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        New Message Board Archives >> 2003 Posts >> Just wanted to say Goodbye.
        
(Message started by: DougL on May 12^th, 2003, 3:26pm)

Title: Just wanted to say Goodbye.
Post by DougL on May 12^th, 2003, 3:26pm

Things around here just aren’t what they used to be.
I have my own personal reasons for this decision.
I will be lurking for now on.
I have also removed my name as a member of OUCH.
DougL

Title: Re: Just wanted to say Goodbye.
Post by BobG on May 12^th, 2003, 3:32pm

???
Doug......I always enjoyed the way you challenged me when I said something out of line.

Lurk away but don't be a stranger. Your knowledge is needed here.

Title: Re: Just wanted to say Goodbye.
Post by Elaine on May 12^th, 2003, 5:17pm

Dear Dr. Doug L,

Today is a sad day for ch.com. and O.U.C.H. you are a good friend to many and hold knowledge that is so valuable.
You will be missed by many people.
Whats even sad is there is only three post here and your message has been read 40 times at this time. I can so see your point and understand it fully!
May your days ahead be PF and may you always know that your not alone and they are people who care! A lot of those people lurk with you. You know my email feel free to write any time.
Elaine

Title: Re: Just wanted to say Goodbye.
Post by don on May 12^th, 2003, 5:26pm

Quote:

. I can so see your point and understand it fully!

I dont. There is no explanation. Not that one is required.

How can someone respond to something we know nothing about.

Title: Re: Just wanted to say Goodbye.
Post by Elaine on May 12^th, 2003, 5:48pm

Thats just the point Don, No one understands what many are saying, and so many of us are tired of trying to get our point across!

Things have been posted over and over again, but when it comes right down to it no one gives a shit!

Just my opinion !

Title: Re: Just wanted to say Goodbye.
Post by 2late on May 12^th, 2003, 5:50pm

think about it & stay on, don't just lurk! certain shit around here pisses everyone off, but all in all this fuckin' joint rocks!!! not sure about yer reasons but you need to reconsider! ............Jack

Title: Re: Just wanted to say Goodbye.
Post by Linda_Howell on May 12^th, 2003, 6:15pm

Doug,

I'm going to step out on a limb here.

I'm almost certain of why you're leaving and I've got to say this to you. Bull-shit. Doug, you are stronger than that.

If you feel you must go away, no one can stop you from doing what you have to do, but your humor and your insightfulness will be missed here by more than just me. There's a rainbow at the end of every storm, Doug, and this too shall pass.

Love ya

Title: Re: Just wanted to say Goodbye.
Post by Ree on May 12^th, 2003, 6:33pm

Don't go Doug L we need you here... If you change your mind remember we are always here, waiting patiently for a cure for Clusters. Pain free days and cozy nights to you friend... Love and Peace to you Ree

http://tinyurl.com/bl

Title: Re: Just wanted to say Goodbye.
Post by Linda_Howell on May 12^th, 2003, 8:47pm

bump. sorry. I didn't want this to get lost.

LindaH

Title: Re: Just wanted to say Goodbye.
Post by Peppermint on May 12^th, 2003, 8:57pm

Maybe I don't have a right to say this, but I'll say it anyway...

I don't know you very well Doug, but I've seen your posts from time to time.

I couldn't possibly know what is troubling you but I do know this - apart from all the things you may have to sift through, all the good things you've found here will always be with you. I hope that whatever you do, even if you're lurking, the love of the people that you've come to know here, their support and comradery, continues to give you what you need, on and off this board.

Sad to see you say you're going, I'm sure there are a lot of clusterheads yet to come that might benefit from someone who's been around a while.

I almost didn't say what I wanted to for stupid reasons - but it didn't supercede the really true ones.

So yet again I open my mouth, maybe I stuck my foot in it. Oh-well, if I did.

PFDAN to you Doug.
:-[

Title: Re: Just wanted to say Goodbye.
Post by nancyc on May 12^th, 2003, 9:20pm

It is really sad that lots of good people have left the mb because of bs going on...stick around, bro...some of us need your humor and compassion...God bless, nancyc

Title: Re: Just wanted to say Goodbye.
Post by dougW on May 12^th, 2003, 10:03pm

Sorry to hear that DougL... one less Doug is not a good thing!

Take care

DougW

Title: Re: Just wanted to say Goodbye.
Post by Wendy the Brit on May 12^th, 2003, 10:18pm

nancyc

r.e. my other post on Don's, please , please tell me what you mean by this b..sh.t.

It seems pretty clear that only a few people are in the know, and Doug sounds too far p.ss.d off to explain now.

W the B

Title: Re: Just wanted to say Goodbye.
Post by cootie on May 12^th, 2003, 10:25pm

not sure I really know you real good Doug but hate to see you go !!! Families squabble and disagree all the time.....I don't know what's wrong but still hate to see ya leave. Pam that hates to see Dougs come and go :-/

Title: Hello /goodbye club
Post by rumplestiltskin on May 12^th, 2003, 10:26pm

Whats real and what ain't.
Whether yer takin it or leavin it...comin or goin.
Here's the scorecard on the present "General Posts" forum screen when I wrote this. This does not even take into account the amazing variety of grassroots research, and solid advice on the "med"forum...or the mountain of warm fuzzies at the "subhooters" corner.

