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Title: Newbie..wanted to say hello Post by Wolfmom on Apr 22nd, 2003, 1:34pm I have suffered clusters for over 10 years. I've tried all the medications..all the treatments..some help for a while..then BAM!..it's all back again. I have developed a fear of leaving home since the clusters have become cronic. I came here because I feel so alone..no one seems to understand what I feel inside because of this. My husband tries his best to understand..but I see the frustration on his face each time an attack occures. Lately..I've found myself praying for death. They say that men suffers mostly with clusters..lol..sometimes I feel like God has played a joke on me..I have 7 brothers and not one suffers any type of headaches..but the only female in this family does. I feel so hopeless. |
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Title: Re: Newbie..wanted to say hello Post by echo on Apr 22nd, 2003, 1:43pm You have come to the right place. Many of us, me included have prayed for any end to these demons of life. Possibly your husband could gain additional understanding and support by reading the supporters corner of the MB. Welcome to the family Wolfmom. Let us know more about yourself and your situation. We are here to listen, support and give the occassional push on the back side needed to deal with CH. |
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Title: Re: Newbie..wanted to say hello Post by suzy617 on Apr 22nd, 2003, 1:54pm Welcome Wolfmom, (curious bout that name) I'm sorry your dealing with such pain but you have found the right place, here with us. Please read all you can. Maybe there is something that you have not tried yet that will help. If there is not, then you still have us to help you deal with it. Stick around.... Suzy (whose boss keeps snagging her on the pc posting messages. ;D ) |
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Title: Re: Newbie..wanted to say hello Post by totka on Apr 22nd, 2003, 2:02pm Hi Wolfmom, Sorry for the pain you have, but I'm so glad you found us. Welcome. totka |
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Title: Re: Newbie..wanted to say hello Post by catlind on Apr 22nd, 2003, 2:23pm Hi Wolfmom, I'm so sorry to hear that things have gotten bad for you. You have found a great place to get support, hope and help. Read read and read some more. Ask any questions you have and make yourself comfie, you're home now. Cat |
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Title: Re: Newbie..wanted to say hello Post by Drk^Angel on Apr 22nd, 2003, 3:31pm Welcome to the board! Sorry that the beast keeps slammin' your cranium into a pile of dull, rusty, infected, white hot, acid covered, dirty razorblades, and shards of glass. Welcome to the family! Good luck! PFDAN.................................... Drk^Angel |
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Title: Re: Newbie..wanted to say hello Post by cathy on Apr 22nd, 2003, 3:47pm Hi Wolfmom and ......... W E L C O M E...... Cathy :) |
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Title: Re: Newbie..wanted to say hello Post by firebrix on Apr 22nd, 2003, 3:54pm Welcome Wolfmom! Please tell us more about that name! Glad you found the site, but sad that you need it. Maybe here you'll find something that helps. Wishing you PFDAN firebrix |
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Title: Re: Newbie..wanted to say hello Post by Roxy on Apr 22nd, 2003, 4:08pm Welcome Wolfmom! I hope this place and the people here can help you with your pain. I am chronic also, and you can't let it interfere with your enjoyment of life. Just load whatever your ammo is to fight the things......and go. Get out and enjoy your pain free times. Try to live as though you won't ever get hit again. I know the look of frustration on your husbands face well. I see it every time I look at my husband as I'm getting hit. That look of frustration is just because he wants to help you and can't. It is very hard on our supporters. Tell us what medications and treatments you have used. There are so many combinations and different methods.....you CAN find one that will help you. Do you have a good neuro? I saw in your profile that you are from Houston, my neuro is in Houston. He's not the warmest or most caring doc in the world, but he has helped with my meds, and gave me an 02 script. My main question is: Have you tried 02? If not.....please read up on it and try to get some as soon as possible. PFDAN, Tracey |
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Title: Re: Newbie..wanted to say hello Post by cbolony on Apr 22nd, 2003, 4:14pm Quote:
Wolfmom we all felt hopeless until we found this site.You could thank DJ for putting this great website up for clusterheads like us |
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Title: Re: Newbie..wanted to say hello Post by cootie on Apr 22nd, 2003, 4:17pm Hi Wolfmom....sorry abut yur situation and not wanting to go out of the house cuz of all this pain stuff.....you just mite find some new things to try on here.......so read up and stick around fer sure !!! Have learn'd lot myself on here Pam |
