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        New Message Board Archives >> 2003 Posts >> Urgent Oxygen request
        
(Message started by: Margi on Jun 23^rd, 2003, 2:52pm)

Title: Urgent Oxygen request
Post by Margi on Jun 23^rd, 2003, 2:52pm

I have a sufferer and her daughter writing to the Family Services Team who lives in Mabelvale, Arkansas. She has no insurance, no meds and is getting hit hard right now. Her daughter is afraid she will become suicidal soon (even though Mom reassures me she won't), but I think all supporters worry about that at some point or another.

Her doc sent her to an opthamologist (!), she's had the MRI's, MRA's, CT Scans, you name it - all typical clusterhead hoops to jump through only to be told everything is normal. Sent home with a pile of meds (the only recognizable cluster meds were imitrex and indomethacin). Nothing helped but she had to drain her bank to pay for all these tests and meds. They did give her a script for O2, but she ran out of funds before she could fill it, so she's never had a chance to try it.

I've written back suggesting she contact her local fire department to set something up for her to try their O2 next time, but I've not heard back from her.

Anyone know of any welders' supply places in Arkansas where she can get some cheap oxygen? Or know of any clusterheads in the area who aren't using their supply right now? Please, folks? This gal sounds pretty desparate. :'(

Jonny, sorry, I couldn't wait for you to answer my mail about this, she's written to me a couple of times since I mailed you about this - figured I'd have a better chance of response here.

Title: Re: Urgent Oxygen request
Post by catlind on Jun 23^rd, 2003, 2:56pm

Dammit Margi, wish to hell I had something to offer her
:(

Linda, any chance the company you deal with takes credit??

Ugh, I hate to hear about this, and I feel so helpless :(

Wish I had something to offer!!

Cat

Title: Re: Urgent Oxygen request
Post by Margi on Jun 23^rd, 2003, 3:02pm

thanks Cat. Hopefully someone here will be able to help. I forgot to mention that I do have this woman's mailing address if we can find an O2 supplier.

Thanks for any help anyone can provide here, gang.

Title: Re: Urgent Oxygen request
Post by Mark C on Jun 23^rd, 2003, 3:33pm

Hey Margi,
I just happen to be an industrial vendor with a global network of sites. Mablevale is only about 15 miles south of Little Rock (where I was born). There is a much better chance of finding a helpful shop there. (Little Rock)

Air Products & Chemicals Inc
(501) 455-3800 9225 Sibley Hole Rd
Little Rock, AR

Arnold/Luckey Welding Service
(501) 225-1579 15525 Lawson Rd
Little Rock, AR

Best Metal Studio
(501) 374-3044 1201 E 2nd St
Little Rock, AR

Central Ar Welding Service
(501) 407-9353 8717 Stagecoach Rd
Little Rock, AR

Coleman Small Welding
(501) 375-9441 915 Thayer St
Little Rock, AR

Doug's Welding Service
(501) 224-1985 2800 Barrow Rd
Little Rock, AR

Dupuy Grills Smokers & Welding
(501) 568-6207 7924 Baseline Rd
Little Rock, AR

Jim Wright Welding Inc
(501) 868-5066 25 Maywood Dr
Little Rock, AR

Meuwly Machine Works Inc
(501) 372-3221 1901 E 15th St
Little Rock, AR

Tjc Parts & Accessories
(501) 455-8338 15500 Lawson Rd
Little Rock, AR

Turner Welding & Fabrication
(501) 888-5989 19824 Mockingbird Ln
Little Rock, AR

Here is the link.. http://www.thecityoflittlerock.com/welding/index.html

Good Luck,
Mark

Title: Re: Urgent Oxygen request
Post by Margi on Jun 23^rd, 2003, 3:42pm

oh, thank you SO much, Mark!! I'll sure send her this list. Any great ideas on how just a regular consumer can get a tank of welders' oxygen, without being a dealer? I was hoping Jonny would answer this thread, but ... I guess not.
Again, Mark - from the bottom of my heart, thank you. I love this community!

Title: Re: Urgent Oxygen request
Post by don on Jun 23^rd, 2003, 3:45pm

Margi check your email.

Quit shoveling yellow snow and................

DO IT! DO IT NOW!

Title: Re: Urgent Oxygen request
Post by Margi on Jun 23^rd, 2003, 3:47pm

did that, Don - thanks and check YOURS now. ;)

Title: Re: Urgent Oxygen request
Post by Linda_Howell on Jun 23^rd, 2003, 5:43pm

Margi,

If she would rather not have to mess around with welders 02 and then go looking for mask and reg. I checked and there are 9 branch offices of Lincare where I go to get my 02, in Arkansas. I couldn't find her town on the map to try to give her info on the nearest one to where she lives and everytime I try to type in 9 address here, I get bumped off-line.

If she wants to give you her phone number, I'll call her and give her the info over the phone.

Also I have no idea if they'll do this on credit. She'll just have to ask them.

LindaH

Title: Re: Urgent Oxygen request
Post by Margi on Jun 23^rd, 2003, 5:50pm

thanks, Linda - I'll see what she says. Check your mail in a minute.
love ya, lil TS.

Title: Re: Urgent Oxygen request
Post by Donna on Jun 23^rd, 2003, 7:39pm

It's for reasons like this that I think we should have an SOS Committee and emergency funds. It could be soooooo workable....I've got a bunch of ideas and I'm sure all of you do too!

When are we going to set up a real system? Aren't you tired of all these emergencies and lost time? When our people need help, they need it NOW.

Plenty of us can afford a few bucks a month to help Family.....and we do have some very talented and resourceful people around here with ideas on how to cut costs, and offer sources with help.

Title: Re: Urgent Oxygen request
Post by Margi on Jun 23^rd, 2003, 8:21pm

awesome idea Donna - in fact, Don's working on that as we speak. He put up a post on the BoD board today with precisely this thought. Kinda takes me back to the early days of OUCH. :)
Thanks everyone for your help here - THIS is what ch.com is really all about.

Title: Re: Urgent Oxygen request
Post by SommelierCH on Jun 24^th, 2003, 7:55am

Great stuff kids,

You helped bring me back into focus. I originally wanted to raise money for OUCH so that we could have a fund for Chers without insurance or money, who are getting hit. Barbara’s Healing Doll Auction has raised $361.00 for OUCH, could a portion of that donated auction money be used to start this SOS fund, and in particular be used to help this mother out? Can I stipulate that part of the money raised by the on-going ClusterArt OUCH Auctions be used for this fund?

I will continue to brainstorm (or sprinkle in my case) ways for us to raise money (hopefully not just from each other) and bring awareness to our disease. I have no money post IRS/bankruptcy, so this is the best I can do. But, I must do something, I owe this place big time.

David J.