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        New Message Board Archives >> 2003 Posts >> Heres an extreme suggestion
        
(Message started by: don on Jul 10^th, 2003, 9:22pm)

Title: Heres an extreme suggestion
Post by don on Jul 10^th, 2003, 9:22pm

I would gladly allow one of the neuros at our conferance to trigger me into attack in front of the hundreds of neuros who will be attending their medical convention.

Title: Re: Heres an extreme suggestion
Post by andy on Jul 10^th, 2003, 9:56pm

Nitroglycerine?=nitroglycerine

n : a heavy yellow poisonous oily explosive liquid obtained by nitrating glycerol; used in making explosives and medically as a vasodilator [syn: nitroglycerin, trinitroglycerin, glyceryl trinitrate]

Source: WordNet ® 1.6, © 1997 Princeton University

Title: Re: Heres an extreme suggestion
Post by don on Jul 10^th, 2003, 10:02pm

I just emailed Mo Graham in the UK and asked that the idea be bounced off of Goadsby.

Sacraficial don.

Title: Re: Heres an extreme suggestion
Post by andy on Jul 10^th, 2003, 10:07pm

Question, Does nitroglycerine trigger a CH only in clusterheads or does it trigger a non clusterhead too? ............andy

Title: Re: Heres an extreme suggestion
Post by JDH on Jul 10^th, 2003, 10:33pm

Wow Don, talk about taking one for the team. You da man!
If you're gonna dance then that would be THE ultimate place to do it...lol, believe me I've done it in much worse places than a room full of neuros.
Have you ever taken nitro and are you sure it'll fire you up? Man, you might start a whole freakin' cycle by doing this and then where you gonna be?
Good luck with this whole thing brother, we're with you.

Jim

Title: Re: Heres an extreme suggestion
Post by don on Jul 10^th, 2003, 10:35pm

Where will I be. In the middle of a thousand of the worlds top neuros.

Lets see how good they are?

Title: Re: Heres an extreme suggestion
Post by paul_b on Jul 11^th, 2003, 12:30am

Just don't exlpode ;D

Title: Re: Heres an extreme suggestion
Post by paul_b on Jul 11^th, 2003, 12:31am

oops, EXPLODE ::)

Title: Re: Heres an extreme suggestion
Post by sueellen83 on Jul 11^th, 2003, 2:38am

Hey Andy,

Nitro can cause pounding headaches in people without clusters.

I've had several cardiac patients who have to put their nitro patches on their thighs because it gives them headaches.

Title: Re: Heres an extreme suggestion
Post by CJohnson on Jul 11^th, 2003, 7:49am

I might have read somewhere that nitro does not induce CH attacks in out of cycle subjects. I could be wrong.

PFDANs
-Curtis

Title: Re: Heres an extreme suggestion
Post by ave on Jul 11^th, 2003, 10:21am

Simon Bower, originator of OUCH-UK, took a large whisky when in cycle to induce an attack; for a video, believe.

Title: Re: Heres an extreme suggestion
Post by Bob P on Jul 11^th, 2003, 10:25am

I think CJ is roght. Nitro does not induce a cluster when you are out of cycle. There is more going on during a cluster than just the dialation of the blood vessels (which is what nitro does). Lots of other pain inhancers are also released during cluster which make the nerves more sensitive to pain.

Course, I'm wrong every once in a great while.

Title: Re: Heres an extreme suggestion
Post by vig on Jul 11^th, 2003, 10:37am

cajones of steel
Bravo!

Title: Re: Heres an extreme suggestion
Post by vig on Jul 11^th, 2003, 10:47am

Also, if 2 people do it and one of them gets an Imitrex shot and gets up first, the drama also shows/compares how effective the overexpensive/underprescribable medicine is.

$.02

Title: Re: Heres an extreme suggestion
Post by don on Jul 11^th, 2003, 10:52am

A good wallop of hootch will induce a whole lot more than a ch attack. I'll stick with the nitro.

Title: Re: Heres an extreme suggestion
Post by Patrick_A on Jul 11^th, 2003, 10:59am

I also would gladly attend. But who needs Nitro. 1 glass of cheap wine would make me full blown in 15 minutes. They get to see the onset and watch me change from Dr. Jekyl to Mr. Hyde. It aint a pretty sight though!
Patrick

Title: Re: Heres an extreme suggestion
Post by suzy617 on Jul 11^th, 2003, 11:58am

I was given nitro while not in cycle and it did not cause an attack. I didn't get a headache at all. Never took it in cycle though.

suzy

Title: Re: Heres an extreme suggestion
Post by Tom on Jul 11^th, 2003, 4:23pm

There are individuals who usually don't tend to get any kind of headaches, but they get them when taking nitro for they heart angina (but they don't get CH attacks, of cause...) - so nitro has to be dismissed for them and replaced by other meds.

Thus, a certain part of CHeads would get "normal" headaches (or a CH attack ???) if taking nitro out of cycle, the other part would not.

Thomas

Title: Re: Heres an extreme suggestion
Post by MarkHW on Jul 11^th, 2003, 4:57pm

I started with a cluster yesterday on my way to see my neuro.

I was going to take an imitrex injection and decided that I would wait!

I got into the room with a 7/8 on the KIP scale and was pacing, holding my head, etc. I thought the nurse was going to freak out... She didn't know what to do with me. The door was open and a bunch of the people on the staff could see me with my CH. The Dr. came in, brought imitrex and had me take it immediately. I think it was an eye opener for some of them.

I have to say... they seem to be taking my CH's more seriously.

Mark

Title: Re: Heres an extreme suggestion
Post by Callico_Kid on Jul 12^th, 2003, 1:47am

on 07/10/03 at 22:02:25, don wrote:

I just emailed Mo Graham in the UK and asked that the idea be bounced off of Goadsby.

Sacraficial don.

I thought we were supposed to sacrifice a virgin! ;D

It should be enlightening if they will go along with it.

jc

Title: Re: Heres an extreme suggestion
Post by don on Jul 12^th, 2003, 2:02am

Quote:

I thought we were supposed to sacrifice a virgin!

We are!

Title: Re: Heres an extreme suggestion
Post by Jayne on Jul 12^th, 2003, 3:49pm

That's an awesome story Mark!!!!! Thank you for doing that so they could SEE
Waht did they say to you afterwards???

Title: Re: Heres an extreme suggestion
Post by MarkHW on Jul 13^th, 2003, 8:59am

They didn't say much... but I was in the next day for a procedure (having a needle stuck through my cheek so they could inject anesthetic at various points in the nerves - btw... 3 days without CH & counting).

The nurses were always ok to me, but after my attack in front of them... they were downright falling down to try to help me. I think seeing the level of pain is a real eye opening experience for a lot of medical professionals.

Mark