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Title: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Mccarke on Jun 6th, 2003, 2:28pm My head telling me he wants another IMITREX shot! im just about to give this mother fucker a shot he will never for get a killer gun shot!! I'm so sick of this shit fucking with my life IVE HAD IT!!!!!!! :-[ :-[ :'( :'( :-/URL |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by TomM on Jun 6th, 2003, 2:40pm Mccarke, Relax...say this out loud "I will surive. This will end." You must not give in. The HA, the cycle, and the pain always ends and we always survive. Be tough and do not let the best win! ;D TomM |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by JDH on Jun 6th, 2003, 2:57pm Mccarke, Just keep telling yourself IT WILL END! Around here suicide is NOT and option so get your mind set on beating this instead of giving in to it. good luck & pfdan's to you, Jim |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Opus on Jun 6th, 2003, 3:13pm Mccarke, I can't seem to get the right plugin to view your file so you will have to let me know what it is. Most of us have been where you are now. Do you have a supporter. If so this site can help them too. Are you running out of Imitex? If so then check the imitex tip to the left. If you are having problems with the meds you can try many no-med treatments. I aways sleep in an incline or recliner when in a cycle. this seems to help stop most of the wake up CH's. Here is a link with lots of treatments you can try. http://www.clusterheadaches.org/resources/non_script_treat.htm Hope you have PFDAN very soon. Opus/Paul |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Margi on Jun 6th, 2003, 3:25pm Hi Kevin, Boy, I've sure heard THAT before....good news though - we have an endless supply of rope here, ok? I'm so sorry to hear that you're getting hit so hard - you sound like maybe you're at the peak of your cycle? Sleep deprived? Getting hit a million times a day? Yep - we've been there in my house. My hubby gets to the point you're at right now with each and every cycle. There ARE some things you can try to help you through to see the light at the end of your tunnel. Dramamine before bed will help you get to sleep and STAY asleep. Ice on the back of your neck at the onset of an attack - keeps you calm, dulls the pain a LITTLE (frozen peas/corn works just as well in a pinch). Strenuous exercise at onset of attack can oxygenate you enough to abort an attack. (Better yet, get yourself a prescription for oxygen.) Now....if you are indeed feeling serious about suicide - call 911, Kevin! Cluster headaches are not fatal unless you allow them to be. Don't let the Beast win! At the VERY least, call your neuro and tell him how you're feeling. DEMAND that he do something for you - be it an oxygen prescription, verap/lithium combo, prednisone burst. And, finally - know that you're not alone with this. There is someone hanging around here 24/7 (because of all the time zones we come from). Always someone here who knows your pain and wants to help you get through it. Keep us posted, Kevin - stay with us, please? Hugs |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by cbolony on Jun 6th, 2003, 3:26pm Mccarke hang in there we all go threw this shit.just keeping on venting we will listen.I get 3+ cycles a year 3-5 CH aday each cycles lasting 8-10 weeks.Want to kill myself each cycle but i'm still here the beast will never win.Please let us know what kind of meds you are taking. |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by TomM on Jun 6th, 2003, 3:28pm Read what Margi wrote. It's the best dam advice you'll ever get! :) :) :) :) :) :) |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by ZAIRA on Jun 6th, 2003, 3:41pm :'( Kevin, I’m afraid to read you’re bad... I always think to the reason of this BIG pain... >:( Try to be strong and never be demoralized... you are brave and in a BIG family, here for helping you. :) Stay with us, Zaira :'( |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by jonny on Jun 6th, 2003, 3:41pm on 06/06/03 at 11:37:25, Mccarke wrote:
ya know, Kev I could have wrote that the only difference between you and I is that im chronic and the med they discontinued on me was Indomethacin supps. I to got CH at 14 and am now 40 and finally found an abortive that worked and the fucking bastards stopped making it, FUCKERS!!!!! Dude, I just kept pushing on till I found something else that worked. Did I mention that I had no meds the first 14 years?.....All the non-med tricks these people are telling you about is how I survived those years. If I can do that as chronic you can do it better episodic. ....................................jonny |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by kissmyglass on Jun 6th, 2003, 5:30pm Kev, Be glad you are eposodic..your cycle will end. If you're at the end of your rope,tie a knot & hang in there... Kev |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by don on Jun 6th, 2003, 7:11pm Been there, said that, didn't do it. Hit the beast with another shot of imitrex. Stick your face in front of an air conditioner and blast it. How long are your attacks. Look at the clock at the onset and set the end time as a goal to reach. If it goes past normal attack time, keep adding on 5 more minutes until it's gone. It will be gone bud. It will be gone. |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Mark C on Jun 6th, 2003, 7:42pm NEVER QUIT..NEVER LET THE BEAST WIN ! FIGHT FIGHT FIGHT .........and welcome! ;D Mark |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Mastifflvr28 on Jun 6th, 2003, 8:29pm Welcome to the board McCarke, You'll never be alone again. A lot of us are holding that next dose of imitrex!! Good luck with your research, take care, Mast |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Peppermint on Jun 6th, 2003, 8:40pm Kevin, Are you still out there? Scroll up to the upper right hand side of your screen. Look at the top - see that Hey McCarke thing? click on it. Read. check your email. Please tell us how you're doing now. Its been HOURS..... ??? Lots of good advice here. |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by suzy617 on Jun 6th, 2003, 8:47pm Kevin, Hang in there for yourself and for all who love you. This pain WILL pass and better days are coming for sure. Dont ever let the beast win, never! suzy |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Mikey on Jun 6th, 2003, 9:19pm Kevin, Just keep saying to yourself "this will NOT kill me", and it won't unless YOU let it. I'm chronic Kevin, and haven't ever had a pain free day untill just recently. With some help from some of the very best people in the world here, i actually got 3 pain free days last week. So what i'm saying is, Don't let the beast get you man, kick his ass and find that something that works for you. You sound a lot like me, i've been at that point several times, i've actually had the gun at my temple ready to squeeze the trigger, but i would always wait for a minuet more, and guess what, the pain would always subside, then go completely away! Kevin, believe me when i tell you, WE CARE FOR AND ABOUT YOU, AND WE KNOW WHAT YOU ARE GOING THROUGH. So please, let us know how you are right now, and give us more info about you. You would be surprised what we can do for you!!!! Brothers in pain, Mikey, ;D |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by dellp on Jun 6th, 2003, 9:26pm Hang tough Mccarke. Sounds like you were on the Sancert for at least a few years - LOTS has been going on in that time . New findings, new combos and lots of new ideas. This is when we could use your help, too. All you have to do is deal with it and get through it. Whethere you find frozen carrots work better than frozen brocoli :) or find a neuro with a novel approach :D, we would like to know - we need to know. At the very least we need to know that we are stronger than the beast. It WILL End. I'm just down the road in San Antonio. MY cell is 210-710-2838 and it is on for you 24/7. Call me. Check your email. Dell |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by ShariRae on Jun 6th, 2003, 9:28pm You can get through this...use every tip you find here to help you...we will help you...you are stronger than the pain..never give up..never give in.. Huggs Shari |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by cootie on Jun 6th, 2003, 10:50pm Hey bud.......how ya doin...hangin in there ok ? DON'T let that beast win........don't let him get anuther notch in his belt. Fight for your life.......your worth it !!! Fight no flight Pam |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Charlie on Jun 6th, 2003, 11:12pm Welcome. Yeah. I thought about it....for 5 seconds. Since I found out what it is, rather than some tumor or other debilitating horror, it never again crossed my mind. Too much fun stuff around to check out. Stick around and let us know how you're doing. Charlie |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Charlie on Jun 6th, 2003, 11:14pm Give this little technique a try. It worked great for me and some others. Dr. Wright's Circulatory Technique This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many. When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand. This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate. I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended. This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience. When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance. I