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        New Message Board Archives >> 2003 Posts >> Newbie/oldy - sleep question
        
(Message started by: aussie_traveller on May 6^th, 2003, 7:17am)

Title: Newbie/oldy - sleep question
Post by aussie_traveller on May 6^th, 2003, 7:17am

G'day - I used to be known as Aussie_dave, but it is a couple of years since I have posted and either someone else is using that name (or I just forgot the registration password)

I have been a bit of a fair weather friend, staying away while I have been in remission (or does that make me a foul weather friend)

Anyway, I have just started another episode and have a question. Has anyone noticed any link to changed sleep patterns and the triggering of an episode ?

I just asked as I spent Friday flying (didnt sleep at all), and Sunday night I have started a cluster episode again.

Anyway, (not) nice to be back

Title: Re: Newbie/oldy - sleep question
Post by Mark C on May 6^th, 2003, 7:34am

G'day mate'
Sorry about the head...pain sucks. Sleep? What's that! Look at this..........

"and a range of other circadian irregularities that have been reported in patients who have cluster headaches.10 Melatonin is a marker of the circadian system and a blunted nocturnal peak melatonin concentration and complete loss of circadian rhythm have been reported in patients who have cluster headache." (http://www.clusterheadaches.org/library/hypothalamus/hypothalamic_activation.htm)

PFDAN's
Mark

Title: Re: Newbie/oldy - sleep question
Post by captdshea on May 6^th, 2003, 8:13am

Mark, Thanks I needed to read that page again. Very
helpful to me and all Episodic suffers.

Aussie Dave, I'm flying to Africa for work from the U.S.
I had not had a cycle in 6yrs.
After a flight back to the U.S. I was hit again last October. I think the cycle was brought on by jet lag, I have no evidence of that save that fighting the jet lag has kept me from losing sleep and putting me in the physcial state I was in when I suffered the last cycle.

Great Thread
David

Title: Re: Newbie/oldy - sleep question
Post by ZAIRA on May 6^th, 2003, 4:15pm

;D During my cluster I sleep regularly.... and yesterday, flying back from Rome it was starting an attack..... but then it stopped suddenly ;D !

See you, Zaira ;D

Title: Re: Newbie/oldy - sleep question
Post by don on May 6^th, 2003, 6:43pm

Yes.

How about stckin around this time to help other sufferers ?

Title: Re: Newbie/oldy - sleep question
Post by Ree on May 6^th, 2003, 10:20pm

If you check your past cycles you are probably due for a cycle... Not getting sleep for a day could have probably triggered it. My husband Daves neuro says that sleep deprovation is really bad for CH. But CH causes sleep deprovation... good luck there are over the counter meds that can help not to get into Rem cycles and try to avoid attacks during sleep... Ree

Title: Re: Newbie/oldy - sleep question
Post by Charlie on May 6^th, 2003, 10:29pm

Hi again and sorry yer gettin hit.

CH changed my sleep patterns, not the other way around. Got so used to being nocturnal that I liked more.

Stick around.

Charlie

Title: Re: Newbie/oldy - sleep question
Post by marty on May 7^th, 2003, 7:34am

My sleep is fine until the cycle starts.. I don't think that there is a CH-trigger activated by a change in sleep patterns.

As for me, I wonder if the month of May is a trigger and if so, can we skip May this year..? ;D

Marty

Title: Re: Newbie/oldy - sleep question
Post by Roghfish on May 7^th, 2003, 7:48am

There may be something there :-* :-*
this last cycle started for me in Jan. I thought it was fadding out then on April 11 I left for a trip to washington DC. 8th grade Daughters Band trip left at 4 pm on the 11 17 hr. bus ride and full day of events on the 12th got very little sleep for about a 33 hrs. CH came back :-[ :-[but with 3-5 aday not my normal 1-2 aday

Title: Re: Newbie/oldy - sleep question
Post by CLR on May 8^th, 2003, 9:29am

Sleep was good for me UNTIL CH attacked me. Than I didn't want to even go to bed. I sleep like a baby when out of cycle.

PF days!!
Cindra

Title: Re: Newbie/oldy - sleep question
Post by cootie on May 8^th, 2003, 9:42am

Hi aussie_traveller....welcome back ! Yeah there is nuther person on here with the name aussie.....he was over in Iraq if I remember correctly and in the miltary. Anyhow.....good luck to ya. A welcome back is always good Pam...........(ps: hello Cindra pal :D)