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        New Message Board Archives >> 2003 Posts >> Sufferer and supporter
        
(Message started by: aprilbee on Jun 4^th, 2003, 1:08pm)

Title: Sufferer and supporter
Post by aprilbee on Jun 4^th, 2003, 1:08pm

My daughter, Dallis, who is going to be 10 in a couple of weeks was diagnosed with migraines last winter. But I have noticed that her pain is very intense and they seem to occur in clumps of time, just like clusters. It worries me so much that she may have CH.

I know that CH is not necessarily hereditary and migraines can be, I'm not real sure what to do, I just give her medication and have her do what helps me to get rid of mine. I hate this so much for her, I feel helpless and worse useless to my baby girl.

I just noticed that from about January to now, she hasn't had a headache, and now all of a sudden with the change in season, she is having headaches, I prayed this wouldn't happen. I am so scared, worried, frustrated, and angry that this has to happen to her.

OK, I'm done...

Thank you for letting me vent, I just needed to talk to people who understand, my husband tries (bless his heart) but, well you all know.... :)

april

Title: Re: Sufferer and supporter
Post by suzy617 on Jun 4^th, 2003, 1:14pm

Sorry to hear that your little girl is getting beat up. Have you taken her to the Neuro? Maybe you should start making a journal as to the dates and times they occur. I really hope she doesnt have these. >:(
Wishing you both pf time,
Suzy

Title: Re: Sufferer and supporter
Post by aprilbee on Jun 4^th, 2003, 1:21pm

It was a childrens neuro who diagnosed her, I am keeping a journal, but they just started. Thank you for the support, its appreciated... :)

Title: Re: Sufferer and supporter
Post by Margi on Jun 4^th, 2003, 2:28pm

Hi April,
So sorry to hear that your daughter is suffering and, in turn, so are you.
What meds is she on? What method do you use to end your pain?
Have you tried her on oxygen? Ice? Dramamine for the middle of the night attacks? Those are probably the most benign of the treatments for clusters in kids. What makes you think that she's becoming a clusterhead? How long are her attacks lasting?
OK, I think that's all my questions. ;) Just want to help you to help her. Hang in there, Mom.

Title: Re: Sufferer and supporter
Post by aprilbee on Jun 4^th, 2003, 2:59pm

Margi,

I'm not positive that my daughter has CH, her attacks seem to be a little longer than the attacks I get, but she had them from August to about January, it seemed about every day, and then she suddenly quit having them, and she is getting the headaches again, BUT-she does vomit with them, and they happen MOSTLY during the day. Like I said, I'm just keeping an eye on her symptoms and keeping a journal for her.

Her neuro said to give her motrin, as long as it works, so far it does, the girl has never taken any kind of medications, always been healthy, so she may have a low tolerance level, I havent tried dramamine or O2.

As far as getting rid of them, I am an ice pack with hot shower, so I give her an ice pack and put her in the shower. She sits in the shower, much like me and rocks back and forth much like me, If she lays down she just thrashes around and cries, doesn't really understand whats going on.

Either way, migraines or ch, I just hate this for her...Thank you all for the kind thoughts and prayers.

Title: Re: Sufferer and supporter
Post by Roxy on Jun 4^th, 2003, 5:58pm

Hi April,

I'm so sorry that your daughter is going through this.....whether they are migraines or ch's, the thought of a 10 yr. old dealing with either is horrible. My youngest son has had migraines since he was old enough to describe what the pain was, so I know the hurt and ache you feel when you watch your daughter suffer, and I just can't imagine the thought of it maybe being ch's.

Feel free to talk and vent all you want, email me anytime if you would like. Hang tough,

Tracey

Title: Re: Sufferer and supporter
Post by OneEyeBlind on Jun 4^th, 2003, 6:09pm

So sorry about your daughter April. The headache log, and your observations should help to bring about the correct diagnosis. Just keep logging ... and we'll keep praying, how's that ???

Title: Re: Sufferer and supporter
Post by Mark C on Jun 4^th, 2003, 6:10pm

This really sucks,
I would trade places with my kids for a splinter, much less a CH. I am so sorry about your and your childs pain.
I would be curious if O₂ properly delivered had an effect on your daughters HA's.

If it is CH I doubt the Motrin is helping...the attacks are usually over by the time an oral medication can take effect.

Here (http://www.headaches.org/consumer/educationalmodules/migraine_module/headache_diary.pdf) is a HA diary if you don't already have one.

I wish your daughter and you PFDAN's.

Please keep us informed as to how it goes,
Mark

Title: Re: Sufferer and supporter
Post by atwitsend on Jun 4^th, 2003, 8:39pm

Your poor daughter - I can only pray that this never happens to my two boys - or anyone else I know for that matter. Please take her to a specialist as soon as possible - I have been supporting my husband for 12 years now & it is hell. It's probably bound to get worse before it gets better.

Please take my advice - do not wait!! You have to wait for results of tests as it is.

Cheryl - wife of a sufferer

Title: Re: Sufferer and supporter
Post by oringkid on Jun 4^th, 2003, 10:21pm

April, so sorry to hear of your daughters pain, what ever it might be. I hate seeing children in pain. It is one thing to deal with this kind of thing as an adult but it seems sooo unfair for a child to have to deal with it.

Hoping that whatever it turns out to be that it is NOT CH and is treatable!

Sherry

Title: Re: Sufferer and supporter
Post by Callico_Kid on Jun 4^th, 2003, 10:33pm

April,

You and your daughter both just went on our prayer list. You have been on it, but just got bumped up in intensity as you have a double load. To see our kids pain is much more painful than our own. Give Dallis a hug for us.

jc

Title: Re: Sufferer and supporter
Post by aprilbee on Jun 5^th, 2003, 7:36am

To ALL of you, thank you SOOOOOOOOOOOO much for the advise and kind words, it has been a difficult year, and I thank God for all of you and this site. I am taking all of your advise and I will keep you posted.

Again THANK YOU, you people are absolutely fabulous!

May God Bless you.