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(Message started by: PINKY BABY on Jun 5^th, 2003, 11:22pm)

Title: NEW TO BOARD
Post by PINKY BABY on Jun 5^th, 2003, 11:22pm

;)

hello to all. i am new, and just wanted to talk. i am up right now. the rest of my family is in bed asleep. i wish i was. he has left his calling card. anyway, just wanted to talk with someone that might undrstand. :'( do any one of you ever have your teeth hurt on the side of your head with the pain?

thanks pinky

Title: Re: NEW TO BOARD
Post by gene on Jun 5^th, 2003, 11:58pm

Hey Pinky,
Yeh sometimes teeth hurt too. I think they call it sympathetic pain.
Anyway i'm new to the site also.
I am episodic, every yr or two for about 6/8 wks// 4-8 chs per day. Whats your story?
Gene

Title: Re: NEW TO BOARD
Post by Jeff_W on Jun 6^th, 2003, 12:17am

Pinky- Every tooth upper jaw cluster side,feels like a toothache. Lots of pressure, teeth nerves seem to wrap around eye!
Hope you are PF soon! _ Jeff

Title: Re: NEW TO BOARD
Post by Charlie on Jun 6^th, 2003, 2:24am

Welcome Pinky. You are among others who know exactly what you're going through. I can't say my teeth have ever hurt from CH but I know others here have said so. The beast isn't particular.

Stick around; you'll likely find good ideas in coping with this horror. Here is one I used very successfully:

Dr. Wright's Circulatory Technique

This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.

When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.

This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.

I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.

This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.

When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.

I wish you the best of luck - Charlie Strand

Title: Re: NEW TO BOARD
Post by cathy on Jun 6^th, 2003, 3:52am

Hi Pinky.....sorry you've had to seek us out, but welcome to the board...my husband is a sufferer and yes his teeth sometimes hurt. Hope things improve for you soon....in the meantime sending you good vibes to help you through.

Cathy :)

Title: Re: NEW TO BOARD
Post by echo on Jun 6^th, 2003, 6:49am

Hello Pinky. Can't say the teeth thing is something that bothers me personally. Guess in that regard I should concider myself lucky. Sorry that the beast has found yet another victim. Gald you were able to find us. Sorry you needed to search us out.

Hang in there.

Title: Re: NEW TO BOARD
Post by dellp on Jun 6^th, 2003, 7:06am

Hi Pinky,

Generally over my last 25 years episodic with the beast, my teeth have not been involved.

For most of that time I have been wearing a night gaurd because I grind my teeth at night. a few months ago a chronic low grade tooth problem has upgraded causing some trouble before this episode hit; now that tooth is a MAJOR focus when HE comes around. Haven't been able to wear the gaurd for the past month.

While there are common features, clusters don't seem to have any norms at all.

Glad you found us, welcome aboard, and wishing you PFDAN,

Dell

Title: Re: NEW TO BOARD
Post by ave on Jun 6^th, 2003, 8:31am

My teeth ache every time. All of them, even the ones without a nerve, where I had root canal! Like phantom pain in an amputated arm, I sometimes think.

Painfree days, pinkster

Title: Re: NEW TO BOARD
Post by don on Jun 6^th, 2003, 8:52am

There is a good graphic around here somewhere that provides a good visualization and explanation as to why your teeth may hurt with CH.

Archives? Ouch site? Its somewhere. Somebody will find it.

Title: Re: NEW TO BOARD
Post by CJohnson on Jun 6^th, 2003, 9:02am

The trigeminal nerve, which is active in a CH attack, has three branches, the opthalmic branch, which is in the area aroung the eye, the maxillary branch, which is in the area of the cheek, and the mandibular branch which is in the area of the jaw and teeth. The OUCH website has a picture (artist rendering) of the trigeminal nerve.
Don't make the mistake of doing anything to your teeth, because it will not help with the CH pain.

Dramamine might help you sleep at night, by keeping you out of REM sleep. Also one of the long lasting triptans (Amerge) might get you through the night because it remains pharmacologically active long enough to keep the CH at bay for a few hours.

PFDANs
-Curtis

Title: Re: NEW TO BOARD
Post by stevegeebe on Jun 6^th, 2003, 11:54am

Hurts right down to the enamel.

Welcome Pinky.

Title: Re: NEW TO BOARD
Post by oringkid on Jun 6^th, 2003, 11:56am

Yep, uppers and sometimes lowers as well.

Welcome Pinky!

