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        New Message Board Archives >> 2003 Posts >> O.U.C.H.
        
(Message started by: Elaine on Apr 28th, 2003, 9:44am)
Title: O.U.C.H.
Post by Elaine on Apr 28th, 2003, 9:44am
OUCH was started in June 1999 in a garage in Rodchester NY! five clusterheads met and got the ball rolling. I was very excited. Just as excited as I was when I found ch.com.
To get the word out to the WORLD, to make people see that this pain is REAL, it friggen HURTS, It causes some people to give up on life. It causes depression and much more.
The world does not see ch.com only clusterheads and their supporters see this and maybe a doctor or two.
We can support each other and we can talk to each other and its a life saver for us all here on ch.com. I want more I want to be able to look at my neighboro, my Doctor, my drugist, my insurance company, my co-workers, my boss, and say I have clusters and they know what it is with out me having to go through a hour telling them. I want to see a drug advirtised on TV that says If you have Cluster Headaches this is the drug for you!!!! I want the word Cluster Headaches to be as common as the word Cancer , I want it to be know that well!
I spent 19 years in a closet thinking I was crasy and I only one who had these things. I endured pain that was so bad that I spent 19 years running and hiding in the bathroom at work hopeing to  hide  it, because people thought I was over reacting to a MIGRAIN. I learned to hide things, I missed important days in my family and  my life, out of fear of what people would think, say or do if they saw me having a attack. I even feared my children being taken from me.
I had shock treatment, they thought I was crazy. Ever had 13 series of shock treatment. The old fashion way not the new way! Its no friggen fun I can tell you I had it done. Ever had all your teeth pulled because they thought that was the reason for your pain at the age 22. Ever sat in the corner of a room on the floor with pain so bad yu thought if someone would just step on your head and bust it you would be ok the pain would drin out, like a pimple, mash it and the pain goes away.
Ever sat in that corner in pain and wondered if this was your time to die. The pain was so bad you just knew your body couldn't take any more a vain would bust or something and you would die. I have!!!
You can give all the excuses you want to! I don't join groups, I don't have time, I don't like the way things are being done by the officers, I don't have the money, I don't know how to do any thing that would help.
Big time BULL CRAP all of those reasons!!!!!! I have had all those feelings and thoughts. I never gave up on O.U.CH. I steped down for fresh ideas and some health issues I personally had.
I did my thing for four years with O.U.C.H. ! I pushed I bitched and I took a leave of absents !!! I never gave up on it, just had to regroup!
Now I am back and as always behind O.U.C.H. and the reason for it!!! The reason is simple!!!!
To set All Cluster Heads Free!!!!
If you want freedom from the demon, then make it happen! Get off your butts and form O.U.C.H. in your state. Get a hold of the Officers and help get things done.
TALK IS CHEAP!!! NOW STOP TALKING AND START DOING!

May 17th on a Saturday anyone from Georgia want to meet and get something started meet me at Red Lobster on Tara Blvd.
at 2pm. I will be there with Bells on. Anyone needing a motel or wanting to stay at my house email me and will give you information!

I am back full blast!!!!
Title: Re: O.U.C.H.
Post by NotH20 on Apr 28th, 2003, 10:46am
Lade E - WELCOME BACK hon....I've missed your posts.  We won't be able to make the 2pm time since we're both working Elaine.  Any chance to make it at dinner time instead?

Let me know when you get a chance.

Thanks, Mia
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 10:51am
rants like that are the best way to turn everyone away.
They'll write us all off as whiners.
Title: Re: O.U.C.H.
Post by SommelierCH on Apr 28th, 2003, 11:05am
vig,

What The Fuck are you talking about? Chill out on this one. Mark my words.

David J.
Title: Re: O.U.C.H.
Post by Mr.Happy on Apr 28th, 2003, 11:20am
vig,

Ms. Lainey is pretty much right on the money.
Can only assume your name stands for Very Ignorant Guy. I sure hope you know how to
DUCK!


