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        New Message Board Archives >> 2003 Posts >> Cured
        
(Message started by: donsurbeck on May 17^th, 2003, 1:29pm)

Title: Cured
Post by donsurbeck on May 17^th, 2003, 1:29pm

I had CH for about 15 years a number of years ago. It was of the Norton Syndrome type and episodic. Before I left for vacatio about 20 years ago, my ENT gave me a vial to inject intermuscular to give me some relief.

After a few months, I realized that I might have been cured. Infact, I have not had an episode since that day.

I can empathize with anyone that has had the disease, and the terrible debilitating pain.

The Dr has since retired but thinks that the treatmentm was agressive antihistamine injections.

I would hate to thank that this simple history is going ignored while so many are suffering. I will thankfully and gladly give all the time I can to help find a cure for this disease.

If you know any ENT's or neurologist interested in my caseplease have them call or e-mail me.

I am 65 and have had a lot of pain, but believe me nothing approaches CH. May God be with you during your suffering.

Title: Re: Cured
Post by Wendy the Brit on May 17^th, 2003, 2:48pm

Sorry Donsurbeck

I don't want to sound dismissive, and I am genuinely very, very happy for you and wish I was in the same boat but it would be good to know what was in these magic vials. I for one was given large dose antihistamines as a preventative but it did diddly squat apart from making me drugged and fat.

W the B

Title: Re: Cured
Post by Charlie on May 17^th, 2003, 10:40pm

I'm happy for you and hope this horror never returns.

As you can see by this site, we need all the help we can get. It would be a good thing if we could know more. For instance: A vial of what? Perhaps it was a steriod of some type?

Take care and let us know.

Charlie