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Title: Re: Newbie..wanted to say hello Post by don on Apr 22nd, 2003, 4:33pm [quote]I came here because I feel so alone.[quote] Stay here and you'll never have to feel that way again Wolfmom. You gave birth to a wolf? WOW ! Inquiring minds want to know ! |
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Title: Re: Newbie..wanted to say hello Post by Wolfmom on Apr 22nd, 2003, 4:38pm Thank you everyone for such a warm welcome. Perhaps there is hope for me after all. |
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Title: Re: Newbie..wanted to say hello Post by Wolfmom on Apr 22nd, 2003, 4:41pm LOL@Don.....it's nice to see a sense of humor..been a while since I've had one. The name Wolfmom..comes from my love of wolves. I have been fighting for years to save these beautiful creatures.. |
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Title: Re: Newbie..wanted to say hello Post by don on Apr 22nd, 2003, 4:59pm Thanks wolfmom. You just totally blew my topic of conversation down at the Fraternal Order of Men With Hairy Backs Lodge meeting tonight. ................ You guys aint gonna believe this but I met this lady today and..................... |
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Title: Re: Newbie..wanted to say hello Post by Bonniegirl on Apr 22nd, 2003, 5:12pm :'(My God, I know all too well exactly how you feel. I, too felt so alone before I found this board. The people here,in general, kick ass, ;D and will hold you up when you feel like you're gonna crumble. I hope you have some pain free days and nites SOON. :-*-Bonniegirl |
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Title: Re: Newbie..wanted to say hello Post by oringkid on Apr 22nd, 2003, 5:38pm Welcome Wolfmom! Sorry you are suffering with this crap! But you have landed yourself in a whole nest of fellow CH'ers. Can't say I felt alone exactly before I found this place, but I sure did feel like a freak! When I finally was diagnosed, I was told that it was rare, and my being a female with it was even rarer! But coming here, I found I was not the only one and I was also not anywhere near being the only female! This place and the people in it will definitely help you in some way. Welcome, Sherry |
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Title: Re: Newbie..wanted to say hello Post by ShariRae on Apr 22nd, 2003, 6:18pm Welcome Wolfmom, Check out all the info here and ask questions. You wont find a better bunch of folks ready, willing and able to help. You are no longer alone :) Huggs Shari |
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Title: Re: Newbie..wanted to say hello Post by 9erfan on Apr 22nd, 2003, 8:55pm Welcome to the family Wolfmom...I'm glad you cleared up the confusion about you're name...I just thought you were really hairy! :-/ I know how you feel. I've felt so all alone many times during the past 18 years while battling this beast. The thing that made me feel better is the more time I spent reading this board...I found myself reading everyone's posts and saying to myself "wow, they get pain there too?"..."Hey, he/she feels like that when he/she gets a headache??that's how I feel!!", etc, etc...No matter what you have gone through with your clusters, whether it is physical, mental, emotional pain, there is someone on this board who has gone through the EXACT same thing! YOu will be amazed. NOBODY understands what we go through except the people on this board. Invite your husband to read some of the posts on this message board, maybe it will help him be more understanding. But who knows? I've been with my boyfriend for many years and it still stuns me when I'm in the bedroom trying to ride out a h/a and he comes in and goes "what's wrong?" I just want to say "WHAT'S WRONG???? HAVE I NEVER MENTIONED IN THE LAST FEW YEARS THAT I HAVE SOMETHING CALLED CLUSTER HEADACHES????HEELLLOOOO!!!" It must be all the drugs he did when he was younger...that's all I can think of. Anyway, didn't mean to be long-winded but did want to let you know that you are welcome....sometimes we get a littler ornery but just ignore us. We're generally a good group. Hope to see you post often. Virginia |
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Title: Re: Newbie..wanted to say hello Post by Callico_Kid on Apr 23rd, 2003, 12:35am Dear Wolfmom, Glad you found us. You are not alone. I thought i was for 25yrs till I found this board a year ago. What a godsend these folks were. We all kno what you are going through and can understand fully your pain and fear of going out. Stick around and read, read, read. One thing you need to understand. Being a clusterhead you are not normal. Normal is merely average, the best of teh worst and the worst of the best. The cream of the crap! Anyone who is a clusterhead and functional is far above normal. Wishing you PFDANs jc BTW Don, LOL!!! I come on here looking for relief when being hit and laughing like that hurts! :) That is a good hurt though. |
