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Title: question Post by klp on Jul 9th, 2003, 4:03pm How do you determine your cycle is done. I'm on the last 4 days of my prednisone taper and on 480mg of verapamil and am now 5 days without any shadows or ch's. I WANT A BEER!!. Is the only sure fire way to find out is to drink and see what happens? how long do you go pain free before trying this? any thoughts or suggestions welcome. thanks krista |
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Title: Re: question Post by BobG on Jul 9th, 2003, 4:07pm Heck if I know but I wouldn't dare try a beer for another week just to be safe. |
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Title: Re: question Post by jonny on Jul 9th, 2003, 4:11pm Dont know, sorry. .............................jonny |
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Title: Re: question Post by klp on Jul 9th, 2003, 4:16pm a week!!!!!!! ok. probably a good idea. thanks bob. and dont apologize jonny, i may be new here but if my poor memory serves me correct your chronic. i couldnt even imagine that. thanks guys. krista. |
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Title: Re: question Post by Pushkin on Jul 9th, 2003, 5:01pm I'd give it a week after the end of the predisone. Do't count the time on predisone. Just my experience. Predisone can fool you. |
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Title: Re: question Post by Jayne on Jul 9th, 2003, 5:01pm When I was episodic (ahhhh those were the days) I would wait at least 10 days-2 weeks before I would attempt the beer. Good luck and be careful Jayne |
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Title: Re: question Post by Big_Dan on Jul 9th, 2003, 5:02pm ... Krista, I do that to see if I'm in or going out of cycle... but I don't suggest anyone really do it... ... I've been called alot of things for doing it.... stupid, crazy, idiotic, dead sexy... oh wait... ;D -Big Dan |
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Title: Re: question Post by andy on Jul 9th, 2003, 5:04pm Krista, i waited 2 weeks after my last attack to drink some beers and luckily i did not get hit, the next day i drank some vodka and i did not get hit. Cycle over. Life back to normal. PF and loving it! ........andy |
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Title: Re: question Post by jonny on Jul 9th, 2003, 5:04pm on 07/09/03 at 17:02:27, Big_Dan wrote:
LMMFYBO...Dan ;D ..........................jonny |
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Title: Re: question Post by echo on Jul 9th, 2003, 5:09pm FWIW: I put a staple in my left nut. If it hurts like hell the cycle is over. If I can't feel it I must be having a headache and therefore the cycle is not over. |
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Title: Re: question Post by eyes_afire on Jul 9th, 2003, 6:10pm Krista, if you're tapering off prednisone, don't do the beer. Usually the prednisone will not break the cycle and the CH return once the prednisone is tapered. Wait until after you are off prednisone. Only then will you be able to really determine if the verapamil is doing it's job and/or if you really want to try that beer. As for me... I've been dry for 22 months >:( --- Steve, one of many... |
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Title: Re: question Post by Mark C on Jul 9th, 2003, 8:29pm My cycles tend to ramp down over a period of weeks or even months, just as they ramp up. I do not get suddenly hit, except for some time after this last attack. I have been getting almost constant shadows and for several months after the last cycle ended (?) I was getting real short, intense "jabs" that only last a few seconds but come on with such suddeness and intensity I am beginning to think I am morphing into a chronic and or a CPH sufferer. :-/ Thanks Ted for the CPH information. For the last month or so I have been feeling pretty good....and a little Rum and Coke is pretty good after work. PFDAN's Mark |
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Title: Re: question Post by BobG on Jul 10th, 2003, 12:40pm Mark C, I haven't had a "cycle" for a number of years but I did have daily shadows from January thru May or so each year, except this year. During those shadow periods I would get that "What the hell was that!!" jab-in-the-eye. It usually happened 1 or 2 times while relaxing in the evening. This year no shadows and no jabs. Nothing has changed in my life style, I still don't have one :-[ But I am thinking about getting one. Someday. ;D |
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Title: Re: question Post by Drk^Angel on Jul 10th, 2003, 9:37pm Mark C... You might wanna look at this... 4.1. Primary stabbing headache Previously used term: Ice-pick pains, jabs and jolts, ophtalmodynia periodica Description: Transient stabs of pain in the head that occur spontaneously in the absence of organic disease of underlying structures or of the cranial nerves. Diagnostic criteria: A. Pain occurring as a single stab or a series of stabs confined to the head and exclusively or predominantly felt in the distribution of the first division of the trigeminal nerve (orbit, temple and parietal area). B. Each stab lasts for up to few seconds. C. Stabs recur with a frequency ranging from one to many per day, in rare cases they occur repetitively over days. D. No accompanying symptoms. E. Not attributed to another disorder. Comment: In a single published descriptive study, 80% of the stabs lasted 3 seconds or less. The occurrence in status lasting up to one week (active period) was reported. Stabbing pains are more commonly experienced by people subject to migraine (about 40%) and cluster headache (about 30%), in which case they are felt in the site habitually affected by headache. Stabs may change from one area to the next in either the same or the opposite hemicranium. When strictly localized in one particular area, diagnosis depends upon the exclusion of structural changes at the site of pain and in the distribution of the affected cranial nerve. Positive response to the indomethacin administration is reported in non controlled studies. PFDAN....................................... Drk^Angel |
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Title: Re: question Post by TraceaTX on Jul 10th, 2003, 10:56pm Hmmmm....what's it like not being constantly in the middle of a cycle? I can't really call it the middle...more like enduring.. Tracea (the apparently chronic) |
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Title: Re: question Post by jmorgan52 on Jul 11th, 2003, 4:26am KLP I agree with Eyes. If you are still on Prednisone stay off the booze. Chances are you are just on a Prednisone holiday. If you manage at least a week after the pred has finished without a HA then you have a good chance of the cluster being over. My many experiences with pred over the past few years says don't hold your breath hoping they are over, or as Arnie says "I'll be back". I hope not for your sake. John |
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Title: Re: question Post by Mark C on Jul 11th, 2003, 1:17pm Thanks Dark, I had not seen that....sounds similiar to CPH also. The symptoms are very much as described....very sudden and short, sharp..OUCH! :o PFDAN's Mark |
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