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(Message started by: CJohnson on Jun 23^rd, 2003, 1:30pm)

Title: Shrooms
Post by CJohnson on Jun 23^rd, 2003, 1:30pm

Shrooms are a very controversial subject. Some people think they are a godsend, others condemn their use. Where does everyone stand on this topic?

1. Have used them successfully, and advocate using them for treatment of CH 100%

2. Have not used them but advocate using them for treatment of CH 100%

3. Have no feelings one way or the other

4. Have not used them, and do not advocate using them.

5. Have used them unsuccessfully, and do not advocate using them.

I say number 2. I am seriously considering employing them when my next cycle hits.

PFDANs
-Curtis

Title: Re: Shrooms
Post by JDH on Jun 23^rd, 2003, 1:32pm

Me 2

Jim

Title: Re: Shrooms
Post by brain_cramps on Jun 23^rd, 2003, 1:34pm

<2> for me too.

grant

P.S. better qualify this one. I have tried them when I thought I had a cycle coming on. Either it was a 'false alarm' or they worked.

Title: Re: Shrooms
Post by stevegeebe on Jun 23^rd, 2003, 1:42pm

Curtis...2 for me. Ink it in.

Steve G

Title: Re: Shrooms
Post by Bob P on Jun 23^rd, 2003, 2:10pm

You left me out:

6) Have used them unsuccessfully but advocate their use. You're nuts not to.

Title: Re: Shrooms
Post by BlackDog on Jun 23^rd, 2003, 2:13pm

Title: Re: Shrooms
Post by Mastifflvr28 on Jun 23^rd, 2003, 2:38pm

1

Mast

Title: Re: Shrooms
Post by don on Jun 23^rd, 2003, 2:44pm

2..... but not 100%

I wouldn't advocate for my schizophrenic neighbor to try them for a headache.

(Or Jonny)

Title: Re: Shrooms
Post by forgetfulnot on Jun 23^rd, 2003, 2:53pm

Took a while to work for me.

#1

Lee

Title: Re: Shrooms
Post by Not4Hire on Jun 23^rd, 2003, 3:30pm

...#1 for me
...like Lee, the first time it took a few (like 5-6)doses, but the second episode was gone after 2 doses.... sorta like a maintenance dose.... Good luck, pioneers!

Title: Re: Shrooms
Post by Drk^Angel on Jun 23^rd, 2003, 4:59pm

2

PFDAN................................. Drk^Angel

Title: Re: Shrooms
Post by eyes_afire on Jun 23^rd, 2003, 6:36pm

7. Have used them with some definite temporary success and definitely advocate using them but, as Don sez, not for my schizo neighbor.

--- Steve, two of many... (jus jokin)

Title: Re: Shrooms
Post by Ueli on Jun 23^rd, 2003, 7:03pm

Same case as Bob P: #6

Title: Re: Shrooms
Post by jonny on Jun 23^rd, 2003, 7:10pm

Wont try it for personal reasons but will never bad mouth it.

Is that #2?

.....................................jonny

Title: Re: Shrooms
Post by firebrix on Jun 23^rd, 2003, 7:19pm

Mopar's results were the same as Bob P's sadly, but we both advocate their use and Mopar will try them again as soon as he is med-free.
firebrix and Mopar

Title: Re: Shrooms
Post by jimbo on Jun 23^rd, 2003, 7:37pm

#2 Yup!!!!!!!!!!!!

Seeya,

Jimbo

Title: Re: Shrooms
Post by Roxy on Jun 23^rd, 2003, 7:46pm

Title: Re: Shrooms
Post by Opus on Jun 23^rd, 2003, 8:14pm

Title: Re: Shrooms
Post by Live4Fun on Jun 23^rd, 2003, 8:21pm

I am a number 2 as long as the person who is about to take them has done their homework, and given it some serious thought.

Just my 1.5 Cents :D

Bryan

Title: Re: Shrooms
Post by Pinkfloyd on Jun 23^rd, 2003, 9:33pm

Can I ask a couple of questions without stopping any further responses to this....? Please?

