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Title: Confussed, exhausted and FRUSTRATED!!! Post by Tucker31 on Jun 21st, 2003, 8:13pm Hey all I have been making my rounds on the board looking at other peoples trys and coping with this. O2? it would be nice if me family doc. had a clue and would take his head out of his you know where. Not even imitrex, just a few samples of Frova, didn't work, relpax better but not great! It's daily attacks 3 times a day morning mid afternoon and I'm due in the next hour for my next go around! I have had more meds things on top of things in any one day then any person should have. Ultarcet, aleve, aleve headache and sinus, relpax two a day 2 hours apart, excedrin. I have tried water thought I was getting the upper hand a few days ago, wrong. Where do I go from here? I called my family doc. EVERY day last week. You know what he said, boy you need to see the Neuro. make sure you make it to your appointment on 7/2!!! It was a good thing his nurse told me over the phone, it was all I could to to not come unglued. I tried the Neuro, no luck she won't see me until 7/2 lucky to get that appointment as is I am told. I have reached the point of anger when I'm not in the middle of a attack. I am short with my husband and daughter. I feel like the beast is getting the better of me. HELP!!!!!!! ??? ??? |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by don on Jun 21st, 2003, 8:34pm A Ghost Post |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by Ree on Jun 21st, 2003, 10:02pm YA....... PRINT OUT SOME INFORMATION TO TAKE TO THE NEURO ON JULY 2 GOOD LUCK..........REE |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by Opus on Jun 22nd, 2003, 9:20am Check out this link until you can get some meds, http://www.clusterheadaches.org/resources/non_script_treat.htm If you have CH's while sleeping try propping your head and back on pillows or sleeping in a recliner. Some here won't reply to a post without an age and sex in the profile and a first name. Add those and post again. Opus/Paul |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by TracyS. on Jun 22nd, 2003, 10:49am Thanks for the info. on posting. To the person who did the ghost post, what can I say geee thanks, not! I guess this must be a group thing and I'm not part of the group. Your welcome is so warm and fuzzy. I can take a hint. Thanks but no thanks. |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by don on Jun 22nd, 2003, 11:06am Quote:
It is and you can If you look through the archives you will see that this MB has consistently been plagued by very strange people who do not have CH, nor are they the supporter of any CH sufferer. I am no longer willing to commit my energies to anyone who will not commit to their own fucking identity. |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by Opus on Jun 22nd, 2003, 11:58am Tracy, I forgot to give you this if I haven't already. http://www.imgmag.org/images/sunny22/Gifs/Welcome.gif Opus/Paul |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by Ree on Jun 22nd, 2003, 12:02pm nice penguin paul.........cool |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by BlackDog on Jun 22nd, 2003, 12:03pm TracyS (and other hiddens) If you have CH, and it sounds like you do, you are part of the group. You are among the only people in the world who understand what you are going through. Why hide your email address? I am like you, in that initially I had my ID hidden in my profile. But after only 1 or 2 posts, I realized this place is different. There is trust here. If you are not willing to open up, some might not be willing to help. A lot of energy is spent helping and I figure from my short time here that some losers just come, screw around, maybe get advice, then leave and are never heard from again. If you have CH you are not just part of the group, you are family. If you can, hang around and listen, you will see you can trust us. If not, some people will still offer advice, just understand if others are leary. Look at the number of posts they have, they have been here a long time. Anyway, hope the day is PF for you. Good luck. Darren :) (My profile is not hidden and I still have never had a response from Don. ANY response from Don. Ever. You have had two. ;D ) |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by don on Jun 22nd, 2003, 12:54pm Nice post Dog. (stroke, stroke, stroke) Sheeesh ! |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by TracyS. on Jun 22nd, 2003, 3:34pm Hey Don well what can I say maybe we just "rub" each other the wrong way. :o As for hiding my profile and e-mail. I am a East coast raised gal who was raised in a BIG college town and learned quick that people can be nice or nasty and not in a good way!. As for message boards, well this is a first for me. I have never done this, I figured the less personal info. out on the web the better. Also I didn't know how to personalize my post, not a computer whiz...But hey I will take a step of faith and some of you have been VERY kind so my e-mail is out. Also I know some of you will relate to this, I am trying to make it through until I can get right treatment. I will admit I am at my ropes end, my temper is short, Not normally and it is hard to cope. So sorry if I upset anyone but it's hard to wait when your head hurts so badly! Thanks again. :P |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by Drk^Angel on Jun 22nd, 2003, 11:01pm Welcome to the board! Sorry that the beast is hittin' homeruns off your cranium. Welcome to the family! PFDAN.................................... Drk^Angel |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by Charlie on Jun 22nd, 2003, 11:35pm Welcome aboard Tracey. I can undestand your reluctance to open up but as you know, nothing on the internet even resembles any form of privacy. Stick around though, we need all the new blood we can get. I'm always amazed that people have such a tough time seeing neurologists. Anyone in my town, Jamestown, NY, can see one within a week usually. Get MAD. Here is a technique that I used all the time and it helped me a great deal. Give it a shot and remember that it has zero to do with meditation: Dr. Wright's Circulatory Technique This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many. When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand. This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate. I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended. This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience. When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance. I wish you the best of luck - Charlie Strand |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by cbolony on Jun 23rd, 2003, 11:55am welcome to the board Tracy S :) |
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Title: Re: Confussed, exhausted and FRUSTRATED!!! Post by ZAIRA on Jun 23rd, 2003, 2:50pm Hello Tracy and welcome home. :D You’ve to insist with yr. Doctor to have O2. O2 helps many people here, I use O2 and sometimes I don’t use Imitrex. on 06/21/03 at 20:13:25, Tucker31 wrote:
:'( I know it is very hard :'(. Mee to I’m bad, it is difficult for my English ;D to tell you what I think now, but when I’m bad I think to my husband and my family and it is thanks all the people who support me that I have the force to GO ON. Good luck and never be demoralized, I will pray for you so that you can overcome this bad times... Hugs, Zaira :-* |
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