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Title: What triggers yours? Post by ^Mark on May 26th, 2003, 5:08pm Probably asked more time then you all care to remember, but I'm wondering, what kind of things you all avoid to do during a cycle of attacks? Or more simply put, what triggers yours? Here's my list: - Alcohol (20 minute delay) - Hot baths, sauna's, steamrooms, etc - Cold wind blowing in my face - Flying or any other serious altitude change - Afternoon naps I know some people need to avoid certain kinds of food because that triggers theirs. That does not seem to be a problem for me. Is there a list of "things to avoid" ? |
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Title: Re: What triggers yours? Post by catlind on May 26th, 2003, 5:11pm So far for me there are only 3 things that I find are a sure fire way to bring on a CH when in cycle: alcohol vicks inhaler (thought I could clear the nasal congestion) treadmill exercise Cat |
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Title: Re: What triggers yours? Post by jonny on May 26th, 2003, 5:15pm people asking me what triggers mine. ............................jonny |
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Title: Re: What triggers yours? Post by brain_cramps on May 26th, 2003, 5:17pm on 05/26/03 at 17:08:32, ^Mark wrote:
Triggers seem to vary from person to person. For example, you mention alcohol, and afternoon naps. Both of these are triggers for me, whereas "cold wind blowing in my face" seems to help abort mine. In addtition, smoking seems to trigger them for me, but others aren't affected by cigarettes at all. You'll get a lot of suggestions, but you basically have to determine the "do's and don'ts" for yourself. I know thats not a lot of help, but I'm sure you'll get more suggestions. good luck, grant 8) |
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Title: Re: What triggers yours? Post by ^Mark on May 26th, 2003, 5:40pm on 05/26/03 at 17:15:42, jonny wrote:
well then, excuse me for bringing one on, Jon Excuse me for my frustration in not being able to find more information on the subject then the stuff I found 8 years ago. I know what they are, they hurt. I know what I must do, take the shot. I know people don't like to be reminded of them, I don't either. But the fact remains, we have them, otherwise we wouldn't be here. Maybe there are other things that I need to be aware of regarding this great affliction of ours that someone may have been able to work out. More then bloody likely you share my frustration in that they haven't been able to figure out what causes these things. Because if they knew that, a cure would likely be on the way. Don't get me wrong Jon, I get your humor; I share it. I have a feeling we'd get on like a house of fire. We'll go out on the town somewhere's, or a stripjoint or something, and not talk about clusters. But if I can't ask this question here, where can I? I just .. need .. to know .. more |
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Title: Re: What triggers yours? Post by jonny on May 26th, 2003, 5:46pm Ok dude, im just giving you a hard time. Seriously....I have no triggers that I can pin point. I think I would notice one in 28 years but I cant. .........................................jonny |
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Title: Re: What triggers yours? Post by ^Mark on May 26th, 2003, 6:00pm Fair enough, no offense was taken .. It's just that I was elated to have been PF for over 50 hours. Until an hour ago. That one shook me up bad. Double frustration talking.. |
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Title: Re: What triggers yours? Post by jonny on May 26th, 2003, 6:12pm LOL....Your right, this has been asked a million times. Maybe I can help. Ok folks, we got a new dude with an old question lets give him some answers. Whats your trigger? If not me do it for the children......LOL ............................jonny |
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Title: Re: What triggers yours? Post by ^Mark on May 26th, 2003, 6:16pm LOL you .. you .. you, wanker, you ... ;D |
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Title: Re: What triggers yours? Post by jonny on May 26th, 2003, 6:22pm on 05/26/03 at 18:16:39, ^Mark wrote:
Dont worry, Bro. People will answer, they always answer the sick one ;D .......................................jonny |
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Title: Re: What triggers yours? Post by eyes_afire on May 26th, 2003, 6:22pm Hi Mark. My list: 1. Alcohol 2. Sleep. I also suspect that brisk cardiovascular exercise may bring on a CH because when I used to bike I would get a CH exactly 2 hours later. It's very hard to determine CH 'triggers'. Personally I don't like the term because people then usually say: "well, just avoid the triggers and you won't get cluster headaches" ::). When I'm getting CH everyday in cycle it becomes very hard to determine a 'trigger' from a coincidence and when I'm not in cycle those 'triggers' aren't 'triggers'. All I know is my odds of getting a CH are greatly increased when I partake in alcohol or sleep. I believe the generally accepted list of things to avoid for CH are: 1. Alcohol 2. Nitroglycerin (Apparently avoiding sleep is not recommended ;))Beyond that I don't think there is anything else that is generally accepted to be a CH 'trigger'. --- Steve, one of many... |
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Title: Re: What triggers yours? Post by Jabeen on May 26th, 2003, 6:44pm I can not identify any trigger for myself. I can drink several days and nothing happens-so if I get a CH after drinks-I can't really say it was the trigger. The only constant for me is sleep and opening my eyes too fast (???). I just hope they can find out more in my lifetime...this is the strangest affliction and there are no answers. |
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Title: Re: What triggers yours? Post by don on May 26th, 2003, 8:04pm Food......... guaranteed hit 20 minutes after lunch or dinner. |
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Title: Re: What triggers yours? Post by Miklos on May 26th, 2003, 8:08pm Food... Pay more for your meals. |
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Title: Re: What triggers yours? Post by don on May 26th, 2003, 8:18pm what????? |
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Title: Re: What triggers yours? Post by OneEyeBlind on May 26th, 2003, 8:31pm The one and only trigger for me is relaxing. Whether it be with a good book, or sleeping. Wham Bam thank you for the Slam. Hey Don, just curious, if you get them after eating do you think it could be because eating makes ya sleepy and relaxed ? |
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Title: Re: What triggers yours? Post by kim on May 26th, 2003, 8:32pm Triggers: Food Alcohol Any sort of relaxation whatsoever... Here are some coping methods: Pretend your not hungry; Drink coffee like a friggin lunatic; chain smoke; sit up in a chair with tv on but sound off for weeks on end; You'll be fine. Don't worry ;D LOL! I've been doin it for decades an look how I turned out :D |
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Title: Re: What triggers yours? Post by BobG on May 26th, 2003, 9:09pm Since I have no life except this friggin' job and I like to screw the company out of 8 hours pay I did a little list making of triggers. These are all copied and pasted from the archives. relaxing after being stressed nitroglycerine tabs sitting behind a woman who wore way too much perfume Alcohol paint fumes citrus juices and products smell of Clorox the detergent section in the grocery store good whiff of a citronella torch or candle Fumes changes in temperature (like being in the refrigerated aisle of the grocery store) sun on my face Computer screens nutrasweet body odor chocolate caffiene chinese food MSG cold wind in the face Milk amd milk products, i.e.: cheese During vigorous sex sessions at peak of episode barometric pressure changes walking into the dry air inside from running the heat and back out into the moist cool air Driving on tree lined roads that cause the sunlight to be broken in patterns drinking plenty of alcohol or smoking like a chimeny a pattern of sleep loss prolonged periods of high adrenal stress a very bad weather system Peanuts (the roasted kind usually) Red wine Nitrates in hot dogs WD40 4-6 8oz cups of coffee a day odor of raw onions trialkylamines Sleep Frozen Food department repetitve motion of the shoulder taking a nap in the afternoon REM sleep Take-Offs on commercial airlines PepsiMax TV watching a movie in a movie theater ginko biloba alka seltzer plus over exertion in heat nasty flu virus And the winner is “Wierd as it may sound, Jello will do it every time” My personal trigger………lack of stress. Bob no-life G :'( |
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Title: Re: What triggers yours? Post by don on May 26th, 2003, 9:11pm I dont know. When I eat I almost immediately start to feel that body sick feeling then 20 minutes later BLAM! |
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Title: Re: What triggers yours? Post by kim on May 26th, 2003, 9:33pm Me too. Jenny Craig Cluster Poster Girl :D |
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Title: well.... Post by rumplestiltskin on May 26th, 2003, 9:33pm Bob G....bubble boy! Triggers? For me...Nothing now that Verapamil has me PF. But used to be....relaxation and naps....but I'm hesitant to call them "triggers"...they could be more of a "when" than "what". I've always strongly suggested an in depth journal to the serious researcher. ...uh... unless of course "journaling" is a trigger....then have one of the servants do it for you. Feel free to search the archives....since there are such wide variations...I think a study grouping similar folks would be interesting and help one wile away the days. Hi Ho Trigger....and Away! Love den |
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Title: Re: What triggers yours? Post by BobG on May 26th, 2003, 9:39pm Den.........Bubble Boy? :D those are not my triggers. The list was from the archives, cut and pasted. Bubble Boy is the name given to Nick D a long, long time ago. You remember him? The fertilizer guy. |
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Title: Re: What triggers yours? Post by oringkid on May 26th, 2003, 9:49pm Definite triggers for me: Alcohol Raw onion fumes Mothballs Sherry |
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Title: Re: What triggers yours? Post by DaveHar on May 26th, 2003, 9:57pm Triggers, well I don't know if I can add anything new but here is my list. Short and sweet. Smoking and or cig smoke....boy I need to quit beer....done quit that...only drink mixed drinks or straight burbon heat and very bright light 8) migraines heavy stress high humidty and I am starting to think the verap is a trigger. I was doing good with only a hit here and there untill I started taking the verap again. Now I am shadowing like crazy and getting hit just about every other day once or twice a day. Go figure. Dave |
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Title: Re: What triggers yours? Post by Callico_Kid on May 26th, 2003, 10:17pm I agree with someone who posted earlier that trigger is probably not a good term, cause I gethit the same time every day, but there are a few things that will give me a bonus go-round: Spray paint, esp. primer/sealers Some perfumes/colognes ham/bacon some scented candles (Very bad! They will drop me to my knees in the middle of a store) Nutrasweet (aspartame) relaxing following work or stress Keep track of anything that seems to bring on extras for you or make any more intense and then avoid it. It won't eliminate clusters, but it will cut down on the odd one or the severity of others. jc |
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Title: Re: What triggers yours? Post by JDH on May 26th, 2003, 10:18pm Mark, triggers for me are: alcohol sleep alcohol hot tubs alcohol paint/stains/finishes alcohol Jim |
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Title: Re: What triggers yours? Post by suzy617 on May 27th, 2003, 4:00am Beer and sleep are the only triggers for me. |
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Title: Re: What triggers yours? Post by cbolony on May 27th, 2003, 4:31am Mark Alcohol and a very hot room and sleep |
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Title: Re: What triggers yours? Post by Kenzie60 on May 27th, 2003, 6:20am I can not go to a gas station during a cycle, the smell of gasoline is a trigger for me, and the smell of candles is also another trigger for me. Roseanne :o |
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Title: Re: What triggers yours? Post by Spindrift on May 27th, 2003, 9:31am What an interesting thread indeed! I can definitely add afternoon nap to any list of triggers for me. Also probably alcohol. But what's most intriguing, both from my own experience and the answers here, is that I'm not convinced that the concept of a trigger is even valid. That is, it seems to be so for a good number of respondents... but then you read a post about how it's hard to tell if something specific caused an attack, and especially that what "triggers" a headache one day won't do a thing the next. For instance I thought I was coming to the end of a cycle here and even started having a beer again in the evening. Then last night I was hit with a giant killer for the first time in about 3 weeks. Didn't do anything different, it just simply was. Weird and baffling. SD |
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Title: Re: What triggers yours? Post by Marc on May 27th, 2003, 9:38am After reading the entire thread, I have to say Hmmmmmm........ |
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Title: Re: What triggers yours? Post by ^Mark on May 27th, 2003, 10:12am So far in the list the most common denomenator seems to be anything that heats up the body or dialates the vaines or nerve endings in the head. on 05/26/03 at 18:22:52, eyes_afire wrote:
Don't even get me started there. People just do not understand the concept of CH. I once had an attack at work. Within 2-3 minutes I went from being completely fine, to a straight 8. I did not have the Imitrex with me, so I had to sit it out. I collapsed against the filing cabinets, and while the tears were streaming across my face, I started rocking back and forth, banging my head against the wall. When the people in the next office came in to ask what was making the noise, my collegues explained I was "over-acting a simple headache". One guy literally said: "We all have headaches now and again, but you don't see us over-acting like that or making such a big deal out of it". When the resident medic was called after about 20 minutes, he was *furious*. He couldn't understand that no-one had even lifted a finger to help me. He even went as far to wish them all a cluster headache, just to see what is was like. on 05/26/03 at 18:22:52, eyes_afire wrote:
Agreed. It is a misnomer, but I didn't know what other phrase to use. on 05/26/03 at 18:22:52, eyes_afire wrote:
I know. I've tried it. I even went as long as 60 hours without sleep before collapsing of exhaustion. And then I woke up an hour later with an exploding temple ...... |
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Title: Re: What triggers yours? Post by don on May 27th, 2003, 11:27am http://tinyurl.com/crwh |
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Title: Re: What triggers yours? Post by Brian_Y on May 27th, 2003, 11:46am 1. Booze. Once the smell of beer did it. When I am not in a cycle, though, I like to drink like William Faulkner. 2. MSG 3. Circadian changes 4. Altitude changes 5. Flying in an airplane. 6. Hot dogs. Corn dogs put the double whammy on me, so my life sux when the fair's in town. (or, for you Southerners: The Far) 7. Cured meats 8. R.E.M. sleep I think that's about it. Numbers 3-5 are terrible since I fly to the west coast now and again for work and definitely fly other places quite a bit, though not lately which has been nice. And I am terrified of flying, so I drink when I get on a plane. And well, I guess I am just screwed. sigh..... |