Incoming..........
RJ
Title: Re: O.U.C.H.
Post by Mastifflvr28 on Apr 28th, 2003, 11:23am
VIG??
How long have you been in THIS house??  And yer making RULZ now??
You don't even have an introduction letter here.
You go read the archives for about a month, then come back and post...

Vig's got a bent oar guys!!

WELCOME BACK ELAINE!!!!!!!!  :)
Mast
Title: Re: O.U.C.H.
Post by suzy617 on Apr 28th, 2003, 11:37am

on 04/28/03 at 10:51:51, vig wrote:
rants like that are the best way to turn everyone away.
They'll write us all off as whiners.


Is that you Opie?   ::)
Title: Re: O.U.C.H.
Post by Roxy on Apr 28th, 2003, 11:48am

on 04/28/03 at 11:20:16, Mr.Happy wrote:
Can only assume your name stands for Very Ignorant Guy.


Quick and accurate volly there, Mr. Happy.

vig.....do not post until you know what the hell you are talking about.  Really bad idea.
Title: Re: O.U.C.H.
Post by brain_cramps on Apr 28th, 2003, 11:56am
INCOMING!!!    DUCK, vig!
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 12:11pm
i'm not saying she's wrong.
i'm not saying she's in a lot of pain.
but if you go off like that then no one will stick around and no one will listen anymore.  I thought you were a smart group.  fester if you like.  insult me if it makes you feel better.
goodbye

i
Title: Re: O.U.C.H.
Post by NotH20 on Apr 28th, 2003, 12:26pm
OMG...I live in Atlanta with Elaine and I'm ducking for fear   ;)

vig - wtf are you talking about - rants?  Lady E didn't attack anyone in her post - and she's not whining either.   Maybe you need to read that again.  

Mia
Title: Re: O.U.C.H.
Post by brain_cramps on Apr 28th, 2003, 12:33pm

on 04/28/03 at 12:11:56, vig wrote:
i'm not saying she's in a lot of pain.

Treading on thin ice, buddy!


on 04/28/03 at 12:11:56, vig wrote:
but if you go off like that then no one will stick around and no one will listen anymore.

Before you start with this BS, maybe go back and read the archives!


on 04/28/03 at 12:11:56, vig wrote:
I thought you were a smart group.

WTF?


on 04/28/03 at 12:11:56, vig wrote:
insult me if it makes you feel better.

So far, nobody has really got started...   Watch yourself!
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 12:40pm
Look,
you all missed my point.
It was only meant to help.
cluster headaches will never be known like cancer.
we have to have realistic dreams.
we have to put up a unified front.
i know this whole things sucks, sucks bad.  
i get them too.
my blessings on you all and good luck.
Title: Re: O.U.C.H.
Post by catlind on Apr 28th, 2003, 12:41pm
Vig,

Rants like that are what drive people away eh?  What the hell have you done for OUCH??  Elaine is one of the founders, and you have the balls to say something that ignorant??  

People like you are why nothing gets done.  Messages llike E's get people moving.

You owe an apology.  If you can't give one, then go the fuck away.  >:( >:( >:( >:( >:( >:( >:( >:(

Welcome back lady E, missed you lots :)

Cat
Title: Re: O.U.C.H.
Post by NotH20 on Apr 28th, 2003, 12:51pm
vig - If your point was to do nothing and sit back and let the suffering continue - then you suceeded in showing the board your true colors.  There are some people who don't want to suffer constantly - who want to do something - ANYTHING - to make an attempt to help not only themselves, but ALL sufferers.

Don't attempt to push down a family member whose work can potentially help out even you!

You're correct - ch's may NEVER be as common as cancer, etc.  But is that something you just sit back and accept?  I DON'T THINK SO!!!!!!!!!!!!!!!!

Rock on Elaine and let me know if the time changes.  If not, maybe we can come after work  :)

Mia & Barb
Title: Re: O.U.C.H.
Post by don on Apr 28th, 2003, 12:55pm
Hey Vig'

You entitled to your own opinion but when an  OUCH vet wants to Rant. YOU LET EM RANT!

I fit wasn't for those rants you wouldn't have OUCH to speak for you.


