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        New Message Board Archives >> 2003 Posts >> Blast from the past
        
(Message started by: Kwill on Jun 25^th, 2003, 5:44pm)

Title: Blast from the past
Post by Kwill on Jun 25^th, 2003, 5:44pm

Hi - First post here - wish I was just a visitor but I actually joined the club back in 1979. Then, hallalua! - was thrown out in 1991.
Just been readmitted (actually, five weeks ago) so here I am with the Internet an ally this time round.
The 12-year period ('79 to '91) involved annual episodes that, fortunately, never lasted longer than four weeks and only one shot a night (even though each one felt like the mother of all shots until the next one).

What's making me feel more than slightly uneasy this time round is not just the unwelcome reappearance out of the blue, but the fact that it has now gone on for FIVE weeks with occasional three attacks a day.
Please let this not become chronic - I didn't even know, till I found this site that "chronic" existed :o - I thought everyone with CH had just the annual episodes.

I don't think I can even contemplate what it must be like to be a chronic sufferer.
Massive sympathies though, for those that are chronic sufferers, and I hope you don't mind if I do my best not to join you.

kwill

Title: Re: Blast from the past
Post by 9erfan on Jun 25^th, 2003, 5:49pm

kwill-

welcome to the site! At this point, don't even start worrying about being chronic after only 5 weeks. There are a ton of episodics on this site with much longer cycles than that. You're not chronic until you've had them for a year....

Trust me, you have enough to deal with without worrying about something that may never happen. :o Just concentrate on your current cycle.

What meds are you using?

Virginia

Title: Re: Blast from the past
Post by jonny on Jun 25^th, 2003, 5:52pm

As a 28 year chronic sufferer I say "Welcome" and thank you for your comments towords us blessed by the devil.

Grab your oar and take a seat in the boat....everyone rows here.

Im sorry you have to be here but you WILL NOT find another place on this earth with as much info on CH as you will find here.

Now sit down, STFU and row ;D

.........................................jonny

Title: Re: Blast from the past
Post by Mark C on Jun 25^th, 2003, 6:00pm

I too became grateful for being episodic after learning about the dreaded "chronic" label. I still cannot bear the thought of never ending CH....poor bastards.

Don't worry about 5 weeks, or even 5 months...ask the chronics..that ain't quite enough. I have had many cycles last several months at a time...just not for a whole year...yet.

Hang in there Kwill and lets us know how the next few weeks go.

PFDAN's
Mark

Title: Re: Blast from the past
Post by Roxy on Jun 25^th, 2003, 6:14pm

Kwill,

When you've done a year of ch's, with no meds, and less than two weeks PF....then worry about being chronic.

Get yourself some 02, here is the link that tells you everything you need to know:

http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm

Really sorry they are back for you, and I hope it ends soon. Read up....that way you can fight it the best way possible.

Tracey

Title: Re: Blast from the past
Post by jonny on Jun 25^th, 2003, 6:21pm

Babe, its "Two weeks or more pain free"

.............................jonny (Kwill thread)

Title: Re: Blast from the past
Post by Roxy on Jun 25^th, 2003, 6:23pm

See.....I knew I wasn't chronic...... ;D

Episodic with just long damn cycles....... :-/

Dumbass in TX,
Tracey

Title: Re: Blast from the past
Post by jonny on Jun 25^th, 2003, 6:26pm

I hold "Dumbass" title and dont you forget it

...............................jonny

Title: Re: Blast from the past
Post by Roxy on Jun 25^th, 2003, 6:33pm

Then I get to be runner-up...... ;D The prettiest one always wears the crown..... :-*

Kwill,

My whole hearted apologies for this thread going off track. I will shut up now.....I promise........ :D

Title: Re: Blast from the past
Post by Linda_Howell on Jun 25^th, 2003, 7:10pm

Kwill,

WARNING:

If you're gonna stick around and help us all row the boat......expect threads to go off-track a LOT here. LOL

Welcome

LindaH

Title: Re: Blast from the past
Post by CathiP on Jun 25^th, 2003, 7:21pm

Hiya, Kwill....you'll never find a nicer bunch of people- glad they're here, in a kinda sorry kinda way.... ???hmmmm.....anywayy, well, welcome!