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Title: Re: What triggers yours? Post by Margi on May 27th, 2003, 1:27pm on 05/27/03 at 09:38:45, Marc wrote:
Couldn't agree more, my friend. Here's a thinker: I bet not ONE of any item listed here triggers anyone that is OUT of cycle. Right? I think Nitroglycerine actually IS the only known "trigger" than can bring on an attack out of cycle. Maybe we should call these things (the MSG, booze, etc.) the 'Playing with Fire' list. You're gonna get hit when you're in cycle, no matter WHAT you do...but at least this list (and others that preceeded them) helps us to know what is going to bring on the bonus rounds. |
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Title: Re: What triggers yours? Post by cathy on May 27th, 2003, 1:33pm Actually Margi...I don't know if it's the same for anyone else, but Wes will get hit if he drinks whether in cycle or not. Cathy |
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Title: Re: What triggers yours? Post by Margi on May 27th, 2003, 1:48pm Really, Cathy? That is unusual. Poor guy. I think that's a really good question to ask here...does anything trigger attacks for anyone else, out of cycle? |
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Title: Re: What triggers yours? Post by Brian_Y on May 27th, 2003, 1:54pm Circadian changes will for me. Out of cycle, that is. |
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Title: Re: What triggers yours? Post by catlind on May 27th, 2003, 2:00pm Margi (and others), you are right about the concept of triggers. The things I listed are sure to bring on an out of schedule headache DURING my cycle. Alcohol is fine for me out of cycle. However, high stress will bring on a CH for me even out of cycle. Just went through that with buying our house and the whole move to NE. I am not sure though if it's the actual stress, or the downer after the stress that brings it on. Then again, I'm not altogether sure that my cycle hasn't just changed it's pattern. Lots of shadows still but hopefully it won't become a full blown cycle. Cat |
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Title: Re: What triggers yours? Post by oringkid on May 27th, 2003, 3:45pm I recently read that even Nitro won't trigger an attack if out of cycle. This was from a link on this board to the results of some PET scan research (not the original that Goadsby did) on clusters. They used people in cycle and out of cycle. They said that the nitro didn't cause an attack on the ppl out of cycle. I agree with Cat too, my list of "triggers" are just what will bring on an unscheduled attack while IN cycle. I have only had a couple of attacks out of cycle, ever, and one of those was a switch hitter (on the other side) But avoiding these "triggers" does not keep me from getting the attacks. Just keeps me from getting the extra attacks that these particular things bring on. Quote:
Margi, Exactly! Sherry |
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Title: Re: What triggers yours? Post by vig on May 27th, 2003, 4:55pm I'm pretty sure a good dose of diesel fumes once got me a 10. Now I'm neurotic about getting stuck behind buses and such. -p |
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Title: Re: What triggers yours? Post by eyes_afire on May 27th, 2003, 5:06pm Excellent post Margi, that's exactly what I'm thinkin. When out of cycle I can use and abuse myself all I want... but it's been about 20 months since I've been able to... --- Steve, one of many... |
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Title: Re: What triggers yours? Post by Roxy on May 27th, 2003, 7:08pm I've only found one thing that will actually bring on a ch, and that is primer/sealer fumes. It'll bring me to my knees in minutes. Other than that, I can eat, drink, smoke and play.....doesn't matter. |
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Title: Re: What triggers yours? Post by Mark C on May 27th, 2003, 7:54pm OUCH Article (http://www.clusterheadaches.org/library/general/management_of_ch.htm) Good topic Mark...hello and welcome by the way. Out of cycle I am Superman, nothing triggers them....in cycle...????? To be honest I have NEVER found anything environmental connected to the cause of my CH. I have been looking for almost 30 years....thank God and Glaxo for Imitrex! PFDAN's Mark Too! |
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Title: Re: What triggers yours? Post by stevegeebe on May 27th, 2003, 9:07pm For me.....beer and some of the others mentioned in this thread. And don't forget the dreaded new shower curtain liner. SG |
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Title: Re: What triggers yours? Post by Wendy1 on May 27th, 2003, 9:12pm Hmmm..... Let's see. Although it is usually Spring or Fall. I tend to believe an actual CYCLE is started by stress... could be wrong. When I am IN a cycle... * STRESS will trigger one (someone once mentioned getting worked up on the phone - uh huh!) * HEAT (!) the sun, exercising, room too hot, etc. * ALCOHOL (we don't EVEN go there) * PROCESSED FOODS, meats, cheeses, etc. * DRIVING (hmmmm) * SLEEPING (of course) damned if you do, damned if you don't * RED 'Stuff', certain foods that are red, pizza sauce, etc. There, I've added my '2-bits'!!!! PFDAN |
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