There is a shitload here to take or leave.
Something fer everyone to love and hate.
Got yer yin and yang.

1 leavin
8 new comer 74supports
4 silliness lots of support
3question 1/2 fight,60 answers
1 old question 39 posts serious and not
2doctor info 8 supports
1 technical question 4 supports
6 various Mothers day
1 medical 8 supports
1 vent 40 supports
1 board condition vent lots of patter
2 greetings chat stuff
Dj concern 22 silliness
1 PF fuckeneh
1 CH book intro
1 almost war related post
1 person lonely for talk
1 reqest for prayers 41 posts
1 wierd non CH advice turned to fun
O2 site
3 silliness links (?i never opened them)11 replies
weather pictures 20 posts
1 CH Poetry
1 medical info and thanks degrade to silliness
1 birthday 13 happys
1hockey chat 33 posts
pain scale discussion 16 posts

I got almost 4 years here ....almost everyday....
looks the same to me...only more of everything.

Walk in the sunshine
den

PS: Theres some CH sufferer right now who will find this board tomorrow. I know where I'll be.

Title: Re: Just wanted to say Goodbye.
Post by oringkid on May 12^th, 2003, 10:45pm

DougL, I don't know you well, but if you have a problem with the board, I can kind of understand...sort of....
But what I don't understand is your leaving OUCH. The message board and OUCH are not the same thing.

I probably am not saying this right, but I hope you will reconsider your membership in OUCH at least.

I better quit now, but I hope you understand what I am saying.

Sherry

Title: Re: Just wanted to say Goodbye.
Post by Marc on May 12^th, 2003, 11:20pm

If you have been around here for a long time and still need an explanation of DougL's post, it's going to be very difficult to explain............and beyond my capabilities.

This board was created by a group of people with a very different mindset than exists here today. Yes, things change - often for the better - sometimes not.

Support was always an important component (still is!) and very often involved phone calls between sufferers and supporters. This still happens, but not to same degree. How many folks here have each others home phone number? I'm not knocking anyone - it's just not as personal now......

This board is a logical extension of OUCH, separate - but still connected at birth. Does anyone remember seeing "Hmmmmmm" posted every other day as means to maintain focus?

I'm as guilty as anyone, but look at the general apathy at OUCH. What's the status of all the committees? One tenth of one percent of the energy that gets expended here would go a long, long way in furthering OUCH.

OK, for me it just boils down to emotional level - it just doesn't feel right anymore - and THAT's my problem, not the board's problem.

As usual, Den made me stop and think

Quote:

I got almost 4 years here ....almost everyday....
looks the same to me...only more of everything.

You know what Den.....Yer right!

The difference is, we need to attract people back the same way they came here originally - with a little bit of decorum.

Marc

Title: Re: Just wanted to say Goodbye.
Post by SommelierCH on May 13^th, 2003, 2:42am

(WARNING: Cliché coming up)

You cannot be the mighty oak, on this message board, the wind will blow you down. Rather; be like the willow that bends with the flow of the wind and lets it pass by, then rises up, once again, unscathed.

Why spend the time to bitch about the way things AREN’T? Deal with the way things ARE—and change it by active involvement. Retiring and Lurking will accomplish nothing, and only piss you off more. If you feel so strongly about this, become pro-active and make a difference.

FUCKENEH! We’re Clusterheads, we can do anything.
David J.

P.S. Our life is not easy. This board, is a reflection of our life.

Title: Re: Just wanted to say Goodbye.
Post by KingOfPain on May 13^th, 2003, 3:24am

on 05/13/03 at 02:42:32, SommelierCH wrote:

Well put.

KingOfPain

Title: Re: Just wanted to say Goodbye.
Post by Riccardo on May 13^th, 2003, 5:01am

Doug, I don't know what is happened, nor I want to know.
But I remember you that we are 2000 people here, if someone don't love, appreciate you or want to fight, approx. 1990 didn't.

So, please, rethink to your decision.

With love from Italy

Riccardo

Title: Re: Just wanted to say Goodbye.
Post by suzy617 on May 13^th, 2003, 5:13am

Doug, I'm sorry you feel the need to leave us. I hope you will reconsider and stick around. Even if you can make one person feel better on a day that may be at their lowest whether it be just by answering their post or messaging them or calling them, then I feel it has all been worth it.
I dont know what it was like here a long time ago but I thank God I found this place along with all the people I know consider family.
Please stay,
Suzy

Title: Re: Just wanted to say Goodbye.
Post by echo on May 13^th, 2003, 8:10am

Sorry you felt it necessary to bail Doug. Good luck to you in your endeavors. Just remember where we are when the shit gets bad and there is nowhere else to turn. We'll listen to your rant, understand your pain and help you beat the beast once again.

Just remember that once we build you up. We'll probably flame the hell out of you just for grins. ;D

Title: Re: Just wanted to say Goodbye.
Post by Woobie on May 13^th, 2003, 8:17am

Dang it!!!
:'(

Title: Re: Just wanted to say Goodbye.
Post by CJohnson on May 13^th, 2003, 9:01am

on 05/12/03 at 15:26:00, DougL wrote:

Things around here just aren’t what they used to be.