Quote:
goodbye


Dont let the door hit you in the ass pal
Title: Re: O.U.C.H.
Post by Ueli on Apr 28th, 2003, 1:02pm
I join in with the general vig bashing.

This guy really should learn to read before he tries to post . >:(
Title: Re: O.U.C.H.
Post by cathy on Apr 28th, 2003, 1:05pm

on 04/28/03 at 12:40:04, vig wrote:
Look,
you all missed my point.
It was only meant to help.
cluster headaches will never be known like cancer.
we have to have realistic dreams.
we have to put up a unified front.


Vig I think you missed the point....if we were all to take your attitude ' cluster headaches will never be known like cancer' then you'd probably be right, luckily we don't take your attitude....!

btw...please don't refer to people as she/he we have names here.

Elaine....excellent post and glad to see you here!!  :-*

Cathy
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 1:42pm
I'm on your side.
I meant no one disrespect.
If what I said about how we are perceived was against your feelings...I won't say it again.
I hope we can start fresh...
I know what it's like to be misunderstood and I am not a very ignorant guy.
Title: Re: O.U.C.H.
Post by BobG on Apr 28th, 2003, 1:51pm
Hey Lady Elaine. Nice to see your pretty face again.

vig........nothing's going to get done? huh?
The Lady helped start OUCH just 4 years ago and it's already in many countries around the world. True, it's not as well known as cancer, yet, but how many decades has the Cancer Society been around? Give OUCH and The Lady another 4 decades. If clusters aren't well known by then, then you can come here and run your mouth. Until then STFU.

And vig, a little advice. If you want to be here and contribute and receive or offer constructive help, change your name and attitude and start over.

Have a nice day :)
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 1:59pm
well, today is good, because saturday's 10 still hurts.
I'm sorry Elaine, life is difficult like this, I didn't mean to diminish your suffering.

I'd like for all of us to stop hurting.
Title: Re: O.U.C.H.
Post by BobG on Apr 28th, 2003, 2:03pm
Cool vig..........

Sorry about Saturday's 10.

Now, can we help you? Tell us a little about yourself.
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 2:08pm
I'm new to this, so I apologize for pissing everybody off.
I'm trying to find ways to cope.  I never knew there were others.  I've never seen or heard of anyone going through this.  I just spend my nights by myself on the floor...ROTFMOL (roll on the floor, moaning out load)
Somebody asked me today how my weekend was...
I didn't know how to answer...
"I had a headache" trivialized the whole thing.
I'd love it if people knew what I meant, but I can't expect them to.
I'm almost in tears just remembering saturday's 10...
Title: Re: O.U.C.H.
Post by CathiP on Apr 28th, 2003, 2:08pm
Hey, Vig- Nobody wants you hurting either. it's all about rowing together.
Elaine is here to help everyone row- get it? Sometimes, that seems like cheerleading- but it works. I highly suggest you read the archives- page by page, beginning to end- you'll get the plot, as well as learn to understand the primary players. These are good people here, who will stand by you as well.....but you've gotta know the gang first. I hope you will.
BTW- Vig- you haven't even SEEN a rant yet........stand by!
PF and united days & nights for all CH'ers.
(can't we all just git alonnng?)
Cathi
Title: Re: O.U.C.H.
Post by Elaine on Apr 28th, 2003, 2:31pm
Vig Hi and welcome to Cluter Heaven! Cluster Hell is going it alone!!
There is help and hope for you and all here.
Vig I was Chronic for over 20 years, I have been pain free now since September!!!! I would love to see everyone here pain free. I got this way by listening to others reading this board from top to bottom. I learned not to hide in a closet! It sure does feel good. I know as well as I know my name that I will get hit again, I just don't know when. I also know that I will never forget the pain and all Clusters caused me and my family!!!!
I am not beating up on anyone. I am just saying lets work together and join O.U.C.H. Its free !!!! But lets not stop there lets get together and work work like mad to make it KNOWN !!!!!That is what I plan to do! Stick around you will make a lot of friends here if you want to. I will find a way to put you to work ;-)!!!
Sorry for your pain!!!!

