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Title: New sufferer Post by Margi on Jun 25th, 2003, 2:43pm just copying and pasting this up from the Supporters section folks...and introducing SWPete... swpete New Board Newbie Posts: 1 1st Cluster this lifetime « on: Today at 1:22pm » Quote Modify Remove -------------------------------------------------------------------------------- I got my first cluster attack 2 1/5 weeks ago. After suffering for about 2 weeks straight with multiple attempted cures for allergies, antibiotics for suspected sinus headaches, CT scan, MRI etc. I FINALLY GOT SOME IMITREX. After vomitting for 7 nights straight from the pain and losing about 10 pounds from lack of sleep and not keeping dinner down, I was very scared about what was going on. I had never heard of Clusters and have never had this before in my life. At age 33 and male can anyone help? The prednisone has gotten rid of the current episode, but will this nightmare return and why have I never had this before? Does anyone out there know why? My Dr. doesn't know why? I moved to the east coast 4 months ago after spending 10 years at high altitude in Colorado, and had a history of dust mite allergies before Colorado because they are not as prevalent there? This cluster thing is a f_ _ _ing nightmare. Are everybody's eyes black and blue in the morning? Has anyone else come as close to blacking out from the pain as I have? Will this happen again?? or are you all going to tell me "join the club" I hope to God not! |
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Title: Re: New sufferer Post by Bob P on Jun 25th, 2003, 3:02pm Join the club. If it's clusters, chances are pretty good it will be with you for the rest of your life. If your lucky the episodes will get farther apart (I'm up to 2 1/2 years between bouts) or maybe even go away permanently. But it's a pretty good bet that you will get a 4 to 12 week bout of attacks once every year or two. Yep to the other questions. I've barffed from the pain, cried out for God to take me and put an end to it, begged for my wife to kill me. But we survive. Imitrex, oxygen and verapamil. Learn all you can about them and prepare for the next go round. |
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Title: Re: New sufferer Post by cathy on Jun 25th, 2003, 3:08pm Swpete...sorry but join the club...I wish I could say you'll never have to go through it again, but chances are you will....you have come to the right place, great people, great support...grab an oar and paddle.. :) PF vibes to you. Cathy |
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Title: Re: New sufferer Post by Linda_Howell on Jun 25th, 2003, 3:57pm hi, So sorry, but I think you've just joined our exclusive club. I doubt very much if altitude or dust mite allergies has anything to do with this. As far as we know it's caused by a deformed Hypothalmus. Wonderful, huh? The only time I've vomited is when I've over-dosed on my meds, and the only time my eyes are black and blue is when my head has come in contact with a hard staionary object. Preferably the wall. (we are called head-bangers for a reason) Read all the links to the left of this board to educate yourself. Knowledge is power in this case, and welcome. LindaH |
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Title: Re: New sufferer Post by Karla on Jun 25th, 2003, 4:28pm Welcome to the family. Sorry to say but you will probably have future boughts with this. I got mine out of the blue over 5 years ago. I had never had a ha in my life before the ch started. What a neat present hu? Me I am chronic meaning I have had mine non stop for over 5 years straight. So it could be worse. You have come to a great place for lots of support and fun. |
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Title: Re: New sufferer Post by BobG on Jun 25th, 2003, 8:07pm Quote:
No. The only thing I can think of is to wait a year and you'll no longer be 33. As for the male thing.........that's for a lifetime, usually. :D Just kiddin' swpete.......hope to see your name here more often. |
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