Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2003 Posts >> Haven't been round because not feeling & need help
        
(Message started by: Darleen on Jun 19^th, 2003, 6:03pm)

Title: Haven't been round because not feeling & need help
Post by Darleen on Jun 19^th, 2003, 6:03pm

Hey guys,

I know I'm not one who posts a lot normally and I really haven't been doing much of anything lately. For the past 8 weeks or so I have broke out with hives. Last night and 2 weeks ago I had to go to emergency because it has now progressed to swelling of my face. As I'm typing right now I am pretty much broke out from head to toe. Doctors so far haven't been able to find anything and I have been asked all the regular questions like anything new that you have been using and I can't change anything because of John anyway. The next step is waiting for an appointment with the dermatologist and that's not till October.

I'm really getting to the end of my rope and was wondering if anyone has any suggestions or any experience with this.

I know it's not cluster related but I really need you guys help.

Thanks,
D :)

Title: Re: Haven't been round because not feeling & need
Post by jonny on Jun 19^th, 2003, 6:08pm

Aint got no info on that D, but im sending enough vibes to you that you will have to rent a storage unit to hold them and visit it everyday to get some.

Sorry your going through this, Babe!!!

..............................jonny

Title: Re: Haven't been round because not feeling & need
Post by Darleen on Jun 19^th, 2003, 6:11pm

Thanks sweetie,

The only good thing today was I checked my hotmail this morning and had an email from Bonnie Woods and she is coming down east for a family wedding and we will be able to get together. I can't wait.

D :)

Title: Re: Haven't been round because not feeling & need
Post by catlind on Jun 19^th, 2003, 6:11pm

Hi Darleen,

Yes in fact I have had experience with this. After my first son was born I mysteriously broke out in hives. My feet would swell to 3 times their normal size. Anywhere on my body where there was any sort of pressure point, like where elastic in clothing was, or my feet, or where I would rest my arms on something, I would break out in hives.

Dermatologist was no help to me at all, and all the meds I tried seemed to be useless.

Aveeno baths helped, and I used alot of Aloe, not the gel, the stuff straight from the leaves of the plant. Also used ice alot. Claritin was about the only med that I found that actually helped.

Benadryl gel helps too, but it is fairly new, so haven't had to deal with the hives much lately.

Wish I could tell you more of what to do, but those were the only things that really helped me.

Cat

Title: Re: Haven't been round because not feeling & need
Post by Darleen on Jun 19^th, 2003, 6:14pm

Thanks Cat,

I have found that the Aveeno baths do help but I hate taking cold baths because the heat just aggravates the hives. I was atking the benadryl then I have switched to Reactine which isn't working too bad.

Did your hives eventually just go away or do they still bother you.

D :)

Title: Re: Haven't been round because not feeling & need
Post by catlind on Jun 19^th, 2003, 6:19pm

It took 5 years, but yes they went away. I do still get them once in awhile, but only when the heat and humidity is real bad.

I always found that as soon as they started, if I caught them right away, I could at least control them, but if I left it even for a day, I would be covered in them.

I hear ya about the colds baths. Take an old nylon and fill it with regular old quaker oats, and then soak that in cold water and use the bag to rub over the hives. It's slimey, but not as bad as having to get in a cold tub with aveeno. It does help, wish I could tell you more about how to deal with them. Lots of cold water soaks are best, and epsom salt baths too. Forgot about that one hehe.

Hope you find out what is causing them :(

Cat

Title: Re: Haven't been round because not feeling & need
Post by Darleen on Jun 19^th, 2003, 6:26pm

Thanks Cat,

I hope they find out what it is too but thanks a lot for all the suggestions.

I'll definitely be trying that quaker oat and the nylon thing. Thats' great.

D :)

Title: Re: Haven't been round because not feeling & need
Post by jonny on Jun 19^th, 2003, 6:27pm

Excuse me.....yes, me...can I ask a question?

Can I catch it by hugging someone?....just asking

........................................jonny ;D

Title: Re: Haven't been round because not feeling & need
Post by catlind on Jun 19^th, 2003, 6:29pm

ROFL Jonny, yer terrible!!! No you can't catch hives by hugging someone. I don't think you can catch hives at all. It's a histamine thing - hmmm wonder if there's a link to CH in there somewhere...

If it was poison ivy or oak or sumac you could catch it, but not plain ole hives :)

Cat

Title: Re: Haven't been round because not feeling & need
Post by Darleen on Jun 19^th, 2003, 6:32pm

jonny,

I wish you lived closer cause I'd run over and give you a great big hug................