How did things used to be?

on 05/12/03 at 15:26:00, DougL wrote:

I have my own personal reasons for this decision.

Are these reasons going to be shared with the group, or will us new kids be kept in suspense?

on 05/12/03 at 15:26:00, DougL wrote:

I will be lurking for now on.

Why?

on 05/12/03 at 15:26:00, DougL wrote:

I have also removed my name as a member of OUCH.

What purpose will this serve?
-Curtis

Title: Re: Just wanted to say Goodbye.
Post by Margi on May 13^th, 2003, 12:22pm

Now lissen here, Doogle-ass. :-*

I completely understand where you're coming from and very good points were made in this thread by Elaine, Linda, Marc, Den, etc. etc.

No, the board isn't the same. No, the feeling here is now 'big city' compared to the 'small town' where we all met years ago. Yes, there are some things that go on here that are irritating. But, ya know what? That happened on the old board too (remember Waterdog? Linda B? ::)) We survived that.

I think it's come to a point where we now have to....for want of a better expression....pick our battles. I'm learning to do that. Yes, there are some things going on here that REALLY piss me off, but I just go kick a co-worker instead of posting here. (OK, not really - just wanted to see if anyone is paying attention :P)

The board has become an amazing thing...shit happens: shit gets resolved. With or without everyone's participation as it was in the past. There are just too many people here now, for everyone to be able to have their say anymore.

Groups, cliques, friendships form. 'Tis the nature of a larger group. Not everyone is EVER going to get along harmoniously all the time. Just ain't gonna happen, honey.

Doug, I got an email yesterday from a supporter who's hitting the wall. She lives right here in Calgary and she was feeling really lost and alone, watching her hubby do the dance every night. She was given my name by Bennie Sue (remember her? :)). THAT email and the ensuing conversations we had really brought it all home for me today. That, and things my twisted sister has been saying to me (even though she thinks I'm not listening to her ;) ... It made me come back to the board again - I haven't checked in here for a number of days now. I was at about the same point you obviously are.

Doug, us old farts really DO have a responsibility to watch out for the new folks arriving here. Remember what a bad point each of US was at when WE found ch.com? But now that we have it and are a part of the family here, we get cocky and think everyone should be at the same speed we are. Nope.

Yes, we've done our time here. Yes, we've talked about left-handedness, eye colour, sexual preference, beastiality (still paying attention? :)), imitrex usage, etc. etc. etc. Ad nauseum, we have. But...so what? Yes, we were pioneers in those days and we were feeling like we'd finally found folks from our home planet. Too cool, huh? What a wonderful history we have. :)

So, let's share our history Doug. YOU are a very integral part of that history, Mr. Lutz. We all learned how to spell from you. Hey, is Cootie your little sister, mister?

Stick around, kiddo - you never know when a fellow clusterhead will only find solace from talking to YOU, ok?
Don't hang up your boots just yet, ok?

Hugs,
your from your old ICQ coffee buddy. :)

p.s. did you change your email addy AGAIN? I just tried to send this to you and it came back to me. Mail me your new one? pweeeaaase?

Title: Re: Just wanted to say Goodbye.
Post by Wendy the Brit on May 13^th, 2003, 4:11pm

Margi

Have I read this right?

You pioneered bestiality?

I am shocked, horrified and revolted to the depths of my protestant upbringing.

W the B

Title: Re: Just wanted to say Goodbye.
Post by Elaine on May 13^th, 2003, 6:55pm

What Ts said Doug :-)!

Title: Re: Just wanted to say Goodbye.
Post by jonny on May 13^th, 2003, 7:01pm

The old timers know Doug has not posted in months. I know it.

Doug,
If it has to do with a post I made in the last couple days you should get a grip.

The threads we use to run were long and more descriptive.

Get over yourself, no one was talking about you.

.......................................................jonny

Title: Re: Just wanted to say Goodbye.
Post by Ree on May 13^th, 2003, 8:34pm

o o then its my fault too... everyone knows I only have love in my heart... for every kind of person in the world... Doug L we love you ya jerk... ree

Title: Re: Just wanted to say Goodbye.
Post by Frank on May 13^th, 2003, 9:08pm

on 05/13/03 at 12:22:58, Margi wrote:

Yes, we've done our time here. Yes, we've talked about left-handedness, eye colour, sexual preference, beastiality (still paying attention? :)), imitrex usage, etc. etc. etc.

I never knew you were into beastiality! Which do you like better... gerbils, or goldfish? :D

Title: Re: Just wanted to say Goodbye.
Post by Margi on May 13^th, 2003, 9:08pm

Yes, Wendy the B - we did. And you wonder why we miss the old board? *oink* Hub!! Get control of that thing would you?

::)

Doug - still waitin on that email addy....that mail you sent me last week? Yeah, I lost that. Sorry, kiddo.

Sheesh, Frank - you were here. Oh, right - you were busy with that lil gecko over in the corner. Never mind. You probably missed the rest of the fun.

I'm still waitin on the bingo...

