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(Message started by: dellp on Jun 3rd, 2003, 10:21am)

Title: Laying down
Post by dellp on Jun 3rd, 2003, 10:21am
I have to ask this question:

Can anybody actually lay down while being hit?

If I assume the position in the presence of a shadow it only takes 10-15 seconds to SEVERLY intensify. After a hit, if I lay down too soon, it comes back. I can hardly THINK about laying down without things getting worse.

Is this just my version of clusters or what?

Title: Re: Laying down
Post by brain_cramps on Jun 3rd, 2003, 10:36am
dell:

While in cycle, i never lay down.  I sleep upright in a recliner because laying down seems to bring them on for me too.

grant     8)

Title: Re: Laying down
Post by pimmony on Jun 3rd, 2003, 10:36am
I cannot lay down with them and I wondered if this was to do with the blood to the head thing.  Also find keeping still pretty hard.

Title: Re: Laying down
Post by catlind on Jun 3rd, 2003, 10:55am
Laying down is out of the question.  It only intensifies the pain, if that's possible.  I too sleep in the recliner when at the peak of my cycle.

Cat

Title: Re: Laying down
Post by 9erfan on Jun 3rd, 2003, 11:03am
Laying down not an option!

I've actually had nurses in the ER yell at me to lie down!
I thought my mom was going to haul off and hit the woman!  ;D

Title: Re: Laying down
Post by aprilbee on Jun 3rd, 2003, 11:13am
Can't lay down either, I'm just asking for it if I do. I ride the recliner too!!

Title: Re: Laying down
Post by echo on Jun 3rd, 2003, 11:47am
Laying down is not an option.  Unless I nearly OD on abortives and passout.  (usually  wanting to never wake up at that point,  it's a fine line between passing out and damn near dead).

Title: Re: Laying down
Post by Bob P on Jun 3rd, 2003, 12:05pm
This is one of the noted differences between clusterheads and meegrainers.  Meegrainers want to lie down and be still.  Clusterheads need to run from the pain.

For a true clusterhead, laying down during an attack is not an option.

Title: Re: Laying down
Post by JDH on Jun 3rd, 2003, 12:47pm
I agree, laying down is not an option.


on 06/03/03 at 12:05:25, Bob P wrote:
 Clusterheads need to run from the pain.


but no matter how far or fast I run that S.O.B. can easily keep up w/me.  >:(

Jim

Title: Re: Laying down
Post by dellp on Jun 3rd, 2003, 12:49pm
This is what I thought. I posted this to check it out but also if ANYONE out there is 'rolling around in bed' trying to deal with the pain,

"GET THE FUCK UP --- NOW !!!


PFDAN

Dell

Title: Re: Laying down
Post by BobG on Jun 3rd, 2003, 1:55pm
If anyone can lay down during a headache then he/she doesn't have cluster headaches.

La-Z-Boy BobG

Title: Re: Laying down
Post by KingOfPain on Jun 3rd, 2003, 2:07pm
Hard to lay down when you are running around the
house, yard, etc......

When diagnosed, every clusterhead should get a complimentary pair of track shoes (& helmet.)


Nope. Laying down no option.





KOP

Title: Re: Laying down
Post by cathy on Jun 3rd, 2003, 2:18pm

on 06/03/03 at 13:55:17, BobG wrote:
If anyone can lay down during a headache then he/she doesn't have cluster headaches.


Your right they have a headache.

Title: Re: Laying down
Post by oringkid on Jun 3rd, 2003, 2:24pm
Well, I can't "go lay down" when I get hit, but if I get hit while I am already in bed, sometimes I will stay there, BUT I CANNOT lay still.  I thrash my head back and forth back and forth as hard and fast as I can.  The worse the pain, the harder I thrash. (my husband actually gets used to this pretty quickly during a cycle!)  For some reason, this helps me once the pain is gone, to be able to go back to sleep. If I get up and pace or drink coffee or get my ice packs or whatever, I have a harder time going back to sleep and seems there is more chance of getting another one in the same night.  At peak, it is more likely I will get more than one a night anyway.  And sometimes I can't stay in the bed.

