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(Message started by: taraann on Jul 4th, 2003, 2:46am)

Title: Another Long neverending night from hell
Post by taraann on Jul 4th, 2003, 2:46am
Are you all getting tired of my venting/ranting??? I am just having a really tough time here lately.  I don't even know why I'm posting just repeating the same things I've already complained about.  Damn it it's 3:57 am and not releif insight.  Finally got my doc to callme back so I could get on someting better for the long weekend but so far not so good.  I just wanted to enjoy having hubby home for 3 days straight.  I was praying this cycle would be over by the 4th so i could have a couple glasses of champagne BUT NO WAY am i touchin alcohol!!!  This mean SOB that im having right now started almost 2 hrs ago....finally peakeed a bit ago and is slooooooowwwwwwlllllllyyyyyyy starting to climb back down DAMN it .....

Hey I gotta questrion whats the longest jyou all have had an individual ch last...not the cycle butg just one of the ch's?

Alrighty can't sit here anymore....I hope you all are having a much better night than I.  whenever i reread my post i sound so whiny...ah well sorry bout that. ttyl

Title: Re: Another Long neverending night from hell
Post by ave on Jul 4th, 2003, 3:49am
Tara Ann, way baaaad, a long night  lonely and in pain.

I feel for you, truly.

The only time I had attacks turn into a day long nightmare, I have a suspicion I had a migraine riding between them, so I can't really tell, but some folks do have them, i believe.

If youhaven't gone to sleep yet: hang in there.



Title: Re: Another Long neverending night from hell
Post by jminmilwaukee on Jul 4th, 2003, 5:21am
Man, I hate those long nights.  :(

I too have had the occasional Migrane hop on board between CHs which means Kipp whatever followed by general migrane right back into another kipp whatever.

Sorry to hear about your hellish night. With any luck you'll get some relief and a little sleep on top of it. Hang in there and know WE FEEL not only your pain but are thinking about you.

Jmin

Title: Re: Another Long neverending night from hell
Post by Mark C on Jul 4th, 2003, 11:21am
I am so sorry you are still getting hammered....please vent away...I am pretty sure DJ had just this sort of thing in mind when he started this MB. All the PF vibes I got your way!

KEEP PUSHING!!

PFDAN's
Mark

Title: Re: Another Long neverending night from hell
Post by Charlie on Jul 4th, 2003, 4:04pm
Sorry the beast has been visiting and feel free to rant away.

To answer your question, the longest one for me was not quite 40 minutes. Had three 20 minutes or so hits within a few hours one night. Pretty lucky I guess.

Hope you have a PF holiday.

Charlie

Title: Re: Another Long neverending night from hell
Post by taraann on Jul 4th, 2003, 4:54pm
Thanks again guys/gals!  My day is going pretty good just a few minor ones so far.(night is the bad time anyways)..but boy am I tired...about an hour of sleep and then my day began.  I think you are right about the migraine in between thing...looking back I do think I had that going on too (I've been having migraines since way before the CH's, the ch's are relativeley new...my first (prior to being officially diagnosed) CH only 4 yrs ago.  Well I am off to catch a nap while I finally have the chance.  
TTYL.  HOPE YOU ARE ALL HAVING A PF AND FUN FRIDAY/INDEPENDENCE DAY!!!

Title: Re: Another Long neverending night from hell
Post by murazzio on Jul 4th, 2003, 8:00pm

Hi TaraAnn,

this is one of my first posts. I have suffered from increasing CH for 7 years now.

Within my last cycle the worst I have had was a kip 8-10 for 2 hours, a less violent shadow in between and then another 2 hours of kip 8-10. Then I slept a couple of hours and then it started again very early in the morning, another rebound upto kip 10. That was one HELL of a night  :'(

After it had finally stopped I was so relieved but so exhausted. Lying in my bed coming back to my normal senses I experienced a natural high, like you have just climed a psychological mountain, that was really euforic and extatic  ;D
Can anyone relate to this natural high after a high level kip attack?

In my most recent cycle, finally having got some powerful medication the worst was only 1 hour at the most, and some light shadows afterwards but thank god no severe rebounds  :)

I am very glad I can find some relief now, cause even the very thought of going through hellnights makes me sad  :-[

3.15 am local time, time for some hopefully shadow and CH free night

hope you will do well the coming time and wish you all PFD&N  :)

Title: Re: Another Long neverending night from hell
Post by Wendy the Brit on Jul 4th, 2003, 8:05pm
Hi Taraann

Sorry you are having such a rough one. Can't offer anything except sympathy and a 'Hang in there, it will end" message.