Title: Re: Just wanted to say Goodbye.
Post by DougLu on May 14^th, 2003, 4:47pm

Ok,
This is why I decided to retire to lurking.
I have been around here for quite a long time and have seen just about everything.
Bickering, fighting, name-calling, back stabbing, even clusterheads sleeping with each other or getting married.
I just want to know what ever happened to being polite to each other? It used to be that everyone was welcomed politely no matter how many times the same question was asked. Everyone would just simply answer and then help them to help them self’s.
Yes, the board has many more people now than it did then. But, Why have we as a family allowed disrespect to now become the norm? Even the old timers that I used to have huge respect for are now part of this group that finds it easier to Bark Out “use the buttons on the left and find it your self”. (I know that was very general but i'm sure you get my point.)
So for now I have just decided to take what I need (information) and leave the rest (message board).
As far as me also leaving OUCH. My reason for that is… What other than helping a few with meds and such have they really done other than sponsor a yearly convention? I have not heard of anything major come out of OUCH. How is OUCH getting the word out? What has been accomplished this month? What is going to be accomplished next month? This year? Next year? I think that there should at least be a mass email to the members each month stating just that. Yes CH.COM is separate from OUCH but its members do not post on OUCH”S board. They post here.
Any way in a nutshell this is why I found the need to become a LURKER.

DOUGL

Ps
Incase anyone forgot. DJ is the King. So that would make Jonny DJ’s Queen. ;)

Title: Re: Just wanted to say Goodbye.
Post by jonny on May 14^th, 2003, 4:55pm

on 05/14/03 at 16:47:18, DougLu wrote:

Ok,
Incase anyone forgot. DJ is the King. So that would make Jonny DJ’s Queen. ;)

Im cool with being Queen, Bro.......If that means you will continue posting.

But I do get to spank DJ dont I....LOL ;D

Stick around Doug, your old school and we need you to show the new peeps the way.

............................................jonny

What have you done to get the word out or help OUCH to get the word out, Doug?

Title: Re: Just wanted to say Goodbye.
Post by cootie on May 14^th, 2003, 5:10pm

Yeah Doug I agree.....why not stick around. Everything changes.......it's the same everywhere with everything. Pam that remains the same :)

Title: Re: Just wanted to say Goodbye.
Post by Wendy the Brit on May 14^th, 2003, 5:27pm

DougL

Sorry we don't know each other, but thank you for the explanation, it has been very frustrating not understanding why people were upset. You make some fair points clearly, thank you for that.

Wendy the Brit

Title: Re: Just wanted to say Goodbye.
Post by Drk^Angel on May 14^th, 2003, 6:27pm

Doug... I understand the need to just step back from the board for a while, but what will the board become if all the good guys like you stop postin'? Good luck and many PFDAN to ya. Your words will be missed.

Drk^Angel

Title: Re: Just wanted to say Goodbye.
Post by don on May 14^th, 2003, 8:34pm

Quote:

What has been accomplished this month? What is going to be accomplished next month? This year? Next year?

Nothing if everyone bails out.

Rome wasn't built in a day. If it were I'd try and get the engineers on the Bod.

Title: Re: Just wanted to say Goodbye.
Post by Ted on May 14^th, 2003, 10:22pm

on 05/14/03 at 20:34:20, don wrote:

Nothing if everyone bails out.

Rome wasn't built in a day. If it were I'd try and get the engineers on the Bod.

Rome wasn't built in a day? ROME WASN'T BUILT IN A FUCKING DAY? That's it! Too many Goddamned cliches! I quit and am never coming back again!

Title: Re: Just wanted to say Goodbye.
Post by don on May 14^th, 2003, 10:50pm

UHH TED?

Could you toss me that newspaper on the way out.

Thanks bud.

Title: Re: Just wanted to say Goodbye.
Post by cootie on May 14^th, 2003, 10:51pm

sorry Ted.....you can't leave.....didn't you know it ain't over till the fat lady sings ? Pam that can't help ya there ;)

Title: Re: Just wanted to say Goodbye.
Post by Margi on May 15^th, 2003, 8:36am

know what, Doug? You really ARE my hero. You've ALWAYS been able to say what's really on your mind and make it very clear to everyone what you mean. I completely respect that and, yeah, envy it a little too. Good for you, Doug!! I'm SO freakin proud of you for saying what you did!! ;D

Friend, I have to remind you of something though, and maybe it will help you to keep things in perspective here.

I remember when you arrived at ch.com, Doug. In particular, I remember Hub dragging you through the mud....actually, it was more like pulling you through a keyhole backwards, but....that's Hub. :) You got flamed BAD, sweetie - in a REALLY big way. But you hung in here. You gave back what you were getting and you EARNED everyone's respect because of your 'tude, dude. Don't lose that 'tude. You're a clusterhead, Doug - it's your right to be here. There are other clusterheads and supporters out here who really need to hear from you. Even if it is sometimes only to get a smile from something that you write.

You're a gentle spirit, Doug - we so need more of that here.