wish you the best of luck - Charlie Strand |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by gene on Jun 7th, 2003, 12:40am me too buddy!! every cycle every attack it crosses my mind but mostly when their coming close together!! Fight a bad one off/ Feel so relieved and then a half hour later here comes another. I think shit how can I keep fighting this? A supporter said to me if u are dead you wont feel the relief? I know pretty weak but for some reason has stuck w me. You're going to make it and so am I. Gene |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by BillyJ. on Jun 7th, 2003, 1:27am I don't know what your beliefs are but a very wise man once said "Suicide does NOT stop the pain it just keeps us from dancing"that was enough to make me put the gun down,and keep looking for other ways to cope. HOLD ON it will end wishing you pain free soon! BillyJ |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by arby on Jun 7th, 2003, 1:37am Hey Mccarke, Hang in there Buddy - it WILL end. Remember, there are two ends to a rope - just pull yourself up to the other end. That's where the rest of us (your family) hang out. Ross |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by cbolony on Jun 7th, 2003, 6:33am Mccarke what better support do you want that the people her care about you.Hang in there and keep posting we are here to help you. |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by suzy617 on Jun 7th, 2003, 6:47am on 06/07/03 at 00:40:56, gene wrote:
So true Gene. Besides relief you also wont feel happiness, love and all those other goodies life throws at ya. Good point. suzy |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Kenzie60 on Jun 7th, 2003, 7:26am Hang in there, we have all been there. They will end. I know that it seems like they won't, but they will. Roseanne |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by kim on Jun 7th, 2003, 2:07pm OMG McCarke. Just read yur post. Your words went right into my very veins. Tears in my eyes. I KNOW!!!!! It will pass. It won't kill you. It just hurts like a mother fucker -- and then it goes away!!!!! There are so many meds and non-med advice here. Take it. Things are gonna get better. Well wishes. Kim |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by UnsolvedEquation on Jun 9th, 2003, 3:16am I seriuosly doubt anyone in this whole fugging world has taken more Imitrex injections than I have. I've had CH for 14 years and now I am CHRONIC and have been for over 3 years with 3 - 6 tortures a day. Has anyone else taken 48 mg of Imitrex in a 20 hour period before like I have ? HUH ? I'm talking 8 shots !! I've felt like my time is up a few times ... but then I figure the devil would win. Who are you gonna let win ? ??? Don't wuss out ! Be glad you aint me cause I would trade ya !! >:( :o :-X |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by catlind on Jun 9th, 2003, 6:26am Mccarke, You have gotten a lot of wonderful words of wisdom and support. Everyone is right, you CAN beat this, and it WILL end. Please let us know how you are doing. Whenever someone is in the place you posted from, we all worry because we all KNOW that place. Please please post and tell us how you are doing. Cat |
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Title: [coloRe: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Mccarke on Jun 9th, 2003, 9:29am Thanks y'all for your support!!!.. I was just really tired and beat to death last week 5 to 6 a night all night all really put some one state of mind some where else. Im doing much better now so SORRY if i worried yall. My head was so sore from CH it even hurt to touch. Thank god for imitrex and oxygen they saved my life. I am wondering if any of you have ever tried to drink coffee when you have a CH it really seem to help, i have coffee cup in one hand and oxygen mask in the other hand it seem to work unless ive got past that state of the CH then its a shot or two that stops it my DR told me never give myself to shot for the same CH but i do it anyway he not the one suffering. Thanks you so much for the great letters and the support!! If i worried some of you IM VERY SORRY!!! Kevin ;) |
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Title: Re: :-[ :-[ :-[ :-[Im at the end of my rope! Post by Opus on Jun 9th, 2003, 2:54pm Hey Kevin, I use the Imitrex nasal spray and I found out it doesn't work well unless I drink black coffee after and smoke some cigs. You will find that Coffee is a big help to alot here. and by the way I forgot to.... http://www.imgmag.org/images/sunny22/Gifs/Welcome.gif Opus/Paul |
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