Mia I screwed up on the date May 17th Saturday at 2 pm Red Lobster! Hows that for everyone wanting to be there????

Show up and you won't be sorry you did!!! My email is dirtroadtoheaven@earthlink.net  mail me if you are coming and if you need a motel I can fix you up in a nice one low price!!! :)

Thanks all its good to be back!!!! Its good to feel good again!!! I am all smiles today! :) :) :) :) :) :) :)
Title: Re: O.U.C.H.
Post by don on Apr 28th, 2003, 2:39pm

Quote:
I'm new to this, so I apologize for pissing everybody off


What better way? Thats how i started ! LMMFAO

Elaine is a liberal radical feminist guerilla fighter who probably burned her bra in the 60s.

She's beat every fucking gorilla she fought to ! Then she kicked Jayne Goodalls ass just for shits and giggles.
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 2:40pm
I feel better already just knowing that my hell isn't imaginary.  
Title: Re: O.U.C.H.
Post by firebrix on Apr 28th, 2003, 2:41pm
Glad you're back Elaine!
Hope to meet you in chat one day.
firebrix
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 2:50pm
I know they'll hit again, and I'll just bear the pain with dignity, and count my blessings that I didn't get a really bad disease.  My 5 year old niece has CF.  I have no room to complain.  I have to show her how to be strong.
This is not going to kill me, it's just a nuisance.
Title: Re: O.U.C.H.
Post by don on Apr 28th, 2003, 2:56pm

Quote:
Show up and you won't be sorry you did!!!



Quote:
if you need a motel I can fix you up in a nice one low price!!!  



ROFLMMFYBO !

PICK ME ! PICK ME!
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 2:59pm
that last one wasn't meant to be incendiary, I'm just trying to put all of this misery into one perspective that I can make it through the day with.
Otherwise, there's too much to deal with.
Title: Re: O.U.C.H.
Post by catlind on Apr 28th, 2003, 3:08pm
Vig,

Clean slate.  Welcome aboard.  You will find in these pages a wealth of information, caring, love and support to help you cope with this affliction.  

Read read and read some more.  I apologize for the attack, but we do get defensive about our most loved here.  

Hoping you find some relief soon!

Cat
Title: Re: O.U.C.H.
Post by NotH20 on Apr 28th, 2003, 3:12pm
Vig - now I'd like to say welcome!   :)  Welcome to the board, welcome to fellow ch'ers and welcome to a new family that knows EXACTLY what you mean when you say "i've had another headache."  We know the pain all too well.

I hope we all didn't scare you in the beginning, but when someone comes in a starts haggling one of us - someone who has put her blood, sweat and tears into OUCH and CH.com - we all get a little defensive.

We're glad you're hear vig - stick around and do as much research as you can.  Ask as many questions as you can.  Check out the board posting about meds and hopefully you can find something that may help you out.

Keep the faith and stay strong...
Mia
Title: Re: O.U.C.H.
Post by vig on Apr 28th, 2003, 3:12pm
I had no intention of attacking her.

I have nothing but sympathy for all of us.

I'm sorry if it came out wrong.
Title: Re: O.U.C.H.
Post by NotH20 on Apr 28th, 2003, 3:15pm
Oops Elaine - forgot this part.  Youngest is in soccer tournament on Saturday (not sure of the time yet) and our oldest is going thru Confirmation at the church and is supposed to have a luncheon.  Email me your cell number so I can keep up with everyone that day and find out where you are when I get a break away from everything.

Maybe I can meet at some point during the day/night.

Thanks, Mia
Title: Re: O.U.C.H.
Post by Elaine on Apr 28th, 2003, 3:21pm
cell number on its way! Judy and I talked for hours at Red Lobster one day. I am sure we will be around long enough for you to find us!
Title: Re: O.U.C.H.
Post by Charlie on Apr 28th, 2003, 11:54pm
No problem Vig.