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Title: Re: Newbie..wanted to say hello Post by cluster0557 on Apr 23rd, 2003, 1:15am HI Wolfmom, I am glad you found us and I hope thru all our nonsense and our advice we can give you help and hope. You found the rightplace for support so pull up a chair tell us more and we will be happy to lend a sympathetic ear, our sympathies, and of course our collective support. Remember there is hope. We just need to find the darn rock it is under this week. :) |
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Title: Re: Newbie..wanted to say hello Post by echo on Apr 23rd, 2003, 3:44pm on 04/22/03 at 16:41:33, Wolfmom wrote:
Truly beautiful a n i m a l s. I once raised a Timberwolf whos mother was killed by a car. Had him from the ending of bottle feeding until about 6 months. Huge -- the wild was calling him back. He sure scared the hell out of the neighbors dogs and cats. |
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Title: Re: Newbie..wanted to say hello Post by Mark C on Apr 23rd, 2003, 4:01pm Welcome Wolfmom, Just remember....if you lie with dogs you just might get fleas! I have no idea what that is supposed to mean here....welcome!! PFDAN's Mark |
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Title: Re: Newbie..wanted to say hello Post by firebrix on Apr 24th, 2003, 3:16am O wow Echo! That is so cool. Good on you too Wolfmom! This must be most rewarding work! Hope you feel better soon; wishes for PFDAN coming your way! firebrix |
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Title: Re: Newbie..wanted to say hello Post by wlsio on Apr 24th, 2003, 5:48am Hi Wolfmum,I've been here three days,and what a difference it's made to me already.You will find it very helpful when you are dancing just knowing we are there with you. Good luck weare with you |
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Title: Re: Newbie..wanted to say hello Post by SommelierCH on Apr 24th, 2003, 8:09am Welcome Wolfmom, The combination of: lack of understanding (but, can you blame them, only we, know the perfect pain) and the need to be ALONE WITH YOUR PAIN, makes this Clusterheadache disease, a very lonely existence. I urge you to use our existence, here in Clusterville, to open up new dialogue with your husband, about what we go through. WE LOVE SUPPORTERS!!!!!!! He would be welcomed with open arms. We don’t know who you two are, it’s anonymous. This is not a part of your lives that he can ignore, the pain is all encompassing, and being chronic, there is no break. There is no one on earth that can understand what our pain is, except for another Clusterhead, that’s why this site is a miracle from God. I hope your pain is brief, but your stay is long. PFDAN, David J. ADDENDUM FOR THE BOARD: Just looking at the other side of things, if this site is a safe haven for all of you to share about problems, do you feel comfortable having your spouse/significant other (other than what?) checking in? |
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Title: Re: Newbie..wanted to say hello Post by CJohnson on Apr 24th, 2003, 8:32am on 04/24/03 at 08:09:14, SommelierCH wrote:
This should be started as a new topic. -Curtis |
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Title: Re: Newbie..wanted to say hello Post by catlind on Apr 24th, 2003, 9:08am on 04/24/03 at 08:09:14, SommelierCH wrote:
Sorry David, but there is no way I can buy into that statement. This site is a miracle from DJ. He set this site up and as far as I know he wasn't given any guiding instructions from God. Flame away if you must, but God or not, DJ gets the credit for this site. JMHO Cat |
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Title: Re: Newbie..wanted to say hello Post by SommelierCH on Apr 24th, 2003, 11:38am Catster, You, of all people? Of course it’s DJ. Have I ever sounded like a religious proselytizer in any of my posts? Don’t let any pre-conceived notions about God, fog your mind. When I refer to God, I refer to the universal force that enables life to exists. That spark of life, God’s touch, which separates us from rocks and plastics. An infinite dance of electro-magnetic particles, coalescing, for some unfathomable reason, to form life, not a rock. Same material, different result. The result this time was DJ. Unless I was uniformed, DJ doesn’t wish to be proselytized. This was my way of paying homage. Row, row, row the boat, David J. |
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Title: Re: Newbie..wanted to say hello Post by ZAIRA on Apr 24th, 2003, 3:49pm Hello Wmom and WELCOME :D, sometimes I’m wondering what harm we did to stand such pain. Try to be strong and never be demoralized. Now we are here for you, for helping you! :) All the best for you from Italy, Zaira :-* :'( |
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