D :-*

Title: Re: Haven't been round because not feeling & need
Post by jonny on Jun 19^th, 2003, 6:34pm

on 06/19/03 at 18:32:06, Darleen wrote:

jonny,

I wish you lived closer cause I'd run over and give you a great big hug................

D :-*

The sickness in my mind would love that hug, Baby.....LOL ;D

..................................jonny

Title: Re: Haven't been round because not feeling & need
Post by Darleen on Jun 19^th, 2003, 7:02pm

You're just so funny...

D :)

Title: Re: Haven't been round because not feeling & need
Post by 2late on Jun 19^th, 2003, 7:03pm

can't help ya there dar, but a truckload of positive vibes are on the way! ...............Jack

Title: Re: Haven't been round because not feeling & need
Post by suzy617 on Jun 19^th, 2003, 7:36pm

I had that once for awhile then when it really got bad I went to the emergency room and they gave me a shot of adrenaline and within a day or so they disappeared and never came back. Dont know what caused it though.
Good luck, hope ya feel better.

suzy

Title: Re: Haven't been round because not feeling & need
Post by Opus on Jun 20^th, 2003, 3:48pm

Darleen,
Could you allergic to heat, I have one sister who was allergic to cold and now a brother allergic to heat. Make sure you go to a good allergist, especially one who can make his own tests, because you may be allergic to some uncommon thing that standard tests would miss.

Opus/Paul

Title: Re: Haven't been round because not feeling & need
Post by cbolony on Jun 20^th, 2003, 5:01pm

Darleen sorry that you are going through all this stuff sending vibes and hope you feel better

Quote:

The next step is waiting for an appointment with the dermatologist and that's not till October.

That's a long time to wait, why don't you try another doctor or like Opus said a Allergist just keep on making phone till you find one

Title: Re: Haven't been round because not feeling & need
Post by Tucker31 on Jun 21^st, 2003, 8:24pm

Hey yes I have had this happen. It was right before I had our daughter 7 1/2 years ago. Never figured out why, swelled all over, itched ozzed. It was horrible. I ended up seeing a really good allergeist. Gave me some new fanglled drug, expensive, but hey within days I was back to myself and haven't ever had the problem again! Also if you think it's contact reaction to something, even though you haven't changed anything try a over the counter body rinse, I think it's dombromo? I wouldn't wait until October, I would press to see a allergeist. But I'm not good at waiting for anything, esp. when I'm not in good shape.
Best of luck to you!

Title: Re: Haven't been round because not feeling & need
Post by Ree on Jun 21^st, 2003, 10:08pm

DARLENE... YOU NEED TO CALL ME EMAIL ME AND I WILL SEND YOU MY PHONE NUMBER THAT SAME THING HAPPENED TO ME TWO SUMMERS AGO... MAYBE IT ISNT HIVES IT COULD BE A CONDITION CALLED PITYRIASIS ROSEA LOOK IT UP IN GOOGLE AND THERE ARE PICTURES... I HAD THIS CONDITION FOR 6 WEEKS THEY DONT KNOW WHAT CAUSES IT AND IT IS THE ITCHIEST THING I HAVE EVER BEEN THROUGH... ONLY DIF IS THAT I DIDNT HAVE IT ON MY FACE IT WAS HORRIBLE AND IF IT EVER HAPPENS AGAIN I DONT KNOW WHAT I WOULD DO............ GOOD LUCK REE (EVEN PREDNISONE DIDNT HELP)

Title: Re: Haven't been round because not feeling & need
Post by judyw on Jun 22^nd, 2003, 4:05am

Sorry you are going through this bad time...experience tells me...See an allergist ASAP...suggestions are good, but temporary relief...please keep us posted on how you are doing :)

Title: Re: Haven't been round because not feeling & need
Post by oringkid on Jun 22^nd, 2003, 9:51am

Ree, My daughter had Pityriasis Rosea. Darleen, check this page...has some pics of Pityriasis Rosea and a good description:

http://www.aad.org/pamphlets/pityrias.html

Here is some info on Hives:

http://www.1uphealth.com/health/hives_info.html

(go to next pages in that site for more info)

Good luck! (and try not to scratch!)

Sherry

Title: Re: Haven't been round because not feeling & need
Post by Darleen on Jun 24^th, 2003, 6:13am

Hey guys,

I just want to thank all who have either sent me emails or who have posted with their suggestions or thoughts. If you only know how it makes me feel. I really needed that.

Thanks again everyone.

D :)

Title: Re: Haven't been round because not feeling & need
Post by nancyc on Jun 24^th, 2003, 9:28am

never had hives but once sis...and not really bad..but you are in my prayers..know you are loved.. smiles,nancyc