kinda ironic considering what I do for a living... maybe it's time to move on.

Like I said, I'm not submitting to the injections yet... so it's not 'condition critical' right now.

thanks
--- Steve

Title: Re: Anyone having insurance/med troubles
Post by Ree on Jul 23^rd, 2003, 6:03pm

Hey Cat... Dave is getting hit regularly now... I talked to his doctor and she told me that the insurance company wont approve 02 for CH... why the hell not??? anyway I will email you also incase you dont see this but I am calling tomorrow because Daves doctor is going on vacation for a month starting this weekend... I talked to her on the phone she was so impressed that we went to the convention and about everything I told her... thanks again for all that you do... Love Ree

Title: Re: Anyone having insurance/med troubles
Post by catlind on Jul 23^rd, 2003, 7:07pm

Eyes, yes this is a standing offer. She works closely with a lawyer on this stuff, so your employer insurance contract may well be illegal. I'll get you the info.

Ree, that's bullshit, O2 is an approved treatment for CH, one of the 3 that ARE standard CH treatments. Will get you the info too :)

Cat

Title: Re: Anyone having insurance/med troubles
Post by Ree on Jul 23^rd, 2003, 10:46pm

thanks honey appreciate it but i will need it sooon Daves doc goes on vacation for a month starting on Sat. Should I just have her give me the prescription? Ree

Title: Re: Anyone having insurance/med troubles
Post by AlienSpaceBabe on Jul 24^th, 2003, 3:37pm

BUMP

Title: Re: Anyone having insurance/med troubles
Post by catlind on Jul 25^th, 2003, 2:09pm

To the top

Title: Re: Anyone having insurance/med troubles
Post by Mark C on Jul 25^th, 2003, 5:53pm

http://usa.venus.co.uk/weed/agifs/images83/aarru.gif
BUMP

Title: Re: Anyone having insurance/med troubles
Post by catlind on Jul 27^th, 2003, 6:45pm

bump, DJ can I get a sticky!

Title: Re: Anyone having insurance/med troubles
Post by don on Jul 27^th, 2003, 7:01pm

Sure, here ya go................

http://www.business-supply.com/assets/thumb/ET010466.gif

I know.

Shut the Fuck Up Don

Title: Re: Anyone having insurance/med troubles
Post by catlind on Jul 27^th, 2003, 7:02pm

Geezus...STFUD LOL

:-*

Cat

Title: Re: Anyone having insurance/med troubles
Post by cootie on Jul 27^th, 2003, 7:07pm

"Bump"-n-roll

Title: Re: Anyone having insurance/med troubles
Post by catlind on Jul 29^th, 2003, 10:14am

Bump

Title: Re: Anyone having insurance/med troubles
Post by Jackie on Jul 29^th, 2003, 11:25am

Cat,
I've contacted Lori with our "insurance woes" both past and present. She has already e-mailed back and we are preparing a case....

One problem is a denial by Blake's new insurance company for ANY Zomig...we appealed and were denied again. I called them and informed the "powers that be" we could do this the easy way or the hard way....they relented and granted 6 Zomig per month....big F'in deal. That's not gonna cut it so the fight goes on.

Thanks so much for the information and we'll keep you posted on our progress.

Jacks 8)

Title: Re: Anyone having insurance/med troubles
Post by Mastifflvr28 on Jul 29^th, 2003, 8:34pm

WHOO HOOO Jackie,
You get em!!

this is a bump and congrats :)

Mast

Title: Re: Anyone having insurance/med troubles
Post by simplevox on Jul 30^th, 2003, 11:42am

Yes - I just found out about the 6 Zomig's for 30 days yesterday when I am down to one pill. I started crying at the pharmacy when they told me. My neurologist took pity on me and gave me 12 samples to get me through next week. I go back to her next Thursday to start steroid treatments which I'm hoping will get me through to the 30 day window, but JESUS! Don't the insurance people ralize that we're not taking Zomig for fun?? That we REALLY need it?? I know it's expensive, but what are we supposed to do??? :'( >:( My doc's nurse said that the people that make Zomig are fighting it out with the insurance companies... do you know anything about that?

Title: Re: Anyone having insurance/med troubles
Post by Jayne on Aug 1^st, 2003, 2:19pm

I wonder if she could help with this. Blue cross blue shield has upped my insurance $64 per month and I have hardly used them this past year. At this rate each year is going to get higher and higher until I just can't afford insurance anymore. Raising the rates $64 just seems awfully high to me. I have only used my insurance for these things during the past year.
4 imitrex shots
1 bottle of verapamil
1 female check up AND THAT"S IT!

Title: Re: Anyone having insurance/med troubles
Post by achinghead on Aug 4^th, 2003, 7:19am

I was having lots of problems with my ins company.. they would only approve 2 scripts a month for the injections.. I searched this site and found a help site from Glaxo Smith Kline... make a long story short.... I got a caseworker and after 2 weeks of her working on it I got approval for unlimited amounts .. Ive been out of this cycle for 4 months now but Im stocking up. I currently get 7- 8 scripts per month for the next cycle
Have you checked into this CAT?

Title: Re: Anyone having insurance/med troubles
Post by jc-fla on Aug 5^th, 2003, 2:04am

Our problem is that we have no insurance. He is too sick to go back to work, and I lost my job in May. I'd be glad for the few pills the insurance company wants to issue, but We can't even get that. We have to pay full price - $134 for two Imitrex shots, and $360 for 60 Oxycontin.