And, if you're a good boy, I bet Elaine will let you kiss her cute ass. ;)

Title: Re: Just wanted to say Goodbye.
Post by Bob P on May 15^th, 2003, 8:49am

As I recall, old polite Doug once theratened to "bitch slap" someone (probably hub).
Go to just about any headache website and find OUCH listed in their resources. Check the National Org. of Rare Diseases and you'll find OUCH the only resource listed with the 2 major medical associations. Do a search for cluster headaches on Yahoo and see what the first 2 hits are. News appearances, 1/2 hour video presentation, reps on Discovery Health chanel programs. Major Doctors, Goadsby, Dodick, etc. wanting to work with OUCH on CH. I think OUCH is doing a lot for CH. It's slow but it is happeneing.

Title: Re: Just wanted to say Goodbye.
Post by CJohnson on May 15^th, 2003, 8:55am

Ask not what O.U.C.H. can do for you, ask what you can do for O.U.C.H.

-Curtis

Title: Re: Just wanted to say Goodbye.
Post by Peppermint on May 15^th, 2003, 9:16am

on 05/15/03 at 08:49:06, Bob P wrote:

Major Doctors, Goadsby, Dodick, etc. wanting to work with OUCH on CH. I think OUCH is doing a lot for CH. It's slow but it is happeneing.

Ouch and Ouch UK are very important. If not for Ouch, particularly a brief but extremely important chat in Ouch UK's chat room recently, one more clusterhead might have gone ahead with that medieval Gamma Knife procedure. New things are being done, and as you said Bob progress may be slow... but.... its worth it.

Only the encouragement from the oldtimers who "know" and have the weight of long-term remedy experience of sorts (having gone through the early days of trial-and-error to be able to recommend things here as is always done), have been able to convince a chronic clusterhead I know personally to keep fighting for what he needs.

He's ready to chuck it all to the wind, but when I quote some oldtimers still HERE, then he listens. Whatever it takes. When I talk about the NEw things going on that I know about from OUch, THEN he listens. His doctor is way behind the ball on treatment - so I made him read the recommendations on Verap doses... now he's ready to raise some hell b/c he's been on PRED a milion times. This is the same doctor who won't raise his Verap but gladly put him through for the possibly debilitating Gamma Knife surgery.

Do you see the impact of Ouch and your contribution Doug? It cannot be denied.

Title: Re: Just wanted to say Goodbye.
Post by Charlie on May 15^th, 2003, 9:35pm

Dunno Doug.............. Every time I get out.....they pull me back in.........

This old board has a way of doing that. Nothing all earth-shaking happens other that learning more about ways to handle this horror.

It's okay to lurk but stick around for the lunacy too. It's pretty harmless, I think.

Charlie

Title: Re: Just wanted to say Goodbye.
Post by Peppermint on May 16^th, 2003, 12:48am

And one last thing...

"You say goodbye, and I say hello...
Hello,hello
I don't know why you say goodbye I say hello. "
- The Beatles (or Paul... you get the idea)

that's what keeps runnin through my head.

Title: Re: Just wanted to say Goodbye.
Post by Slammy on May 16^th, 2003, 4:23pm

Actually, I don't give a rat's ass about why someone is leaving or not. I've been with this board since 1999, and I agree with Den.... it's the same, but more of it. Though it amuses me when people who have no fuckin clue or too new to understand, simply jumps into the thread with both feet with their blessed ingnorance ;D
( no rant there!).

When I am fed up with the board.... I take a break.... no announcement... no name removal....no whining.... I just... don't log in! But no one gives a shit on any reason I would have on leaving the MB... nor would I be interested in debating it once I made that call....

sooo..... I'm not impressed...have a nice life!

Another reason..is that there are a number of really good people on here that make this MB and OUCH work. It is very insulting to lump them into the mass generalization that this place is no longer what it used to be.

I've been gone because I have been busy and getting hit awfully hard..... If I was pissed off and didn't want to come back... you would know when someone asks 5 months down the road " Hey, has anyone seen Slammy?". ;D

Slammy 8)

Title: Re: Just wanted to say Goodbye.
Post by jonny on May 16^th, 2003, 4:36pm

on 05/16/03 at 16:23:55, Slammy wrote:

you would know when someone asks 5 months down the road " Hey, has anyone seen Slammy?". ;D

Nah!, Id just call you up and say "Hey ass-hole, where the fuck are you" ;D

Right on, Bro!!

....................................jonny

Title: Re: Just wanted to say Goodbye.
Post by Mark C on May 16^th, 2003, 5:04pm

Here's my two cents worth.....
Doug you sound like a pretty good feller. I have read some of your posts due to my archive research....the actions in this post appears to be that of a quitter, which is not what I have seen in the archives.

<sarcasim>Maybe it is for the best...if the old timers get tired of the board maybe they should move along....it's easier than changing what is wrong.....ain't it? The path of least resistance.</sarcasim>

I am not trying to make anyone angry....well almost anyone.....I just want you to think. Was this board and OUCH supposed to grow? Was that the plan, if there ever was one. Or should it stay static...never change. If that was true the MB would die soon. New life must be brought into this and any endeavor such as this or it will expire.

I see alot of new people doing a lot of what the old timers have taught us to do....welcome the new people and offer support. Sure the ass-hole syndrome surfaces every now and then....so fuckin what...don't be such a wimp. We do suffer from the most painful condition know to man after all.

The old MB is gone....never to return...it's too late. 4000 members and climbing every day....looks to me like DJ had a pretty good idea and I thank him again for giving me a home.

