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Title: Warning Signs Post by romain on May 22nd, 2003, 4:46pm Hi All! I am newly diagnosed (about three months now) and have suffered from excrutiating cluster headaches. I have a strange question for everyone. I have noticed that prior to a new cluster episode, my left ear turns very red. Usually it is only the outer edge. But this seems to be my "warning" to take my medicine. Has anyone else experienced warning signs or am I just different? ??? ::) |
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Title: Re: Warning Signs Post by cathy on May 22nd, 2003, 5:05pm Welcome romain....thats not one I've heard of but then anything is possible with this mutant beast....Wes does get a stiff neck prior to his though... Cathy |
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Title: Re: Warning Signs Post by cbolony on May 22nd, 2003, 5:31pm Quote:
sometimes i feel a little pain on the back of my neck left side same side of my CH. sometimes my left eye starts to twich. |
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Title: Re: Warning Signs Post by eyes_afire on May 22nd, 2003, 5:39pm Hi Romain. During a CH cycle my eye twitches and during the cycle at various times my left ear (CH side) gets red hot... often that's an indication to me that a CH attack may be soon to follow. Oftentimes the red hot ear coincides with my other symptoms such as the pressure and burning eye. --- Steve, one of many... |
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Title: Re: Warning Signs Post by cootie on May 22nd, 2003, 8:07pm Hi romain.....Brad's personality changes.....really wierd and hard to explain but it was so drastic this last episode I warned him I felt anouther cycle was comeing on and he needed to CHILL. He was so high strung about work stuff and stressed and wanted to argue about everything which isn't really him. Hate to say it but I was rite on the money this time and his cycle started about 1 week later after a couple years bein PF. Kinda freaky......he also had sinus real bad and kept sayin it was jus a sinus infection or allergies..he was wrong. Good luck to you ! Cycle predictor and NOT proud of it Pam |
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Title: Re: Warning Signs Post by Miklos on May 22nd, 2003, 8:50pm I get tinnitus (ringing in the ears) followed by tingling on the right side of my scalp ( the -bad- side) completed by a WHACK! |
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Title: Re: Warning Signs Post by katethecelt on May 22nd, 2003, 10:53pm Hi & Welcome Romain All my CH's are on the right side. Sometimes the right side of my forehead will turn red & become slightly swollen. I've had ringing in my ears too. The pain behind my right eye is the first sign of a CH starting. Wishing you PFDAN's, Kate |
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Title: Re: Warning Signs Post by BarbaraD on May 23rd, 2003, 4:22am I get a "cramp" in my left ear and my left eye swells shut. Warning signs before the pain hits. So you're not THAT usual afterall. We're all weird. Hugs BD |
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Title: Re: Warning Signs Post by suzy617 on May 23rd, 2003, 4:32am Hi Romain and welcome aboard. I dont really get any signs that the beast is coming. He usually just pounds the door down and runs in but I can always tell when the cycle is coming around because I will have shadows for a couple weeks prior. I hope you find pf days soon. Suzy |
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Title: Re: Warning Signs Post by romain on May 23rd, 2003, 9:32am This really kinda strange, but I guess that the left ear seems to be an indicator for at least some of us. I also have another question, I came across a web site about cluster headaches and they had mentioned something about cluster migraines. A few of my most severe headaches dont follow typical cluster headache pattern and seem more like a migraine. Does anyone know anything about cluster migraines? Can you have both? |
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Title: Re: Warning Signs Post by Drk^Angel on May 23rd, 2003, 2:30pm Welcome to the board! Sorry that the beast is force feedin' your cranium through a fast food broiler. Welcome to the family! Good luck! PFDAN.................................. Drk^Angel |
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Title: Re: Warning Signs Post by els on May 23rd, 2003, 4:33pm My personality changes about two weeks before a cycle starts. I find myself totally unable to tolerate stupid people. I work at a restaurant, and you would not believe the things customers do and say. Normally I just shrug it off, but during a cycle I really have to restrain myself from saying something snotty or dumping something on them. I also find myself having incredible roadrage. I'm normally pretty laid back, but the other day I was screaming at someone in front of me cause they stopped to let a car out onto the road. I just became aware of this during this cycle but thinking back it all makes sense. I'll know what to watch out for next time. Before an actual attack I get numbness in my temple area on the surface of the skin. Then little pings of hot pain at the inner corner of my eyebrow, with a popping sensation over my eye. Then all hell breaks loose. Thank God for Verapamil and Prednisone. Pain free for almost two weeks! The Prednisone makes me really jittery though. els |
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Title: Re: Warning Signs Post by Kenzie60 on May 23rd, 2003, 5:07pm I also get very short tempered. People are stupid and they sure as hell can't drive, when I am in cycle. I completely agree with you. I also notice that my right ear gets red and hot and that my right eye and right side of my face start to droop. I know that they are coming. Roseanne |
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Title: Re: Warning Signs Post by Mark C on May 23rd, 2003, 5:23pm Welcome to the board romain, Sorry you need us but glad you found us....grab an oar and start rowing! Slaves we are! on 05/23/03 at 09:32:31, romain wrote:
"Occasionally, patients describe headaches that have the features of cluster headache and another primary headache disorder. Recognition of these syndromes is important because the therapeutic options are different from the standard treatment of the separate disorders." This OUCH (http://www.clusterheadaches.org/library/general/ch_general.htm) article, about half way down the page addresses this. PFDAN's Mark |
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Title: Re: Warning Signs Post by middlecook on May 28th, 2003, 4:29pm I didn't realize that I had any warning signs, but now that I read this I realize that I have alot of the same signs as other people. The crankiness and the numbness on the left side of my head, and my eye will start watering. Thanks for asking the question now I will know that the strange things I am feeling are a warnig. |
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Title: Re: Warning Signs Post by Tim_w on May 29th, 2003, 6:56am Romain Welcome aboard My left eye will twich pain in back of head on left side Some times my wife can tell I have one coming before I do! PFDAN To Ya Tim_w |
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