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(Message started by: josesoriano on Jul 16th, 2003, 4:35pm)
Title: Spanish
Post by josesoriano on Jul 16th, 2003, 4:35pm
Hi sorry about my english....i have just found that i have cluster, i have been sufering for this for along tome but here in Peru we didn't have so many information about this. i'm reading that there are a lot of medications ... please if someone can explain me more about this ....

Regards,

Jose Soriano
Title: Re: Spanish
Post by Charlie on Jul 16th, 2003, 4:56pm
Welcome, Jose, and sorry you have this horror.

You will find many here who can reply in Spanish. I can't but here are some links to some of our information that may help. Keep looking here. There will be better replies  soon.

http://www.clusterheadaches.com/newvisitors.html

http://www.clusterheadaches.com/traits.html

http://www.clusterheadaches.com/about.html

You'll find much more with the buttons at the left of these pages.

Keep in touch.

Charlie
Title: Re: Spanish
Post by Danielle on Jul 16th, 2003, 5:00pm
Hi Jose,

Sorry to have to meet like this but glad you found this site. I understand it might be difficult to get a lot of information about CH in Peru...it was difficult even in Canada and I had a hell of a time finding medications abroad that were easy to find here. Anyhow, I would suggest you go to the left side menu and choose the button that says "medications". There is alot of really good information there and the people here are very knowledgable due to their own experiences.
Title: Re: Spanish
Post by don on Jul 16th, 2003, 8:51pm
You will also be happy to know that OUCH (Organization for Understanding Cluster Headaches)  is starting up in Spain. I will be with the president of OUCH Spain in about a month from now and I would be happy to pass on your personal info to her if you wish.,
Title: Re: Spanish
Post by Peppermint on Jul 16th, 2003, 8:58pm
Hola!  :)

Bueno que os encontraste pero que pena que sufres de esta maladia.

Aunque si hay informacion aqui, en yahoo hay un foro de estos tipos de ataques.  HEY NOT 4HIRE... what's it called I forget ???  No me recuerdo bien, ahorita lo busco a ver y le doy un puesto aqui.  Sera mas facil de entender para ti.  

For now, look around, try to read as much as you can.  Good going on Spain Ouch!!

Suerte... y si necesitas trasladar algo, mi correo electronico es peppermint2867@yahoo.com  
Dadte cuenta que vamos de convencion empenzando manana y quizas no te pueda contestar de una vez.  Por eso, me disculpo.. :-/

Otherwise, feel free.  Take care,
Peppermint ;)
Title: Re: Spanish
Post by don on Jul 16th, 2003, 9:14pm
PEP has just created and assumed the position of first official OUCH interpreter.

Congratulations on your new job and thank you from the prez on behalf of OUCH USA!

(pay sucks)
Title: Re: Spanish
Post by forgetfulnot on Jul 16th, 2003, 10:59pm
Hey, Jose Soriano, look up a guy named Steve, AKA Not-4-hire on this board, I think he is in a move right now but should be back up in a few days. He lived in Peru for a while, you guy's should comunicate well.

Lee
Title: Re: Spanish
Post by Not4Hire on Jul 17th, 2003, 12:21am
Hola amigo!
Primero, perdoname pobre castellano escrito. Yo hablo (mas o menos) la lingua de los peruanos (no Quechua lamentablemente :-)  ) porque mi esposa es peruana y ella va apoyarme en otra opportunidad. Mientras tanto, hay un sitio se llama: (clic en estos links:)
http://www.civilizacionweb.com/cluster

y otro se llama:
http://es.groups.yahoo.com/group/tratamientos_cluster_headache/

Esos sitios tiene bastante informacion al repecto este dolor (La Bestia). Ahora mismo, estoy demasiado occupado con una cambia de direccion pero yo tengo tu correo electronico y yo quiero apoyarte en cualquier manera posible.

Espero que encuentrara algun informacion usable en esos sitios y tambien este pequeno mensaje de uno amigo/suffrante puede apoyarte.

Saludos... Esteban (Not4Hire)
Title: Re: Spanish
Post by Svenn on Jul 17th, 2003, 3:59am
Hi there friend

Welcome to Clusterville

A BIG hello from the land of the vikings  ;D ;D ;D ;D   "Norway"

Here you are among the best friends EVER on this globe.
 
