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        New Message Board Archives >> 2003 Posts >> to much pain not enough money
        
(Message started by: splittin_head on Jun 15^th, 2003, 7:17pm)

Title: to much pain not enough money
Post by splittin_head on Jun 15^th, 2003, 7:17pm

:-[ok im in a real bad way here. i lost my job cause of this bitch on my back. the docs want me to do all these test again cause my last episode was 6 yrs ago and the doc i used to see has retired. so im broke in pain and no meds.... not eating much for fear of the pain.. but still i get it. mine are random never know when or were or how long or how many .been going on now for 5 months :'(and wouldnt u know i have migraines that turn into clusters so i got the double wammy.....so for all of u that live with this as i do please help me with som relief or ideas....and som thin else are we all havin these things at the same time or do som of us just som times well splittin heads gotta go hope we can get som relief from the monster we live with.later all

Title: Re: to much pain not enough money
Post by Mikey on Jun 15^th, 2003, 7:40pm

Splittin,
Tell us more if you can. What kind of meds do you use for preventive and abortive?

Sorry this is happening to you, but welcome to the family!

Grab an oar and go to the back of the boat!

Mikey, ;D

Title: Re: to much pain not enough money
Post by Linda_Howell on Jun 15^th, 2003, 9:53pm

Yeah. Splitting head, tell us what meds HAVE worked for you in the past that you can't get now due to lack of $$$$

These people here, have been known to help.

LindaH

Title: Re: to much pain not enough money
Post by cootie on Jun 15^th, 2003, 9:55pm

We know all about the expense end of it.....we have good insurence (yeah rite).....but they won't pay for tests or anything done in the hospital......since our doc left the state our new doc wants routine tests done.....which.....you guessed it....our insurence will not pay a dime of.....and our new doc is in a new clinic and jus happens to be a spinoff of the hospital.....so.....all in all we have racked up about $ 500.00 with tests doc wants done so far......we gotta pay it all. I thought tests were consider'd preventative procedure ? Dam it sucks !!!! Pam that's ins co should be shot (figuratively speaking) !

Title: Re: to much pain not enough money
Post by don on Jun 15^th, 2003, 10:00pm

What State do you live in?

Title: Re: to much pain not enough money
Post by splittin_head on Jun 16^th, 2003, 7:56am

URL[url][/url]http://URL[td][/td] ;Dwell i live in west virginia, i used to take prednisone for my clusters .. it helped this time for about two weeks. then i ran out. backing up i started this episode in feb. but up with it for about two weeks. then could take no more so went to old work place to get records of last episode to show doc at the hospital so i wouldnt have to take the tests over again so then i got my prednisone 20 mgs a day. for 2 weeks then had to see a nother doc a nuro. well had insurance at this time but with having these chs and running out of pills and waiting on doc visit i seemed to get let go for missing to much work cause she came back full force two aday...i couldnt imagine having these every day of my life hell the 6 month episodes are bad enough..and im just hopping for the end ... ive had these all my life and never got an answer on what causes or what to end it.and these erogant and ignorant doc well ive lost my patient.......and im going for now sorry not in the best spirits :'(...URL

Title: Re: to much pain not enough money
Post by dellp on Jun 16^th, 2003, 9:24am

Sorry to hear about your situation, SH, really sucks.

First thing I'd recommend is getting a script for some O2 from the doc, he should at least do that without the tests. The small 'E' tank cost me $65 to rent and a $12 refill gets me through 4 nights of 4 hits from the Beast each night.

Good Luck and wishing you PFDAN,
Dell

Title: Re: to much pain not enough money
Post by NotH20 on Jun 16^th, 2003, 12:14pm

Splittin....

That dosage of Prednisone seems low to me for starters. This medication starts off at much higher dosages and then does a long taper down...It allows a little holiday from the pain.

Are you sure it was prescribed to you at 20 mgs per day for 2 weeks?

Mia

Title: Re: to much pain not enough money
Post by don on Jun 16^th, 2003, 12:19pm

Your prednisone regimine makes no sense at all. What do you mean you ran out?

You finished the taper?

Was it even a taper?

Heres the West Virginia Medicaid page

http://www.wvdhhr.org/bms/

Title: Re: to much pain not enough money
Post by Opus on Jun 16^th, 2003, 3:48pm

Splittin,
If you get both Migraines and CH at the same time or one triggers anouther try this link and researching Cluster/Migraine syndrome. The abortives are the same but the preventatives are diffrent.
http://www.clusterheadache.org/library/general/ch_general.htm

Here is a link for some Med free treatments.

http://www.clusterheadaches.org/resources/non_script_treat.htm

Opus/Paul

Title: Re: to much pain not enough money
Post by splittin_head on Jun 16^th, 2003, 3:50pm

no it was just a scrip for a 2 week supply just to get me over till the doc appt and yes it was just 20mg