How can you get meds when you have no insurance?

CM

Title: Re: Anyone having insurance/med troubles
Post by Carla_Comiter on Aug 9^th, 2003, 11:28pm

To JC-Fla,

I don't have insurance either. The three ways I have received free medications for this episode are: go to the Imitrex website, they're offering a coupon for a free prescription, get samples from your doctor (I got them from my internist AND my neurologist), see if any friends have samples they don't use. I had two girlfriends give me sample *triptans, totaled over 30 pills.

Also, O2 is not that expensive. You might check the prices to see if you can afford it. And, Verapamil in the generic is much less expensive than Covera.

I've also looked at websites for Canadian pharmacies, and their prices ARE lower. Anyone else tried ordering from Canada?

Hope this helps even just a little.

Carla

Title: Re: Anyone having insurance/med troubles
Post by murazzio on Aug 18^th, 2003, 8:04am

God help everyone who is having trouble, even more those without insurance, can't imagine where (if) I would be now without the meds. Glad I am not in the US... you're system really sucks >:( >:( >:(

PFDAN

painful murazza

Title: Re: Anyone having insurance/med troubles
Post by Danish on Aug 19^th, 2003, 4:48pm

Quote:

Glad I am not in the US... you're system really sucks

I second that!
It must be humiliating and very expensive to have to pay to get healthcare.
In Denmark we don't pay for visits to the GP - ER visits - even going to the hospital and whatever treatments needed - it's all free.
My O2 is free also - that's just one of the reasons I use it - because we actually do pay for medication ;)

Title: Re: Anyone having insurance/med troubles
Post by Patrick_A on Aug 21^st, 2003, 12:07am

ahem, My taxes are about 25% per year though. Nananana!!

Title: Re: Anyone having insurance/med troubles
Post by UnsolvedEquation on Aug 23^rd, 2003, 3:31am

Thank god I have insurance now that will pay for my meds and a doctor that will also suppy me with Imitrex anytime I need them. At one time, I didn't have this and daydreamed about sliding across a drugstore counter armed to the teeth demanding IMITREX !! Wonder what might have happened if I didn't get my meds...I probably would have eventually cracked under the stress and pain. Someone would've gave me my meds one way or another. I bet there are others out there that aren't so lucky and have no access to the meds they need. What will they do ? After all, Clusters without meds is like torture !!

Title: Re: Anyone having insurance/med troubles
Post by Zonie on Aug 24^th, 2003, 1:37am

Hi all...I'm a 13 year CH veteran who graduated from episodes to the chronic level about 7 years ago. I have been cluster free for only one entire week during the past 7 years. I was forced to go on a medical leave from a wonderful job and eventually was forced into total disability due to my clusters (and side effects of meds). I can certainly relate to all of you who have problems getting the meds that you need. I am very fortunate to have most of my required meds covered by insurance, but my oxygen was denied to me this past week. And I have a doctor who asked me why I needed oxygen!!!!. It had been supplied by a family member who owned a medical equipment company. He recently sold his company and now I'm having a problem getting O2 covered.

But I have faith that it will be accomplished. I have learned so much about these demons in the past 10 years, but I still believe that one day there will be a cure, or at least better treatment for our common problem. And I feel very strongly that websites such as this will be very instrumental in accomplishing this feat by a meeting of some great minds & sharing information that will be beneficial to all.

Again, I am new to the site and am so thankful to find it. I look forward to sharing information and ideas with all. Thanks for being here.

Title: Re: Anyone having insurance/med troubles
Post by Prense on Aug 24^th, 2003, 10:33am

on 08/24/03 at 01:37:46, Zonie wrote:

I was forced to go on a medical leave from a wonderful job and eventually was forced into total disability due to my clusters (and side effects of meds).

Are the meds not getting rid of your HAs, or at least reducing the frequency and/or severity? If I were having long-term side effects from meds, I would try to seek out another treatment. Disability, for me, is not an option. If your doc cannot understand why O2 is needed, get another one...if possible. Another idea...click on the O2 link off to the left, print that out and take it to your doc. If he/she still will not prescribe, they are doing you no good. My goal is to reduce the severity/frequency with something that still allows me to function in a somewhat normal fashion. BTW, create a new thread in this area introducing yourself again. You will get more responses by doing that. I wish you well!

Chris

Title: Re: Anyone having insurance/med troubles
Post by UnsolvedEquation on Aug 25^th, 2003, 10:07pm

Quote:

Disability, for me, is not an option

You make it sound like people choose to be disabled ???
Aint no job gonna get you out of the hospital or make your head quit poundin'...will it ? ::)

Title: Re: Anyone having insurance/med troubles
Post by Prense on Sep 1^st, 2003, 10:33am

Good point, I did not mean in that way. If I can at all help it, I will not be disabled due to this. I have suffered with it for 10 years chronically (still untreated), and I will continue to do so. I will continue to pursue docs until I find one that tries to understand and tries to assist me. If a med brings me to the point where I cannot function, then I do not want it. That is how I meant it.

Chris

Title: Re: Anyone having insurance/med troubles
Post by Carla_Comiter on Sep 2^nd, 2003, 9:25pm

Cat, I've received no reply to two emails that I sent to you. Did you receive them? If not, how should I let you know that I'm interested in the help you're offering?

Thanks,

Carla