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        New Message Board Archives >> 2003 Posts >> C/H is not rare
        
(Message started by: forgetfulnot on Jun 23^rd, 2003, 2:48pm)

Title: C/H is not rare
Post by forgetfulnot on Jun 23^rd, 2003, 2:48pm

Cluster headaches are not rare by the legal definition which is a prevalence of 200,000 persons in the U.S.

Best regards,

Henrietta Hyatt-Knorr
Director, Policy and Program Planning and Analysis
Office of Rare Diseases, ODP/OD
National Institutes of Health
6100 Executive Boulevard, Suite 3B01
Bethesda, MD 20892-7518
Tel: 301-435-6045
Fax: 301-480-9655
E-mail: hh70f@nih.gov

Huh ::)

Lee

Title: Re: C/H is not rare
Post by BlackDog on Jun 23^rd, 2003, 2:52pm

Could somebody explain what are the bennefits of classifying CH as 'Rare'? Most of this is still pretty new to me. I have seen a few posts on this subject, but couldn't figure out the bennys of it. Thank You.
Darren :)

Title: Re: C/H is not rare
Post by forgetfulnot on Jun 23^rd, 2003, 3:06pm

More research I think.

Lee