|
||
|
Title: jonny notice, Hmmmmmm!! Post by jonny on Jun 6th, 2003, 8:14pm Can anyone tell me why WE keep posting of very sad things about our family members going through hard times and no lurkers jump in and offer some support? If you were lurking wouldnt you have a tear and add some support? I know even I have been in tears reading some posts and thats not like me, I guess its cause you are my family. I think the lurkers are fucking Meegrainers......Fuck you, stay on the outside....who needs you? Im fucking pissed god damn it!!!!!!!!!!!!!!!! Let me add that if you say you are a lurker you are my target.......youve been warned ;D |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by suzy617 on Jun 6th, 2003, 8:55pm on 06/06/03 at 20:14:15, jonny wrote:
Excellent point Jonny. I wonder that myself. I think its because some of them (not all) are only here to find help for themselves and dont really give a rats ass about other peoples problems. JMO, Suzy |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Ree on Jun 6th, 2003, 9:25pm this meegrainer dont lurk........ sometimes you suck jonny... My head has been hurting for about 5 days now no matter how miniscule it MIGHT seem to you... SOMETIMES I WONDER WHY I CARE ABOUT ANY OF THIS~WHEN MY CONDITION GETS ABSOLUTELY NO RESPECT FROM EVEN PEOPLE THAT ARE SUPPOSED TO BE MY FRIENDS.......NOT A GOOD DAY FOR THE MEEGRAINER SHIT........... THIS MEEGRAINER IS GOING TO BED NOW~ support yourself.............im gone ree |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by cootie on Jun 6th, 2003, 10:23pm Oh my Ree.....you ok girl.....hope yer feelin better !!! I think jonny was talkin bout 'perfect' strangers on here that never even add a good vibe.....ever. I hope your head starts feelin better.....yeah megrains suck 'I know' ! PF wishes for you tay......Love to the Ree Pam |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 6th, 2003, 11:12pm Geez Pam, why is it only we get it......Ahhhh, only we have ink ;) ..........................................jonny Let me modify this before I crash. I not only suck, I blow, for those of you that know me and think this was an attack on you.....Get therapy.....QUICK!!!! |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by pimmony on Jun 6th, 2003, 11:56pm "Let me add that if you say you are a lurker you are my target.......youve been warned " I am a lurker, I will think this is about me but, though I lurk I post a lot of private messages of support and my heart breaks when I read of people suffering with the pain of clusters and yes, of migraines, and when those close to them are hurting or ill. I wrote a really long post in reply and really what I wanted to say was simple. I feel most dreadfully unhappy for so many reasons about this thread. One reason is that I think you have a huge heart and every day here offer support and involvement in a in your face but sincere way. You have a huge presence and persona and though sometimes I genuinely wish I never read one of your tirades (I am hurting badly over the bitch thing, I did not think you were a mysogynist) I believe that the moment someone close to you here expresses pain you are there like greased lightening with the most sincere support. The most precious support I have received on this board has been in private messages. All the support publicly expressed has been a godsend, a salve and I carry it with me like a security blamket but private messages have broken me down with the kindness and good heartedness that is so generously given. Many of these messages start out with..... "I am just a lurker here but...." I love these lurkers, they comfort me in huge ways and when I did write about some real life trouble I got very little public support and loads of private messages and emails and I badly needed that. I cannot be a target, I hope I won't be. I am still too vulnerable and I spent to many years in an abusive relationship to allow it. All I can do is say that I care deeply about people and mostly I can see through anger and abuse to the pain that fuels it. I write all this having been provoked and that is not necessarily a negative thing. If I am to participate here in a public way I can only do it being real. I do not want to play manipulative or emotion stringing games, those make less of me and of people and of the very real pain that is expressed here and which breaks my heart afresh every time. But mostly I am a lurker and I do think that your post was generally about lurkers? I think I have had just about enough therapy in my life to last several lifetimes really ;) |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by gene on Jun 7th, 2003, 12:19am Im a full blown episodic cher/ what's a lurker? I can tell u this for 13 plus years I've suffered my cycles/ often w/o ins. This site and my ins have changed everything!!! I'm no longer alone and am educated re meds. I'm in the middle of a cycle and so far pain free. I am conflicted about what help is appropriate being a newbie/ what do I know? I try to offer words and prayers. In my heart I want you all to be PF. I'm here!! Geno |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by cootie on Jun 7th, 2003, 12:28am maybe this thread has a double purpose.....sorta like reverse phycology.....ta get people to come out of the closet or out of the quiet darkness.....kinda like tough love deal.......here's what lurking means gene........dictionery conversion Pam LURK: to lie in wait in a place of concealment especially for an evil purpose : to move furtively or inconspicuously : to persist in staying : to be concealed but capable of being discovered; specifically : to constitute a latent threat : to lie hidden |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Ted on Jun 7th, 2003, 1:08am And I see a bunch of people who come here and post a lot and yet have to supported but ask for support and just shoot the shit when they're not looking for their own support. But that's "cool." Because your name shows up everyday, even though you add nothing to anyone but yourself. This was much longer and more specific but I have AOL and just when I was writing everything out I got booted, naturally. Suffice it to say, this also is in reply to Don's post. Ree's got a good point. She's one of those people who are here day in and out offering help to people, yet the chronic pain she lives with she generally is quiet about and watches it get diminished as "nothing" here everyday. Especially by those who post everyday and don't support AND those who support for applause. |