1. How can anyone answer with a number 3, that has clusters or has seen what clusters do to a person/family, know that there is *something* out there that shows promise....and have no opinion on it?
I don't care if you like it or hate the idea, but...no opinion? Does that mean that you've given up on everything and just don't give a damn? ???

2. What the hell are all you number 2's waiting for?
The start of the next cycle? Will you start trying to grow them or purchase them after the cycle starts? If you've done the research, you know that the most success for this treatment is when used as a PREVENTATIVE. It seems at least at this point, that it's better to never let the cycle start than to try to break a cycle. Do you just want the cycle to start so you can tell it goodbye for the last time?
If you start to grow your own after the cycle starts, you'll be 5 weeks into the cycle and will then have to go cold turkey off any meds you've been using to last 5 weeks! The biggest problem with this treatment seems to be detoxing during the height of a cycle and failures (as it appears) due to not being completely clear of meds that interfere.
Do you have a supply ready and waiting for the first signs of the cycle starting?

Is it that you don't want to stop your current med regimen to try them in fear that it will trigger the cycle or make things worse?

Is it that you advocate its use but just not for you? I understand many people have different reasons for not trying it, legal and otherwise, but if you think its good enough to advocate for others......you want the people you care about to get better..but not yourself? Have you asked the people that care about you...if you should try it?
If you're waiting for it to be legal and in pill form.....it's going to be a while.
Please consider giving yourself the same chance of living cluster free (or closer to it), to yourself, as you do for your friends.

All I can say is that if you are currently in a remission period and you are planning on trying this, and am willing to advocate it for other's, please consider trying them "before" your cycle begins and maybe, just maybe, you may never have a visit from the beast again.

No offense meant to anyone, no matter what *number* you are. Whatever your reasons, they are all valid...it's your body, your decision etc. Just want to make the point about "being ready" ahead of time, if possible, if you plan on trying it.

PF

Title: Re: Shrooms
Post by Drk^Angel on Jun 23^rd, 2003, 10:07pm

Pink... Last cycle... I did a lot of research, and study into the shrooms treatment, and even had a couple of doses available for use, but there was some strong reasons why I chose not to, and still choose not to. The biggest reason above all others is that my wife specifically asked me not to, and I respect her wishes. Case closed. If it helps others, more power to them, and I hope for many other success stories. Unfortunately, I will not be trying it myself.

PFDAN................................. Drk^Angel

Title: Re: Shrooms
Post by judyw on Jun 23^rd, 2003, 10:25pm

1

25+ chronic...most pf time since I became chronic...averaging about six months between dozings...thank you my special friend...you know who you are...

Title: Re: Shrooms
Post by forgetfulnot on Jun 23^rd, 2003, 10:34pm

Bob, FYI, I take lithium and verapamil daily, no detox going on here, 10 weeks of small doses I.E. 1 small shroom. Some discomfort but only lasts 1-2 hours.

It is working folks, that is all I know. Plan to taper off the lithium next week. We will see if it holds up.

Chronic for 19 years, Lee.

Title: Re: Shrooms
Post by BlackDog on Jun 23^rd, 2003, 10:36pm

on 06/23/03 at 22:07:19, Drk^Angel wrote:

The biggest reason above all others is that my wife specifically asked me not to, and I respect her wishes. Case closed

Pink,
Exact reason I will always be a 2.
I hope it works for you and others, I really do.
Darren

Title: Re: Shrooms
Post by Callico_Kid on Jun 23^rd, 2003, 11:42pm

Curtis,

Great post. This is something I ahve beenthinking about for quite a while since finding this board. I think I am a 2.

Pink Floyd, great response. With a couple of the others the only reasons I have not at this time done it are, 1) is it morally right to break the law? 2) my wife has very strong reservations about it, although if I decide to use it she will support my decision, 3) my daughter is with the local police department and I question whether I have the right to compromise her position on either a moral or legal ground. Can she participate in arresting someone else for using controlled subsances illegally if I do it?

I definately support any one elses decision to use them if they have done the homework and Know what theyare doing.

jc

Title: Re: Shrooms
Post by Pinkfloyd on Jun 24^th, 2003, 1:39am

Drk^Angel, Blackdog and Callico,
I understand.
FYI, Had my wife and family shown reservations, I'm not sure what I'd have done and I don't question your decisions or their points of view.
BD, I see you're in your 2nd cycle.
DA and Callico, I'm not sure how long you've been suffering. However long, it's been too long.
For me and mine, we'd been suffering for about 23 years when I took the step. It wasn't my 2nd cycle, when I knew what I had...it was 6 years before I even had the proper diagnosis.
After 23 years, the only question from my family was, "How fast can you get some?"
This from my wife who not only doesn't drink or smoke, but hadn't even seen any illegal drugs let alone touched any. She made me my first cup of tea while I was sprawled out on the floor. 23 years of clusters tends to "modify" one's committment to morals :-/

Although the law does not allow for us to weigh the greater evil in situations such as this, one is allowed to wonder which IS the greater evil. The pain of cluster headaches or the laws banning psilocybin while allowing doctors to drill holes in our skulls to treat the same mallady? The damage that is done to our families or the societal pressures that cause the moral dilemma? The ban on research or the constant use of legal drugs that can destroy our vascular and nervous systems, often with little efficacy?

We are faced with moral dilemmas every day. They are often our most difficult decisions. When I added what this treatment would mean to my family, if successful, to the estimated 18,250 cluster attacks, it was an easy answer (for me).
Those 18,000 hours were the hardest work I've ever done. Had I been paid accordingly, I'd be a very rich man today.

I would never want to disrespect my families wishes, seeing as they are the ones that had, without any doubt, kept me alive those years. I'm sure you all feel the same.

Honestly, may your clusters completely disappear before time and pain make anyone compromise their beliefs.

PF
P.S. good luck Lee
P.P.S. is the imitrex tip legal? If tampering with a prescription drug is legal, I submit that "tampering" with a legal substance (psilocybe spores) is legal. ;D

Title: Re: Shrooms
Post by jminmilwaukee on Jun 24^th, 2003, 7:55am

As you all know by now, I have had success with this treatment. I will be preventative self prescribing and will see what happens.

As far as the legal ramifications, I found a way around that one. For the price of airfare to a certain chain of carribean islands, one can LEGALY heal thyself.

Now, you may say "I cannot afford that!". Factor in prescriptions, loss of productive lifestyle, wear and tear on family and emotions. Of course, side affects of MOST legal drugs. Airfare is a small price to pay in my opinion.

Are you breaking a law when you do something in another country that is NOT legal at home? Ever had a beer? In many mid east countries you would be doing hard time right now.

For those of you who have been asked not to by your mate, can't argue that. However, if I saw someone suffer theway we do, I would do whatever I could to help.

Bottom line, everyone needs to choose for themselves how best to battle the affliction. We must all respect each other in their decision and hope that "cure" comes our way some day.

Maybe a legal, low dose mushroom extract would do the trick?

Jmin

Title: Re: Shrooms
Post by Roxy on Jun 25^th, 2003, 4:15pm

I have a question. Some people send meds in the mail to other ch people. Isn't this just as illegal as shrooms? What is the difference? :-/

Title: Re: Shrooms
Post by Pinkfloyd on Jun 25^th, 2003, 4:46pm

on 06/25/03 at 16:15:38, Roxy wrote:

I have a question. Some people send meds in the mail to other ch people. Isn't this just as illegal as shrooms? What is the difference? :-/

Well, the difference would be that in sharing one's prescription meds, TWO clusterheads are breaking the law instead of just one.

I believe (and am sure I'll be corrected if wrong) that since 02 also requires a "prescription," modifying a welders tank for someone and that person using that tank without a prescription, also involves two people breaking the law.

I'm not saying this to justify the use of shrooms. Ending the pain is all the justification I need.
We all do what we have to do to not only live with ourselves, but to live at all.

Just my .04 cents (adjusted for inflation, after taxes)
PF