Sherry

Title: Re: NEW TO BOARD
Post by ZAIRA on Jun 6^th, 2003, 1:05pm

on 06/05/03 at 23:22:47, PINKY BABY wrote:

;)
do any one of you ever have your teeth hurt on the side of your head with the pain?
thanks pinky

NO, only the eye and front are...

by the way.... WELCOME PINKY!!!

Stay with us,

Zaira :)

Title: Re: NEW TO BOARD
Post by nancyann on Jun 6^th, 2003, 1:30pm

Yes, Teeth hurt. Lots of times too, my left side of my face hurts too much for me to even touch it. Best wishes to you.

Title: Re: NEW TO BOARD
Post by Opus on Jun 6^th, 2003, 3:23pm

Pinky,
I have a rotation of ear, teeth, jaw pain that changes with each CH. Some have had their teeth pulled becouse it was the cure at the time. anyway....

http://www.imgmag.org/images/sunny22/Gifs/Welcome.gif

Opus/Paul

Title: Re: NEW TO BOARD
Post by PINKY BABY on Jun 6^th, 2003, 5:27pm

thank you for the information. i will be hanging around here for a while. thanks pinky :-*

Title: Re: NEW TO BOARD
Post by cerebus on Jun 6^th, 2003, 6:23pm

Welcome and condolances to having found us here. Glad that you found the best place on earth for clusterheads, sad that you actually have to suffer the hell we all know so well.
Can't personally say for sure the teeth thing is a factor for me, reckon its always a problem fer me, I gotta get some new teef. ;D
anyhow, stick around a while, give us a bit of background info about ya, providing ,of course, that I haven't already missed that part.

Ramon

Title: Re: NEW TO BOARD
Post by cootie on Jun 6^th, 2003, 11:02pm

Hello PINKY BABY...cute name......this is a good place to be !! Late nite baby Pam

Title: Re: NEW TO BOARD
Post by BobG on Jun 7^th, 2003, 1:01am

From the OUCH site.........click the blue
Follow the orange colored trigeminal nerve down to the teeth/jaw area and you can see why the teeth hurt.

http://www.clusterheadaches.org/library/general/trigeminal_pic.htm

Title: Re: NEW TO BOARD
Post by PINKY BABY on Jun 7^th, 2003, 9:09pm

;) thank you bob g. i looked at the web link, and it helped.
pinky

[s thanks to all for you warm welcome

Title: Re: NEW TO BOARD
Post by katethecelt on Jun 8^th, 2003, 6:05am

Welcome Pinky.

I regularly get pain in my teeth. I hope you keep reading, researching, and send the Beast on its way.

There's a letter to family, friends, co-workers that explains Ch very & you should be able to find a link to it on one of the more recent pages.

Remember you are not alone and we do understand!

Wishing you PFDAN's,
Kate

Title: Re: NEW TO BOARD
Post by Jackie on Jun 8^th, 2003, 9:21am

Pinky Baby,
I asked Blake if his teeth hurt during CH...he said yes but the head hurts so bad the teeth become secondary. Sorry you're getting hit...hang in there and good luck....

Kate...you might be a newbie/junior but you're doing a good job, kiddo.... :)

Jacks 8)

Title: Re: NEW TO BOARD
Post by Live4Fun on Jun 8^th, 2003, 11:21am

No tooth pain for me, THANK GOD, although I am sure my right eye would LOVE to share the pain with parts of the rest of my body (sure would be nice if the demon moved around a bit).

But, anywho, welcome to the family! 8) Glad you found us, sorry you had to...

Bryan

Title: Re: NEW TO BOARD
Post by jonny on Jun 8^th, 2003, 12:56pm

on 06/08/03 at 11:21:05, Live4Fun wrote:

No tooth pain for me

LMAO.........Teef?.....what are those....LOL ;D

............................jonny

Title: Re: NEW TO BOARD
Post by BruceD on Jun 8^th, 2003, 1:09pm

No tooth pain here. Although I guess it may feel like one of the roots on my teeth suddenly grew 3 or 4 inches and smashed into my right eye. -- For me it's all the eye ... the eye >:(

Take care
BruceD

Title: Re: NEW TO BOARD
Post by jimbo on Jun 8^th, 2003, 1:36pm

Welcome Pinky,

Eye: Yep (Left)
Teef: Yep (Same side) only the top though.

Stick around. Sorry for the pain, but maybe it will leave soon.

Seeya,

Jimbo

Title: Re: NEW TO BOARD
Post by Jewel on Jun 9^th, 2003, 7:12am

When I get a cluster, everything on the right side of my head hurts, including my teeth.