You-couldn't-run-me-off-with-a-stick-Mark

Title: Re: Just wanted to say Goodbye.
Post by Peppermint on May 16^th, 2003, 7:12pm

on 05/16/03 at 16:23:55, Slammy wrote:

with their blessed ingnorance ;D
( no rant there!).

*sigh * slammy - talks-with-foot-in-mouth is me middle name ;D

Quote:

I've been gone because I have been busy and getting hit awfully hard.....

Keep kickin' ass - wish your cycle would end. You know you are missed around here!
((((Slammy)))

for crissake,
Patty

Title: Re: Just wanted to say Goodbye.
Post by don on May 16^th, 2003, 7:50pm

I keep looking for that new button on the left. The one that says.

"Tell me how I should moderate this board and I will get right on it."

Using this MB is a privilege not a fucking entitlement. You want to stay ,stay. want to leave, leave.

THIS IS NOT A PUBLIC BOARD!

It is owned and operated by one guy who is gracious enough to let people use. Any one who dictates who or what should be on this board has a lot of fucking balls.

Title: Re: Just wanted to say Goodbye.
Post by Frank on May 16^th, 2003, 9:01pm

Does anybody wonder how this same subject keeps coming up? Over... and over... and over... and over again? It is because PERSONAL ATTACKS ARE PERMITTED on this board. For the most part, THERE IS NO MODERATION OF POSTS. ANYTHING GOES!

Don is half right "Using this MB is a privilege not a fucking entitlement. You want to stay ,stay. want to leave, leave."

On the other hand... it is the responsibility of the website owner (which may be delegated to members) to moderate posts ... and to delete or move posts as necessary... or even BAN out-of-control members, in order to make the message board a freindly place for the majority of it's members. I do not see that happening here.

FWIW... I belong to three other large message boards. Each has the same three rules: (1) Personal attacks are not allowed (take it to email or PM if you have a beef with another member)... (2) Moderators may remove or move any posts... (3) Moderators decisions are final (but may be contested by discussing via email or PM). Those who don't understand those three rules are usually banned.

Those three rules may seem totalitarian, or a violation of free speech (remember posting here is a privilege, not a right)... but it sure makes the board more pleasant for everybody else.

------------------
BTW... I am not "dictating" anything... I don't have that power. I merely described the problem as I see it, and offered a possible solution.

Title: Re: Just wanted to say Goodbye.
Post by Ted on May 16^th, 2003, 9:19pm

on 05/16/03 at 21:01:43, Frank wrote:

FWIW... I belong to three other large message boards. Each has the same three rules: (1) Personal attacks are not allowed (take it to email or PM if you have a beef with another member)... (2) Moderators may remove or move any posts... (3) Moderators decisions are final (but may be contested by discussing via email or PM). Those who don't understand those three rules are usually banned.

Aren't you breaking rule three here? DJ's decisions not to remove posts you'd like to see removed are his final decisions and you're contesting it here and not in e-mail or PM.

Title: Re: Just wanted to say Goodbye.
Post by Not4Hire on May 16^th, 2003, 9:19pm

Quote:

On the other hand... it is the responsibility of the website owner to moderate posts... and to delete or move as necessary... or even BAN out-of-control members, in order to make the message board a freindly place for the majority of it's members. I do not see that happening here.

...i may be in early-to-mid-Alzhiemers...but I don't EVER remember seeing DJ say that....but he does say this:

Quote:

If you don't already know me, name is Daren (DJ) Johnson and I'm 35 years old. I am the webmaster/creator/owner/operator of this site. I am not a company, simply a cluster headache sufferer. A sufferer who was so tired of not being able find any information on the condition, decided to do something about it.

I am in the United States Air Force (14+ years), and currently live in Wichita, Kansas, stationed at McConnell AFB. I'm divorced and have no children.

I've been an episodic cluster headache sufferer since the age of 18 (wow, 17 years now! Feels like 40!). I usually have yearly cycles that last about three months. My headaches have only skipped two years, the 1996 and 1999 cycles (that was cool!). When my annual cycle started a few years ago (April 1st, 1998), I immediately got on the web to find out if there was any information that I could possibly use to help me cope with the upcoming three or so months. Much to my dismay, there was literally NO information out there! I couldn't believe it! I thought to myself, how hard could it be to build my own site?

On April 11th 1998, clusterheadaches.com was born.

I wasn't sure what to expect at first. I had never met another sufferer, but I knew there had to be others out there. Honestly, I expected to be talking to myself on the message board for quite some time. But, the hits started coming. Slowly, but surely. I spent every extra hour I had for several weeks researching how to get better positions in the search engines, since there were no other sites out there to link with. Still, slowly, the hits kept coming.

It's been almost three years now. More than 1,113,000* people have visited the site, 6,001,000* hits total, and over 173,600* messages posted on the message board (* numbers as of August 28, 2002). I am TRULY amazed! If you only knew how many nights I've sat here, with tears streaming down my face, reading the messages from all of you. You have truly blessed my life! Like many of you have stated in messages, sometimes, the greatest feeling in the world is just knowing that someone else out there REALLY knows how you feel! That comfort, in itself, is absolutely priceless!

