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Title: diagnosis Post by daveengland on May 16th, 2003, 4:35pm hi.i`ve just discovered today what my head aches were.3 yrs daily so far.had 3 teeth out,awaiting hospital appointment wednesday.any advice on relief til then? |
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Title: Re: diagnosis Post by cathy on May 16th, 2003, 4:46pm Hi daveengland, so are they clusterheadaches...??? if so Imigran/Imitrex and O2 seem to be the best form of treatment. What meds have you used/using. I think the usual route is dentist, doctor, doctor, doctor, and often more doctors, then eventually neuro and if your lucky or unlucky depending on which way you look at it....diagnosis. Sorry you've had to join us but welcome to the board. Good luck with the appointment and keep us posted. Cathy :) |
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Title: Re: diagnosis Post by cbolony on May 16th, 2003, 4:59pm Quote:
daveengland what are your headaches you are not telling us nothing about them. ??? ??? Quote:
I agree with cathy |
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Title: Re: diagnosis Post by daveengland on May 16th, 2003, 5:04pm 2 1/2 yrs nurofen plus like sweets.6 months of codeine phosphate/amitryptline.offered clinical trial for buprenorphine injection3 months ago, two injections two weeks apart.month ago buprenorphine patches,but still felt i had a blocked sinus and i wanted to tear my head off!! thanks for this |
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Title: Re: diagnosis Post by cathy on May 16th, 2003, 5:06pm Have you taken the cluster quiz....what other symptoms do you have, explain your pain... Cathy |
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Title: Re: diagnosis Post by daveengland on May 16th, 2003, 5:17pm daily.usually around lunchtime if ihave a lunch break,if not then definitely between 6+8. start the day with a light throb,from my shoulder up the left side of my head to forehead.cheek feels puffy and i try to unblock my left sinus by holding my nose to try to make my ears pop.start feelingg kind of prickly behind my eye???then my teeth start to ache,gums throb(i've had three teeth taken out).pressure still gets worse.try to make my jaws click to make the blockage in my sinus go pop?then all hell brakes loose.feel like i wanna rip my head off my spine!drill a hole through my temple!it just keeps coming and i feel like i'm going mad.this has been happening pretty much everyday for 3 yrs now and i need help sorry to go on davee |
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Title: Re: diagnosis Post by cathy on May 16th, 2003, 5:22pm Yep sounds like clusterheadaches to me (but what do I know im not a doctor...) :-/ so get a neurologist to confirm it first, in the meantime hang in here with the rest of your clusterhead family, put your feet up and make yourself at home, :D you've got a lot of information to take in, and an excellent family here to share it with you. ;D Cathy |
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Title: Re: diagnosis Post by daveengland on May 16th, 2003, 5:29pm when i go to sleep i usually wake up with a pain like needles being stuck in my left eye i.try to squeeze my head,twist my head,bang on the back of my head with my knuckles just something to mask it.then i@ll kind of doze and then usually get woken again couple of hours later.i try a cool flannel and gargling cold water on the left side of my mouth to try and numb it and then i may get an hour or two of sleep daveengland |
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Title: Re: diagnosis Post by cathy on May 16th, 2003, 5:36pm :o....noone else except a clusterhead could have written that! (In my opinion.... ;D) Cathy |
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Title: Re: diagnosis Post by daveengland on May 16th, 2003, 5:49pm read an article in paper during the week and it was the first time i have seen anything remotely to do with what i'm going through.friends and family just look at me puzzled/concerned/uncomfortable.spoke to lady from ouch today and she was the first person i have been able to talk to about this.consultant believes its psychological(atypical facial pain?)i had always thought it was blocked sinus after wisdom tooth.any idea where i can get references from british medical press(i've tried bmj bma)lady from ouch said to push hard to see neurologist,(personal opinion)i think i may have difficulty as seemc convinced of his opinion many thanks daveengland |
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Title: Re: diagnosis Post by Ted on May 16th, 2003, 5:53pm on 05/16/03 at 17:17:38, daveengland wrote:
Don't be. Go on as much as you need. Get the doctor to prescribe pure oxygen (O2) with a non-rebreather mask and use it at a flow rate of 8-12 liters per minute. And also try Imitrex/Imigram. As Cathy said, they have a good success rate in aborting. In the meantime until your appt, some people have found brisk excercise to help them too. Others have found heat helps while others prefer coldness with ice packs. And stick around. We'll get you smiling again. http://www.cpucpu.com/graphics/juggler.gif |
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Title: Re: diagnosis Post by cbolony on May 16th, 2003, 6:00pm daveengland you need to see a neuro so he or she can give you some meds,I take verapamil 240mgs 2x aday and imitrex injection to stop the CH using the imitrex tip to save the imitrex because the insurance companys are not going to give you a lot.A lot of people on the board use oxygen when the CH hits.Reading every thing on the left side of the board before you see the neuro |
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Title: Re: diagnosis Post by andy on May 16th, 2003, 6:01pm Dave, get yourself to a neuro for diagnosis, take info from this site and OUCH to show to him. To abort your headache Oxygen works really well for a lot of us and imitrex injections for the real bad ones. I hope this helps! PFDAN ................andy check out this link---- http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm |
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Title: Re: diagnosis Post by Charlie on May 16th, 2003, 10:09pm Welcome to our world. Feel free to rant on. It's what we're here for between all the silliness. Here is the technique that helped save what little sanity I retain: Dr. Wright's Circulatory Technique This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many. When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand. This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate. I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended. This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience. When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance. I wish you the best of luck - Charlie Strand |
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Title: Re: diagnosis Post by cootie on May 16th, 2003, 10:31pm Hi daveengland..yeah you really do need ta try and get into a nero or a doctor familair with CH and try to get on the rite track with meds that work for you and "sum much needed relief".....you'll be glad you did !! Good luck to ya........nero recommended Pam |
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Title: Re: diagnosis Post by Drk^Angel on May 16th, 2003, 11:19pm Welcome to the board! Sorry that the beast is draggin' your cranium down 20 miles of cobblestones and broken glass. Welcome to the family! Good luck! PFDAN.............................. Drk^Angel |
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Title: Re: diagnosis Post by daveengland on May 18th, 2003, 3:02am thanks to all for your advice, been able to cope a bit better(!) .i don't have regular net access but i'll try and visit next wkend. thanks for saving my sanity daveengland |
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Title: Re: diagnosis Post by Mastifflvr28 on May 18th, 2003, 12:42pm Welcome to the board Dave, and good luck. Please try to read as much as possible on this site and ouch, you won't believe the education you'll get. Take care, Mast |
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