Personally I am going to stay on here so Freddy Kruger can't get me. (stupid really as I should sleep, but that's what I feel like doing at the moment)

Vibes from across the pond

W the B

Title: Re: Another Long neverending night from hell
Post by smfaison on Jul 11th, 2003, 7:30pm
[font=Verdana][/font]Last Saturday I had the headache from hell right after mowing the yard.  It quickly went to an 8+ and stayed that way for 4 hours.  I took my evening meds thinking that might help.  I eventually took a sleep aid called Simply Sleep and eventually fell asleep.  I was a zombie all day Sunday, but PF since that last HA.

Title: Re: Another Long neverending night from hell
Post by Opus on Jul 11th, 2003, 9:56pm
Kip 10, 3 hours until the ambulance was called and 02 knocked it down.

Kip 7 for 6 hours when I had no meds, My migraines started out getting messed up with my CH, now they are there own beast.

Opus/Paul

Title: Re: Another Long neverending night from hell
Post by taraann on Jul 15th, 2003, 1:45pm
Oh wow that's a long one!!!  I hope you all are having better days/nights now!

Tara Ann

Title: Re: Another Long neverending night from hell
Post by Big_Dan on Jul 15th, 2003, 2:15pm
... I went through a long night not too far back, and came straight here to do my bitchin'...

... now someone else get's to bitch.... don't feel bad about it...

... PFDAN's...


-Big Dan

Title: Re: Another Long neverending night from hell
Post by stuey on Jul 15th, 2003, 2:30pm
So sorry to hear you are being hit hard.  I went through one of those Friday.  If I could wave a magic wand . . .
The longest I recall was probably an hour.  I've never had the 2 hour long ones I've heard about, but mine are normally half hour to 45 minutes long.  What preventives do you take?  They obviously weren't working when you wrote this.  I wish you well.  Stuey

Title: Re: Another Long neverending night from hell
Post by taraann on Jul 16th, 2003, 6:38am

on 07/15/03 at 14:30:54, stuey wrote:
.  What preventives do you take?    Stuey


Nabumatone???(something new to try but doesn't really do anything that I can tell)  And Staydol NS as needed...but that doesn't help unless I'm just getting a small one and I take it soon enough to put me to sleep.
BUT I am doing much better these past few days...I also hope you are too.

Tara Ann

Title: Re: Another Long neverending night from hell
Post by Patrick_A on Jul 16th, 2003, 11:51am
I am riding them along side you Tara Ann. 3:30am, and i am squeezing my head and rubbing my temple waiting for my Imitrex to start working. Imitrex knocked it down from a 9 to about a 5 but didnt completely do away with it. I believe it was a rebound CH. Been aborting them since Thursday of last week with Imitrex. Finally caught up with me last night. My usual Ch's last about 2 hours, i'd say that is my average. Every so often i will get one that last maybe 3 hours and they are usually 10's.
I also tend to go from the 10 straight into a migraine like headache. Last all day and night into another CH. But the migraine is tolerable, maybe a 4 or 5.
Go to my Neuro tomorrow for my 1st visit. I hope he can give me some good meds to stop this. Only been in this cycle 2 weeks now but i am damn tired of it!

Be riding with ya again soon Tara,
Patrick

Title: Re: Another Long neverending night from hell
Post by taraann on Jul 17th, 2003, 9:26am
Patrick,
How did the nuero visit go?

Title: purgatory
Post by rumplestiltskin on Jul 17th, 2003, 12:00pm
A couple hours....sheer terror.

That was years ago before I learned about and began taking/practicing the preventatives and abortives here at this site. Now 15 minutes is an unwelcome rarity.

Walk in the sunshine
den

PS: Murazzio....in the very old archives you will find some discussions about the "euphoria" following a CH. One person even theorized that our bodies were creating CH just to get to this "euphoric state". I think somebody bitch slapped him.

Title: Re: Another Long neverending night from hell
Post by kim on Jul 17th, 2003, 2:30pm
Tara Ann,

Longest ch I had was during times I took pain meds.........it went on forhours...was hideous.

Most of my attacks average about 1 hour top to bottom or beginning to end.......with varying degrees in between.

Afterwards, I would often get a "high" and talk a lot.  My husband would often warn me not to do that.  He thought when I got the "hype" after an attack that I was setting myself up for the next hit......

It's a toss up and roll of the dice.  WhatEVER finds that flatline plain where the pain is not is where you should most passionately aspire to be.....it takes time and work. :)

PFDAN********kim



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