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        New Message Board Archives >> 2003 Posts >> New Here
        
(Message started by: taraann on Jun 23^rd, 2003, 1:52pm)

Title: New Here
Post by taraann on Jun 23^rd, 2003, 1:52pm

Hello everyone. I'm new to this mb...I looked around and didn't know where to put my post so here I am. I was just diagnosed with ch last year....for years and years prior they said I had migraines until finally they referred me to a nuerologist who says its ch. Mine are in the back of my head though and sometimes my eye on that side waters and sometimes it doesn't. I don't know much about ch but from what I read most ch sufferers dont get the pain in the back of their heads. I also usually have naseau and vomiting, which is classic migraine, but the doc said its just my pain tolerance is awful and thats how my body reacts to it. Well I had a time where i had a ch almost constantyl Now it's every couple weeks then when i start to get one it slowly gets worse for about a week then starts to slowly get better

Ok so this turned into a babbling post sorry.....it's just nice to know other ppl understand.....not nice that u have to feel it though!!! My hubby is a very sweet loving guy but he gets so frustrated and impatient with me when im having a loooonnnggg headache time period.

Well ty for listening to me go on.

Tara Ann

Title: Re: New Here
Post by Mark C on Jun 23^rd, 2003, 2:03pm

Welcome to the board Tara Ann,
Sorry you need us but glad you are here. CH is a terrible thing but this place is a wonderful fountain of knowledge, support and family.

How about a litttle history,what meds are you on or have you tried? Anything work? Imitrex and oxygen are a couple of the drugs of choice aroond here.

I will attach a favorite link here (http://www.clusterheadaches.org/library/general/index.htm) to get you started on your CH PHD.

PFDAN's
Mark

Title: Re: New Here
Post by brain_cramps on Jun 23^rd, 2003, 2:12pm

Tara Ann

I realize that you said you have been diagnosed by a neurologist, but the following doesn't really sound like CH (to me at least... I have been known to be wrong ;)). Symptoms of CH are usually pretty "standard", even though there are the odd exceptions.

on 06/23/03 at 13:52:16, taraann wrote:

Mine are in the back of my head though and sometimes my eye on that side waters and sometimes it doesn't.

on 06/23/03 at 13:52:16, taraann wrote:

I also usually have naseau and vomiting, which is classic migraine, but the doc said its just my pain tolerance is awful and thats how my body reacts to it.

on 06/23/03 at 13:52:16, taraann wrote:

Well I had a time where i had a ch almost constantyl

on 06/23/03 at 13:52:16, taraann wrote:

Now it's every couple weeks then when i start to get one it slowly gets worse for about a week then starts to slowly get better

Have you taken the "Cluster Quiz" to the left?

When you "had a CH almost constantly", how long was that for? Any breaks in the pain?

Now when you get one "every couple weeks" that "slowly gets worse for about a week", are there any breaks during that period?

Are you able to sleep during that period?

Do they wake you up out of a sound sleep?

I realize its a few questions, but you're going to have to tell us more about yourself.

You should get answers to most of your questions here, but first off, start reading. Read, read, read... Then read some more.

Everybody here will be more than willing to help out if possible.

Hoping you get a break from your pain,
grant 8)

Title: Re: New Here
Post by cathy on Jun 23^rd, 2003, 2:21pm

Hi Taraann....Sorry your suffering pain, but I have to agree, your description doesn't sound like CH, but then I also have been known to be wrong....take the quiz and let us know how you get on...some people are unfortunate enough to get clusters and migraines...hope you don't fall into this category....!

In the meantime...welcome to the board and hope it isn't clusters :-/

Cathy

Title: Re: New Here
Post by taraann on Jun 23^rd, 2003, 2:27pm

Well I took the quiz and it's about half and half. I was on something preventative and also Staydol nasal spray when I was getting them all the time....oh and by all the time I mean for about a week with few breaks of lesser pain here and there, then I'd have no pain for about a week and it would start over again.

I was on medication for other problems when I was getting the headaches more often, but I have been off all meds for the other probs for a year now and I haven't taken headache meds for about 6 months. I was hoping all the meds were contributring to the headaches but apparently they are not. I am seeing my doc tomorrow to get back on something to help the headaches.

Also i have tried oxygen and it didn't help.

And I was diagnosed by a nuerologist for ch's. Also my grandfather had ch's, my mother and sister have migraines.

Seeing as though the quiz was 50/50 for me do i even belong here?