In some kind of awkward way, it kind of makes it that much easier when a co-worker finds out that you have a problem with headaches and says "yeah, I get REALLY BAD headaches too... it's so bad, I have to go lay down for a couple of hours till it goes away". You want to jab an ice pick in their temple, wiggle it around for a while, and say "really? Does it feel like this? No? Mine do! So don't talk to me about how bad off you have it! I'll tell you what, the next time a headache wakes me up at 2 am, I'll give you a call and you can drive me to the hospital while I bash my head on your dashboard for a while!!!!". Sorry, I'm getting a little carried away here, hehehe.

The bottom line here is this. This site has been as much as a blessing to ME, as it has been to you. I sit here and cry as much as you do, trust me! Clusterheadaches.com was built for totally selfish reasons. I just needed a forum to share stories with something that has dominated nearly half of my life. Luckily, and thankfully, others have benefited from my needs. That, in itself, is worth every single penny I've ever spent, or ever will spend, to keep this site operating.

I get what seems like an email a day from people asking if they can help with the expense of this site. My answer has been the same since the site was opened the first week of April, 1998.

"Thank you VERY MUCH for your offer to help offset the costs of the site, however, this site was NOT built to make money..." blah, blah, blah.

This site is NOT about money!!! It's about sharing, it's about learning, it's about knowing we are not alone. Personally, just knowing there are others out there who suffer from this terrible curse, and I'm not crazy, is absolutely priceless to me! No amount of money could ever replace the sense of peace and comfort that this site has given me, and the THOUSANDS of other people from around since the site came online.

and he's got The World's Longest Fuckin' FUSE......

Title: Re: Just wanted to say Goodbye.
Post by Frank on May 16^th, 2003, 9:40pm

on 05/16/03 at 21:19:27, Not4Hire wrote:

...i may be in early-to-mid-Alzhiemers...but I don't EVER remember seeing DJ say that....but he does say this: -snip-

I did not claim that DJ said anything. I expressed my opinion, and offered a possible solution to the problem.

Title: Re: Just wanted to say Goodbye.
Post by Wendy the Brit on May 16^th, 2003, 9:42pm

N4H

Thanks for posting that, I'd never read it before. What a wonderful man

W the B who really will go to bed at some point

Title: Re: Just wanted to say Goodbye.
Post by forgetfulnot on May 16^th, 2003, 9:48pm

Why wast your time responding to this post! The guy is gone, he won't respond to any of it.

However we will most likely hear from him again at a later date, so what.

Lee ???

Title: Re: Just wanted to say Goodbye.
Post by Drk^Angel on May 16^th, 2003, 10:06pm

Frank... I like to think of DJ sorta like a trusting caring father, and we his slightly deranged children (with how many of us there is, he must be a very buzy man indeed)... He trusts us to deal with our own problems here, and tries not to overly dictate how we are to act, talk, socialize, etc... But if things get out of line, or enough of the children are complaining, he does indeed step in, and deal with it. Luckily (for many of us, especially me) DJ has the longest fuse in the world, and he is more than fair. I wouldn't want it any other way.

Now... Are ya goin' to sit there and complain about how things are being run around here, or are ya goin' to get your ass back in the boat and start rowin'?

PFDAN................................. Drk^Angel

Title: Re: Just wanted to say Goodbye.
Post by cootie on May 16^th, 2003, 10:08pm

one last thing........I think Slammy would be very much missed.....ok.......missing doug thread Pam ;)

Title: Re: Just wanted to say Goodbye.
Post by don on May 16^th, 2003, 10:36pm

Whose Slammy ?

Quote:

I like to think of DJ sorta like a trusting caring father

Love you dad. Can I borrow the jetski tonight?

Quote:

it is the responsibility of the website owner

Says who? Web Police?

Quote:

Thanks for posting that, I'd never read it before.

BRITISH! Well at least your not from France.

Thats how its done. Fuck personal attacks. Thats for sissys. I just picked a fight with two entire countries in one post.

Title: Re: Just wanted to say Goodbye.
Post by cootie on May 16^th, 2003, 10:44pm

Who's Don......hey where am I anyhow...is this the thread about midgets with facial hair that mimick monkee's ? If not I'm leavein Pam ;) ;D

Title: Re: Just wanted to say Goodbye.
Post by cathy on May 17^th, 2003, 12:32pm

Don....luckily for you the British are far too polite and mild mannered to respond to your picking.....but thankyou for pointing out what we thick brits would have probably not noticed.

Cathy

Title: Re: Just wanted to say Goodbye.
Post by jonny on May 17^th, 2003, 12:35pm

What Cathy said, Don!!!...and while your at it thaw out the damn chickens before you fire them at the friggin windshields....LOL ;D

..............................jonny :D

Title: Re: Just wanted to say Goodbye.
Post by cathy on May 17^th, 2003, 12:38pm

;D ;D...ROFLMAO....that is sooooo funny....frozen chickens....!!

btw...had I been french I may well be leaving now!!!

