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Title: First Post Post by fzapped on Apr 24th, 2003, 8:43am I have had episodic clusters since 1978. I was first diagnosed correctly in Dec. 2000, before that I was told it was sinus infection, allergies, tension HA, etc. I just started a new cycle the begining of this month. Over 2 years since the last cycle was joyfull. Last cycle I was given topomax, which helped, but I'm prone to kidney stones and I got one from it. Ended up having to have a procedure performed to remove it. After scouring the internet for info on CH, I saw a study on melatonin and started taking 9mg a day about 1 1/2 weeks ago. It appears as though I may be one of the few people it helps, last 4 days have been pain free or nearly pain free, time will tell. Since this cycle started I was getting 2-3 HA a day, increasing in intensity and duration each day. Fzapped |
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Title: Re: First Post Post by echo on Apr 24th, 2003, 9:09am Hope it works for you. It has always amazed me the widespread differences in preventative meds and how they help some and not others. |
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Title: Re: First Post Post by SommelierCH on Apr 24th, 2003, 10:40am Welcome bro, You gots ta know your cycles by now, so if anything makes a dent in the routine, FUCKENEH, go for it. Thanks for sharing. However, like you said, “you are one of the few”, we can only wish to be so lucky. With that much “Cluster Time” under your belt, you will be an asset to this board. Keep on posting. David J. |
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Title: Re: First Post Post by Mark C on Apr 24th, 2003, 11:07am Welcome FZ, I too have tried Melatonin with some success for insomnia, albeight at a lower dose, 3mg. PFDAN's Mark |
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Title: Re: First Post Post by fzapped on Apr 24th, 2003, 1:00pm I take it back, Melatonin may not be doing it. Just got hit with a kip 7 at work. Fzapped |
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Title: Re: First Post Post by oringkid on Apr 24th, 2003, 1:06pm Well hell, sorry you got hit, especially at work, that sux! But hey! You did have those pain free days! Gotta look on the bright side! Welcome! There are lots of other things you will find here to try! Sherry |
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Title: Re: First Post Post by firebrix on Apr 24th, 2003, 3:10pm Welcome fzapped Pity 'bout the melatonin. Hope this cycle passes quickly. have you tried oxygen? firebrix |
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Title: Re: First Post Post by Drk^Angel on Apr 24th, 2003, 7:37pm Welcome to the board! Sorry that the beast is roasting your cranium in the pits of Hell to a nice charcoal black. Welcome to the family! Good luck! PFDAN...................................... Drk^Angel |
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Title: Re: First Post Post by Callico_Kid on Apr 24th, 2003, 11:22pm Glad you found us. Stick around. THere are plenty of caring people here who know what they are talking about that can help you find what yo need. Welcome to the family. jc |
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Title: Re: First Post Post by Charlie on Apr 24th, 2003, 11:40pm Welcome aboard fzapped. If you look around and do lots of reading, I guarantee you'll find things to help you handle this horror. Stick around and let us know how you're doing. Charlie |
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Title: Re: First Post Post by Edna on Apr 25th, 2003, 7:37am Welcome fzapped, and thanks for posting..........glad you found us here but sorry you had to. Hope your pf times in between become longer and longer.........use all there is here and you'll be sure to want to stick around with the rest of us. Keep us posted on your progress EDNA |
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Title: Re: First Post Post by Mikey on Apr 25th, 2003, 8:32am Welcome Fzapped, i've got the same problem with the kidney stones(past 25 now and 7 existing among both kidneys still to come out! Oh JOY!) and topomax messed me up with them too. As for the melatonin, sorry that it's seeming not too be the one to help. Good luck, and please keep us informed of any progress. Come back and see us ya hear? LOL!!! Mikey, ;D |
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