Tara Ann

Title: Re: New Here
Post by BlackDog on Jun 23^rd, 2003, 2:28pm

Hi, A good friend of mine is a migrane sufferer (I have CH) and we both agree...HEAD PAIN SUCKS! I pray you don't have CH, but WELCOME all the same. Educate yourself the best you can. Knowledge is power here.
Good Luck,
Darren :)

Title: Re: New Here
Post by don on Jun 23^rd, 2003, 2:32pm

You belong here at least until you have a proper diagnosis. If it turns out you dont have CH (and I sincerely hope you dont) we can direct you to other sites that will be of more help to you.

Better safe than sorry. Stick around.

Title: Re: New Here
Post by paul_b on Jun 23^rd, 2003, 2:37pm

Interesting how heredity can bring on variations. I had one grandparent who probably suffered from CH ( never officially diagnosed), and another with migraines. My mother gets migraines but I am a classic CH sufferer. Hope doc finds meds that works for you.

Title: Re: New Here
Post by Karla on Jun 23^rd, 2003, 2:41pm

If your dr. says you have ch and the test was 50% possitive I would say you belong here until you can prove you don't have ch. Stick around and try some of the tips and ideas and meds they may work for you. Good luck and welcome to the family. :)

Title: Re: New Here
Post by CathiP on Jun 23^rd, 2003, 2:45pm

Hi Tara Ann- Lots of great words above...I hope you get your answers soon, and relief sooner still.
Sorry the beast....or his relative is picking on you.
BE PF!
Cathi

Title: Re: New Here
Post by ZAIRA on Jun 23^rd, 2003, 2:57pm

Hello Ann, thank you for joinins us, unfortunately you are a CH sufferer, but fortunately you are in this family and we help you... stay with us... and all the best for you...

Zaira :-*

Title: Re: New Here
Post by cootie on Jun 23^rd, 2003, 3:03pm

Hi taraann....sorry yu have head pain of any kind...I suppose time will tell and hope you find what works and you find out exactly what type ha you have. Good luck to you. Head pain sucks sentence sayer Pam

Title: Re: New Here
Post by taraann on Jun 23^rd, 2003, 8:45pm

Thank you for welcoming me to your group. :)

Tara Ann

Title: Re: New Here
Post by Drk^Angel on Jun 23^rd, 2003, 8:52pm

Welcome to the board! Sorry that the beast is bashing your cranium in with a rusty motorcycle chain. Welcome to the family! Good luck!

PFDAN................................... Drk^Angel

Title: Re: New Here
Post by Charlie on Jun 23^rd, 2003, 9:55pm

Welcome to our madhouse. If you have clusters, you have a home here. For me, the best indicator is that if they wake you up, you probably have CH. No one sleeps or even can lie down when getting hit.

Stick around and look us over. You're welcome and it would be great to find you don't have this horror

Charlie

Title: Re: New Here
Post by Callico_Kid on Jun 23^rd, 2003, 11:52pm

Hi Tara Ann,
Glad you found us, and yes you belonghere, at least until you know you have something else. Even if it is something else there is a lot to learn here and you can help us row toward the cure.

Wishing you PFDANs,
jc

Title: Re: New Here
Post by taraann on Jun 24^th, 2003, 4:55am

Thank you again everyone....and oh yes they do wake me out of a sound sleep. Latelly I've been lucky to get an hour to two hours of sleep at night. I'm so tired when my day begins (at 5) that I sound drunk today!

Title: Re: New Here
Post by suzy617 on Jun 24^th, 2003, 6:20am

Welcome Tara Ann and hope you find some relief soon.

Suzy

Title: Re: New Here
Post by Big_Dan on Jun 24^th, 2003, 9:13am

... Hey, Tara...

... Glad you found us, sorry you had to...

... truckloads of information and support can be found here, along with the ocassional boat-rocker... you'll just have to get used to it... ;D

-Big Dan

Title: Re: New Here
Post by maggie_may on Jun 24^th, 2003, 9:34am

Tara Ann,

Welcome aboard! Sorry you're going through horrible pain, I hope you find relief soon. There's tons of information here to learn from - and we're all around if you ever need to talk.

pfdans
maggie

Title: Re: New Here
Post by oringkid on Jun 24^th, 2003, 11:36am

Sorry you are in pain, whatever it might be. I'm with Grant and Cathy, doesn't sound like CH...at least typical CH. How long does each attack last?

Have you had an MRI to rule out other problems? My husband had that kind of pain (back of head) with nausea and it turned out to be a sinus infection in the back sinuses where most people don't get infections. He had no other sinus type symptoms just this awful headache.

Hope you find your answers soon! Let us know how it goes!

Sherry