The Bitch ;D

Title: Re: Just wanted to say Goodbye.
Post by CathiP on May 17^th, 2003, 5:34pm

Just gotta love it when a thread goes south!
DJ IS one amazing guy, though! His MB has done sooo much!
A question keeps rolling around in my brain(plenty of room there)......who is on RIGHT NOW, as a guest?
Is it a Researcher from one of the Drug Cos.? An up&coming Neuro- who needs to know more about CH?
A private philanthropic organization, looking for a new place to throw money? What is it they are thinking when they read these threads?
DJ allows this board, for the most part, to govern itself, we know. And that's good. DJ also thinks of those here as his own children(I'm older than YOU, Dad!) How do you think he feels when one of his own is at the very bottom of the dog pile, getting his teeth bashed in?
And how do this, and other things that happen here, look to those we need the most? This is a casual site- and rightly so, BUT.....oooh, I hate those buts.....if every thread is filled with salacious innuendo, flying body parts and boasts about sexual prowess.......or flamefests, in which nobody is a winner, who is really going to wade through all of that? Maybe, if we Do want that researcher, that iminent Doc, new meds, and funding for even MORE research, we SHOULD be governing ourselves better......strike that.....some! No one's saying the joking, casual atmosphere should go away.....but if we don't respect ourselves, who should respect us? Why DO SOMETHING to help a bunch of crackpots who are into infighting and obscenity?
ASK yourself what these guests are experiencing, and if it is the perspective you want them to have....if so, well, then, so be it......this is home, and it should be comfortable for you.......if you want MORE- like some buy-in from people who just might further your cause....play away, but use RESPECT.......for your fellow MB mates, for yourself......show those who drop in that the people on this board are WORTH HELPING- because YOU ARE.... and I don't want anyone to miss out on an opportunity to end this pain, once and for all, because their first impression was wrong......you might get just ONE SHOT at the person who drops in here who COULD be THE ONE...the one with a cure....please don't blow it, because that would break my heart.
I think you guys are awesome....
Stepping out for the evening.....flame away!
Cathi

Title: Re: Just wanted to say Goodbye.
Post by Not4Hire on May 17^th, 2003, 6:27pm

aww cathi...fer cryin' out loud.... cinch up yer NOMEX knickers ;) ..... 'cuz there just ain't NO effin' way to get this 800 lb. Gorilla to siddown and BEHAVE.... *most* of your points are well-taken... to wit:

Quote:

Maybe, if we Do want that researcher, that iminent Doc, new meds, and funding for even MORE research, we SHOULD be governing ourselves better......strike that.....some! No one's saying the joking, casual atmosphere should go away.....but if we don't respect ourselves, who should respect us? Why DO SOMETHING to help a bunch of crackpots who are into infighting and obscenity?

...THIS crackpot has seen stuff here that I was part of/responsible for/proud of/ashamed of/horrified at/yadda.... and yet I see the same stuff in the news/sports/weather/film-at-eleven..... this is a big ole SliceOfLife... in yer face and in your head....

...the day DJ starts *policing* this place is the day that I open a *Rip-off* of the site.... a place where the (mostly) intelligent and diverse folks that were lucky enuff to find *this* one can still pontificate/strut/vent/give-and-receive support/ask questions/look up information/spread information/etc.

..when THE ONE WHO FINDS THE CURE shows up, it won't matter what went on before.... and *that* person won't be worried about any of the shit that goes on daily....THAT *ONE* will just keep-on-keepin'-ON.... and we'll all be able to go to sleep without worrying about that nasty moment at 2 dark o'thirty when the MOFO wakes us up.... and we start dancin'....

...YMMV.....
...best...Steve(N4H)

Title: Re: Just wanted to say Goodbye.
Post by CJohnson on May 17^th, 2003, 6:48pm

on 05/17/03 at 17:34:33, CathiP wrote:

the person who drops in here who COULD be THE ONE

Neo?

Title: Re: Just wanted to say Goodbye.
Post by brain_cramps on May 17^th, 2003, 7:31pm

O.K. Goodbye.

later,
grant 8)

Title: Re: Just wanted to say Goodbye.
Post by Drk^Angel on May 17^th, 2003, 10:04pm

I still wonder... Why would any doctor, insurance agent, medical researcher, etc give a damn what we say to each other? Professionals are more than likely visiting this site for the information provided on the site which is located under the buttons to the left (Especially the one marked OUCH website)... Professionals don't drop by to watch us bitch at each other, and they sure as Hell don't decide what project they're going to deal with according to how ppl bicker on a fairly public forum such as this. No, I don't agree with everything, everyone has said on this board, but I'm not going to censor myself because someone may or may not read it who may or may not be a doctor who may or may not decide to care about CH because he may or may not be so narrowminded so as to declare a cause unworthy of their abilities based solely on the scribbles on a forum.

PFDAN.......................... Drk^Angel

Title: Re: Just wanted to say Goodbye.
Post by paul_b on May 17^th, 2003, 11:12pm

Adios.

Title: Re: Just wanted to say Goodbye.
Post by jonny on May 18^th, 2003, 10:32am

Was just on the phone with DJ talking about the convention and as I was about to hang up he said "Oh ya, tell everybody to let that goodbye thread die and get on with life"

I think he meant "BACK IN THE FUCKIN BOAT AND START ROWING"

I could be wrong ;D

................................jonny

Title: Re: Just wanted to say Goodbye.
Post by don on May 18^th, 2003, 11:16am

THE END