This is my coctail    
   
Verapamil Retard 120mgX5-7/daily during cycle 3 weeks after last hit tapering down with 1 verap every 3/4 days until you are on 1 a day.1 a day for another 2 weeks you can decide to quit the verap or take 1 a day.Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree  
Prednisolone in high doze for 10 days 80mg  
then over a 3 weeks periode step down like 70-60-50-40-30-20-10-5mg every 3/4 day  
This work fine for me    
 
The very best from Svenn  
Title: Re: Spanish
Post by Carmencita on Jul 17th, 2003, 4:00am
Hola José:
Aunque ya te contesté por mail te dejo aqui un mensaje y me presento: Soy Carmen, de la Asociación Española de Cefalea en Racimo, OUCH España. Te he dejado la dirección de la página que nos da soporte a los clusters de habla hispana, de modo que espero verte por ahí.
Un saludo y ánimo, que nos hace mucha falta.
Saludos.

Best wishes for all you from the sunny Spain!!!!
Sorry if I leave the message in spanish, but it is for José.
Title: Re: Spanish
Post by ZAIRA on Jul 17th, 2003, 4:22am

Hello Josè... nice to meet you... Welcome Home :D!!!  I'm Zaira, I come from Italy, I’ve been suffering CH since I was 14 and I have  many cluster’s cycle during the year. ...

I am sorry to read about your beast, but you are not alone and now you are in a big family... :)

If I can help, I take lithium an verapamil. I take lithium’s tablet 300 gr and then 1200 mg, plus verapamil until max 960 mg.

When I have shadows I suddenly do or O2 and if it doesn’t work I have imitrex/imigran, so that the attack is not so violent... this is my experience and it works for me.  

Talk to your Doctor.  

Good Luck and remain with us!

Zaira  ;D :P



P.S. Ciao Carmencita.... ;D
Title: Re: Spanish
Post by Peppermint on Jul 17th, 2003, 5:34am
Don - you kill me!!  ;D
I'll translate whenever anyone needs it- I'm not perfect though! In assuming did I make an a_ _ out of.... oh neva mind.  

So what did you say the pay was? Sucks?  I don't take that kind of currency  ;)  

Hey I'll do whatever I can.  N4 to the rescue - and Carmencita is on the ball!!
Saludos Carmencita y adelante!  :)

Peppermint
Title: Re: Spanish
Post by ozzman on Jul 17th, 2003, 7:24am
Jose,
A parte de Carmen al parecer soy el unico que habla español no "gringo". Originalmente soy del Ecuador y hablo perfecto Español. Tambien he encontrado informacion en este sitio del National Headache Foundation:

http://www.headaches.org/consumer/topicsheets/cefalea.html
Mas que nada para pasarsela a mi familia y que puedan comprender un poco de lo que nos aflige. Las recomendaciones sobre medicina son buenas, en particular las de Svenn. Si necesitas conversaqr mas sobre esto o como apoyo escribeme a: o_valdivieso@hotmail.com

Acuerdate que no estas solo y bienvenido a la gran familia!

Ozzy
Title: Re: Spanish
Post by suzy617 on Jul 17th, 2003, 7:29am
Welcome Jose and como esta usted?  (thats the extent of my spanish vocabulary)

suzy
Title: Re: Spanish
Post by BruceD on Jul 17th, 2003, 8:05am
José

A primero, tu inglés es mejor que mi español. Para mí, el oxígeno, a 15 lpm, es  el tratamiento mejor para el dolor y generalmente el dolor finaliza en menos de 10 minutos. Aparece que los otros aquí lo pueden ayudar porque ellos hablan el español como un primer lengua, pero me gusta a decir hola. Bienvenido a la familia y lo siento que tienes el dolor.

Cuidáte y saludos
Bruce
Title: Re: Spanish
Post by Bob P on Jul 17th, 2003, 8:31am
South American cluster site:

http://civilizacionweb.com/cluster
Title: Re: Spanish
Post by Ueli on Jul 17th, 2003, 8:41am
Hi Jose,

maybe you can find something useful on the cluster pages of Dania from Venezuela:

http://civilizacionweb.com/cluster
Title: Re: Spanish
Post by Bob P on Jul 17th, 2003, 9:32am
Also, here is Caca de la Vaca's spanish cluster group:

http://es.groups.yahoo.com/group/tratamientos_cluster_headache/
Title: Re: Spanish
Post by Carmencita on Jul 17th, 2003, 9:51am
Hey, Bob P, do you know wht Caca de vaca means? hahahahahahaha



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