But a day time hit?  No, I definitely don't go lay down.

Sherry

Title: Re: Laying down
Post by JDH on Jun 3rd, 2003, 2:38pm

on 06/03/03 at 14:07:05, KingOfPain wrote:
When diagnosed, every clusterhead should get a complimentary pair of track shoes (& helmet.)

KOP


Love that idea KOP!  ;D

Also wouldn't mind being issued some boxing gloves 'cause I have a tendency to punch doors and walls....I eventually learned to use my left after damn near breaking my right hand one night.

Jim



Title: Re: Laying down
Post by Mark C on Jun 3rd, 2003, 2:40pm
Down bad       Up good  



Title: Re: Laying down
Post by stuey on Jun 3rd, 2003, 3:26pm
I cannot lie down during an attack, but I sometimes do sit on the edge of my bed rocking back and forth holding my head hoping the medication will kick in.  I pace, but don't run, just for the imitrex.  I think it's just how i deal with my own attacks.  Lying down though is impossible for me.

Title: Re: Laying down
Post by kim on Jun 3rd, 2003, 4:03pm
During an attack my instincts are movement.  Being still is a task.  I've had clusters for a long time.  I have been hit in public places.......and have forced myself to remain still.  It is difficult.  It is the opposite of what your instincts are telling you to do.  But I have done it.  It is possible to be still while having an attack.  I've had so many throughout my life that i had to bite the bullet.  Is is possible?  Yes.  Is it what ya wanna do during ch?  No.

If a person has cluster headaches, they will eventually become aware of what it is they have.   It's just too intense of an illness to remain forever a mystery to the sufferer.  I've said it b4.  When I was 13 years old the school nurse put me on the cot, dimmed the lights and put a blanket on me.  I laid there.  Believe it.  It happened.  The tornado was blowin, but I was small, and the world was big........it took a long time for my voice to be heard --------I was about 23 when ONE doc was intrigued enough to take notice of the difference..........

Laying down during an attack is a struggle and does not come naturally.  One must force themselves to do this.  That is the differential.  IMHO.  :)

Title: Re: Laying down
Post by kissmyglass on Jun 3rd, 2003, 4:12pm
Nope can't lay down.  Before I knew what I had, I told the ENT doc that the attacks start when I lay down (I thought I had a punctured sinus or something from the oral surgery, & when I layed down it was leaking into my head). I later realized that I layed down at the same time each night. I now have about 300 pillows that keep me propped up.
I agree with everyone else...Laying down is not an option for a Clusterhead.

Kev

Title: Re: Laying down
Post by jonny on Jun 3rd, 2003, 6:41pm
Me?

I need to lay down in a quiet dark room with soothing music, as soon as I fall asleep the HA goes away and I wake up the next day refreshed and spunky.

I dont know what it is with you guys, I can always kill a Kip 10 this way.

..........................................jonny

Title: Re: Laying down
Post by kim on Jun 3rd, 2003, 6:59pm
yeah. pass the wine and cheese 4 ya nod off :D

Title: Re: Laying down
Post by jonny on Jun 3rd, 2003, 7:04pm
ROTFF!!!!!

You go girl, thats funny as all hell. ;D

I knew youd back me up, Babe...LOL

..................................jonny :D

Title: Re: Laying down
Post by cbolony on Jun 3rd, 2003, 7:16pm
can't lay down have to pace

Title: Re: Laying down
Post by suzy617 on Jun 3rd, 2003, 7:29pm
No laying down.
Rocking or pacing are my only options.

LOL Jonny.

suzy

Title: Re: Laying down
Post by dolmance31 on Jun 3rd, 2003, 7:54pm
i too cannot lay down.  i awoke with a level 10 last night...i dashed to the er, and the doc MADE me lay down and turn off the lights.  what a dick.  then he gave me 2 huge shots of dilaudid...sweet relief.  i have even smoked crack to stave off the clusters...it worked twice, now it makes them worse.  only strong narcotics can help my headaches.  i avoid taking anything until i get a level 7 and above.  stadol works great, and i have never gotten addicted. :-X

Title: Re: Laying down
Post by Marc on Jun 3rd, 2003, 8:32pm
I tend to pace first, then rock. It's just not possible for me to lay down during a CH.