I was lucky when I got here. My computer was.....and still pretty much is, a mystery. It was too hard for me to get into trouble with an iffy post.  Since then, I'm always in trouble.... ::)

E is in the OUCH hall of fame, is all. We make way for her.  She does a pretty good rant. I hope you will too between battles with the demon.

Nice to know you.  Stick around.

Charlie
Title: Re: O.U.C.H.
Post by Elaine on Apr 29th, 2003, 10:21am
Don shame on you!!! But see your laughing already just think how much cheap fun you could have if you come. ::)
Title: Re: O.U.C.H.
Post by Mikey on Apr 30th, 2003, 2:41pm
E,
I may try and make it just to find out what i should do to maybe start something here in NC. I'm chronic as you probably know, and it is a rough time for me right now, these things are hitting me hard right now , but i want to try and do something. So if any of you guys out there are from NC or even SC and want to try to get something together please e-mail me and we'll talk it over. E, i'll e-mail you to get directions and all from the interstate cause i know nothing of Atlanta.

Mikey,  ;D
Title: Re: O.U.C.H.
Post by Slammy on Apr 30th, 2003, 3:13pm

on 04/28/03 at 10:51:51, vig wrote:
rants like that are the best way to turn everyone away.
They'll write us all off as whiners.



OOOPS!   :D


heheh.... just chalk it up to a bad call!

Hey E-Babe!  Glad to see ya kickin-ass!  I'm right beside ya!  Hope Mom and Dad are doin better!  They are blessed to have you as their daughter!  Let's go kick some CH ass, eh?   :-*




Slammy  http://www.uselessgraphics.com/devil09.gif
Title: Re: O.U.C.H.
Post by 9erfan on Apr 30th, 2003, 3:13pm
Awesome post Elaine!...wish I lived in GA!

Vig- don't worry about...you're already forgiven. Everyone here has been misunderstood at one time or another...and everyone gets a 2nd chance.
Title: Re: O.U.C.H.
Post by oringkid on Apr 30th, 2003, 4:29pm
Elaine, great to see you back and kickin' ass!  Certainly made me feel guilty! LOL  You are right.  BS excuses.  I recently posted on another thread how I had no money, talent or confidence to help....Ted pointed out that, that was not correct and now you have kicked it home for me.

I do have some talent (still no money or confidence LOL!) that I can contribute.

Thanks for the kick and glad to see you feelin' so fine!

Sherry
Title: Re: O.U.C.H.
Post by Elaine on Apr 30th, 2003, 5:00pm
Thanks Slammy by the way Mom is home and looking better and learning to mind her daughter Now :-)

I got real tickled when my brother told me
the doctor at the hospital asked her
what made her finally go to the doctor. My Mom said "I WAS threaten by a certain member of my family !" She told him I threaten to take her to any old doctor LOL!!!

Mom is minding much better, not eatting any salt (that I know of anyway) She is taking her meds and she is taking it easy! She works circles around me.

You know me I am always kicking ass and ruffling feathers ;-)!!! I am glad your beside me I need all the help I can get!

Sherry it just takes a little from each person to get the balls rolling ;-)!!!

Money is hard to come by I know, I stay broke myself.
I cut back a lot on stuff when I really want something. There is always something that can be done.
I have not done it in awile I been slack myself but I have brocures that I use to put out at different places about O.U.C.H. and cluter headache! I gave out all but two of mine. I need to go get some copies made to do that again.

Come on lets Rock and Roll !!!
Title: Re: O.U.C.H.
Post by Linda_Howell on Apr 30th, 2003, 6:08pm
Hmmmmmmm.

   well well well.   This has got to be a first.    Guy comes in here, hasn't done his homework, ruffles feathers, pisses people off, gets told to STFU...and with-in the entire thread apologises, is forgiven and  no hard feelings.   Yep.......after 4-plus years here, that's a first for me.
      Life IS good, and hey Vic???????  you shoulda seen what they've done with the bodies of all the others!!!!

       Welcome to our family Vic.

                Linda Howell
Title: Re: O.U.C.H.
Post by vig on May 1st, 2003, 2:20pm
i guess you gotta be good at something!


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