||
|
Title: : jonny notice, Hmmmmmm!! Post by gene on Jun 7th, 2003, 1:51am I know what the word means Cootie/ I was curious as to it's context here? reading posts not replying? Was that a condescending reply to my e=mail? That's how it was rec'd. As a newbie I can tellyou that on and off this site can appear cliqueish? and even angry. The newbie is a desperate/ scared soul, and their social skills are probably at their own personal low. I was on the chat line a few times where I checked in said hello and then remained quiet not wanting to interrupt an on=going conversation. After a while I would post something/ obviously not on the topic (totally unrelated to ch) because I had no idea what they were talking about (inside personal stuff I assume). After being ignored a few times I said goodbye. These odd occurences are far outweighed by the incredible generosity I have rec'd from the site, but be condescending to me? I don't like it. Gene |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by cbolony on Jun 7th, 2003, 6:26am Ree you have 1094 post i think you are a great supporter for a lot of people here.Why would you think that jonny was talking about you.You all are great supports for the new people here.I myself been here over a year and i can tell you Ree you are a supporter :) :) |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by suzy617 on Jun 7th, 2003, 6:59am Ree,I hope you know without a doubt that my post had nothing to do about you. I was simply talking about a person who will come here write one post, get the info they need, stay around lurking and never try to help out another person in need. I feel bad for anyone who comes to this site in pain, doesnt matter to me if its ch or migraines or a broken heart but how can we feel bad for someone that we dont even know exists? Didnt mean to offend anyone, especially you Ree. I hope you had a peaceful nights sleep and are feeling better soon. Suzy |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by oringkid on Jun 7th, 2003, 12:20pm I don't think Ree was saying the post was about her. Ree is tired of Migraine being belittled and treated as if it is nothing. I personally would not want to have migraines...ever! I am thankful that I only get ocular migraines (aura without the pain) Sure, a migraine might not be quite as excruciating as CH, but how would you like a kip 7 for 72 hours straight, with no let up no relief and couple it with light searing your eyes and noises banging your skull any movement sending the throbbing into high gear and nausea and vomiting? That is something I would NOT want to go through. One of the reasons I can stay sane is that the CH only last a max of 2 hours. 72 hours with head pain and vomiting sounds like pure hell to me. I have a lot of respect for you people that have migraines and never complain on this board. I have to give you credit for putting up with us. Sherry |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Ree on Jun 7th, 2003, 1:18pm Thanks Sherry you hit the nail on the head... I'm sick of my condition being belittled... but we all know that. end of story... every now and then I start thinking that we will stop making fun of it on the Message board. Alot of people think it sucks not just me. ...another thing that bothers me is this sudden cultish thing about making people stay here to support after their cycle. People should stay and support if they feel they can and want to not because they get flamed into it...There are those that are afraid to leave or take time off and only one member seems to constantly remind people... so while Im getting my therapy maybe you should get a friggen life. This is not a cult people... If people are enjoying Pain free time all the power to them... Not everyone is a supporter... especially not to me (the Meegrainer)anyways My new nick name is MEE |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 7th, 2003, 2:10pm Very nice post, MEE ;D Back in the day this ;D<<<<Had a meaning. I guess nowa days people can take what they need and leave the rest. I am sorry your hurting Ree, I wouldnt wish that on anyone like it has been wished on and prayed for me. ...................................jonny |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by kim on Jun 7th, 2003, 2:17pm Ree, I think it sux too and I hope you are feeling better. As for comments about lurkers, I just don't get it. People post or don't post for reasons that are their own. I actually don't even give it much thought. It's none of my business. In my heart, I just can't digest that a lurker at the board is lurking in order to mess with anyone. If you treat a person with respect and dignity and worry about your OWN ways, then there really isn't too much time to judge someone ELSE. Just kimmy's ole two cents. I know, I'm creepin down the other side o the ruler..........life STINKS ;D |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Ree on Jun 7th, 2003, 2:18pm prayers greatly appreciated... MEE ;D |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 7th, 2003, 2:23pm on 06/07/03 at 14:18:46, Ree wrote:
Oh!!!!....Your good!!! ;D ..............................jonny |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by kim on Jun 7th, 2003, 5:02pm What shall we do WHAT SHALL WE DO with all this "useless beauty"............. Lurkers we will all miss out :) We need ya! |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Big_Dan on Jun 7th, 2003, 5:26pm I've lurked in the past, and still do to some extent... ... but the times I lurk and don't reply, I'm praying on a "no thanks needed" basis... I don't like praise... -Big Dan |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by kim on Jun 7th, 2003, 5:33pm Well Big D, gess my question is "what makes you think you are "separated" ..............in any way............ Many folks are here and speak "freely" without a "need for praise".............. :) PFDAN |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Charlie on Jun 7th, 2003, 9:22pm Nothing really wrong with lurking. Hurts only the lurker. There is something wrong in running migrainers out of town. It's ugly. Those who come here for just migraines, and learn about CH instead, never stay anyway. Charlie |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Elaine on Jun 8th, 2003, 12:45am Gene, My name is Elaine I am one of the webmaster on HSG Chat and your post upset me. I went throught the logs tonight, and I am here to tell you what you typed about chat was not true. If you are talking about HSG chat. We have some very good supporters in chat. You came in chat on 6/2 was there 52 minutes. You were welcomed there by Michelle the other webmaster ok mistress, everyone spoke to you when you came in. You started talking right off. You said you was PF , that you had both Migraines and clusters, and you said that your migrains were on the right side and your clusters on the left side, and that imitrexed worked for you. You spoke to Happy in PMs , you talked a lot to Joanie, matter of fact you talked to just about everyone in there. Everyone was very nice to you. You asked questions and all your questins were answered. You came in again 6/6 and you thought Roxy was in the room but she must of left the room before you came in but she did not sign out. When you don't sign out your name stays in the room a while. You was in the room alone thats why noone answered you. I am very sorry you did not enjoy chat. If you didn't it wasn't because the people did not try to make you feel welcome, its because you didn't want to. |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 8th, 2003, 1:01am Dont worry about it Johnnie/Elaine/E-Baby.......It looks to me that Gene has the "Love me Daddy" syndrome......LMMFAO ;D .....................................jonny |
||
|
Title: sometimes Post by rumplestiltskin on Jun 8th, 2003, 3:34am oh my hmmmm |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by cathy on Jun 8th, 2003, 6:12am Ree...hope you have some PF time really soon....! :) Lurkers....I think the subject has been covered enough now so I have nothing to add. Gene....Im sure Cootie was not being condescending she isn't like that so I guess you just took it the wrong way... :-/ I have only ever been welcomed and helped in HSG chat, but unfortunately can't use the site properly cos it won't let me, but KOP, Mr Happy and Svenn to name but a few have only ever been helpful when I have tried to use the site. Jonny Get your hair cut.... :) Cathy |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 8th, 2003, 9:35am on 06/08/03 at 06:12:26, cathy wrote:
Maybe when im 60, until then.....NAH!!!!! ;D ...............................hairy :D |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by nancyc on Jun 8th, 2003, 10:05am Not trying to start an argument but Ree, I have to agree with your statement concerning those who may have left when pf...i had to leave while pf but not because i was pf...i caught some flack from a few folks over it too (sly comments mostly)...but i left for personal reasons not because i was pf and did not need ch.com...my son was sick and needed me, then he got deployed and i took my grandson and daughter in law in...then i had some physical problems of my own...but few people on the mb knew this as few people emailed me to see why i had even left...guess they just assumed it was because i was pf and did not need the mb anymore...but for those who did not feel this way, i still kept in touch with them...and i still called them and if they needed meds I sent them, if they wanted to talk, we talked...i did all i could despite what my family was going thru..And when I got hit last week again, they did the same for me...i truly thank the few on the mb that was there for me when i needed them...sorry i wasnt here to chit chat everyday but life sometime tosses you shit you dont want and you do have to deal with it...wheither you like it or not...and Ree, thanks for your post in defense of people like me that love this mb and take a "time out" for personal reasons not selfish ones. Sorry, but i felt i needed to get this out. Plus I wanted to thank those that loved me during this "rough time" to know I appreciate them so much. smiles,nancyc |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Roxy on Jun 8th, 2003, 11:39am on 06/08/03 at 00:45:08, Elaine wrote:
Gene, I do apologize if you thought I was being rude the other night......but, like E said, I wasn't in the room. We have discovered that, for some reason, if I have to leave fast from chat, my computer will not time out like everyone else's. If I had been in the chat room, I would not have just ignored you. Sometimes, I do have to leave quickly and I forget to sign out. I will try to do better, and I'm sorry you were offended. Tracey |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Jackie on Jun 8th, 2003, 2:50pm Nancyc... I hope the CH is letting up for you...I know you were having a really bad time of it.....along with some of the other medical problems and family problems you've had your hands more than full. IMHO.... you don't need to apologize for not being here everyday....and you don't owe anyone any explanations either. You've been a member of this family for a long time and have done your share....and will again I'm sure. I know for a fact you have....you, jonny, Elaine, Margi and lots of other were here for Blake and I during a really bad time not so very long ago. Now you take care of yourself and your family.....hear me ;) And don't worry about not being here/posting everyday. As far as I know we're not on "lock down" in a "super max".... Love & Hugs, Jacks 8) |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 8th, 2003, 3:06pm Jacks, Im not here everyday cause I have to be, im here everyday cause I want to be (Plus I have no life) and as long as im here I might as well help as many as I can. Got 02? ;D ................................jonny |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by cathy on Jun 8th, 2003, 3:16pm on 06/08/03 at 15:06:51, jonny wrote:
Jolly Hockey Sticks!!! spiffin post there my boy..... Cathy |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Jackie on Jun 8th, 2003, 3:20pm Jonny, You're here everyday because you want to be here.....and you feel a great need to be here to help anyone you can with anything you can. Being chronic since the age of 14 and fighting most of the time all on your own drives you to be here. This site and these people saved you from the lonely fight and now you want to make sure you give back 100% plus.. :) You want to make sure no CHer falls through the crack... ;D Now.......quit being a dumbass..... ;D Of course we got 02 Jacks 8) |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 8th, 2003, 3:22pm LMAO ;D Get them holly jockey sticks away from me......;D ............................jonny Shaaadap, Jacks......im just lonley looking for chicks and your blowing it for me......LMMFAO ;D Please feel free to clap for me.....its demanded....LOL ;D |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by cootie on Jun 8th, 2003, 3:52pm Gene....no....I ment no condenscending remarks to you (to descend to a less formal or dignified level).....that's NOT my style. I genuinely thought you were inquireing what lurking ment....I am havein a bad time with migraines myself......and lurkers do not bother me. Kinda like a crowd and a fight breaks out....some run to help and others watch or walk away...it's all up to the individual I say. Me who tries to help but sumtimes 'has' to walk away Pam ......(thank you Cathy dear for the nice words :) ) |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Ree on Jun 8th, 2003, 9:37pm Hi Nancy C ... We're hopin that things are better for you... and sending out prayers and good thoughts because we know what you are going through with your son. Tonight I have Dave here laughing at all of what is happening on the board... He knows that I am here in his favor. Remembering back that when I first came I didnt get a rousing welcome... that everyone was saying where is your husband. You should have him post... and ... All this time I am here supporting because he cant type... Well he wants me to tell you all that if he starting to type to you guys giving you his opinion every day, that you'd be beggin for Ree to come back again... Again we both agree I am here every day because I believe that there will someday be information to end our quest for relief... If he doesnt die of something else like Emphasema by then lol~~~~~~~ and then I would just come here for fun.........NOT!!!! Peace and Love to you guys and warm cozy pain free nights are we ever gonna have summer here in New England... ree |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by brain_cramps on Jun 8th, 2003, 9:52pm on 06/08/03 at 14:50:38, Jackie wrote:
If that's the case, who put these bars on my windows? grant >:( |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Mark C on Jun 9th, 2003, 1:59am on 06/08/03 at 15:22:16, jonny wrote:
Here ya go dude! ;D ;D |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by jonny on Jun 9th, 2003, 4:02am You kill me, Mark......LOL ;D ............................jonny |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by MarkHW on Jun 9th, 2003, 9:22am I get both cluster & migraine and I'll tell you... they both suck. Clusters are far more painful, but the migraines have the fun of nausea, sensitivity to light, and they go on and on and on. I feel for anyone with any kind of head pain. But... I do agree... we all need to start talking... Sometimes people are scared to talk because they think they'll get blasted. Mark |
||
|
Title: Re: jonny notice, Hmmmmmm!! Post by Margi on Jun 9th, 2003, 9:30am Nice post, Mark - 'I feel for anyone with any kind of head pain'. Yes, this is a support group for cluster headaches and cluster headaches alone. But, I gotta say something here....I'm a migrainer and my hubby is a clusterhead. If I'M getting hit, Mike is a WONDERFUL supporter for my pain too. He doesn't ever make me feel that my pain is wimpy or to be laughed at. He is very sympathetic to any kind of head pain too - I've always thought that's because he REALLY is an expert on head pain. So that's how we handle it in our house - he's the pro, I'm the rookie - but we help each other. If we have a cluster problem, we come here. If we have a migraine problem, we go talk to the migraine folks. No biggie. |
||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |