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Title: Before the weekend hits...... Post by jonny on Apr 17th, 2003, 6:24pm and only those in pain are here to answer, I have a new question. Do you have a live in supporter? If not how do you deal all alone? Do you need help from your supporter or do you want to be left totally alone and why? If you ever went over a cliff in a van full of Chineese born Cuban circus midgets and got a CH would it piss you off when they wouldnt shut up as you were battling the beast? Ok, 4 questions.....sue me!!! ...................................jonny |
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Title: Re: Before the weekend hits...... Post by suzy617 on Apr 17th, 2003, 6:40pm I know, I know, I'm not in pain right now but just had to let you know that those damn midgets would hit the ground before the van did! Where do you come up with these things? ;D suzy |
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Title: Re: Before the weekend hits...... Post by andy on Apr 17th, 2003, 6:45pm Quote:
No, i live alone! Quote:
Im not alone ive got everybody on this board to help me deal with it! Quote:
Quote:
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Title: Re: Before the weekend hits...... Post by BobG on Apr 17th, 2003, 6:50pm Question 1.....yes Question 2.....see question 1 Question 3.....left alone Question 4.....what color is the van? |
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Title: Re: Before the weekend hits...... Post by jonny on Apr 17th, 2003, 6:56pm on 04/17/03 at 18:40:50, suzy617 wrote:
Where?......Carl D, he was the one that first came up with the Cuban midgets back in the day. He was/is chronic and use to whine worse than my fly wheel. Prick owes me $90 on a loan..... I donated a couple hundred to his med fund cause he couldnt afford meds. He called my house at 4 am as I was getting ready for work and said "Im going to kill myself"......I said "Good!. do it and that way you will never call me again at 4 am" He laughed and said sorry then hung up. .......................................jonny |
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Title: Re: Before the weekend hits...... Post by BobG on Apr 17th, 2003, 7:01pm 'ol Carl D had a strange sense of humor. Wonder if he ever got his cluster-book published. |
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Title: Re: Before the weekend hits...... Post by jonny on Apr 17th, 2003, 7:06pm Dont know, Bob....but he did tell me that me telling him to go ahead and kill himself saved his life.....I made him laugh is my guess. ...........................................jonny |
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Title: Re: Before the weekend hits...... Post by suzy617 on Apr 17th, 2003, 7:10pm So where is this midget loving guy Carl now? suzy |
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Title: Re: Before the weekend hits...... Post by eyes_afire on Apr 17th, 2003, 7:16pm No live in supporter. I deal with headbanging, gnashing of teeth, and trying to sell my soul to any and all deities imaginable... including Wotan. It ain't pretty. Geez, I'm still thinking about that last question, I'm stunned. --- Steve, one of many... |
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Title: Re: Before the weekend hits...... Post by jonny on Apr 17th, 2003, 7:17pm on 04/17/03 at 19:10:53, suzy617 wrote:
Last I heard was Detroit...Damn dude could play an electric guitar like you read about!!!! Even wrote a book somewhat about clusters. ..................................jonny |
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Title: Re: Before the weekend hits...... Post by K. on Apr 17th, 2003, 7:25pm 1. yes 2. I don't deal alone because I have you guys and that is really what saves me. 3. I like to be left alone. Don't like dancin' with the beast in front of the ones I love. 4. I probably wouldn't get a CH in that situation because I'd be to damn stressed out! jonny, you weirdo, I love ya! :-* Karen |
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Title: Re: Before the weekend hits...... Post by don on Apr 17th, 2003, 7:59pm 1. no 2. OK 3. Yes and no 4. They would all be little tiny balls of flame. |
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Title: Re: Before the weekend hits...... Post by Frank on Apr 17th, 2003, 7:59pm Quote:
I have five live in supporters: My wife- "Honey, if there is anything I can do please let me know". 13 y.o. daughter- "Bye dad, I'm going to my friend's house. Hope you feel better". 11 y.o. son (talking to 8 y.o. brother)- "shut the fuck up penisbreath... dad has a headache". 8 y.o. son (talking to 11 y.o. brother)- "why don't you shut the fuck up butthole". 5 y.o. son- "daddy, do you have your oxygen?". Quote:
I don't deal with it all alone. Sometimes I think that might be better. Like when I am home alone with the kids... and a Kip-10 hits. I think....uh,oh... this isn't going to be a good 45 to 60 minutes. Quote:
I do fine with my wife and five year old son. The other three are useless bums. Quote:
I would get out of the van before pushing the loud mouthed Chinese born Cuban circus midgets over the cliffs edge. Ok, 4 questions.....sue me!!! ...................................jonny [/quote] |
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Title: Re: Before the weekend hits...... Post by Ted on Apr 17th, 2003, 8:58pm 1) Nope. 2) By not feeling or asking "why me." 3) N/A 4) Never bothered me before. |
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Title: Re: Before the weekend hits...... Post by Charlie on Apr 17th, 2003, 9:33pm 1. Nope. 2. After I began to live alone, in peace an quiet, in the cold, and the dark, they went away. This is why I haven't seen daylight in 12 years. 3. Really hated having anything alive near me. 4. I'd probably have to be in the van. What I have to do to get a ride. http://www.netsync.net/users/charlies/gifs/hippybus.gif Charlie |
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Title: Re: Before the weekend hits...... Post by JDH on Apr 17th, 2003, 9:34pm 1. Yes my wife 2. No one should have to deal with this alone...the best support anyone could ever get is right here. 3. I don't want ANYBODY around me when I'm getting hit...too scary for most people. My wife has seen it all before but she knows I prefer to dance with myself. 4. Don't think I could even get into that van in the first place, midgets scare the hell out of me...especially the Chinese born Cuban circus midget variety. I dunno, some kind of weird phobia I guess. |
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Title: Re: Before the weekend hits...... Post by Callico_Kid on Apr 18th, 2003, 12:55am 1) Yes, m ;Dy wife of 26 years and 4 of my 5 kids. 2)N/A 3)I need support more in between HAs because the dread of what is going to happen in the next _____ (fill in the blank) is almost as bad as the HA. During the attack I want to be alone and run for the computer to get with you folks who encourage me and make me laugh. (I hate that part cause it hurts to laugh! ;D >:( ;D ) 4)Don't know any, nor have I had the opportunity! ;D jc |
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Title: Re: Before the weekend hits...... Post by cluster0557 on Apr 18th, 2003, 1:32am Do you have a live in supporter? Yes my wife and daughter. The have seen my beast and have helped tame it. The also have migraine and daughter gets beast Other part of support team are my Labrador retreivers, If not how do you deal all alone. I have had to when I travel on business. I have my head travel kit lot's of hot towels and pacing the halss late a night. Was arrested twice over the years for walking halls at 3 am. Do you need help from your supporter or do you want to be left totally alone and why? Most time I want to be left alone. Try as they might I can only hear "what can I do to help so many times" My labs aree great support aids. They come up and put cold nose on eye with fire. Something about it is soothing. If you ever went over a cliff in a van full of Chineese born Cuban circus midgets and got a CH would it piss you off when they wouldnt shut up as you were battling the beast? Hell no. Sound does not phase my beast. Play Styx, Queen or other oldies loud as hell and it will calm me. It would just piss me off being in a van with damn circus midgets........ |
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Title: Re: Before the weekend hits...... Post by MOBster on Apr 18th, 2003, 2:17am Hi Bro, 1) Yes 2) N/A 3) Left alone if possible. Can't deal with their pain as well as mine at the same time. 4) No, would only be pissed if there was an empty seat :o Best Wishes, Michael (MOB) |
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Title: Re: Before the weekend hits...... Post by TomM on Apr 18th, 2003, 8:33am 1) Da spousal unit. 2) 3) Usually am alone but sometimes call her to come sit with me. I just want her presence there to make sure I don't get the ammo. I am not kidding. 4) Circus midgets of any variety do not, in and of themselves, bother me. But the family...OMG! Then again, have you ever noticed how hairy thier little tiny butts...never mind. You gotta roll a cuban before you smoke it. ;D TomM |
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Title: Re: Before the weekend hits...... Post by Roxy on Apr 18th, 2003, 10:07am 1. Yes, when he's at home, and not off working. 2. Friends from this board, and my dogs. 3. Don't talk to me and I won't kill you. on 04/17/03 at 19:59:00, don wrote:
I agree with Don. I would hold them down, if he lit the match. ;D |
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Title: Re: Before the weekend hits...... Post by Big_Dan on Apr 18th, 2003, 10:24am 1) Nope.... Live alone (and on the road, most of the time)... :( 2) By doing face-plants into my bedroom door for an hour or so... :-/ 3) Left alone. Otherwise I'm liable to do some shit that would get me commited... :o 4) I'd slit my wrists lengthwise before I'd get into a van.... cuban circus midgets or not.... >:( -Big Dan |
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Title: Re: Before the weekend hits...... Post by echo on Apr 18th, 2003, 10:34am 1. Yes 2. Even with a live in supporter I turn to this family who truly understands what I am dealing with. 3. I want to be left alone to my own devices. I don't want to be lectured on the amount of abortive drugs I take to keep myself from causing self inflicted damage to various body parts. 4. Torch the little hairy butted bastards! Just and observation -- sometimes I think jonnys underware may be too tight. It causes lack of oxgenated blood flow to his brain. Once removed the onslaught of blood brings these little jewels to the surface. He's damn entertaining though. Rock on Jonny! |
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Title: Re: Before the weekend hits...... Post by CJohnson on Apr 18th, 2003, 12:15pm 1. Yes. My wife. 2. This is an interesting question, as, if you are reading it, then you are here @ CH.com, and thus never truly alone. 3. I don't want to even be acknowledged while I have a headache. I definately will not acknowledge others during a headache. The people who matter to me understand. 4. Yes. -Curtis |
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Title: Re: Before the weekend hits...... Post by 9erfan on Apr 18th, 2003, 12:39pm Jonny- You kill me!! ;D 1. No 2. My mom lives really close so if I need something she will come over but normally I prefer to ride it out alone. If my boyfriend is over, he usually leaves me alone too. It took him awhile to figure out to just ask once if I needed something and then disappear. 3. sometimes need supporter to take me to ER, or to get me an ice pack...(crushing the ice is TOO LOUD of a task for me to handle...I go to the other room). 4. I would kill the little bastards! Thanks for always keepin us entertained Jonny! Virginia |
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Title: Re: Before the weekend hits...... Post by TomM on Apr 18th, 2003, 3:29pm on 04/17/03 at 19:59:09, Frank wrote:
Frank--you're killing me. Great reply! TomM |
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Title: Re: Before the weekend hits...... Post by jonny on Apr 18th, 2003, 5:35pm I guess if im going to ask you guys questions I should at least answer them to. 1) No, support wise 2) Hide alone in my cave with my 02 3) Left alone, anything will mean the death of someone 4) Just hope I could light a smoke and get two hits off it before the smash ...................................jonny |
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Title: Re: Before the weekend hits...... Post by Bonniegirl on Apr 18th, 2003, 6:24pm 1. Yes, I have a live-in torturer, I mean, supporter. :( 2.Since I got screamed at during a 9-10, I now deal with it alone. ( I don't need a lousy manslaughter charge on top of my Hellish pain >:()I just grab ice, grind my eye on the windowsill, and try not to cry :( 3. I really don't need anyone's help when it's happening,just after, and I come here for that help, now. I don't like anyone seeing me during an attack. The kind of crap I've gotten is,"Why the hell are you acting so crazy? Hitting yourself isn't gonna help!" >:((Yeah, but socking you would ;D) 4.Those shorties would fly ;)(Midget or no, I like to be alone when I'm suffering) |
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Title: Re: Before the weekend hits...... Post by tanner on Apr 18th, 2003, 7:15pm #1 yes, thank god!!! #2 n/a #3 alone, outside, and on the water if i can. (why) because alone i can try to put muself in a different place/time without the jarring of of outside influence. #4 are the midgets males or females ;D i mean you've already driven off a cliff.......it couldn't hurt ;D tim |
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Title: Re: Before the weekend hits...... Post by catlind on Apr 19th, 2003, 9:35am 1) Yes. Hubby and 3 kids. Kids all have a task when I'm getting hit. Oldest son gets my meds (if I have any), daughter puts on the kettle and makes me a hot coffee, and my littlest gem sits on my lap waiting for the O2 bag to fill up and then squeezing it so mommy can get lots of ozygen ;) (it's sometimes hard to let them help, especially the 2 year old, but aborts their fear, and often hubby is away) 2) N/A 3) Alone if possible. Kids do their tasks then go to the tv room and stay out of the way (except the O2 man) Hubby just works on keeping the kids away and watches the front door so I don't try to leave and do something permanent. He's restrained me a few times. Only so much alone you can get with small kids around. 4) Circus midgets huh? Interesting... Oh wait, CH...right, ok, umm probably would have to let them hit the ground before me ;) That does not include the obvious of my family here. For me, clusterville is a given. Without it, none of the others would matter I'm afraid. Cat |
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Title: Re: Before the weekend hits...... Post by sailpappy on Apr 19th, 2003, 10:15am ;D ;D Jonny, I didn't read all the replys, so I hope I'm not repeating here, I know you said only those in pain, I have a live in supporter as you all know, I'm sure, but my slant on it is that all a supporter can do when your in the grips of the demon is ask, "Can I get you anything, is there anything I can do to help?" More times than not all you do is say no, or please leave me alone, or worse, you become almost abusive because you can't control your thoughts correctly! So, even with a supporter there ;they are helpless to do anything, "you are alone, completely and utterly alone during these attacks" I don't know about anyone else but I had to strive to keep my suffering hidden as to not worry all the Family, all the time. In the beginning I would moan and groan and yell"why me Lord, what did I do to desireve this? Oh God please just take me now! and stuff like that, one day I came out of the shower and restroom to find all the kids crying and my wife trying to explaine why I would say the things I did and I realized I had to silence myself or scar them forever. That actually helped, because I found if I didn't allow myself to get to that point mentally, not tense up every muscle in my body, grasp my hands, clinched so tightly I would cut myself with my own finger nails, not allow myself to say anything, no matter how bad the attack was, it lessened the overall time of the attacks. So I say to you My Friend---"We are all Alone in our anguish and pain" support helps after and before the attacks but you cannot rely on anyone to help stop these except yourself, although My wife could tell the instant I was starting to get a headache and go get me an Ice Bag or make my departing excuses for me. so that part they are invalueable for but the Pain is ours and ours alone to suffer! Happy Easter, I'm off the boile eggs and cook a Ham for the Family is in Miami at the zoo, Big Mom(Terri) and the Grandkids anyhow. Don't shoot any Wabbits you Waskles! Pappy http://www.gifs.net/animate/sungulls.gif http://www.gifs.net/animate/sailboat.gif PS. Sharie, I wouldn't eat that 12th egg in the picture you sent to me, It looked a little defective, it was already Cracked!!! LOL! Love Ya! |
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Title: Re: Before the weekend hits...... Post by Ted on Apr 19th, 2003, 10:35am on 04/19/03 at 10:15:03, sailpappy wrote:
But that shouldn't be minimized. That's a hell of a lot to have. Sometimes after an attack even the strongest people here want nothing more then to be held or even have someone to let some tears flow too. Or to know someone cares enough too notice it's coming before it hits, just for acknowledgement's sake. |
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Title: Re: Before the weekend hits...... Post by sailpappy on Apr 19th, 2003, 11:12am :o :o :o ::) ::)Ted, Your absolutely Correct, I didn't mean to minimize the affect of having a supporter at all, I have been blessed by a spouse that has always put me ahead of herself, because of my Clusters, After a bad cluster all I want is to lay down for about 20 minutes or so to recover! But I was mearly speaking of our suffering and the pain! Pappy http://www.gifs.net/animate/sungulls.gif http://www.gifs.net/animate/sailboat.gif |
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Title: Re: Before the weekend hits...... Post by jimbo on Apr 19th, 2003, 12:37pm #1 Yep, My wife and 2 boys, all of which are understanding and supportive. #2 NA after #1 #3 I have a supporter, but I'm not sure how wearing it will help my CH's. Anyway, I like to go freeballing whenever possible so I guess being alone would be my first choice. ;D #4 No it wouldn't piss me off at all. I would view the situation as an opportunity! I would throw the little bastards to the front of the bus to cushion the impact for me!!!!!!!!!! LMMFAO jonny, you crack me up.. Seeya, Jimbo |
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Title: Re: Before the weekend hits...... Post by Bonniegirl on Apr 19th, 2003, 1:32pm [quote author=jimbo link=board=general;num=1050621863;start=0#34 date=04/19/03 at 12:37:26] #3 I have a supporter, but I'm not sure how wearing it will help my CH's. Anyway, I like to go freeballing whenever possible so I guess being alone would be my first choice. ;D :PThanks alot dude, I love the taste of coffee shooting out my nose in the morning ::) You busted me up when I really needed it. PFDAN's for us all!!! ;)-Bonniegirl |
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Title: Re: Before the weekend hits...... Post by jimbo on Apr 19th, 2003, 2:24pm No problem Bonniegirl! I'm just glad I could help out. ;D ;D ;D Seeya, Jimmyfloppinsack ;) |
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Title: Re: Before the weekend hits...... Post by ZAIRA on Apr 19th, 2003, 2:46pm 1. Yes 2. see question 1. 3. With the beast I prefer to isolate myself in order not to create sufference to all my supporters :-/ 4. I don’t understand :o ??? ... this question is difficult for my english... ;D ;D ;D ;D!! Zaira ;) |
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Title: Re: Before the weekend hits...... Post by Ann on Apr 21st, 2003, 8:47am #1 yes #2 see question 1 #3 I'd rather be alone. Why? who the hell needs to see that? #4 If'n they aren't talking to me, I could care less. The minute they ask me something, they're gone! ;D Sorry I'm late answering the questions! Hope everyone had a good easter. hugs Ann |
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Title: Re: Before the weekend hits...... Post by NotH20 on Apr 21st, 2003, 9:04am Great questions Jonny - you're brain gears must really be smokin' now.... #1 - yes :) #2 - n/a #3 - My supporter actually gives me the injection so I like for her to be there. When I'm by myself I use the injection unit and that hurts. I like for my supporter to be there if possible because I feel a sense of inner comfort and that always helps me remain calm. For me the CH is worse if I get extremely upset (the "why me Lord" comments). #4 - I'd use duck tape before I even got in the van ;) Mia |
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Title: Re: Before the weekend hits...... Post by brain_cramps on Apr 21st, 2003, 2:21pm 1. No (did at one time, but scared the shit outta her) 2. try not to wake up anyone, neighbors included. (They have gotten some cheap, live entertainment though.) just sit and grin and bear it. 3. irrelevant (see above) on 04/19/03 at 14:46:50, ZAIRA wrote:
Me |
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Title: Re: Before the weekend hits...... Post by Ree on Apr 22nd, 2003, 11:36am Jonny I love when you start these threads to get us back to being a functioning CH board...sometimes we forget why we are here... I want to say sorry to all of you, for I know that alot of you dont have supporters and if I could be there I would for all of you, even just to say let me know if you need anything... (sounds like a cool small business...$$$$$$$$~~~ sorry got away from my thoughts for a second there). Tom M.... Dave feels that way too some of the time when it comes to the despiration of an intese battle he likes when I am there or even on the other end of the phone in silence... focusing on something other than yourself helps too like you said Pappy supressing your actions is such a brave thing to do... we had a few of those moments here before Dave could get control over the Beast and it was like living with the Dr Jekyll monster... kids never knew who was coming home. I think all of the sufferers here are heroes... and I know lots have lost relationships because of Clusters and that isnt fair either... Love and Peace to you all I am in awe in all of you... Ree |
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Title: Re: Before the weekend hits...... Post by sailpappy on Apr 22nd, 2003, 11:43am ;D ;D Ree, Thanks for your understanding, and I'm sorry that you have to be able to understand, I knew you and Margi would be the two that of all people here would understand my contintion in my post! Love Ya ! Pappy http://www.gifs.net/animate/sungulls.gif http://www.gifs.net/animate/sailboat.gif |
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Title: Re: Before the weekend hits...... Post by echo on Apr 22nd, 2003, 12:42pm What the hell weekend are we talking about? ??? |
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Title: Re: Before the weekend hits...... Post by suzy617 on Apr 22nd, 2003, 12:49pm Echo, DUH! Of course, must be talkin bout Memorial Day. Geez, get with the program, huh? ;D Suzy :-* |
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Title: Re: Before the weekend hits...... Post by echo on Apr 22nd, 2003, 12:53pm on 04/22/03 at 12:49:08, suzy617 wrote:
I stand corrected! ;D ;D Nag nag nag 8) |
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