( So, Jonny, does that make you King Dumba**?? ;D ;D)

I'm not off thread, Linda, I'm NOT I'm NOT!! Seeee? ;)

Cathi......running from Jonny!>>>>>>>>>>>>>

Title: Re: Blast from the past
Post by Charlie on Jun 25^th, 2003, 8:28pm

Welcome back or whatever fits here.

Sorry you're getting clobbered but stick around. This is the place.

Charlie

Title: Re: Blast from the past
Post by cootie on Jun 25^th, 2003, 9:19pm

Welcome to ya Kwill....hope yer cycle ends and yer PF real soon fera looooooooooooooong ass time ! Quick cycle wishy washy wisher Pam :)

Title: Re: Blast from the past
Post by Drk^Angel on Jun 25^th, 2003, 10:11pm

Welcome to the board! Sorry that the beast is slowly disolving your cranium in an acid bath and pokin' your eyes out with a rusty butterknife. Welcome to the family! Good luck!

PFDAN................................ Drk^Angel

Title: Re: Blast from the past
Post by paul_b on Jun 25^th, 2003, 10:33pm

CH knows no borders. Welcome to the ark of head hurts.

Title: Re: Blast from the past
Post by KingOfPain on Jun 26^th, 2003, 2:13am

Hi Kwill,

Sorry the beast has made a reoccurrence in you life.

Glad you found this site (just wish it was because you wanted to say "Hi", not because of the beast).

Thank you for your comments about the chronic sufferers.

I sure hope things get better soon for you.

KingOfPain

on 06/25/03 at 17:52:44, jonny wrote:

Thought you might like these jonny
(and everybody else).

http://www.triton.studver.uu.nl/img/bb_bow.gif

http://www.cam.net.uk/home/KCBC/pictures/misc/sculler.gif

http://www.cam.net.uk/home/KCBC/pictures/misc/row1.gif

http://www.cam.net.uk/home/KCBC/pictures/misc/row4.gif

http://www.cam.net.uk/home/KCBC/pictures/misc/neon_row.gif

http://www.gifs.net/animate/rowrow.gif

KingOfPain (not trying to be funny, just sharing some rowing gif's)

Title: Re: Blast from the past
Post by Margi on Jun 26^th, 2003, 9:00am

Hi Kwill and welcome - sorry you have a reason to be here though.

I'm pretty sure the official definition for chronic is that you stay "in cycle" for at least 12 months with no more than 2 weeks of unmedicated pain freedom during that time. In other words, if you stop taking your meds and you get 2 weeks or more of pain freedom - you're not chronic. But that 12 month marker is the real milestone there. If you stay on your meds (even preventative) and find 2 weeks of no headaches, that's still not considered chronic because you may be masking symptoms with the drugs.

5 weeks is a short cycle, compared to some of the episodics here. My hubby's last cycle lasted almost 6 months. :-/

I hope you find your magic bullet here and that relief is around the corner for you.

Title: Re: Blast from the past
Post by Kwill on Jun 26^th, 2003, 3:59pm

Thanks very much, one and all, for your kind words and I really couldn't give a diddly about hijacked threads. :)

Just an answer to the med question: I always kick off with cafergot because it is so damned effective (for me) in the first two or three days - thereafter it becomes useless and I start the round of cocktails. In the past I just piled on all the crap that pharmacists suggested (none of them though, with any CH awareness), but now that I'm a recent returnee to the CH fold, I'm picking up everything I can get on the Web, mostly on this and the OUCH web site.

I have not yet tried O² but intend getting some this weekend or Monday - will also check out the immagrin injection some time soon.

Hope your weekend's as PF as possible.

kwill

Title: Re: Blast from the past
Post by don on Jun 26^th, 2003, 8:00pm

My last cycle was almost 9 months long. Night and day Kip 8-10 hits, every night and every day.The worst cycle in 26 years. I am still episodic.

I will not say anymore for fear of jinxing myself.