When I wake up in the middle of the night with one, I'm out of bed like a shotgun.

Marc

Title: Re: Laying down
Post by jonny on Jun 3rd, 2003, 8:47pm

on 06/03/03 at 19:54:02, dolmance31 wrote:
i too cannot lay down.  i awoke with a level 10 last night...i dashed to the er, and the doc MADE me lay down and turn off the lights.  what a dick.  then he gave me 2 huge shots of dilaudid...sweet relief.  i have even smoked crack to stave off the clusters...it worked twice, now it makes them worse.  only strong narcotics can help my headaches.  i avoid taking anything until i get a level 7 and above.  stadol works great, and i have never gotten addicted. :-X


Great, another junkie ;D

...............................................jonny

Title: Re: Laying down
Post by Frank on Jun 3rd, 2003, 9:46pm

on 06/03/03 at 19:54:02, dolmance31 wrote:
i too cannot lay down.  i awoke with a level 10 last night...i dashed to the er, and the doc MADE me lay down and turn off the lights. x-snip-x

You must have had a level 8 or 9. When I have a level 10, I am so incapacitated I cannot drive to the ER.

Title: Re: Laying down
Post by Callico_Kid on Jun 3rd, 2003, 9:59pm
Jonny,

Always thought you were one of them meegrainers! ;D

It is impossible for me to lie down.  In fact, I don't even try to go to bed until well after I know my last one has hit for the night.  I have to be able to be prepared and cannot handle it when awakened with one.

jc

Title: Re: Laying down
Post by oringkid on Jun 3rd, 2003, 10:21pm
dellp

Lethal Weapon 2

Kitchen scene

Riggs and Trish

;D

Sherry

Title: Re: Laying down
Post by Roxy on Jun 3rd, 2003, 11:54pm

on 06/03/03 at 21:59:02, Callico_Kid wrote:
I don't even try to go to bed until well after I know my last one has hit for the night.  I have to be able to be prepared and cannot handle it when awakened with one.


jc.....by any chance, is this something you could teach to the rest of us?  If I could do this.....I would be one satisfied lady.  

Tracey

Title: Re: Laying down
Post by stuey on Jun 4th, 2003, 1:59pm
I have had migraines as well and cannot tolerate noise during one of them.  I also hate noise during a CH.  That noise exists is hard to fathom.  That seems to be just before the most difficult part of the attack cause once the most severe part of the CH is going I am lost in the pain and don't seem to notice anything else.

Title: Re: Laying down
Post by Callico_Kid on Jun 4th, 2003, 11:01pm
Roxy,

Wish I could teach you how to know when they end.  Mine just happen to be quite regular at 9, 11,and then again at about 1:30 in the morning.  I am usually ok then until about 9 am, so I can generally get to bed about 2:30 or 3.  Occasionally I get hit again at about 3:30.  They are the worst, because they awaken me without warning and the chance to mentally get prepared to deal with them.

Wish I could help more!

jc

Title: Re: Laying down
Post by CLR on Jun 5th, 2003, 7:52am

I can't even imagine laying down and staying there with that nasty pain.  Before I got the 02 I was walking through the whole house trying to get away from the pain.  Sitting with 02 my hands and feet have to move.

My husband was right by my side room to room.  

Painless days to all,
Cindra

Title: Re: Laying down
Post by dellp on Jun 5th, 2003, 7:57am
jc,

The pattern you just described sounds very similar to mine. The trick for me has been that after the 11 o'clock hit I can sleep well proped up about 45 degrees or so;
30 degrees isn't enough and the beast returns.

Has to do with grinding my teeth. I have been dealing with a loose tooth for several months now. If I grind at night the tooth is pretty much aligned when I wake; no grinding and I can feel it misaligned. Guess I get a 'gravity assist' when proped higher.

Maybe that, maybe circulation, I don't know for sure but it is weird and I don't care - as long as it works.  :D



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